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Recap of the CMTA Summit 2024 | Interview with Jeana Sweeney, Chief Engagement Officer
In this exclusive recap from the CMTA Summit 2024, Johannes Sauer, CEO of Cadense Adaptive Shoes, sits down with Jeana Sweeney, the Chief Engagement Officer of the Charcot-Marie-Tooth Association (CMTA). Together, they discuss the vital work CMTA is doing to support individuals with Charcot-Marie-Tooth Disease (CMT), the world's most common inherited neurological disorder.
Throughout the conversation, Jeana shares her personal journey with CMT, how the association is funding groundbreaking research through the STAR (Strategy to Accelerate Research) initiative, and the essential resources CMTA provides to the CMT community. They also highlight the importance of finding adaptive footwear for individuals with CMT, with Cadense Adaptive Shoes offering practical solutions for everyday life.
Whether you or a loved one are living with CMT, or you're just interested in learning more about this impactful nonprofit and its work, this video provides valuable insights into the condition, the research, and the supportive community that CMTA fosters.
✨ Learn more about CMTA: www.cmtausa.org
✨ Discover Cadense Adaptive Shoes: www.cadense.com
#CMTA #CMTResearch #AdaptiveFootwear #CadenseShoes #CharcotMarieTooth #DisabilityAwareness #NeuromuscularDisease #SummitRecap #CMTA2024
Timestamps:
00:00 - Introduction
Johannes introduces the summit and welcomes Jeana Sweeney to discuss CMTA’s work and mission.
00:28 - What is CMTA?
Jeana explains the role of the Charcot-Marie-Tooth Association (CMTA) and its dedication to improving the lives of those affected by CMT.
01:00 - Understanding CMT
Jeana gives a simplified explanation of Charcot-Marie-Tooth disease and how it affects the peripheral nerves and daily life.
02:01 - Jeana's Personal Journey with CMT
Jeana shares her personal experience living with CMT, including her diagnosis at 13 and how it has shaped her life.
03:34 - Challenges of Daily Life with CMT
Jeana talks about the daily challenges faced by people with CMT and the importance of adapting.
04:32 - CMTA's Research and Support Initiatives
A deep dive into the research projects and community support offered by CMTA, including partnerships with biotech and pharmaceutical companies.
05:52 - Footwear Challenges for CMT Patients
Jeana discusses the difficulty of finding suitable shoes for those with CMT, highlighting the importance of adaptive footwear like Cadense Adaptive Shoes.
07:12 - How to Connect with CMTA
Jeana provides information on how individuals can connect with CMTA for support, resources, and involvement in the CMT community.
Переглядів: 8

Відео

Discover How Cadense Shoes Boost My Confidence | Mason Tenbusch Review
Переглядів 8114 днів тому
Join Mason Tenbusch, our Cadense Adaptive Shoes ambassador, as he shares his experience with our innovative footwear designed for those with cerebral palsy. In this video, Mason highlights the comfort, style, and unique features of Cadense shoes, including their variable friction technology that enhances mobility and prevents trips. From easy-to-use Velcro straps to the cushioned, sturdy design...
How Cadense Adaptive Shoes Boost Mobility & Confidence | Kathy Chester
Переглядів 9514 днів тому
Discover how Cadense Adaptive Shoes are transforming mobility for Kathy Chester and her clients! With low friction pucks, these shoes offer the perfect balance of grip and glide, enhancing stability and confidence during workouts and daily activities. Kathy explains how these innovative shoes support people with mobility challenges, like those with MS or stroke recovery, by making movements lik...
Hands-Free Adaptive Shoes for Foot Drop | Tasha York Reviews Cadense Velcro Technology
Переглядів 11814 днів тому
Join Tasha York as she explores the game-changing features of Cadense Adaptive Shoes. With innovative Velcro technology that mimics traditional laces, these shoes offer a hands-free experience perfect for those with foot drop or mobility challenges. Discover how Cadense shoes help navigate different terrains smoothly and stylishly. Watch Tasha's first impressions and learn why she's excited to ...
Doctor Reviews Cadense Adaptive Shoes: A Game-Changer for Stroke Recovery and Mobility
Переглядів 10414 днів тому
Dr. Kala Sanchez, a dedicated healthcare professional, shares her experience with Cadense Adaptive Shoes and how they’ve transformed the way her stroke patient walks. Watch as she demonstrates the difference between regular shoes and Cadense Adaptive Shoes, which feature a unique frictionless bottom designed to help those with mobility challenges slide their foot easily without stumbling. These...
Unboxing Cadense Adaptive Shoes for Foot Drop | First Impressions & Review!
