KidneyCAN
KidneyCAN
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Kidney Disease and Kidney Cancer: Connecting the Dots | A KidneyCAN Livestream with NKF
Kidney Cancer and Kidney Disease: Managing Long-Term Care | KidneyCAN & National Kidney Foundation Livestream
In this insightful livestream, KidneyCAN’s Bryan Lewis, along with a leading kidney doctor, Sabine Karam of University of Minnesota, and a caregiver to a kidney cancer patient, Diana Beaumont, explore the connections between kidney cancer and kidney disease.
Patients with kidney cancer are often at risk of developing kidney disease, requiring ongoing kidney care such as dialysis. The panel discusses how to manage long-term kidney health during and after cancer treatment, sharing practical advice and valuable information for patients, caregivers, and healthcare providers. Watch now to learn more about the challenges and care strategies for those navigating both kidney cancer and kidney disease.
Stay informed and empowered! Watch the full discussion to gain valuable insights into the relationship between kidney cancer and kidney disease, and learn how to manage both conditions effectively.
For more resources, visit www.kidneycan.org
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KidneyCAN works to accelerate cures for kidney cancer by providing patient support and education, encouraging enrollment in clinical trials, advocating for research funding from Congress, and sponsoring collaborative efforts between researchers and medical communities.
To learn more about KidneyCAN: kidneycan.org​
Support our work: kidneycan.org/donate
Переглядів: 262

