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Are you still available for questions? I havent found anyone familiar with my condition here in Massachusetts.

My experience of CES has been horrific after falling down my stairs, rushing around after my dog. Nobody recommended an X-ray or MRI. I feel sure, in my mind that I fractured my spine, as I was heavily bruised on one side of my back. That was in November 2022, (discovered after seeing my medical documents). All the signs were there but nobody picked it up, or didn’t want to because of costs! An ambulance was called on 10 March 2024, not for me but for my husband who had palpitations but I was in agony and asked the paramedic for pain relief. He asked me to explain my symptoms and immediately he replied with you have Cauda Equina. I did not have a clue what he was talking about and he then explained. However, I thought he was wrong as my doctor had examined me two days before saying she would have to go through the hospital for any scans because of costs. An emergency operation was performed 11 March 2024! I would not wish CES on anyone to experience, even the devil!

What type of surgery did you have, please.

Thank you - this is me but no doctor will talk to me about it,

what is the best type surgery for cauda equina? Could endoscopic surgery help with CES, please

10 years. Idiopathic. It has completely ruined my life. Agonizing neuropathic pain and weak motor functions. I can't sit, stand or walk. There is no hope for me, and I feel incredibly guilty that my 80 year old mother has to care for me. I should be taking care of her. Instead, I lay in bed in screaming neuropathic pain. It took my entire life from me. It's horrific.

Thank you so much for this video. This syndrome is so energy draining it just rakes the life out of me. My CES was the result of negligence by the surgeon fixing a disc on my lower back, what makes it worse is that I end up enduring the excruciating pain at home. Because of the symptoms it was easy to find that I had a bad case of CES due to the surgery. We confronted the surgeon about the symptoms and from the start he became very defensive stating that it would take some time but that all of my symptoms were going to go away. Every month he would say the same thing to give it more time and that all the symptoms are going to go away, well 12 years passed and I still have CES. Now we understand that he played us all that year because the one year statute of limitations. We definitely tried to get legal action but we were not able to get legal representation because it was already over a year and we were not able to get a lawyer with CES experience in San Diego CA. Now at 66 our dreams and goals for our retirement are gone the bastard ruined my life and the only reason that I'm still alive is because I'm going to see him pay for what he did I totally believe in KARMA and one of these days he is going to pay for what he did.

Hello, Ive struggled receiving adequate medical support and understanding from the med system as for appropriate treatment post surgery.

Thank you.

Thank you so much for this

Caused by surgery? 😢

I had a laminectopy and fusion of L4-5 fusion, I now have cauda equina what do I need to do?

What an excellent CES video resource for anyone living with this condition. I am incomplete CES, its been 6 years as of 30 December 2023. What a journey it has been, I am thankful that around year 4 of my recovery I started to get bladder and bowel function back, still a long way to go but thankful for what I have recovered. Your tips on Energy Conservation are spot on, pretty much how my everyday life goes and I loved to see that being active is a priority as I feel from my own experience the key to really living well with CES is to as long as you are able stay active, do your mobility training but also to focus on mental strength training and never forget cognitive function training as the symptoms especially the constant nerve pain and signaling problems wreck havoc on your mental capacity and function. The most gains and recovery for me came from sheer will power and mental strength. Your mind and your attitude is the most powerful tool you have for living with CES and aiding recovery. However 6 years down the line fatigue both physical and mental is still a major factor, everything you do comes at a cost as so cleverly pointed out in this video. To all you CES worries out there, you are amazing and doing the best you can, never give up and just know that what you are able to endure each day and still be able to smile makes you an exceptional human being. For every negative experience, feeling or emotion you have, rest assured you gain 10x that back in inner strength and courage, in new learned abilities, and often leads to new experiences and opportunities in life. Where you loose in one place you do gain in others, and its in those others areas that you are getting high rewards that most other people will never get or experience. I remind myself each day that from this one negative experience I gain far more positives from it.

I am in a similar boat. They sliced my spinal chord. I have to catheterize as well. And i lost control of bowels as well. I have numbness in the sadle area too with back pain. I spent 3 months trying to sit up and then learning to walk again in a rehabilitation hospital. I was in so much pain i was in the recovery room for 3 hours before they got me a room and i ordered the doctor to give the meds that i was allergic to, gabapentin. It worked in a small dose. 13 months later, i am a month without a bowel incident. I am down to 2 catheters a day now. I still have a weak left leg and now walk with a heck of a wobble, and i have fallen quite a few times as well. Which in turn, has ruined my right elbow due to landing on it several times. I can't feel my sphincter and would go without even feeling it... I am done with doctors, and i have quit listening to them and became a carnivore and fasting, and now almost all of my inflammation is gone. Felling better, and there is hope at the end of the tunnel. Stay positive and stay the course. Good luck! Oh, i am all pain meds now!!

