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A Bigger Life
United Kingdom
Приєднався 16 лип 2019
A stoma shouldn’t define you, it is just a small part of a bigger life.
We have developed an ostomy community on abiggerlife.com to create the opportunity to connect with other ostomates and clinical advisors to share experiences about living with a stoma.
These videos are just a part of the information and support available on A Bigger Life; if you like what you see, visit the community and get involved on www.abiggerlife.com
We have developed an ostomy community on abiggerlife.com to create the opportunity to connect with other ostomates and clinical advisors to share experiences about living with a stoma.
These videos are just a part of the information and support available on A Bigger Life; if you like what you see, visit the community and get involved on www.abiggerlife.com
Recovery from my Ostomy Surgery
Amy has had her ostomy for a decade. In this video blog, she shares her experience on recovering from ostomy surgery.
Amy has discussed her recovery from stoma forming surgery on the A Bigger Life Community!
You can get in touch with Amy and find many more posts like this on the A Bigger Life Community!
community.abiggerlife.com/
Amy has discussed her recovery from stoma forming surgery on the A Bigger Life Community!
You can get in touch with Amy and find many more posts like this on the A Bigger Life Community!
community.abiggerlife.com/
Переглядів: 14 882
Відео
Ostomy medical terms explained
Переглядів 4183 роки тому
There are many ostomy terms that will be new to you. Marie shares a list of medical terms you may come across during your ostomy journey. It will help you understand some of the words that you will hear from your stoma nurse.
Guide to what comes in the box along with your stoma pouches
Переглядів 5833 роки тому
Do you know how to use all the items in your pouch box? Marie gives a quick explanation on what each is used for and how they help with getting the best possible pouch fit.
How having a stoma has impacted me
Переглядів 2,1 тис.3 роки тому
Amy has discussed her recovery from stoma forming surgery on the A Bigger Life Community! You can get in touch with Amy and find many more posts like this on the A Bigger Life Community! community.abiggerlife.com/
Take control of your stoma, and change how you feel
Переглядів 5213 роки тому
Catch up on our live session from our Clinical Advisor, Marie McGrogan who was joined by special guest, Bronagh Starrs, Psychotherapist, and Luciana Podschun, an ostomate for 5 years. They discussed the feelings of loss of control following stoma formation, and how, like Luciana, you can ultimately feel in control and therefore change how you feel about your stoma.
Join Luciana live on Facebook - Wednesday 9th June at 2pm
Переглядів 463 роки тому
Join Luciana for our LIVE Facebook event, along with Marie McGrogan, Clinical Advisor for eakin and Bronagh Starrs, Psychotherapist, where we’ll talk about feelings of loss of control after stoma surgery.
Questions to ask your stoma nurse before ostomy surgery
Переглядів 8033 роки тому
Before you have your stoma surgery it is important to have an opportunity to ask your stoma nurse and surgeon some questions to prepare you for life with a stoma. Kate shares some ideas of questions you might like to ask. You can also ask questions to our friendly community members who will have been through a similar experience - community.abiggerlife.com/
What comes in your stoma pouch box
Переглядів 1,7 тис.3 роки тому
Do you know how to use all the items in your pouch box? Clare Mee has kindly shared a guide to all the items within your box including stoma guides and filter covers. You can find more info on the A Bigger Life Community community.abiggerlife.com/
Amy's stoma story - My journey with Crohn's
Переглядів 3,7 тис.3 роки тому
Meet Amy! 👋 Amy has recently joined our team of bloggers and is now sharing her story on A Bigger Life! Get involved at abiggerlife.com/
Food related problems with your stoma
Переглядів 4,7 тис.3 роки тому
Everything is trial and error when you have a stoma and it all comes down to your tolerance, what you might be able to tolerate with a food, somebody else might not be able to tolerate. It's a food journey, you introduce foods into your diet and then you identify if that food sits well with you or not. Sinead our Dietician and Nutritional Advisor shares some of the foods that may cause you prob...