Відео

$0 to $285 Million: Our Fight for Kidney Cancer Research Funding
Переглядів 552 місяці тому
Follow the incredible journey of KidneyCAN’s advocacy on Capitol Hill, raising kidney cancer research funding from $0 in 2016 to $50 million in 2024. This video features kidney cancer patients, caregivers, and leading researchers sharing their experiences speaking with Congress about the urgent need for research funding. Learn how KidneyCAN’s grassroots efforts have secured $285 million in tota...
The Kidney Cancer Research Program: Transforming Kidney Cancer Research and Treatment
Переглядів 2003 місяці тому
The CDMRP Kidney Cancer Research Program (KCRP) is revolutionizing the field of kidney cancer. From underfunded beginnings to groundbreaking research, KCRP has now funded over $185 million, leading to significant advancements in kidney cancer treatment and research. In this video, we highlight the work of Dr. Andrew Smith, a radiologist at the University of Alabama Birmingham, who developed a p...
Living Well with Kidney Cancer: The Role of Palliative Care | KidneyCAN + @nationalkidneyfoundation
Переглядів 3413 місяці тому
Join KidneyCAN's Bryan Lewis in collaboration with the National Kidney Foundation for an insightful discussion on palliative care in kidney cancer treatment. Featuring Dr. Holly Koncicki from Mount Sinai Hospital and kidney cancer survivor Glenn Sykes, this session explores the nuances of palliative care, dispels common misconceptions, and highlights its importance in improving the quality of l...
KCRS24 Session Seven - Oral Abstract Presentations on Kidney Cancer Research
Переглядів 1383 місяці тому
Dive into the latest kidney cancer research with oral abstract presentations from leading scientists. Topics include: "Belzutifan Versus Everolimus for Previously Treated Advanced Clear Cell Renal Cell Carcinoma: Subgroup Analysis of the Phase 3 LITESPARK-005 Study" by Laurence Albiges, Institut Gustave-Roussy "Safety Profile of Belzutifan Monotherapy in Patients with Renal Cell Carcinoma: A Po...
KCRS24 Session Eight - Rapid Abstract Presentations in Kidney Cancer Research | KidneyCAN
Переглядів 863 місяці тому
Join us for rapid abstract presentations on cutting-edge kidney cancer research. Topics include: "Enrichment of Tertiary Lymphoid Structures Provides Novel Insight into Mediators of Anti-Tumor Immune Activity in Sarcomatoid Renal Cell Carcinoma" by Nicholas Salgia, Roswell Park Comprehensive Cancer Center "Tumor Evolution of Brain-Specific Tropism in Metastatic Renal Cell Carcinoma" by Roy Elia...
KCRS24 Session Six: Immunotherapy Advances in Kidney Cancer | KidneyCAN
Переглядів 2233 місяці тому
Moderated by Hans Hammers (University of Texas Southwestern Medical Center) and David McDermott (Beth Israel Deaconness), this session covers the latest advancements in immunotherapy. Speakers include: Michael Atkins (Georgetown-Lombardi Comprehensive Cancer Center) on immunotherapy development. Rizwan Romee (Dana-Farber Cancer Institute) on NK cell therapy. Srinivas Malladi (University of Texa...
KCRS24 Session Five: Clinical and Scientific Updates in Kidney Cancer | KidneyCAN
Переглядів 3983 місяці тому
Moderated by Toni Choueiri (Dana-Farber Cancer Institute), this session presents the latest clinical and scientific updates. Speakers include: Tom Powles (Barts Cancer Centre) on front-line systemic therapy. Robert Motzer (Memorial Sloan Kettering Cancer Center) on subsequent line treatments. Bradley McGregor (Dana-Farber Cancer Institute) on adjuvant treatments. Laurence Albiges (Institut Gust...
KCRS24 Session Three - State of the Science in Kidney Cancer Research
Переглядів 1994 місяці тому
Explore the state of the science in kidney cancer research with experts from leading institutions. Topics include: "Taxonomic Evolution of Kidney Cancer with Emphasis on Molecularly Defined RCC" by Samson Fine, Memorial Sloan Kettering Cancer Center "Surgical Pathology Toolbox and Technological Advances to Solve Kidney Cancer Problems" by Michelle Hirsch, Brigham & Women’s Hospital "Prognostic ...
KCRS24 - Biotech Showcase on Emerging Therapies for Kidney Cancer | KidneyCAN
Переглядів 3984 місяці тому
Explore emerging therapies for kidney cancer in our Biotech Showcase. Highlights include: "Casdatifan (AB521): A Hif-2-alpha Inhibitor in Development for ccRCC" by Dimitry Nuyten, Arcus Biosciences "Phase 1 Study Results of SRK-181 (Linavonkibart), A Latent TGFβ1 Inhibitor, Combined with Pembrolizumab in Anti-PD1 Resistant ccRCC Patients" by Lu Gan, Scholar Rock "STK-012, a First-in-Class α/β I...
KCRS24 Session Two - Novel Imaging and Biomarkers in RCC Patient Management
Переглядів 1154 місяці тому