Unfortunately in ireland you can get mri report to hospital with Dr's letter then be told you are not an emergency be sent home to wait till you become an emergency ie. Total incontinence or leg paralyses.

Hi I have severe hernia disk nuns leg hand. Pinched nerve scoliosis spine don't feel wen I go pee feel nuns. I Shude to emergency thank you for your help I love your video

10 year chronic, ruptured L5-S1 Twice! Delayed diagnosis for one month. 54 yr female, no health issues, all current symptoms acute, on duloxetine 60mg daily

Hi, I am a radiologist but ironically I suffer from symptoms of chronic CES. No one till now has reached the diagnosis. I had an acute disc prolapse back in 2005 but when I did an MRI and showed it to my consultant ( I was a little ST1), he didn’t take it seriously. I have been suffering ever since from intermittent sciatica, but my lower back never got better. Could you please inform me what sort of surgery did you have and did you have saddle sensory change ( I never call it anaesthesia because it is not anaesthesia and as doctors we vaguely saying things to people that we don’t understand ourselves ). I would appreciate your answer.

I’ve had it for 2 weeks now

I've had 3 back 1 neck surgery help!!! I'm walking but it gets hard💔

Thank you!!!!!!!

In 2015 I had a spinal fusion surgery at my L4 L5 and my neurosurgeon accidentally scraped a hole in my Dura removing scar tissue from a prior surgery I had....a Synovial cyst removal also at my L4 L5. I also had to have multiple blood patch surgeries trying to stop a massive spinal fluid leak. I was finally released from the hospital after almost a month in there. I currently have Adhesive Arachnoiditis and my neurosurgeon characterized this as Arachnoiditis of my Cauda Equina for my disability claim which I won. I lost my ability to urinate on my own and have to catheterize myself, and from my waist down I've lost so much of my coordination to walk, and I have double sciatica that I spent years trying to find relief from. Finally my neurosurgeon said surgically there's no fix for this, and taking my fusion hardware out wasn't an option (I've been suspicious of this since my fusion surgery) I was a serious marathon runner and triathlete before all this, now I can barely walk around the block. I spent a couple of years trying to simply walk outside, but I never developed any strength in my legs which seemed odd, but I guess nerve damage causes this. It was embarrassing sometimes when I attempted to walk, as I looked like I was highly intoxicated, and at times I was concerned of being stopped for public detox. My neurosurgeon says I have CES, but with my research I'm not sure myself, or if it even matters at this point (it's been 8 years now since my fusion surgery which started all this) If you read this, is there a benefit finding out if I truly have CES, or does my Adhesive Arachnoiditis kind of override any issues CES may cause? Sorry if this is somewhat confusing....I have trouble articulating thoughts sometimes Thanks for all you do helping people, Tim

I am in tears watching the limitations of energy conservation and the cost of energy conservation because those two sections are exactly my day-to-day. It was like you were reading my own script.

I dont really know if i had cuada equina or not one day i woke up and my private part is numb but i can pass the urine but abit harder then normal but after a week its got less numb and i pass urine alot better

CES Life

Can u have cauda equina with adhesive arachnoiditis

Thank you so much for this. So useful so someone who's suffering from this. I'm so grateful for you as someone who has insurance that doesn't cover any therapy. You're amazing and thank you for making these slides and uploading them. When you pay it forward as you are, good things will come back to you. Thank you Thank you Thank you.

Without sergery doing physiotherapy cure cauda equina?

You explained so much.

I can't feel my legs moving like a constant heartbeat, the list of complications is ways pass all that you have describe as symptoms and difficulties

I have been battling with cauda equina syndrome and it is about to kill the nerves in my limbs can you please help, 23 year of pain and discomfort please help please 😭😭💔💔💔💔

Have you ever had any one with this Condition that PT and other things couldn’t help? I’m currently in PT and they specialize in Pelvic Floor. She wants to do vaginal exam because she said it’s definitely internal too. Honey, I’m losing hope., this pain is the worse I’ve ever experienced. I don’t want to do physical therapy if I’ll still be in all of this pain. Help me. Help me. ❤

I need help. Have claudia equina. Must find treatmrnt

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My father suffered from CES since Sept 2019 and had been undergone surgery. His present complaint is hypoaesthesia, on foot, calves, back thighs, and bottocks. Is there any physiotherapy modality or any kind of treatment to improve his sensoric problem? Thank you in advance

What happened can anyone explain to me please🙏