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Ending Parkinson's Disease
Приєднався 19 лют 2020
Parkinson's disease is the world's fastest-growing neurological disorder, and together we can end it! Get the book by Ray Dorsey, MD, Todd Sherer, PhD, Michael S. Okun, MD, Bastiaan R. Bloem, MD, PhD - and watch the documentary, The Long Road to Hope.
EndingPD Progress on World Parkinson's Disease Day 2024 - We Can Do More!
Tomorrow, April 11th, is World Parkinson's Day! This is a great chance to engage in meaningful discussions and do more to spread awareness about Parkinson's disease, the world's fastest growing brain disease.
In the four years since the release of our book, we have been advocating and urging the U.S government to ban harmful chemicals such as Trichloroethylene (TCE) and Paraquat, which dramatically increase the risk of Parkinson's disease. Despite the major developments across the years, we can do more!
1. Visit our website to buy our book, sign up for our newsletter, and watch our documentary for free:
endingpd.org/
2. Participate in Research! Join our Project Brain registry to help us find the next frontier of neurology treatments: www.projectbrain.org/
3. Join our study CELESTE LIGHT for PD, in which a promising FDA Breakthrough device is being developed for PD called Celeste: www.lightforpd.com/
4. Join us at the Brain & Environment symposium to uncover the influence of environmental toxicants on brain disorders: brainandenvironment.org/
5. Become a PD Avenger: www.pdavengers.com/
#worldparkinsonsday #parkinsondisease
In the four years since the release of our book, we have been advocating and urging the U.S government to ban harmful chemicals such as Trichloroethylene (TCE) and Paraquat, which dramatically increase the risk of Parkinson's disease. Despite the major developments across the years, we can do more!
1. Visit our website to buy our book, sign up for our newsletter, and watch our documentary for free:
endingpd.org/
2. Participate in Research! Join our Project Brain registry to help us find the next frontier of neurology treatments: www.projectbrain.org/
3. Join our study CELESTE LIGHT for PD, in which a promising FDA Breakthrough device is being developed for PD called Celeste: www.lightforpd.com/
4. Join us at the Brain & Environment symposium to uncover the influence of environmental toxicants on brain disorders: brainandenvironment.org/
5. Become a PD Avenger: www.pdavengers.com/
#worldparkinsonsday #parkinsondisease
Переглядів: 278
Відео
Our Documentary Selected to California Capital International Documentary Film Festival 2023
Переглядів 130Рік тому
Exciting News! Our documentary has been officially selected to be a part of the California Capital International Documentary Film Festival 2023! The event will take place in Rancho Cordova, Sacramento Region on the weekend of September 29 - October 1. Film Screening Info: Saturday, September 30th, 1:30 - 2:30 PM Venue: American River Room - Rancho Cordova City Hall Purchase Tickets: www.calcapd...
Tom Collins One Year Later - Reflections Series Episode 7
Переглядів 175Рік тому
Catch up with Tom Collins and how the year has been for him since being featured in The Long Road to Hope: Ending Parkinson's Disease! Learn more about Tom and eleven other aspiring individuals with PD by watching The Long Road to Hope: Ending Parkinson's Disease on our website: parkinsontv.org/three
Rachel DePietro One Year Later - Reflections Series Episode 6
Переглядів 187Рік тому
Rachel DePietro discusses her challenging journey of self-advocacy during the past year trying to get appropriate care from the current medical system, and what needs to change. Learn more about Rachel and eleven other aspiring individuals with PD by watching The Long Road to Hope: Ending Parkinson's Disease on our website: parkinsontv.org/three
Rick Geiser One Year Later - Reflections Series Episode 5
Переглядів 150Рік тому
Catch up with Rick Geiser and how the year has been for him since being featured in The Long Road to Hope: Ending Parkinson's Disease! You can watch the full documentary on our website: parkinsontv.org/three
Maria De Leon One Year Later - Reflections Series Episode 4
Переглядів 330Рік тому
Catch up with Maria De Leon and how the year has been for her since being featured in The Long Road to Hope: Ending Parkinson's Disease! You can watch the full documentary on our website: parkinsontv.org/three
Larry Gifford One Year Later - Reflections Series Episode 3
Переглядів 245Рік тому
Catch up with Larry Gifford and how the year has been for him since being featured in The Long Road to Hope: Ending Parkinson's Disease! You can watch the full documentary on our website: parkinsontv.org/three
The Long Road to Hope: Ending Parkinson's Disease [FULL DOCUMENTARY]
Переглядів 15 тис.Рік тому
Supported by a grant donation from Roche. Follow the stories of twelve incredible individuals with Parkinson's and their journeys to end this debilitating disease. Aired April 11, 2022. This documentary is based on the book "Ending Parkinson's Disease: A Prescription for Action," available on read.amazon.com/kp/embed?asin=B07V33WBBF&preview=newtab&linkCode=kpe&ref_=cm_sw_r_kb_dp_W8T3HT97RZK1P4Q...
