Відео

I have MGUS peripheral neuropathy. It is frustrating that I can’t get anything for pain.

I had mgus and osteoporosis at 40, Lupus, Sjögren’s, and I’m in my 60’s and I have neuropathy.

Does anyone with Morphoea have MGUS?

Sir my mom has m protein .7 Kappa 39 Lambda 30 ratio normal Ig G mgus She has orthostatic hypotension Bp 60 /40 sitting 50/30 standing What can be done to increase the Bp

Respected Sir, I am from India , I have been recently diagnosed with oestopoikiliosis and now at undertreatment with orthopaedic doctor, but at now I have recently visited to endocrinology clinic and doctor advised me to get a skeletal survey done. The doctor having confusion in the previous diagnosis Please advise me treatment. Please share me your contact details ( email etc.) So that I will approach you for further treatment. I am just 21 yrs old

Respected Sir, I am from India , I have been recently diagnosed with oestopoikiliosis and now at undertreatment with orthopaedic doctor, but at now I have recently visited to endocrinology clinic and doctor advised me to get a skeletal survey done. The doctor having confusion in the previous diagnosis Please advise me treatment. Please share me your contact details ( email etc.) So that I will approach you for further treatment. I am just 21 yrs old

Respected Sir, I am from India , I have been recently diagnosed with oestopoikiliosis and now at undertreatment with orthopaedic doctor, but at now I have recently visited to endocrinology clinic and doctor advised me to get a skeletal survey done. The doctor having confusion in the previous diagnosis Please advise me treatment. Please share me your contact details ( email etc.) So that I will approach you for further treatment. I am just 21 yrs old

I have MGUS & started on LDN (low dose naltrexone) 3 months ago. The bone pain in my hips & lower back has gone away. I have heard of people with MGUS staying on LDN for years and not getting myeloma. It’s giving me hope.

Can we give arsenox in home?

Dr. Berenson. You mention in minute 7 that MM and MGUS might be infectious. What evidence do you have for that?

Good

i'm 61 and in Feb. was diagnosed with breast cancer turn out I have stage 4, but kidney dr did test for multiple melyoma and thinks i mgus i have symptoms everyone here has stated . m spike was .78 kappa 689 protein ratio kappa-lamba was 1.79 pet scan shows lesion everwhere in skeleton, now i am seeing hematologist Aug. 30th

My 76 yr old mother has myeloma, she's had stem cell treatment. Im 57 have mgus, my 51 yr old sister has mgus. We all suffer with pain , fatigue etc my specialist is knowledgable but when seeing my GP/ he/she , never get to see same one ,DWP seem to think there are no side effects . Seem to fight aloosing battle.

My MGUS keeps going up. Started with .3, .6., .8 and .9 g/dl m spike. I have osteopenia. What drug did you prescribe to help bone loss? My hematologist is worried that my m spike will keep rising in a few years and then they will have to put me in a critical trial at 1.5 g/dl. Is this true? My K/L ratio fluctuates from 1.76 and 2.0 which is a little high. Should I visit an MM specialist?

My name is Sunli gandhi, Dr. Harvey is the only herbal doctor who could ever get my HIV cured with his herbal products. I have tried almost everything but I couldn’t find any solution for the virus, despite all these happening to me, I always spend a lot of money to buy HIV drugs and other supplements to keep me Healthy and taking several medications. Until one day I was just surfing through UA-cam when I came across a great post from Anita, who said that she was diagnosed with HIV and was healed through the help of this great herbal supplements of Dr Harvey, Sometimes I really wonder why people call him the great Dr.Harvey, I never knew it was all because of the great and perfect work that he has been doing. So I quickly contacted him and told him everything happening to me, and he asked me a few questions and he said something I will never forget, that anyone who contacts him is always getting his/her cure within a few weeks after doing all he asks them to do. So I was amazed all the time I heard that from him, so I did everything he said only to see that at the very day which he said I will be cured and should go for a test to confirm my status, I went to hospital for the final test and the doctor after running the test said I'm HIV Negative wow. I'm very amazed and happy about this cure i have really gone through so much pain and tears for this Dr.Harvey cured me with the help of his natural herbs.If you have anybody going through this same Situation or any kind of cancers or Diseases at all contact Dr Harvey today he cures them all save a life today. You can contact Dr.Harvey VIA EMAIL:[Drharveyphytotherapy@yahoo.com] WHATSAPP:‪‪+1 (516) 468‑3210‬

Did anyone research on curcumin

Whats the cause of MGUS?

