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Can venous TOS cause jugular vein bulging or distension?

I was diagnosed w/TOS several years ago. Dr at the time suggested I have my first rib removed. I declined. Because I’ve left it untreated for so long I’m Now Finding it’s increasingly difficult to relieve the intense numbness and pain in my hands, palms & arms. Effects my sleep waking me 4-5 times a night because the numbness is so intense and my daily life. It’s hard to use your hands when they are so numb and hurt so bad from the numbness. It’s my entire hand on both sides, my palms. When I first wake up it’s REAL bad, I used to be able to move around & the symptoms would subside some. Now I just can’t get it to subside no matter what I do. I can’t use my hands normally after waking up and for a large part of the morning. Have to stop whatever I’m doing because I’m unable to hold, grab to do much due to the pain & numbness

What about IIH Idopathic Intercranial Hypertension caused by TOS

I have been having similar syntomps for months, ive had all kinds of tests and they cant find anything now my doctor thinks its psychological, i am almost in tears with frustration.

Thanks for the great info ...Can someone with inference tell me based on occurance and probability what might be going on in my case. It was a sudden onset when I tossed a tennis ball above my head with my left non racket hand to serve during a tennis match. I uses to surf and play tennis but now in my 50's I only play tennis. After it occured It just felt like a funny bone trigger but a little more sharp and it would reoccur everytime i tried to serve.. so i tried to fight through it by not tossing the ball as high but I escalated its anger and before I know it it waa happening when Id run and swing the racket ...seems to be associated with how i position my head as in looking upward. It was not tgere one minute then when i threw my arm up looking up it would feel like someone just plucked my left side like it was a tightrope. Now, after a week or so i am feeling numb feeling in my thumb and index finger. How it can just happen so suddenly with no prior indication of an issue after 50 years is troubling ... I am a tennis coach and quite worried atm plus I can't afford surgery

Thank you for your expertise and advise!!! I so badly needed to see this video to stay encouraged and learn more.

Do you have a specialist for TOS in my area? I notice Dr Jenkins is in New York.

My injury was 2,032 days ago. Nearly 2 years after the injury, and bumped around to several providers after failed procedures, injections and failed PT before I made it to vascular surgery. I was looked up and down and, after a few assessments, dismissed as, "not TOS." I have had the XR's, CT, MR, MR Arthrogram, DVU US, bil wrist US, and not really showing much. The DVU was today, and there's an EMG coming up. I have requested an MR Neurography from PM&R. What can I say to get these providers who have, "done all that I can for you," understand that my pain is real and I can't do any strengthening exercises for shoulder stability due to the loss of circulation and numbness/tingling in digit 3-5. I'm on medical leave and being sent for an Independent medical exam who sent me back to work the 1st time I was off for this 4 years ago. I just want to be heard and not given up on.

Cannot find anyone to help me with PT here in Metro Detroit, Michigan. Therapists don't have training or experience in treating it.

Thank you for doing this video...

Very good explanation

I have it what can I do

I have a c6 herniation in addition to tos. I suddenly realised that my shoulder and biceps are atrophied, seems to have come on fast. Am I in trouble, or is there time? Drs in my country do not recognise tos as a debilitating issue.

Can scapular dyskinesis be associated with TOS?

Never knew that TOC was bilateral... thanks for the distinction.

So you think I should ask my doc for a cat scan?

Hi! How do I go to you? I live in Loa angles

This was by far the best info I have seen! Thank you! Maybe I missed it, but is there a specific MRI that will show the compression of the Brachial plexus? During shoulder surgery, if a thickened coracoacromial ligament is released can this cause the shoulder to roll forward and end up becoming TOS? Is the pectoralis muscle ever involved with TOS?

What's the best way to schedule a MRI. I have called several times and haven't received a call back. Thanks

My doctor made me wait years to get the surgery and had me go through rounds of Botox my insurance wouldn't pay for and had to be fought for I just can't help but wonder if they had done it sooner you say you don't want to get to that point but they didn't diagnose me for years so what was I supposed to do

This is one of the best and most informative videos I have seen on TOS. Thank you so much for your expertise! I am tempted to fly out to get your care.

Very insightful tysm! What would you suggest? What test? I go tomorrow for my test,😅

These protocols focus on the optimal visualization of the thoracic outlet region, ensuring that all potential areas of compression are thoroughly examined.

MRI provides high-resolution images, allowing doctors to clearly see the detailed structure of the nerves, blood vessels, and skeletal muscles in the thoracic outlet area. 😊😊

Hi what happens if you have Vascular TOS but the left subclavian vein is occluded? Can you still weight lift? What is the best course of action for a normal life

right, but how aboug a bad curve needing surgery real young, and causing a host of issues like nTOS?

Hi, I have Vascular TOS, however my the left subclavian vein is completely patent and I’m currently taking blood thinners. Will I ever be able to weight lift or exercise again and do I need my rib removed? I would appreciate a response

Thank you for creating this video!