Nikita Krielaart One Year Later - Reflections Series Episode 2
Переглядів 312Рік тому
Catch up with Nikita Krielaart and how the year has been for her since being featured in The Long Road to Hope: Ending Parkinson's Disease! You can watch Nikita's 6-minute profile as well as the full documentary on our website: parkinsontv.org/three
Amy Lindberg One Year Later - Reflections Series Episode 1
Переглядів 306Рік тому
Learn about how the last year has been for Amy Lindberg, featured in The Long Road to Hope: Ending Parkinson's Disease. You can watch Amy's 8-minute profile as well as the full documentary on our website: parkinsontv.org/three
One Year Later - Reflections Series Trailer
Переглядів 236Рік тому
Learn about how the last year has been for the people featured in The Long Road to Hope: Ending Parkinson's Disease. Stay tuned as we post each episode throughout Parkinson's Awareness Month!
Trichloroethylene: An Invisible Cause of Parkinson’s Disease?
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"Trichloroethylene: An Invisible Cause of Parkinson’s Disease?" postulates that Trichloroethylene (TCE), a chemical often used in dry cleaning, is a known carcinogen and has contaminated numerous sites across the globe, including the water at Camp Lejeune. Read the paper to learn an overview of the chemical along with several highlighted cases, and gain insight into the next steps towards endin...
Omotola Thomas - On Living with Parkinson's
Переглядів 9602 роки тому
“I felt like silence, being silent about Parkinson's equals subjugation, and I didn't want that so I decided to put myself out there, reach out to other people with Parkinson's." Realizing the lack of representation of and resources for people with Parkinson's across Africa, Omotola founded Parkinson’s Africa, an organization dedicated to providing educational resources to those in Africa with ...
Becca Miller - On Living with Parkinson's
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“My neurologist who diagnosed me said 'Take charge of your disease, don't let it take charge of you' and that was the best advice I have ever gotten." A single mom and Yale professor of Psychiatry, Becca gives her own advice about dealing with Parkinson's and its effects on her life with her young daughter. Supported by a grant donation from Roche. ParkinsonTV Season 3 tells the stories of twel...
Nikita Krielaart - 24 Years Old with Parkinson's
Переглядів 25 тис.2 роки тому
“Go easy on yourself and take time with discovering everything... because it will be hard on you. Just take it day by day." Diagnosed at only 20 years old, Nikita's young-onset Parkinson's started manifesting its symptoms during her childhood. Realizing its uniqueness, Nikita talks about her story "to inspire, and encourage others to talk about Parkinson's, too." Supported by a grant donation f...
