American Association of Kidney Patients
American Association of Kidney Patients
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National Gout Awareness Day: A Closer Look at Gout and the Kidney Disease Connection
National Gout Awareness Day is observed annually on May 22nd to increase awareness about gout, a painful condition that affects approximately 8.3 million Americans. It is important to note that gout can lead to kidney disease, and having kidney disease can increase the risk of developing gout.
During this upcoming AAKP HealthLine webinar, AAKP and our allied partners at the Alliance for Gout Awareness (AGA) will discuss the causes and symptoms of gout, offer advice on effectively managing the condition, and highlight our joint efforts to reduce the stigma associated with gout. Our goal is to ensure that individuals impacted with this condition receive the necessary care and support they need to manage their condition and live healthier lives.
Moderator:
Jerome Bailey
Director of Patient Engagement & Advocacy
American Association of Kidney Patients
Speakers:
Josie Cooper
Executive Director, Alliance for Gout Awareness
David R. Mandel, MD
Board Certified Rheumatology, Retired
Kent Bressler
AAKP Board of Director
AAKP Ambassador
Kidney Transplant Recipient
As the oldest and largest, independent kidney patient organization in the U.S. - AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement, and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options. Learn more at www.aakp.org.
Переглядів: 78

Відео

Government Determinants of Health: Misalignments in Regulatory & Payment Determine Patient Access
Переглядів 4214 днів тому
AAKP Kidney Patient Consumer Policy Roundtable: The Critical Need to Overcome Government Determinants of Health (GDoH) Discussion Topic: Misalignments in Federal Regulatory and Payment Decisions Determine Patient Access to Vital Innovations Panelists: • Laura A. Williams, MD, MPH, Chief Medical Officer, Ardelyx, Inc. • Paul T. Conway, Chair of Policy and Global Affairs, American Association of ...
Are You O-K+? The Importance of Potassium Management & Kidney Disease (2024)
Переглядів 1,2 тис.21 день тому
AAKP is excited to lead the charge for the fifth annual “Are You O-K ” campaign, which aims to increase awareness on the harmful effects of high potassium (hyperkalemia) on individuals with advanced chronic kidney disease (CKD). National High Potassium Awareness Day falls on May 1 (5.1) each year. We invite you to join us for AAKP’s National High Potassium Day educational webinar, where you can...
AAKP HealthLine: Advancements in Kidney Transplant Research and Innovation
Переглядів 195Місяць тому
In recognition of National Donate Life Month, AAKP is pleased to host a Health webinar on “Advancements in Kidney Transplant Research and Innovation.” This event will feature presentations from allied research and industry partners who will share insights into the innovations and technologies shaping the future of kidney transplantation, ultimately enhancing patient outcomes, quality of life, a...
Calling All Researchers! Learn about funding opportunities available now through the CDMRP
Переглядів 75Місяць тому
Attention all researchers! AAKP is pleased to host our allied partners at the Department of Defense Congressionally Directed Medical Research Program (CDMRP) to provide insight into its Peer Reviewed Medical Research Program (PRMRP). Join us for the AAKP HealthLine webinar to discover the funding opportunities available through PRMRP. Get ready to dive into a comprehensive overview of the progr...
AAKP HealthLine: The Essential Role of Diet in Supporting Kidney Health
Переглядів 3452 місяці тому
March is National Kidney Month, a time dedicated to raising awareness about the silent killer that affects nearly 40 million Americans. Living with kidney disease requires careful attention to food and nutrition, as they play a crucial role in overall health and disease management. Understanding what foods are suitable for individuals with kidney disease is essential for effective management of...
The Body’s Keeper: A Social History of Kidney Failure and Its Treatments, Interview with Dr. Kimmel
Переглядів 1272 місяці тому
Fireside Chat: The Body’s Keeper: A Social History of Kidney Failure and Its Treatments An interview conducted by Paul T. Conway, Chair of Policy and Global Affairs, American Association of Kidney Patients; former Chief of Staff, U.S. Department of Labor; former dialysis patient; 26-year kidney transplant patient with Paul L. Kimmel, MD, MACP, FRCP, FASN; Clinical Professor of Medicine, Emeritu...
Empowering Hope: Shining a Light on Rare Kidney Diseases
Переглядів 1253 місяці тому
Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. AAKP's allied partner, the Rare Kidney Disease Foundation, provides support and resources to families affected by rare genetic kidney diseases. They help connect families w...