Discover the latest advancements in imaging and biomarkers to guide RCC patient management. Presentations include: "PET Imaging of HIF-2a in Renal Cancer" by Xiankai Sun, University of Texas Southwestern Medical Center "Multiplexed Quantification of Urinary Biomarkers for Noninvasive Classification of Imaged Kidney Tumors" by Jeremiah Morrissey, Washington University in St. Louis "Multimodal AI...
KCRS24 Featured Speaker: Obesity and Immunotherapy by Jeffrey Rathmell | KidneyCAN
Переглядів 2034 місяці тому
Dr. Jeffrey Rathmell from Vanderbilt University Medical Center discusses the relationship between obesity and immunotherapy in kidney cancer. This session explores how obesity affects cancer incidence and the immune response, highlighting the potential benefits and challenges in treatment.
KCRS24 Session Four: Ongoing Clinical Trials in Kidney Cancer/ Trials in Progress | KidneyCAN
Переглядів 1944 місяці тому
Moderated by Robert Motzer (Memorial Sloan Kettering Cancer Center) and Naomi Haas (Abramson Cancer Center/University of Pennsylvania), this session reviews ongoing clinical trials. Speakers include: Michael Serzan (Dana-Farber Cancer Institute) on ARCITECT trial. Rana McKay (University of California, San Diego) on HC-7366 and Belzutifan combination. Pavlos Msaouel (MD Anderson Cancer Center) o...
KCRS24 Session One: Exploring Novel Drug Targets for RCC
Переглядів 2124 місяці тому
Moderated by Pavlos Msaouel (MD Anderson Cancer Center) and Scott Tykodi (Fred Hutchinson Cancer Center), this session explores innovative therapeutic strategies for RCC. Speakers include: Jean Jiang (University of Texas Health San Antonio) on purinergic receptor antagonists. Elizabeth Henske (Brigham & Women's Hospital/Harvard Medical School) on chromophobe RCC strategies. Abhishek Chakraborty...
KCRS24 Keynote: How the Air We Breathe Can Impact Cancer by Charles Swanton | KidneyCAN
Переглядів 2254 місяці тому
KCRS24 Keynote: How the Air We Breathe Can Impact Cancer by Charles Swanton | KidneyCAN
Free Virtual Registration for the 2024 Kidney Cancer Research Summit
Переглядів 654 місяці тому
Free Virtual Registration for the 2024 Kidney Cancer Research Summit
Best Diet Practices for Kidney Cancer Patients | Dr. Hans Hammers & Dr. Matthew Abramson Share
Переглядів 1,3 тис.6 місяців тому
Best Diet Practices for Kidney Cancer Patients | Dr. Hans Hammers & Dr. Matthew Abramson Share
How Much Water Should Kidney Cancer Patients Drink? | Experts Explain
Переглядів 1,2 тис.6 місяців тому
How Much Water Should Kidney Cancer Patients Drink? | Experts Explain
Is Imaging Contrast Safe for Kidney Cancer Patients? | Doctors Weigh In
Переглядів 5036 місяців тому
Is Imaging Contrast Safe for Kidney Cancer Patients? | Doctors Weigh In
Understanding Clinical Trials for Kidney Cancer: Expert & Patient Insights | KidneyCAN Town Hall
Переглядів 5056 місяців тому
Understanding Clinical Trials for Kidney Cancer: Expert & Patient Insights | KidneyCAN Town Hall
The Gut Microbiome-Immune System Connection: Dr. Nazli Dizman Shares Research Findings | KCRS23
Переглядів 2587 місяців тому
The Gut Microbiome-Immune System Connection: Dr. Nazli Dizman Shares Research Findings | KCRS23
Shaping Treatment Strategies: Insights into the Tumor Ecosystem | Dr. Ari Hakimi | KCRS23 Discussion
Переглядів 1397 місяців тому
Shaping Treatment Strategies: Insights into the Tumor Ecosystem | Dr. Ari Hakimi | KCRS23 Discussion
The Future of Kidney Cancer Monitoring: Dr. Vincent Xu Explores Biomarker Research | KCRS23
Переглядів 2807 місяців тому
The Future of Kidney Cancer Monitoring: Dr. Vincent Xu Explores Biomarker Research | KCRS23
Living Fully with Stage IV Kidney Cancer: Together, We Go Forward
Переглядів 6497 місяців тому
Living Fully with Stage IV Kidney Cancer: Together, We Go Forward
Immunotherapy Breakthroughs in Kidney Cancer: KCRS Insights with Dr. David Braun from Yale
Переглядів 8938 місяців тому
Immunotherapy Breakthroughs in Kidney Cancer: KCRS Insights with Dr. David Braun from Yale
2024 Kidney Cancer Research Insights: KidneyCAN Town Hall with Leading Experts The Uromigos
Переглядів 1,1 тис.9 місяців тому
2024 Kidney Cancer Research Insights: KidneyCAN Town Hall with Leading Experts The Uromigos
The Power of Advocacy: KidneyCAN's Role in Transforming Kidney Cancer Research
Переглядів 2009 місяців тому
The Power of Advocacy: KidneyCAN's Role in Transforming Kidney Cancer Research
Advancing Kidney Cancer Treatment: Dr. Hans Hammers and Patient Gary Cole on Clinical Trials
Переглядів 2999 місяців тому
Advancing Kidney Cancer Treatment: Dr. Hans Hammers and Patient Gary Cole on Clinical Trials
Dr. Toni Choueiri Discusses Belzutifan's FDA Approval: A Game-Changer for Clear Cell Kidney Cancer
Переглядів 1 тис.9 місяців тому
Dr. Toni Choueiri Discusses Belzutifan's FDA Approval: A Game-Changer for Clear Cell Kidney Cancer
One Kidney Cancer's Patient's Journey with Belzutifan: From Clinical Trial to FDA Approval
Переглядів 1,2 тис.10 місяців тому
One Kidney Cancer's Patient's Journey with Belzutifan: From Clinical Trial to FDA Approval