Tom Collins - On Living with Parkinson's
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Tom Collins - On Living with Parkinson's
Maria De Leon - On Living with Parkinson's
Переглядів 8202 роки тому
Maria De Leon - On Living with Parkinson's
Larry Gifford - The Voice of Parkinson's
Переглядів 8282 роки тому
Larry Gifford - The Voice of Parkinson's
Rick Geiser - On Living with Parkinson's
Переглядів 5222 роки тому
Rick Geiser - On Living with Parkinson's
Amy Lindberg - On Living with Parkinson's
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Amy Lindberg - On Living with Parkinson's
Phyllis Allen - On Living with Parkinson's
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Phyllis Allen - On Living with Parkinson's
Jim Cosper - On Living with Parkinson's
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Jim Cosper - On Living with Parkinson's
Rachel DePietro - On Living with Parkinson's
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Rachel DePietro - On Living with Parkinson's
Navin P. Kumar - Table Tennis Champion with Parkinson's
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Navin P. Kumar - Table Tennis Champion with Parkinson's
The Long Road to Hope: Ending Parkinson's Disease
Переглядів 68 тис.2 роки тому
The Long Road to Hope: Ending Parkinson's Disease
Teaser Trailer - The Long Road to Hope: Ending Parkinson's Disease
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Teaser Trailer - The Long Road to Hope: Ending Parkinson's Disease
Teaser Trailer #2 - The Long Road to Hope: Ending Parkinson's Disease
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Teaser Trailer #2 - The Long Road to Hope: Ending Parkinson's Disease
ParkinsonTV Season 3 - Teaser Trailer
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ParkinsonTV Season 3 - Teaser Trailer
Ending Parkinson's Disease with Dr. Ray Dorsey - Wilmington, NC 06.07.2021
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Ending Parkinson's Disease with Dr. Ray Dorsey - Wilmington, NC 06.07.2021
Georgie Hoxie on the Give A Dime Campaign
Переглядів 593 роки тому
Georgie Hoxie on the Give A Dime Campaign
EXCELLENT THANK YOU SO MUCH DR. DORSY MIMI FROM QUÉBEC THE LORD CREATES US SO WE MUST GIVE HIM A BIG THANKS ALL MY LVE IN JESUS
I think I'll go to the neurologist, I'm 24 years old and since I was 16 the fingers on my left hand have been shaking, it wasn't until a month ago that my right hand started doing the same thing and lately I've been feeling muscle spasms all over my body ;(
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on UA-cam cured my Parkinson Disease with their PD treatment protocol🌱.
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on UA-cam cured my Parkinson Disease with their PD treatment protocol🌱.
I believe i have it, but have yet to be diagnosed. I'm 25. My hands and legs shake and i have trouble writing when they do. When i walk, some of the muscles in my legs and feet feel stiff, making it hard to balance correctly. I am going to hopefully see a doctor soon for it.
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on UA-cam cured my Parkinson Disease with their PD treatment protocol🌱🌱.
Paraquate
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on UA-cam cured my Parkinson Disease with their PD treatment protocol🌱🌱🌱
Life is not fair...but you only get one....your probably gowing better and faster than most....wishing you best of luck on your journey
I’m 22 and for a year my hand writing got bad and I can’t really keep my arms still in a certain position, my digestion kinda sucks. I never knew these could be symptoms I’m going to get checked I’ll update later
You good?
Thank u. My husband has just been diagnosed this gives hope to the new season in our lives
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌..
Please go for ayurveda Im suffering from this but Ayurveda is effective and it doesn't have side effects
Hi my mom is suffering from Parkinson apparently We have been thinking to go for herbal (ayurveda) as we are not sure about levodopa So can you please tell us if the ayurveda medicine helped you Was it effective for patient to perform day to day function?
Please advise if ayurveda has helped you?
Yes I live in Ahmedabad India. Yes by god's grace after struggling so much I got a way to live a normal life. Initially I had tremors on my right side, freezing, slowness, and speech problems. But now I don't have tremors I'm a bit faster than before. I'm able to walk better. Stiffness has reduced. It helps but the physician should be smart.
@@nitusinghgheloth7399 thank you so much
@@nitusinghgheloth7399 are you on ayurvedic medicines?
Hi Nikita my name is atashi and im 27 got perkinson at 22 but jut 0ne year ago i found out my desease first time i cried a lot day by day no tears comming without knowing anything my mom dad arrange my marriage then i Marry infact I didn't know but my husband accepted me and he is one of my way to live ...
I m also affected by Parkinson disease..HW r u nw
HW r nw
Hi
@@indrasuren8983?
@@indrasuren8983I'm not able to create word like past just talk how much u ask I can reply
I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment🌿🌿🍃.
I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease(PD) with their herbal treatment🌿🌿..
Parkinson disease 🦠 🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain”…
Watching this in 2024 just seen my vAXX mate having tremours. So been to see our other mate for the weekend, who is a physiotherapist she said to me all symptoms point to parkinsons
Thanks for sharing and giving hope.
Thank you for your story. How old is your father now?
Parkinson disease 🦠 🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…My Dad is well a gain.
I was diagnosed aged 46 I'm now 53, it's a long hard road my diagnosis took 2 years to reach. I never ever thought that would be my diagnosis.