Government Determinants of Health: HHS/CMS Policy Change that Disrupted Tx Diagnostic Testing Access
Переглядів 473 місяці тому
AAKP Kidney Patient Consumer Policy Roundtable: The Critical Need to Overcome Government Determinants of Health (GDoH) Discussion Topic: Transplant Diagnostic Testing - The 2023 HHS/CMS Policy Change that Disrupted Transplant Professionals and Medicare Transplant Patients and Contradicted Stated Presidential Commitments Moderator: Edward V. Hickey, III, USMC, President, American Association of ...
Government Determinants of Health: Decades-Long Effort to Jumpstart the Next Generation of Tx Drugs
Переглядів 603 місяці тому
AAKP Kidney Patient Consumer Policy Roundtable: The Critical Need to Overcome Government Determinants of Health (GDoH) Discussion Topic: The Long and Winding Road...FDA’s Decades-Long Effort to Jumpstart the Next Generation of Transplant Drugs Moderator: Edward V. Hickey, III, USMC, President, American Association of Kidney Patients (AAKP); Chair, AAKP Veterans Health Initiative; former U.S. Co...
Government Determinants of Health: Transformation Unfolds Across America’s Transplant System
Переглядів 563 місяці тому
Government Determinants of Health: Transformation Unfolds Across America’s Transplant System
Government Determinants of Health: Earlier Kidney Disease Detection and Timely Intervention
Переглядів 1393 місяці тому
Government Determinants of Health: Earlier Kidney Disease Detection and Timely Intervention
Government Determinants of Health: Misalignments in Regulatory & Payment Determine Patient Access
Переглядів 1893 місяці тому
Government Determinants of Health: Misalignments in Regulatory & Payment Determine Patient Access
A Game-Changer in Vascular Access: Unveiling the IN.PACT AV Drug Coated Balloon
Переглядів 2143 місяці тому
A Game-Changer in Vascular Access: Unveiling the IN.PACT AV Drug Coated Balloon
Advocacy & Engagement Training: Building a New National Veteran Ambassador Network
Переглядів 244 місяці тому
Advocacy & Engagement Training: Building a New National Veteran Ambassador Network
Advocacy & Engagement Training: The High Value of Your Lived Experiences in Research
Переглядів 284 місяці тому
Advocacy & Engagement Training: The High Value of Your Lived Experiences in Research
Advocacy & Engagement Training: On the Record: Top Tips for Talking to Reporters
Переглядів 184 місяці тому
Advocacy & Engagement Training: On the Record: Top Tips for Talking to Reporters
Nurturing the Mind, Body, and Well-being Connection
Переглядів 1484 місяці тому
Nurturing the Mind, Body, and Well-being Connection
Metabolite Found in Urine Predicts Kidney Failure from Type 2 Diabetes 5 to 10 Years Early
Переглядів 1396 місяців тому
Metabolite Found in Urine Predicts Kidney Failure from Type 2 Diabetes 5 to 10 Years Early
Keeping Your Dialysis Access Site Healthy
Переглядів 1307 місяців тому
Keeping Your Dialysis Access Site Healthy
Patients Re-Define Shared Decision Making (SDM) for Kidney Treatment
Переглядів 277 місяців тому
Patients Re-Define Shared Decision Making (SDM) for Kidney Treatment
Spotlight on Rare Diseases: Stakeholders Respond to Organized Patient Voices
Переглядів 287 місяців тому
Spotlight on Rare Diseases: Stakeholders Respond to Organized Patient Voices
Advocacy & Engagement Training: Building a New National Veteran Ambassador Network
Переглядів 167 місяців тому
Advocacy & Engagement Training: Building a New National Veteran Ambassador Network
Sepsis Infection: The Serious Threat Posed to Kidney Patients
Переглядів 937 місяців тому
Sepsis Infection: The Serious Threat Posed to Kidney Patients
Understanding the Signs, Symptoms, and Treatment for Renal Vasculitis
Переглядів 1407 місяців тому
Understanding the Signs, Symptoms, and Treatment for Renal Vasculitis
Impacting Community Health at the Local Level with National Implications
Переглядів 77 місяців тому
Impacting Community Health at the Local Level with National Implications
Decade of the Kidney™: Innovations in Transplantation - Emerging Therapeutics to Meet Patient Needs
Переглядів 547 місяців тому
Decade of the Kidney™: Innovations in Transplantation - Emerging Therapeutics to Meet Patient Needs
Under the Dome: Issues and Policies Impacting Patient Consumer Choice and Access to Treatments
Переглядів 767 місяців тому
Under the Dome: Issues and Policies Impacting Patient Consumer Choice and Access to Treatments
The High Value of Your Lived Experiences: Why Researchers Want and Need Patient Involvement
Переглядів 167 місяців тому
The High Value of Your Lived Experiences: Why Researchers Want and Need Patient Involvement
Advocacy & Engagement Training: On the Record: Top Tips for Talking to Reporters
Переглядів 207 місяців тому
Advocacy & Engagement Training: On the Record: Top Tips for Talking to Reporters