Good day to you my name is Joy how are you doing and feeling today I am new to your channel and I am 59 and living with Hiv and my doctor told me that I have Monoclonal Gammopathy .I has a appointment on Monday January 6th to see my doctor at the Hematology Clinic in Houston Texas at the Smith Clinic .if you have Hiv and Monoclonal Gammopathy will make it me sick Joy at joyannadavis12@gmail.com

Great, totally demoralizing for those with Mgus in their 40s. Quite unsensitive

A m-protein was found on my electrophoresis. I had a value of .27 gm/dL which I know isn't "bad" in the way of myeloma or my risk to progress. However, I just turned 28, so that gives me many years to progress. We also haven't characterized the M-spike yet so we really don't know which antibody it is or if there is an outside cause.... I am pretty calm after researching but I am VERY symptomatic. I have weird pains in my ribs, back, and legs and even my elbows... I guess we will find out soon. I just wish more people were studying symptoms in younger people and MGUS. And every study I've seen involved older folks (40 or older).

Thank you for making this video.

That left speaker audio is killing me.

LIKE THE STYLE OF PRESENTATION BY THE DOCTOR. VERY CLEAR METHOD!

be carefull velcade kill 1/3patients in the first injection for patients stage 3 heart involvement .My wife have amyloidosis al in the heart. Doctors want change her heart and stem cell transplant 8 months ago.We stop chemiotherapy after 3 cycles and take egcg in green tea, resveratrol, curcumin high dosage fish pil, and now his heart is new, her septum thickness decrease from 19 at 12 mm in 6 months. See this page, his the story from oncologist prof werner hunstein . We have make a facebook group. AMYLOIDOSIS INTERNATIONAL. www.hunstein-egcg.de 

I don't want to go back to work and work till I drop dead deal, but it seems only wheelchair persons get disability and cancer don't count as a disability. That sucks.

Does every MM patient have mugs illness first

I'm tired of MGUS being brushed aside. I have MGUS, not myeloma and have extreme bone pain, fatigue, and one infection after another. I just had a sinus infection, shingles and a uti all in a 3 week period. I do not live a normal life and had to leave my job. I've read posts of people with MGUS who are suffering in the same way. Many of us are severely immunocompromised. And yes it is due to MGUS.

Thank you. Gracias.

Support group for MGUS on Facebook "MGUS/smoldering myeloma and related neurapthy support group"

Please join my mgus support group. For mgus and related neuropathy as well as smoldering myeloma

Thanks for helping with the pronunciation of Lenalidomide. My colleague and I had no idea how to say the name before watching your video.

epic video, helped alot!

Thank you you so much for the interview with Dr. Berenson. It was through patient power that I learned about Dr. James Berenson and his work in multiple myeloma. In fact, I just finished an appointment with Dr. Berenson 6 hours ago. We drove 500 miles to see him but it was the trip well worth making.

@bigdaddylonglove Keep the fight big D, I will keep in my little notebook of MM warriors, that I faithfully take out and remember in thought and prayer daily. I send you strength for the fight and joy for the days.

I just read that Mark passed away in May 2011. Even though I never met him, I feel devastated for his family's loss. A brother in blue from the east coast.

God bless you brother! I pray that your doctors were able to get you back into remission. I too was diagnosed with MM in August 2006 at the age of 38. I'll try reaching out to you at the MBPD. -Michael

Hope all is well Mark!!! my dad was MBPD 1962-1992...you are brothers!