What you wish you knew before Ostomy surgery
Переглядів 3,2 тис.3 роки тому
Michaela discusses the one main thing that she wishes she knew prior to her stoma surgery. What is something you wish you knew before ostomy surgery? You can let us know on the A Bigger Life website: abiggerlife.com/
Emotions following stoma surgery
Переглядів 1,8 тис.3 роки тому
Following ostomy surgery you will be adapting to a new way of life which will bring some difficult emotions Our community stoma care nurse Kate has helped us with how to process these emotions You can watch the full video on A Bigger Life! www.abiggerlife.com
Nutrition with an ileostomy
Переглядів 5 тис.3 роки тому
After ileostomy surgery you want to get back to your normal diet with the focus being on a balanced diet. There are, however, certain considerations that you might need to think about once you’ve had your surgery. Get more tips and advice on ostomy at A Bigger Life! abiggerlife.com/
Nutrition with a colostomy
Переглядів 4,6 тис.3 роки тому
After colostomy surgery you want to get back to your normal diet with the focus being on a balanced diet. There are, however, certain considerations that you might need to think about once you’ve had your surgery. Check out our tips from Sinead, dietitian and nutritional advisor. Visit: www.abiggerlife.com
Intimacy as an ostomate ❤️
Переглядів 5853 роки тому
Your stoma shouldn't stop you from experiencing intimacy. Michaela has shared some tips which might help ❤️
What is a stoma? | The ABC of ostomy
Переглядів 2,1 тис.3 роки тому
What is a stoma? | The ABC of ostomy
Winning tips to fashion with an ostomy!
Переглядів 1,3 тис.3 роки тому
Winning tips to fashion with an ostomy!
How to ask a question on the A Bigger Life Community using a mobile device.
Переглядів 154 роки тому
How to ask a question on the A Bigger Life Community using a mobile device.
How to add a comment on the A Bigger Life Community on desktop or laptop
Переглядів 64 роки тому
How to add a comment on the A Bigger Life Community on desktop or laptop
How to ask a question on the A Bigger Life Community using a laptop or desktop
Переглядів 54 роки тому
How to ask a question on the A Bigger Life Community using a laptop or desktop
Sleeping with an ostomy and the side effects of food
Переглядів 2504 роки тому
Sleeping with an ostomy and the side effects of food
Looking After The Skin Around Your Stoma
Переглядів 6194 роки тому
Looking After The Skin Around Your Stoma
Possible side effects on your stoma during chemotherapy
Переглядів 6194 роки тому
Possible side effects on your stoma during chemotherapy
Couldn't understand the name of drink
Basically ur screwed..to the max…
With regards to people smelling the bag, I used a Hollister filterless drainable pouch very successfully for almost 30 years with no smells. Then overnight, Hollister along with so many other stoma supply manufacturers decided to incorporate filters in all of their bags and now a quick five minute search on Google will quickly confirm that virtually, if not all stoma bags that come with a filter, absolutely stink within a matter of hours to high heaven!
Yep, there's so many tips techniques and tricks that it's sometimes hard to know where to start. But it's not rocket science to get your man shivering with ecstasy just by changing the way you talk. As simple as this sounds, maybe try escalating it a step at a time, go’ogle something like Words of Desire by Celestine Dessike to sneakily crawl into his mind and let it build on from that.
Same thing ,panic attack thought I was leaking waste .
I'm having bowel removal and stoma on 14th October, and I have biggest fear of being sick to !! Really hope your doing well , really good to watch this video really helpful xx
Just forget the hype..and start wearing depends…like most medical procedures..u r always the last to know…
I have severe colonic dysmotility and getting a reversible ileostomy to escape all the laxatives making me sick. How will I pass mucus? Do I still need laxatives?
you need. better audio
Thanks for speaking. I have 0.5-1 l a day. "Some" people need to wear adult diapers because of incontinence and increased mucus production in the defunctioned colon. It's a sad situation.
I had surgery just last month for perforated diverticulitis rupture. He took out like 8 inches of my sigmoid colon and next thing I know I’m wearing a ostomy bag. He said I could do the reversal surgery later on, but these nurses never said anything except this is how you empty the bag out. I learned everything two days before I was discharged on UA-cam, so I’m so grateful there was so many good UA-camrs talking about how to change your bag and different supplies to use!