КОМЕНТАРІ

  • @LorneCo
    @LorneCo 12 днів тому

    This is amazing, I never wanted a fistula and was lucky enough to get a kidney transplant before it happened. But this is great I headed the idea of the way my arm would look.

  • @ZihadZihad-bu6pp
    @ZihadZihad-bu6pp 25 днів тому

    🇧🇩😎😎❤️❤️❤️❤️❤

  • @ZihadZihad-bu6pp
    @ZihadZihad-bu6pp 25 днів тому

    🇧🇩🇧🇩🇧🇩🇧🇩😎😎😎❤️❤️❤

  • @darryncherry610
    @darryncherry610 28 днів тому

    is this project stalling due to funding?

  • @lunguteodor7346
    @lunguteodor7346 28 днів тому

    For those who are right now on dialysis , how many hopes exist? We need a solution now, before is too late. We need a bioartificial kidney or a xenotransplantation very soon. Bioartificial kidney will be avaible for pacients at the end of the decade or it will be just star the trials for humans?

  • @hugosfan2412
    @hugosfan2412 28 днів тому

    I need tomato sauce 😢 occasionally I can eat pizza

  • @eileenvillanueva3580
    @eileenvillanueva3580 Місяць тому

    Why the sugar?

  • @HopewithJonathanPodcast
    @HopewithJonathanPodcast Місяць тому

    Hello

  • @user-wn1yk4en3m
    @user-wn1yk4en3m Місяць тому

    I need kidney for myself ellon max must invest in kidney research projects

  • @lisabaxter7786
    @lisabaxter7786 Місяць тому

    😊😢😮😂❤ thanks sharing is caring health is Wealth shared

  • @Arcreactor7
    @Arcreactor7 2 місяці тому

    Sherni power of mom

  • @nabajyotidas3474
    @nabajyotidas3474 2 місяці тому

    10 milion money need go for ud government.if dr suvo roy you know what will the work your innovation established you will do. Bank lone, your project whole world are appreciate you. Us Department also help you.

  • @benhawkins7391
    @benhawkins7391 2 місяці тому

    *Promo SM* 😴

  • @user-lm8sg5qp6h
    @user-lm8sg5qp6h 2 місяці тому

    Its my prayer to all the governments of world to offer fund needed to conclde the research work of artificial kidney, so that it will come to market earlier for a big respite.

  • @lisabaxter7786
    @lisabaxter7786 2 місяці тому

    Shared

  • @lisabaxter7786
    @lisabaxter7786 2 місяці тому

    Sharing is caring health is Wealth ❤

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 2 місяці тому

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 2 місяці тому

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 2 місяці тому

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @JoseBecerra-ci7kh
    @JoseBecerra-ci7kh 2 місяці тому

    I will not recommended Dr. Victor Gura from BEVERLY HILLS is a MENACE of SOCIETY. never trust Dr. Gura with your HEALTH. Also unprofessional MASTER of MIND FRAUD MANIPULATIVE PRACTICE. @CedarsSinai @Ucla #kidneys #Health

  • @user-ih5rd1ts2h
    @user-ih5rd1ts2h 2 місяці тому

    God bless you guys

  • @OceanRoadbyTonyBaker
    @OceanRoadbyTonyBaker 3 місяці тому

    Impressive people. I am happy and grateful for their engagement in keeping me alive.