КОМЕНТАРІ

  • @jaswanthff4042
    @jaswanthff4042 2 місяці тому

    How can I send you reports

  • @jaswanthff4042
    @jaswanthff4042 2 місяці тому

    One kidney has been removed because of tumor

  • @kathb1683
    @kathb1683 2 місяці тому

    Wonder if Pembro would work with this

  • @gonenbaser5013
    @gonenbaser5013 2 місяці тому

    My heart with yours❤❤❤

  • @brianp454
    @brianp454 3 місяці тому

    #1 I hope my shipmate Bruce Hill is doing well. Can anyone help with an update on how he is doing? I'm also a Gulf War era Navy vet that is service connected for kidney cancer (RCC), although now I am technically in remission with the removal of my left kidney. Now I'm struggling with the residual issues and the VA. After the surgery I had intense bladder spams with the catheter and it hasn't went away. I have issues with urgency day and night, incontinency, etc. My urologist has been very dismissive on this and I feel, non-supportive. I've found that every time they catheterize me it causes an inflammation of issues or flare up. Are there others out there with issues like mine (I'm sure that is the case, I just haven't found them)?

  • @CaliDad619
    @CaliDad619 3 місяці тому

    My mom is in ICU from this man made virus. Wish we would save my mom she’s in the ICU. She woke up with memory loss headache unable to write and draw ……. Just found it. She had the MRI she’s got one huge one and two small ones ………. Doctor never caught them. They claim she can’t do anything for it. I’m trying to save my mom !!!!!!!!!!!!!!!!!!!!!!

  • @egg399.
    @egg399. 4 місяці тому

    Any thought on Professor Thomas Seyfried’s work as cancer as a metabolic disease?

  • @egg399.
    @egg399. 4 місяці тому

    What is the fuel source for a ccRCC cell? Is it glucose (200-400 x normal) and glutamine that are fermented to produce ATP?

  • @laniegonewild
    @laniegonewild 4 місяці тому

    My Dad had an encapsulated kidney cancer, is there a way I can find out if it was the kind I could get ?

  • @KidneyCancerAdvocate
    @KidneyCancerAdvocate 4 місяці тому

    Thanks, Brian, It was very informative.

  • @petercreagh8797
    @petercreagh8797 4 місяці тому

    I have been diagnosed with a Stage 3 Bosniak Cyst and if it turns to cancer I will have a lot of research to do. My thinking is if Chemo is too uncomfortable for me I need to look at alternatives like herbal medicine, intermittent fasting and giving up sugar which I have been told are ways of fighting kidney cancer.

  • @andrepaul475
    @andrepaul475 5 місяців тому

    2024 or 2023

  • @egg399.
    @egg399. 5 місяців тому

    Seeing as cancer cells ferment glucose in high quantities why are you suggesting patients drink a glucose packed drink? I would have thought a 0 carb high fat diet would be the best diet to have whilst being treated for rcc? Shouldn’t we be targeting the fuel sources of rcc cells as a means of treatment?

  • @egg399.
    @egg399. 5 місяців тому

    Why do drugs have nasty and lethal side effects? Should we take things that are so dangerous? What’s the survivability? Does the treatment take you out faster than the cancer will?

  • @egg399.
    @egg399. 5 місяців тому

    Hi, what treatments are you having? Keep up the good work and congratulations on the 6 years.

  • @LenorJohnson-k7l
    @LenorJohnson-k7l 5 місяців тому

    Good luck

  • @LenorJohnson-k7l
    @LenorJohnson-k7l 5 місяців тому

    Iam sorry that happen to you

  • @KidneyCancerAdvocate
    @KidneyCancerAdvocate 5 місяців тому

    Thank you for what you, do, Brian, Dr. Hass, Dr McGregor, and Laura. Esfeller. Cindy Pelzar Kornreich

  • @KidneyCancerAdvocate
    @KidneyCancerAdvocate 5 місяців тому

    Thank you all for what you do.🧡 Cindy Pelzar Kornreich

  • @shlomo771
    @shlomo771 5 місяців тому

    Hi. Just recently got diagnosed with renal cell carcinoma. Small tumor in kidney, lung, and mass in face. Totally terrified. Have anxiety disorder. Have not gotten treatment yet. Any tips on how to deal with the fear would be appreciated.