Yes I can understand Nikita I am also suffering from this disease and I am 25 years old
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms. My Dad is well again…
I am 54. I was diagnosed at 21. Thank you for sharing your positive message.
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured💯.
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured.
Nikita, Wishing you best in life. No one wants this disease at any point in life We all are in the same boat
Thank you for your book. It is a great encouragement You are real doctor
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again..
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again.
I am so sorry, I should've sone something for myself and you...
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms. My Dad is well again🎉🎉 🎉
There is no cure, as yet for Parkinson’s disease. Meds help but do not cure. Everyone is an individual and react in various ways to treatment.
Polio and HIV activists did amazing without the internet. Hopefully today's generations can make change faster with the power of the internet.
Is there a German translation?
Sorry Nikita I am also diagnosed with Severe Parkinson in my 40s this year and am really struggling to accept that I can’t do the things I love to do any more. Thanks for sharing. You can watch my first video I posted today if you don’t mind.
😊😅
There is a YT video - new research shows that it is a gut bacteria that causes parkinsons. Eating blueberries everyday can get rid of this bacteria. Research it yourself!
Thank you for sharing your story. All the best to you
Parkinson disease 🦠🦠🦠 is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure 🌿and reversed all his symptoms…My Dad is well again..
How?
@@spoonman01 my Dads PD was cured with a herbal treatment we got from Dr Madida on UA-cam
Parkinson disease 🦠🦠🦠 is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine that truly works that helped treat, cure and reversed all his symptoms…My Dad is well again…
Iam 59 and having from the last 2 years. Please let me know what medication you Father taking it. Thank you!
I am also interested!! Who did he see and what did he take?
@@alberickmendes6472 my Dad used PD treatment from Dr Madida on UA-cam
Lier
In Organic Chemistry experiments at university, the heteronuclear organic chemical compound trichloroethylene was used as a reagent in a fume hood, however I would always get headaches after class. These simple double bonded ( Pi bond + Sigma bond) molecules are dangerous, especially these small organic synthetic chemical compounds.
Who is the singer for the better days song?
Very informative
Larry, thanks for being a voice for all of us. I have recently been diagnosed and have made it through half of your podcast already. Where can I find that voice tightener?
Thank you Nikita for sharing your experience. I also have Parkinson's and I am struggling to find the minimum dosage for Levodopa. You mention you take 14 pills a day. I was wondering if all pills are Levodopa (100/25 mg) or what medications you are taking now. I wish you well with your journey and hope a cure is found soon.
Khalilii
Dr Lee l
Ariff
From a wife of parkinson's disease/PD and LEWY body dementia/LBD, whose brain is on its 4th brain autopsy since 2015 with the following diagnosis to date: • Jack Gordon died Nov. 13, 2014 • I donated his body to Des Moines osteopathic college, DMOC, for study purposes. • Due to his dementia behavior occurring, I requested a brain autopsy be done. • “We don’t do that!” • However, they failed to tell me they REMOVE the brains, preserve them correctly, and use for study purposes. • I talked to a lyme disease pathologist 10 months after Jack died; is it too late to have a brain autopsy done? • NOPE, not if they preserved the brain correctly! • • So I contacted DMOC director about this. • They just finished studying Jack’s body day prior and would be cremation would be soon. • That’s when they told me they HAD REMOVED HIS BRAIN. He was a former funeral director and knew how to preserve the brain correctly. • • His brain was sent to Excalibur lab in Norman, Okla. where she cut brain slides sending to 1st pathologist in Florida, Dr. Alan MacDonald. • Alan found that Jack’s brain made worldwide history having 2 diseases, listed 1st below, that no one had ever found together before! • Lewy body dementia causing his visual/violent hallucinations like actor Robin Williams; • Neuroborreliosis/chronic LYME disease; • Plus another tick-borne diseases: borrelia miyamotoi/relapsing fever; • And shocking was 24 nematode parasitic roundworms having LYME disease inside of them! • Jack was never outside USA; just adjoining states. • Alan promised me he would write this up as a case study and get