  • @streetrodder1496
    @streetrodder1496 3 місяці тому

    People need this to save lives!

  • @atomicvagrant7686
    @atomicvagrant7686 3 місяці тому

    Defecath will no doubt protect hemo patients from infections. I have family that could have benefited from this

  • @patriciamillar5496
    @patriciamillar5496 3 місяці тому

    Any new news?

  • @CiderPang27
    @CiderPang27 3 місяці тому

    I have kidney problems and when I spoke to a nurse practitioner and told her about constantly itching she said and I quote ‘kidney problems wouldn’t make you itch’. Yes, this is the state of the good old NHS in the uk. Getting so sick of not sleeping due to itching it’s getting to the point I might as well not bother going to bed.

    • @tracyisland65
      @tracyisland65 2 місяці тому

      i also have CKD and for a number of months ive had the constant itching, sometimes its very distressing. I went to GP about the itching and was prescribed anti-histimimes which help a bit but not totally. after speaking with colleagues the GP still doesnt know why I am itching. I am in England, UK.

    • @tracyisland65
      @tracyisland65 2 місяці тому

      i also have a heart condition due to heart attack i had 4 years ago, ive been told by another GP i have inflamation in my body, something about immune response i thnk.

  • @MostaphaHabibAllah
    @MostaphaHabibAllah 3 місяці тому

    Cost ?

  • @ajoydey636
    @ajoydey636 3 місяці тому

    How can I help from you ?

  • @robertzubiate3026
    @robertzubiate3026 4 місяці тому

    Hi American Association of... how are you doing hun!!! My name is Kyle it nice to meet you ❤❤❤💖💖💖🥰🥰🥰

  • @nabajyotidas3474
    @nabajyotidas3474 4 місяці тому

    How many days we are wating??????? ???? After 3-4 year organ chip is innovation.....

  • @elizabeth5376
    @elizabeth5376 4 місяці тому

    Very informative

  • @ronl.magnus6833
    @ronl.magnus6833 4 місяці тому

    I just want to salute Mr. Kent Bressler for being such a great advocate for Kidney Justice in this country. All those who suffer from this dreadful disease of Kidney Failure are blessed to have his aggressive assistance and support! Thx so much Mr. Bressler, God bless you! Ron L. Magnus, Esq.

  • @foodman1993
    @foodman1993 4 місяці тому

    When will 3.0 will come to market

  • @user-rd9lq9le1w
    @user-rd9lq9le1w 4 місяці тому

    On site surprise inspection required for Collective healthcare facility at 1351 old freehold rd. Toms River. NJ. 08753 ocean county and 4 plaza dr. Same town. Poor covid information shared in facilities housing covid patients, Kidney dialysis patients with ESRD.

  • @user-rd9lq9le1w
    @user-rd9lq9le1w 4 місяці тому

    I have pkd, I'm in collective care rehab. Facility on 1351 old freehold rd., toms river n.j. with Radical Complaint Regarding Current civil strain and in patient, transporter (emt) care. This facility is highly neglectful of all patients,. Covid patients rooms are not isolated. These rooms are tagged by loose leaf printed notice not-visable to eye of passerby. Word has has it that covid is not here but obviously it is. This cite ignores patients requests for medication , bathroom care, wound care as prescribed by doctor. Again, I have a rejection on my transplanted liver (2011) surgery, and need for new kidney d ue to PKD/ liver. I have wounds, swollen feet. A sore b on butt. Thus facility's aide told me he was sleeping that I we oke him during a shift to tend to my care. He said he works 2 jobs: child care at his home for his kids then at facility as t night. He came in sick today because he needs the money. For example x I save Bern ringing my RN call bell for 2 hours. 1 rn is in front of my room. 2 aides flock each side of her...I hear 2 alzheimer patients near this medically trained group. Neither b patient is receiving care. The rn told her yo be patient she is hoping to bath room. Kit c hen is lax in kidney diet options. Prices are standard, no discounts. My dialysis center needs to get me permission to sit in comfortable chair so I can complete my 5 hour session. Right now, i can only sit for 2 hours, due¹ to chronic abdomen pain, bed sore too. Please have surprise visit to facility with reimbursement for care, min 4 weeks per patient.