I had the same damn thing after 4months of the bag of doom I finally had the 2nd surgery 3 half weeks ago so far so good
This was a very informative video thank you so much !
Emergency op.the same,also 😂
Ty
Ty
I am 7 months post stoma and I'd kept saying to nurses the mucous is really offensive. I'd be having the bowel cramps like before the op and then I was having blood in the mucous. I managed to get an appointment with the surgeon and he said he would have a quick look and immediately told me i had diversion proctitis (colitis). So I wasn't imagining it or exaggerating it. I take Buscopan (talk to a doctor before taking ut as its not suitable for some people's medical conditions) for the bowel cramps and I use the Qufora rectal irrigation system (get a referral to an incontinence nurse) every other day to manage the mucous. I have perineal fistulas (from a tumor removal surgery gone wrong) so the mucous is causing problems in that dept too. Its still better than the bowel incontinence but its a lot to deal with each day.
You get a lot of steam coming out to it makes a wet spot on your chair
I have the same problem and I actually learn everything myself I still have to sit on the toilet and this is forever
I felt great at first, then went back to my ED.
It’s 10 months post op n now I am having Mucus n now mucus n discharge just like discharge in bag my as n brown liquid with very little form
Nobody tells us that they saidvut wasn't needed.
I had absolutely nothing for six months and then one morning I felt a little something in my bottom....I then seemed to have a normal poo which was weird to say the least...it was mucus .
It all makes me more depressed ..I'm struggling with it and had an increase in my head med 😞 I dislike everything about having poop from the front..it's hard at this age. I really haven't found the silver lining. I know it saved me but it's a struggle. There's absolutely no support here I checked for groups to attend and not isolate but here it's rural and I dislike living here
All normal emotions you are experiencing, have you tried to find an online support group through Ostomates? Very difficult when in a rural setting, I hope you have loved Ones there to support you God bless
Oh yes!! I had sub-total coletemy in 2019, was a life saving thing after years of battling with UC since 2015. I thought once the surgery was done it would be ok and I'd get my life back, but had massive bleeding and mucus etc coming out of the back and then about a year later had an explosion out of my stomach which turned out to be a mucus fistula and now I have 2 bags on my stomach - one for the stoma and one for the fistula ! No one ever told me -- and I'm still waiting for surgery or something to be done! UGH ! They said before I had this done that I would get my life back ... and well .. not happened and I'm currently wondering if it was all worth it and I should have just snuffed it out back then!?
Okay…honey…stay strong! You can do this! Tell me what your issues are. Mental, physical, I can help you with all of them! my first emergency surgery was in 1988. I was 22. My intestines burst. 1 month in the hospital, then a reversal surgery, 3 weeks, it failed…reversal surgery in 1989. Oh, my gosh! I am 57 now. I a guide you thru the best products to make your life seamless with an Ostomy. You can do this! Reach out when you can.
Noone told me that you still need to go the toilet to pass the mucus that lines your bowel.. every day/week when you still have your colon/anus.. i have a prolapsed bowel etc hence needing a ileostomy but i carnt pass the mucus so iv still got suffering
Thanks a million! You are a part of helping and changing so many lives in the world. Your living is not in vain.
Please it's hard to hear this
hs anyone ground up any nuts so you can eat with ilestomy
You have no rectum after the J-Pouch.🙄
ua-cam.com/video/K7vbrmf519M/v-deo.html Just see this video and you don't have to go anywhere else whenever you stuck with blockage problem you just need to do this one miraculous effortless exercise for very instant relief and not just releif your pain and blockage will vanish instantly just trust me.
Thank you
Thank you, I am new to having. a stoma. 1 month now .. I followed the diet when I got out of the hospital and while healing. So, I having eaten much. But now that I am 1 month out I think or more like I want to add different foods or should I say go back to some foods I have not had. but online I couldn't find any one saying give it a try or by now you should be able to eat more then soup. So, Thank you for making this video... I will take your advice and try one new food and see how it goes.. By the way I am now sick of soup and hope I never have to eat it again LOL
Thank you
I had open surgery of leprotomy...and stoma....but now m worried about my future wheather i will get pregnant or not
Is urinating from stoma painful?