  • @walidh2490
    @walidh2490 5 місяців тому

    Does quercetin inhibits cysteine levels and should i combine it with NAC. I am trying to decrease the levels of Cystine. Thanks

  • @jeanineminch9019
    @jeanineminch9019 5 місяців тому

    Ivermectin kills liver flukes

  • @jugnu361
    @jugnu361 6 місяців тому

    Immunotherapy & AVASTIN are fraud

  • @jeffphillips5632
    @jeffphillips5632 6 місяців тому

    Thanks. I've just been diagnosed and your stories are very encouraging... Jeff

  • @MOstix13
    @MOstix13 6 місяців тому

    Thank you Doc.

  • @marilynsmith5901
    @marilynsmith5901 6 місяців тому

    Dear Dr. Choueiri_-Does Belzuifan work on spine mets that are no VHL related? Thanks in advance for any info.

  • @keng4066
    @keng4066 6 місяців тому

    Fenbendazole and ivermectin wont be suggested to you by the medical fraternity but might save your life. Just look at other UA-cam sites where they are discussed and the comments below those videos from the many people who tried them when conventional treatments had failed.

    • @schaysilva7800
      @schaysilva7800 Місяць тому

      How much and how many?

    • @keng4066
      @keng4066 Місяць тому

      @@schaysilva7800 I took 2x12mg ivermectin and 1x500mg fenbendazole a day for 2 months with no side effects. The following blood test was positive as the count had fallen by 30% when it was expected to rise. I'm now taking 1x ivermectin and 1x fenbendazole once a week until the next test. Others with a much worse prognoses might take more of the ivermectin. Others take a regular break but I think the idea is to give it a good chance by taking a good dose initially and if that works then back off a bit. Sweet Wormwood seems to be another one to be taken with them as acting on cancer cells too.

  • @michaelcarroll543
    @michaelcarroll543 7 місяців тому

    Served in Vietnam 13 and 1/2 months boots on the ground, had kidney cancer, one removed and the other operated on. I applied and was awarded hypertnesion 0 percent. Needless to say, I have no hope for anything from the VA.

    • @brianp454
      @brianp454 3 місяці тому

      I would be glad to help you with your VA claims issues. I'm in the same boat and have spent a cubic buttload of time getting myself educated on the process.

  • @suziesullivan8132
    @suziesullivan8132 7 місяців тому

    I’m stage 4, advanced RCC. I’m non-operable and non-curable, But, I’m treatable. I’m not ok with this! I don’t want any cancer in my body! I want it gone! So anything that can kill this cancer will be a MASSIVE step in the right direction. Hopefully sooner rather than later 🙏🏻

  • @MichaelKane-bp8jj
    @MichaelKane-bp8jj 7 місяців тому

    Thank you to Dr. Rini and Dr. Powles for participating in these sessions. Much appreciated!

  • @ayamore
    @ayamore 7 місяців тому

    Thanks for sharing. My situation is similar to that of Charles. I was diagnosed with a 6 centimeter cancerous tumor on my left kidney 4 weeks ago. However, my doctor recommended I take some Chemo before he removes my entire kidney. Kidney removal will be the same way through 3 holes. Hopefully I will be as lucky.

  • @joanhuddleston267
    @joanhuddleston267 7 місяців тому

    Mine is being watched. Ok at 1 cm. My next MRI is feb 2025. Sending you lots of❤

  • @johnstoneman7126
    @johnstoneman7126 7 місяців тому

    Too vague. Healthy diet, same message

  • @kathb1683
    @kathb1683 7 місяців тому

    I recently heard about IGG4 and M2 issues in immune checkpoint inhibitors in hyper aggressive disease, aka turbo tumors. Wish patients were thoroughly checked initially at diagnosis.

  • @MichaelKane-bp8jj
    @MichaelKane-bp8jj 7 місяців тому

    This was excellent. Please continue to have these sessions.

