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Canadian Skin Patient Alliance
Canada
Приєднався 30 тра 2012
The CSPA is a national non-profit organization. Our mission is to improve the health and wellbeing of people across Canada affected by skin, hair, and nail conditions, through collaboration, advocacy, and education. To achieve this mission:
We raise awareness about the impacts of skin conditions.
We educate on a variety of issues affecting skin patients, their families, and caregivers.
We advocate for the best care and treatment options for all skin patients.
We facilitate patient engagement in dermatological research.
We support and collaborate with our Affiliate Member organizations who work with specific skin patient communities such as those living with acne, scleroderma, melanoma, and psoriasis.
We raise awareness about the impacts of skin conditions.
We educate on a variety of issues affecting skin patients, their families, and caregivers.
We advocate for the best care and treatment options for all skin patients.
We facilitate patient engagement in dermatological research.
We support and collaborate with our Affiliate Member organizations who work with specific skin patient communities such as those living with acne, scleroderma, melanoma, and psoriasis.
Wet Wraps Technique (for Eczema)
Wet wraps are a treatment that uses a low-potency topical steroid and an emollient (moisturizer) to calm flares and improve the effectiveness of the medication. It is often used for those with moderate-to-severe atopic dermatitis, especially children, where topical applications have not helped. Wet wraps involve double layers of tubular bandages forming a body suit. They work in two ways:
1. Evaporation cools the skin, reducing itching and discomfort. If the bandages become dry, you can remoisten them (this is usually only needed for an overnight treatment).
2. Rehydration puts moisture back into the skin as the skin absorbs large amounts of the product. It also improves the penetration of the medication into the skin.
Watch to learn how to do a wet wrap!
Disponible en français : ua-cam.com/video/ZNDW3m7JuPY/v-deo.html
1. Evaporation cools the skin, reducing itching and discomfort. If the bandages become dry, you can remoisten them (this is usually only needed for an overnight treatment).
2. Rehydration puts moisture back into the skin as the skin absorbs large amounts of the product. It also improves the penetration of the medication into the skin.
Watch to learn how to do a wet wrap!
Disponible en français : ua-cam.com/video/ZNDW3m7JuPY/v-deo.html
Переглядів: 1 339
Відео
Technique d'enveloppement humide (Wet wraps pour l'eczéma)
Переглядів 134Рік тому
Les enveloppements humides [pansements humides, wet wraps] sont un traitement qui utilise un stéroïde topique peu puissant et un émollient (hydratant) pour calmer les poussées et améliorer l’efficacité du médicament. Il est souvent utilisé chez les personnes atteintes de dermatite atopique (eczéma) modérée à grave, en particulier chez les enfants, lorsque les applications topiques n’ont pas aid...
REFLECTIONS: Mona's Patient Story
Переглядів 147Рік тому
(À noter: Vidéo est disponible en anglais avec les sous-titres en français) Mona Fraser lives with a condition called cold urticaria. She is literally allergic to the cold! Cold urticaria is a rare form of physical urticaria that severely impacts Mona's life oftentimes keeping her housebound and unable to enjoy everyday activities that many take for granted. Visiting friends’ homes, taking a wa...
POINT DE MIRE : L’histoire d’Hazel
Переглядів 28Рік тому
POINT DE MIRE : L’histoire d’Hazel Gagnante du prix Tanny Nadon pour les aidants naturels (2022) Prodiguer des soins va souvent au-delà de la satisfaction des besoins physiques. Connaissez-vous une personne dont les efforts surpassent les attentes? Présentez sa candidature pour ce prix. Date limite de présentation des candidatures : 15 octobre 2023 Il y a 28 ans, John Hart a été victime d’un ac...
SPOTLIGHT: Hazel’s Story
Переглядів 1,3 тис.Рік тому
SPOTLIGHT: HAZEL'S STORY CSPA's 2022 Tanny Nadon Caregiver Award Recipient - Hazel Booth Nominate a caregiver! 2023 Nomination Deadline: October 15th (See details below).) John Hart suffered a workplace accident 28 years ago that left him with third degree burns to forty percent of his body and the loss of two limbs. Despite living hours away, John’s sister Hazel became one of his biggest champ...
REFLECTIONS: Sonia's Patient Story
Переглядів 2,3 тис.Рік тому
Sonia Whyte-Croasdaile led a very active and healthy life as a mother, wife, and health care professional (nurse and social worker). In 2011 things came to an abrupt halt when she experienced flu-like symptoms which rapidly developed into a rare and deadly disease called Stevens-Johnson Syndrome (SJS)/Toxic Epidermal Necrolysis (TEN). For six excruciating weeks Sonia fought for her life in hosp...
