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I watched an earlier video where she said she went through egg freezing

Thank you so much! Wishing you the best :)

Yes definitely you can reach me at mysickledcells@gmail.com. Lets chat!

I am happy to hear your skin is doing better! I found mine was really bad for a few months but then cleared up and was nicer than before!

Yes definitely, I'll work on an update video soon :)

AMEN! Thank you so much!

Thank you so much! God truly is so good! Hope you are doing well :)

Any updates?

I'm so happy to hear that my videos are helpful :) We thank God for this amazing opportunity He has given you. I pray that He keeps you and guides you throughout. Wishing you the best! Feel free to reach out, if you need someone to talk to!

My Sickled Cells, first off, it is so sweet and kind of you to want to take time and chat with me. Thank you for doing that for me. I will most definitely reach out to you. I know my husband will be thankful as well especially since moving to Atlanta I had no one to talk to about my insecurities about this. Waiting really puts your mind through so much wondering. Like, is it really going to happen or why haven’t they find a match yet, even though I know it takes time and that God will never take something that is for me away, but I am human.

Amen God is good all the time! I pray that you will have the opportunity to receive stem cell transplant or any sickle cell treatment that works best for you :) hope you are doing well and staying healthy!

Awee everytime I watch it I find myself with tears of joy! Thanks for the love :)

Thank you, hope you are doing well! It was done at the Tom Baker Cancer Centre.

Thank you so much :) that is so nice of you to say! My day is made!

We were a full 10/10 match, same mom and dad

I'm not too sure of the price, in Canada it is covered under our health insurance.

Thank you so much :) its definitely coming back nicer than I expected!

Yeah it has the potential to cure sickle cell! I was fortunate and am officially sickle cell free!! I was an inpatient for about 2 weeks! Then was discharged but had hospital appointments every 2-3 days for about 100 days.

thank you very much :)

Heyy I had my stem cell transplant on Nov 9th 2017! Wishing you the best of luck <3

How are you doing? Blessings upon you!

I am doing well thank you, getting better slowly but surely! Hope you are doing well @@berniecole5757

Hey when are you having your stem cell transplant?

Awe thank you :) I think for everyone the process is a bit different. For me I was only considered after I exhausted all other options. Red cell exchange and hydroxyurea were no longer helping. After my sisters persistence, my hematologist eventually considered me and did HLA testing (which is the matching process for myself and my donor) then sent in a referral to the BMT physician. Yes my older sister was a 10/10 match thankfully. I posted a few videos outlining my post transplant experience, take a look at those :) there is just a lot of side effects to list. Wishing you and your baby the best on this journey to health! Please let me know if there is anything else you need!

My sister did it and someone actually reached out to us and let her know but speak to her Hematologist (sickle cell ) doctor ask them how you can get it started but I’m also going through it pretty soon so I’ll tell you what you need to expect: from someone who has it 13 years and my mom dealt with it for 19 almost 20 years and it will be hard to see her in pain but you’ll have to find ways to help her for me I was taking pills at 5 had to take several medicines to keep the pain down but but since she’s to young theyll be other ways I also did transfusions to keep it down they’ll be times out of no where waking up in the middle of the night in pain I hope this helped you but it’s so emotional for me I had to reply sorry for keeping you so long if you read this

@@mysickledcells wow. Im so happy for u..pls what is d name of d hospital that did d transplant as i have someone i need of step cell transplant.

Thank you very much :) I had it done at Tom Baker Cancer Centre in Calgary Alberta

May I ask what was the cost?

Hello hope you are doing well, sorry about my delayed reply I must have missed this comment. I am unsure about the cost of this process as in Canada it was covered by my health insurance.

Thank you so much :)

sooo horrible hahah

thanks so much :)

Diaspora Afrikan Renaissance Channel Thank you! Yes the chemotherapy and radiation definitely can affect fertility. At this point I'm not too sure what effects I will experience but I froze some eggs prior to transplant just in case. Egg preservation was definitely a long, hard and expensive process but worth the peace of mind now.

Also what’s a transplant binder?

Hey sorry about the delayed reply. But the metallic taste is as a result of the chemotherapy. Because it destroys your rapidly dividing cells, your mouth becomes quite raw and you lose your taste buds. I was just told that the destruction of those cells just leaves you with a weird taste in your mouth. But it eventually went away as my taste buds and mouth began to repair! Also a transplant binder is just the binder of information given by the doctor for your to review prior to treatment. It also is a place were you can keep track of your daily meds or side effects you experience during transplant and until the 100 day mark!

Thank you so much for the love and support! I will definitely try my best to get them up quicker! You're such a good sister but definitely show her and feel free to contact me with any questions! I'm on instagram @mysickledcells

My Sickled Cells Thank you very much!!

Thanks for the support!

Michelle Patterson Nipp thx so much

She is in Canada, so the cost of the procedure is covered by our universal health care program. I am sure there are other cost associated with relocating for the procedure, but I am not sure of the details.

Sorry about the delayed response. But yes I am in Canada so the treatment itself is covered. I had to temporarily relocate to a different city with my mom (caregiver) so the costs associated are more for accommodation, transportation, food and daily living.

My Sickled Cells ok thank you so much for getting back to me.

Thank you very much! Immediately after not that well but the next day I'm usually okay. Do you have an access device or do they use a temporary line? For me since getting an IVAD it makes my treatments significantly shorter and I feel alot better sooner!

Thank you so much for your kind words :) finally put up a new video! check it out ua-cam.com/video/HTcLwgLENHI/v-deo.html

Estefany Bonilla thanks so much :) I'm excited to get to know my fellow sickle cell warriors! Looking forward to seeing more of your videos!

Advocate 4 Sickle Cell can I get your instagram?

Advocate 4 Sickle Cell my current instagram is reveee, I just made one for my channel but haven't posted anything yet it's mysickledcells . Check them out I'll definitely follow you!

Sure, its ms_particulier