it published in a medical journal with ME as the 1st co-author followed by 3 others involved in the procedure. • Alan didn’t get this done as his brain acted up where he suffered frontal lobe dementia unable to do anything. • So I sought 2nd brain autopsy with Univ. of Minn., Dr. Marna Ericson. She found lyme and bartonella/cat scratch disease 2 species. • She filed to publish as well. • • Then I heard about NDRI, NATIONAL DISEASE RESEARCH INTERCHANGE from a lyme dr. • • I completed the 2-16 page Q/A; his brain was accepted by them where they did some initial work. • • Then his brain tissue went to BAY AREA FOUNDATION'S BIO BANK where researchers contact them for the types of specific research they want to do with the donated tissue/body parts. • • 3rd brain autopsy done in New York City’s Columbia Univ. Tick-borne disease research center, TBDRC, by Dr. Andrew Dwork with them getting done last Nov.-Dec. 2022. • They work directly also with NEW ORLEANS TBDRC Dr. Monica Embers, who have had his brain since NYC finished. • Last week, Oct. 3, 2023, the BIO BANK ORGANIZER informed me that 8-10 researchers are studying Jack’s brain with each one having a specific part of the brain they are researching! • She was hoping to get 2-3 more who are experts in areas not being looked at! • She stated, “It’s like looking for a needle in the haystack”. • I supplied them with 300 medical records from McFarland clinic and MGMC out of a disk with 900 records. • I gave them copies of the 2 previous autopsy test slide results also. • This has been an 8 year project to date. • • New Orleans studies everything 3 times with microscope before moving on. • If they find something NEW, that brain tissue will be returned to NYC to see if they find it also. Then the 2 TBDRC’s will write up a combined case study to get published in a medical journal. • NOTE: Jack was NEVER diagnosed with any of the above diagnosis while being examined by clinic drs. in 35 years. • He was NOT diagnosed with Lewy body dementia by Mike Kitchell despite my telling him over & over about Jack’s habitual violent/visual hallucinations. • • Do NOT give them amantadine; that gave my husband, Jack, extreme visual/violent hallucinations. • Jack had delirium while in MGMC and slapped a RN. She called me to come up to be with him. • • I spent the night with him in old hospital on that horrible rollup bed with worse mattress. • I called Mike at home to come and see Jack due to his extreme behavior occurring; he didn’t. • We later talked about this at a regular appt. He said I should have contacted him due to his delirium; I did! • • Also, Jack got hooked on the amantadine; Mike said to take Jack off it but the side effects were worse than the hallucinations he was having. • His heart was racing really bad and so much more happening. • Jack decided he would rather stay on amantadine vs. everything else he was experiencing. Why have I pursued having these many brain autopsies done to be written up as a case study and published in medical journal: • Helping the PATIENT/family for the case study to help their family of what might be happening to them/their loved ones. • Educating drs. To LOOK for and TREAT Lewy body dementia and ALL tick-borne diseases early on. • I asked 1 clinic neurologist on treating their parkinson’s patients IF they are looking for and TREATING parasites…NO he doesn’t. • • The clinic failed me for 35 years of giving me the runaround vs. saying, “it’s all in her HEAD” vs. testing and treating me with tick-borne disease specialty labs. • I had 2 knee biopsies taken and sent to Mayo Clinic; came back “unknown bug bite”! Betty Gordon, Ames, Iowa widow 53 yrs. With chronic lyme disease/bartonella Misdiagnosed 35 yrs. By 40-50+ McFarland clinic drs. This is our story; I’m sticking to everything I typed above. facebook.com/dialog/share?app_id=87741124305&href=https%3A%2F%2Fyoutube.com%2Fwatch%3Fv%3DKECEXQ6rm74%26si%3DuFQ8qcHzG7NEzWk_&display=popup mike kitchell was jack's essential tremors/parkinson's md and spoke at ames hospital's ground rounds june 2023.
to all diagnosed with parkinson's disease, PLEASE have blood tests done and sent ONLY to tick-borne specialty labs as many of you will find out you have 1 or more tick-borne diseases like my late husband's story is above...thanks! betty gordon, iowa
"PromoSM" 🎶
I have dystonia and psychedelics have given me my life back! Hoping this research will be completed on Parkinson’s and offer some hope
Pray tell what psychedelics specifically and how they help. Thank you.
@@lvhdmya4807 ayahuasca and DMT. I could write a book on all the ways they helped but suffice it to say they showed me where the problem was at in my brain. Its just about a yeatr ater and im back to working full time!