Comment l’eczéma affecte-t-il toute la famille?
Переглядів 5 тис.2 роки тому
Lorsqu’un enfant reçoit un diagnostic d’une affection de la peau, comme la dermatite atopique, c’est toute la famille qui est touchée. L’Alliance canadienne des patients en dermatologie (ACPD) est une organisation nationale sans but lucratif qui se consacre à l’amélioration de la vie des personnes au Canada qui sont touchées par des affections de la peau, des cheveux et des ongles. Aidez-nous à...
How does eczema impact the entire family?
Переглядів 7 тис.2 роки тому
When a child is diagnosed with a skin condition, like atopic dermatitis, the whole family is impacted. The Canadian Skin Patient Alliance (CSPA) is a national not-for-profit organization dedicated to improving the lives of people in Canada impacted by skin, hair, and nail conditions. Help us to educate, advocate and support initiatives throughout the country to improve the health and lives of s...
REFLECTIONS: Christine's Patient Story
Переглядів 1 тис.2 роки тому
Christine Butler is a retired public servant who now serves as a municipal councillor in her hometown of Conception Bay South, N.L. She is the Co-Chair of the CSPA Board of Directors and additionally volunteers for organizations in her community concerning children, families and mental health/suicide awareness. Christine's favourite role is being "Nanny Christine." Christine was born with a rar...
Having hope
Переглядів 362 роки тому
When you live with a chronic disease like a skin condition, most treatment interventions are about managing the condition, but rarely cure it. Today Dr. Lee-Baggley talks about managing your condition and what you can do when things don't always go as planned. #ShedtheShame2022
Building a village
Переглядів 212 роки тому
"It takes a village to be well." Find out what Dr. Lee-Baggley means when she says this and what your village could look like, and how it can help you manage your condition. #ShedTheShame2022
Why is it important to explore my values?
Переглядів 112 роки тому
Your values can become your compass when making decisions and are expressed through our behavior. When you live with a chronic disease it is important to have different ways to express your values since sometimes certain behaviours may not be available to you such as your favourite exercise.
Worrying about your skin condition getting worse
Переглядів 452 роки тому
When you live with a chronic condition it is sometimes hard not to worry about it getting worse. While you might not be able to stop these worries from coming, Dr. Lee-Baggley talks about what we can do to stop the worries from taking over. #ShedTheShame2022
How to manage unsolicited advice
Переглядів 322 роки тому
Many skin conditions come with a genetic component - if a parent has it, then there is an increased chance that they might pass it on to their children, often making them feel guilty. Dr. Lee-Baggley discusses how understandable this distress can be and how we can manage this worry. #ShedTheShame
Dating with a skin condition
Переглядів 572 роки тому
Dating under any circumstance can be intimidating. Sometimes people living with skin conditions feel even more insecure and uncomfortable discussing their condition with a potential partner. Dr. Lee-Baggley shares her insights on how to change your perspective about your condition and making you feel more comfortable in the skin you are in. #ShedtheShame2022
How do I handle when people stare at me?
Переглядів 882 роки тому
How do I handle when people stare at me?
Why does a flare come after an episode of stress?
Переглядів 582 роки тому
Why does a flare come after an episode of stress?
What is pacing and why should I do it?
Переглядів 572 роки тому
What is pacing and why should I do it?
ua-cam.com/video/6QpjPEOaI00/v-deo.htmlsi=yCZ6Ph_JlT-7CYKP
Merci beaucoup, de la France .
Thank you for this. Most of the other videos are from the medical perspective, which is useful obviously, but it's really great to hear your perspective
Now how is it ?
Looks soothing
😀 P r o m o s m
p͓̽r͓̽o͓̽m͓̽o͓̽s͓̽m͓̽ 🤘
Indeed it’s a sad and a lonely journey..and truth is we need the encouragement,it’s a traumatic experience to sufferSJS ,is there a way I can join the zoom monthly meeting up because I suffered from SJS a year age and I have failed to get my skin back,it’s so heart breaking
Oh Heather you've gone through such a long and painful road! I'm so happy that you are doing much better! xoxo
Great Content. Please make More. I really want to be friends :3
Here Before 20 subscribers. Reply to Me pls. Oh, and happy repeat day! :D
Great channel. you and your team produce High quality! Stay fresh xd