Thank you
Very informative. I have colostomy followed by rectum cancer about 18 years back. Now the problem is of mucus from anus. Doctor suggest Entofome enema to reduce or stop mucus. Do you have idea about this? Your valuable comment are appreciate.
Funny - I was just thinking about this the other day. I am 2 weeks post ileostomy surgery. I was told by the surgeon beforehand that I might have mucous come out of my butt. I also thought, oh, ok, I'm probably not completely cleaned out at first so I'll have one or two instances. Well, it's been every other day or so for this whole time. So I was wondering if this was normal and how long it was going to last. I have a surgery followup next Wednesday and was going to ask. But nice to find this video with your information and experience. Thank you!
You will still be passing mucus every other day.. or week etc. whilst you still have your colon/rectum.. your colon constantly makes mucus so whilst your colon is still there so is the mucus
I never about this thing till I gave rectal cancer
This is very good info. no one told me about this until I came home and had a patient portal in my home to speak to a nurse 24 hrs a day and I REALLY felt like I had to poop BAD and I was told if I feel like that not to bare down but that's all they said . I had to use the call button to ask the nurse about it ad she said it is phantom poop syndrome and it will go away eventually as I heal. It is VERY uncomfortable and hard to deal with at first but it's finally getting better and at least now I know what it is. Oh one other thing real quick is the volume on this video is kinda low for us older people. Just saying, could be on my end though.
What I wish I knew is why you tube thinks I want to see this?
Hi sweetheart, I was and still am the same. I'm going on 5 months now. Mine was an emergency operation. I ended up having 7 operations and still have to have more done in the future xxx
Best hospital tell me share a hospital address
Same as well: emergency surgery! Nothing was mentioned about the rectal pressure, etc. plus, it didn’t occur until recently, three months post-op. The ostomy clinic was helpful when I called in a panic, but seeing your post really brought it home. Yet, I wonder why the hospital or its “ostomy educator” didn’t bother to mention this possibility. I’ve learned almost everything about colostomy, products to use and coping mechanisms via You Tube. Thank you!
Hi Michaela, same as you emergency surgery, in hospital for 3 weeks, not told a thing. The only advice I received was don't eat oranges. I also get the baring down sensation and was told to use glycerin suppositories they help, but don't cure it, it comes back from time to time. I think it's something we have to put with. Wish you luck Carole
Pff the mucus makes my life quality go down a lot....
I had my colon removed December 2020, recently I had to go to hospital and they did a cat scan and found fluid close to my rectal stump, the cat scan showed that it was not attached to anything. They put a rectal tube in and drained the liquid; the doctors couldn't figure out where the liquid was coming from. Since then I have been released and am at home. I noticed the liquid coming from my rectal area again. What could possibly be causing this ? When I eat I feel bloated; I have been eating soft foods like scrambled eggs, oatmeal,and have been drinking nutritional drinks to keep from becoming dehydrated.. Not sure what to do ? I am trying to gain strength from hospital stay. Is there something I can do ?
O my I am so sorry.i am praying you can find your way through this ❤
It's so amazing to encounter another severe case of Crohns Colitis with a permanent ileostomy - I couldn't be more grateful for you sharing your story Amy!!!! I am almost four months post op after my permanent ileostomy which came after 19yrs of medicine chemotherapy and biologic meds like remicade. We have the exact same disease and situation just different in ages when it happened are different for me. Thanks for being so courageous and sharing your experience with your ileostomy!!! I still am having to take time some days to rest more and remind myself that I am recovering after a massive operation. Healing is far from linear! It's so mental as well as physical. I plan to share my truth as well to reach others who need to know there are more people out there who are living a much better life with a bag. My colon was killing me. I didn't have a full month to wait for my operation as usual protocol demands in the States. I was operated on within a week of my consult and am beyond GRATEFUL to never again need to worry of blood mucous or stool leaking out. No more abscesses. No more full body infection that led to a super painful condition called erythema nodosum. I am so blessed to be alive and stories like yours really help me out. Blessing to you from across the pond!!!!!
So glad to have found your channel! <3 I'mso glad that you are so much better.
I’ve tried everything. The only time I don’t get pancaking is when there’s some gas partially inflating the bag.