  • @wendyrees8775
    @wendyrees8775 5 місяців тому

    I just want to know ,why I itch at night Not how your docter got his knowledge.

  • @marymcmullen5644
    @marymcmullen5644 5 місяців тому

    Wheat, flour and bran are a no no for kidneys

  • @anshudhiman8539
    @anshudhiman8539 5 місяців тому

    Pls scientists and American Government Kidney patients cant wait for this Artificial Kidney.Pls Pls pls pls pls pls help us

  • @markgelinas8114
    @markgelinas8114 5 місяців тому

    When will it be made available?

  • @profdrkamalkrishnabanikmda3824
    @profdrkamalkrishnabanikmda3824 6 місяців тому

    Direct Action!!! #BurnoutPreventiveMeasures Yoga It Keeps Bodily Fit

  • @gecko2716
    @gecko2716 6 місяців тому

    from the World archives of Kidney disease alternatives before surgery consider Dandelion Tea from Symingtons of Scotland a famous well known product for flushing Kidneys and Livers...

  • @imissyoumahgift
    @imissyoumahgift 7 місяців тому

    He is a Bangladeshj Doctor

  • @foodman1993
    @foodman1993 7 місяців тому

    When artificial kidney get human trial

  • @dianaarmstrong8820
    @dianaarmstrong8820 7 місяців тому

    My son is a subject in the Prospera research project at UCLA. Being part of this project just saved his kidney. Two years after receiving his living donor kidney (from me,) one of his blood tests indicated that he was going into rejection. He had his blood filtered and some other treatments. He was in the hospital for a total of two weeks, and the treatments stopped the rejection. Fortunately, his rejection was caught early, due to the Prospera early detection program, and he left the hospital with minimal kidney damage.

  • @swatigarg7161
    @swatigarg7161 7 місяців тому

    This decade end of kidney disease

  • @swatigarg7161
    @swatigarg7161 7 місяців тому

    When will artificial kidney come true

  • @donnasatterlee7993
    @donnasatterlee7993 7 місяців тому

    Excellent program ! I recommend everyone watch this if possible. I was with My daughter who had several episodes of sepsis while going thru dialysis and kidney failure process. I loved both the nurse educational explanation,to advocate and be aware and address early as possible and I loved the patient description of her experience and her clear description of the coldness and how quickly and thoroughly she experienced this.

  • @janedoe9421
    @janedoe9421 8 місяців тому

    Phosphorus binders can be effective. Whats happening is with high phosphorus levels in your kidneys, it means microscopic bone fragments are floating around in your blood stream causing bone fragments to build up in arteries, veins and your heart. This is also the cause of under the skin itch. Ask your dr to test your phosphorus level in your routine blood work. If it's high then ask for a phosphorus binder, it binds up these microscopic bone fragments and you will poop them out. I speak from experience and I take 1 binder 3 times a day at the beginning of my meals. Also eat no or low phosphorus foods. I think this guy is talking more bull than necessary. Do your own research.

  • @trishsmithdebrett4447
    @trishsmithdebrett4447 9 місяців тому

    Am i the only one out there who suffers crazy itching episodes everytime i swim or have a bath or sweat so that my skin is damp !!!! The ABSOLUTE ONLY thing that helps and is a complete God send is the specific antihistamine LORATADINE , try it ! You wont be disappointed 😅 My itch is because i take a daily dose of Tramodol and pregabalin both of which i take daily and have been for the past 10 years 😢

  • @lisabaxter7786
    @lisabaxter7786 9 місяців тому

    Very creative Fantabulous way cool sharing is caring shared I am an AAKP Ambassador as well 😊❤😂😮😢😅