Відео

Diagnosed at 61, but suffered through a lobectomy at 31. I wish I would have known then,😢

I was diagnosed with Apha one 3 years ago when I was 62 yrs old. I have been having infusion therapy for 2yrs now.

Well delivered information for the person with Alpha 1. Not as clinical as most sites so easier to understand!

This was an excellent presentation. I’m very grateful I found it. Thank you to the doctor.

I am a ZZ carrier since I was 42 am now 62. I need to know where to go to hear a video of a Alpha 1 breath sounds at. Thank you ❤

Yes I have alpha one is in my family games I'm full bloated

Thank you for sharing this information. All things are possible through Christ

My results were 80 MM... is that normal? Lab corp was the lab I went to. On the report it said the 80 is low, but the MM was normal?

My husband was diagnosed with Alpha 1 three years ago liver affected, received new liver in April of 2022

I have no idea what this is I'm kinda freaking myself out I was testicles yesterday and my dr texted to get tested again to make sure 😭

23&me says I have the gene

I see cystic fibrosis on the list but it's never explained why that's associated with Alpha One and if it did I did not catch that part no matter how many times I rewound at the end. I'm looking for information about if being a carrier for alpha-1 would enhance cystic fibrosis complications and would cause more lung infections

I am a carrier as well. MZ. I always had wheezing and lung compromises all my life. You basically have to be your own doctor. Find an open minded doctor. It’s hard I know. I hope your doing well. 🙏

I am supposedly an AATD carrier (PI*S). However, I have always had problems with respiratory problems. When I was about 35 yo I was diagnosed with intrinsic asthma (all allergy tests were negative x3). I am still producing some antirypsin. However, I now have NAFLD, and irreversible COPD. I am now 59, and feel like none of my health providers will listen to me. I have never smoked, but both my parents were heavy smokers. I feel like I have the actual disorder.

I have this and I'm 24. I'm very scared😔

Very nice . I have alpha 1 with ZZ

Just heard about this genetic mutation and researching it as my sister has it.Why would doctors know she jhas it but not tell her.She is fatigued all the time and this could be why !!

This is the best educational information on alpha 1 antitrypsin deficiency that I've found. Easy to follow and very well explained. Thank you. I don't know why it hasn't got many likes either, unless people searching for information are alpha 1 deficient themselves and being such a rare disease? 🤷‍♀️

Knowing about Dr Madida on UA-cam was a life turn around for me because my chronic Parkinson Disease of over 6 years now was just cure in few weeks with Dr Madida herbal medicine .

Yeah probably, but we know more about liver, lungs and kidneys

I am surprised and sorry there are not more comments and likes to this presentation! My own doctors argue with me when I express to them that Alpha 1 can also manifest in other conditions like arthritis - or at least make other conditions worse...

This has been up for 2 years, and no comments...

Thank You for what you do.

Thanks for uploading!! My 48 year old female, [lifetime] friend was just diagnosed. Her doctor brought up the possibility of her needing a lung transplant. Her dad (Deceased) was a heavy drinker/smoker his entire life. My sick friend also smoked and drank. She quit smoking almost a year ago. Since the liver is affected in this disease, could the long term drinking by her and her dad have played a role in her getting this disease? Will Liver repairing foods help at all? Vitamins, herbs, cardio exercise? By the way, she's been very trim all of her life, now she's pushing 180+ lbs. Could Alpha 1 Antitrypsin deficiency have cause her sudden weight gain? Can you recommend anything at all that might slow down the progression or even reverse this disease, even if it's a long shot? Thank you....Bret Walker

That's interesting. Do you know Robert?

...my last name is Minello...

Leana, You're so courageous! An excellent spokesperson!