  • @25_26
    @25_26 7 місяців тому

    Nazli dizman has a fake diploma

  • @billgus1967
    @billgus1967 7 місяців тому

    Fenbendazole protocol kills all types of cancer, look ip joe tippins

  • @jasonf1551
    @jasonf1551 8 місяців тому

    Separated for 24 years now and recently diagnosed with clear cell renal carcinoma, had to have a partial nephrectomy and lost 30% of my L kidney. It is a presumptive condition, but I'm kind of confused on presumptive conditions and not sure how to file for and provide medical evidence for a presumptive condition. I was exposed to PFA's via my MOS as well as burn pits on a 2 month long stateside deployment. I was ignorant and was not aware of the signs and symptoms, had been experiencing them for years. Recently had to visit the E.R. for something totally different and the L renal mass was an incidental finding. Things progressed like an effin hurricane and within 2 weeks I had the partial nephrectomy. With your experience, I'm just looking for advice or opinions on how to go about filing for this. I'm already rated at 50% and currently have an ITF with 9 months left to submit the claim.

    • @brianp454
      @brianp454 3 місяці тому

      You have an intent to file, so that is great. I suggest filing for any other conditions you might have so that they all get the ITF effective date. Best wishes!

  • @DanceArtistM
    @DanceArtistM 8 місяців тому

    Hello doctor, I have a complex renal cyst in my right kidney. How to treat it? Thank you! ! !

    • @KidneyCAN
      @KidneyCAN 8 місяців тому

      Please join our Smart Patients community at www.smartpatients.com/partners/kidneycan to connect with other patients and caregivers who can help you sort your treatment options!

  • @linanicolia1363
    @linanicolia1363 8 місяців тому

    Did you get the jabs ?

  • @joanhuddleston267
    @joanhuddleston267 8 місяців тому

    Sending ♥️ and have learned of a new way. some prayers. Mine is 1 cm and another MRI feb 2025. Lucky to be at VM.

  • @Worldstoriesbycrazycouple
    @Worldstoriesbycrazycouple 9 місяців тому

    How was it diagnosed..my mother was diagnosed with hypoechoic lesion with calcic specs of 1.2cms in her right kidney…is it something to worry about

  • @Harry92evers
    @Harry92evers 9 місяців тому

    I could not get on a trial in Ireland. I have VHL. Belzutifan is not approved here to get it on prescription.

    • @Harry92evers
      @Harry92evers 9 місяців тому

      Also, I had my right kidney removed last May, I had rcc. I am also burdened with retinal angiomas, my opthamologist can not keep on top of my eyes.

  • @sleepdeeplychannel5937
    @sleepdeeplychannel5937 9 місяців тому

    This video truly change my families lives. Until I saw this in November I did not know the PACT Act covered Vietnam era veterans. I was on a nuclear sub 1970-1974. I Have stage four kidney cancer. I filed my claim in November after watching this video. 80 Days later I get my approval letter for 100% disability. Thank you so much for this information.

    • @brianp454
      @brianp454 3 місяці тому

      How are you doing shipmate?

  • @enoughsaid-ch2tp
    @enoughsaid-ch2tp 9 місяців тому

    Adam i love you brother. Stay strong

  • @tommygrngo
    @tommygrngo 9 місяців тому

    Fenbendazole 440 mg daily dosage.

    • @meliciodeltorro6264
      @meliciodeltorro6264 9 місяців тому

      do you have kidney cancer? is this dewormer helping you? please update, im thinking about trying it out.

    • @juliethomas7160
      @juliethomas7160 9 місяців тому

      Did fenben help you? Please update

  • @tommygrngo
    @tommygrngo 9 місяців тому

    56 here diagnosed a year ago with stage 4 renal cell carcinoma. Immunotherapy every 3 weeks/ chemo pill twice daily. Husband and father of 4. Two still at home.

  • @ManojBartaula-y5k
    @ManojBartaula-y5k 10 місяців тому

    How to attend the clinical trial when someone cannt afford belzutifan?

  • @Ron-b7g
    @Ron-b7g 10 місяців тому

    THEY NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE. JESUS LOVES YOU.

  • @Ron-b7g
    @Ron-b7g 11 місяців тому

    THEY NEED TO CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE AND START CURING PEOPLE, AND JESUS BLESS YOU