I live in France, I am 38 years old, i live in France and I have two jobs, one at the computer and the other in a bakery, but it's similar to what you'd describe as a UPS delivery person's job - carrying boxes and lifting my arms a lot. The first symptom appeared 2 months after I started working at the bakery. I ignored it because I thought it was just a sore wrist, then the pain moved to the elbow on the other side. After 6 months it got drastically worse, until before my sick leave, I left work crying in pain. I couldn't move my arms, and I had tingling, weakness, pricking sensations, arm pain, and numbness in one arm. At first, I was diagnosed with tendinitis, then the physiotherapist with a bilan suspected something else. After an X-ray that showed astrose in my chest, I was seen by 2 family doctors, and the work doctor, I was their first case. I insisted on seeing a specialist and not leaving without a final diagnosis. Since I live in France, I went to a vascular doctor. He did an echo on my arms and saw that blood wasn't circulating in my left arm when it was at a 90° angle. He confirmed the diagnostics. I am currently doing physiotherapy, but my questions are: don't know if is neurogenic, arterial or both and is this a professional disease? Thanks for the content.

I'm so thankful I've discovered Dr. Werden and this little channel dedicated to us patients with this hard-to-diagnose condition. I've had symptoms for 4 years now, been to A LOT of doctors as well (got different diagnoses) but nothing helped. Only Dr. Warden confirmed my suspicion for more than a year now and I've decided to take another chance and go to a specialist in our area - but this time with more information and confidence of advocating for myself. I hope I could go to great specialists like Dr. Werden but I'm all the way from Asia.

Very interesting! I appreciate the information. I was recently diagnosed & treated with a first rib resection for Pagett Schrotter

I really appreciated art jenkins video when he showed tos 2 tos patient cases with pain/parestesia CBSQ diagrams of the patients. Can you share more CBSQ pain patters of patients with TOS? Specially when there are non classical pain/parestesia patters?

Thank you for this. There is very little info out there. I was diagnosed with Paget Schrotter.

I have gotten nerve injury after laparoscopic appendix surgery. The pain is over 10. Thanks for all your efforts and time. I have been diagnosed with TOS, but none of my doctors cares😢

Can’t believe I’m the first to comment. This video is so helpful and deserves a lot more views. Well done doc.

also which is the name of the study about no correlation between adson test and plexus compression?

Can you share the name of the study you talk about in 32:23?

would love to see the cases of patient 3 and the rest that wasn't shown in this video. Any way to see that?

Would love part 3. What about MABC diagnoses tos shown in 7:02.

These videos are dope, i'm watching every single one of them. Doc. Jenkins mentioned the Bertolotti syndrome, I swear... Finding an extra pseudo-rib while pressing on the QL (i was trying to relax it) is really the strangest thing happened in my studio!

👌💘🤙

I appreciate your video

I really love this video ❤

The part when you said that you don't want to stick a needle in the nerve around the spine made me think that we need an other way to stimulate it without a needle... Modern medicine needs to advance more in this field...

I wrote a longer description of my TOS and experiences with it. Sharing our stories always seem to help others get a proper diagnosis! Dr. Werden, I have noticed that when my one of my trapezius muscles get swollen and hard, the knots and pain extend up the neck and into the head causing migraines. Rarely I can use my massage gun to release the muscle and get relief. But 99% of the time I have to take a migraine medication, Imatrex. Why would a migration medication work to relieve this flair up of tightness and mostly pain? Post op I was at a point where at home migraine injections stopped working.

I have Bi-lateral TOS. I have always thought my case would be a good one to add to a study. My surgeon is considered one of the top 5 in the U.S that specialize in this surgery, Dr. Gregory Pearl. I had my left side surgery first and then 8 months later my right side. In the thousands of cases he has done, I had two things he had never seen before. Both of my Anterior Scalene muscles were literally ROCK HARD! Dr. Pearl noted that he had never seen one let alone both anterior scalene muscles as hard as a rock. The second thing he had not seen until my case. Was the large fibrous bands that filled my pectoral or chest area. He removed all of the banded tissue. He as well removed both first ribs along with the connected anterior scalene muscles. My TOS is three fold in that it is genetic, as my Mom has right sided TOS. She had a rib resection done in the early 90s.This is when they only removed a small section of the first rib. Her chronic pain was only alleviated by a smaller percentage than is possible today, with full rib removal. Second I suffered from 4 or 5 events of severe whiplash. 3 were car accidents and 2 other more severe neck injury. Third I was a hairstylist for 17 years, until my TOS caused me to be disabled as it went undiagnosed for so long. I also have the unfortunate, rolled forward shoulders, forward set head, and that posture. What I find odd is that genetically my Mom has diagnosed right sides TOS. But my Father has the very obvious rolled forward shoulders and forward set head. Massage therapists were always shocked and confused when my shoulders would be so high up, “around my ears,” they would describe. And then they would both drop a few inches after the massage. I have not been able to meet and receive care from a Primary Care Doctor in the Houston TX area. I have had to retain my Primary Doctor in Seattle while I live in Texas due to each doctor denying to take me on as a patient. They each said they had never met anyone with TOS, had only read about it in text books, or had never heard of it before. Even the pharmacists here don’t believe in this “rare” disorder causing the kind of level 10 chronic pain that we suffer.

Are you accepting new patients and if not, do you do over the phone/video consults from someone in another state?? Thank you

little awesome video. Thanks sir

Thanks doctor. Wait for your next video ❤❤

So nice and very informative music video. Thanks for this video