Переглядів 6721 день тому
Join Emily West as she unboxes her new Cadense Adaptive Shoes designed specifically for foot drop caused by MS. Watch as she reveals her first impressions and gives an overview of how these innovative shoes are intended to make walking easier for those with similar challenges. Stay tuned for a follow-up reel next week where Emily will showcase how these shoes perform in action. Don’t forget to ...
Discover the Freedom of Cadense Adaptive Shoes | Julie Brazeau's Experience with Multiple Sclerosis
Переглядів 16621 день тому
Julie Brazeau, a dedicated MS warrior, shares her transformative experience with Cadense Adaptive Shoes. Living with progressive multiple sclerosis, Julie has faced challenges with spasticity and mobility, but these adaptive shoes have made walking easier and more comfortable than ever. In this video, Julie talks about the freedom and confidence she’s gained from wearing Cadense Adaptive Shoes,...
Cadense Shoes: Revolutionizing Mobility for Stroke Survivors and Beyond
Переглядів 29Місяць тому
Cadense Shoes: Revolutionizing Mobility for Stroke Survivors and Beyond
Cadense Community Spotlight: Stroke Survivor Jim Making Progress with his Cadense Adaptive Shoes
Переглядів 59Місяць тому
Cadense Community Spotlight: Stroke Survivor Jim Making Progress with his Cadense Adaptive Shoes
Dr Kala Sanchez Review of the Cadense Adaptive shoes
Переглядів 106Місяць тому
Dr Kala Sanchez Review of the Cadense Adaptive shoes
Exercising with your Cadense Adaptive Shoes hosted by Dr. Gretchen Hawley
Переглядів 52Місяць тому
Exercising with your Cadense Adaptive Shoes hosted by Dr. Gretchen Hawley
Getting Started With Your Cadense Adaptive Shoes hosted by Dr Gretchen Hawley
Переглядів 1292 місяці тому
Getting Started With Your Cadense Adaptive Shoes hosted by Dr Gretchen Hawley
Stroke Survivor Kwame Shares How Cadense Adaptive Shoes Made Walking Easier
Переглядів 682 місяці тому
Stroke Survivor Kwame Shares How Cadense Adaptive Shoes Made Walking Easier
Interview with Cadense at the Spastic Paraplegia Foundation 2024 Conference
Переглядів 862 місяці тому
Interview with Cadense at the Spastic Paraplegia Foundation 2024 Conference
Cadense Community Q&A with Physical therapist and MS-certified specialist Dr. Gretchen Hawley
Переглядів 2592 місяці тому
Cadense Community Q&A with Physical therapist and MS-certified specialist Dr. Gretchen Hawley
Dennis Anderson's Journey: How Cadense Adaptive Shoes Transformed His Walking with MS
Переглядів 883 місяці тому
Dennis Anderson's Journey: How Cadense Adaptive Shoes Transformed His Walking with MS
Cadense Community Q&A - All your questions about Cadense Adaptive Shoes answered
Переглядів 6463 місяці тому
Cadense Community Q&A - All your questions about Cadense Adaptive Shoes answered
Cadense Community Spotlight: How Joan is finding new confidence and mobility with her Cadense shoes.
Переглядів 944 місяці тому
Cadense Community Spotlight: How Joan is finding new confidence and mobility with her Cadense shoes.
Cadense Community Spotlight: Martha's MS Journey with Cadense Adaptive Shoes
Переглядів 1544 місяці тому
Cadense Community Spotlight: Martha's MS Journey with Cadense Adaptive Shoes
Cadense Community Spotlight: Stroke Patient Kevin sharing his experience with Cadense Adaptive Shoes
Переглядів 1734 місяці тому
Cadense Community Spotlight: Stroke Patient Kevin sharing his experience with Cadense Adaptive Shoes
👟 Cadense Adaptive Shoes Review: Insights from Jacob Pacheco, CP Ambassador and Influencer 👟
Переглядів 1 тис.5 місяців тому
👟 Cadense Adaptive Shoes Review: Insights from Jacob Pacheco, CP Ambassador and Influencer 👟
👟 Cadense Sneakers Review: Mason's Experience with Cerebral Palsy 👟
Переглядів 6995 місяців тому
👟 Cadense Sneakers Review: Mason's Experience with Cerebral Palsy 👟
👟 Cadense Adaptive Shoes Testimonial: Rhonda's Journey with MS 👟
Переглядів 1245 місяців тому
👟 Cadense Adaptive Shoes Testimonial: Rhonda's Journey with MS 👟
Dr Susko's Tips for your new Cadense Adaptive Shoes
Переглядів 6475 місяців тому
Dr Susko's Tips for your new Cadense Adaptive Shoes
The Groundbreaking Journey of Cadense | The founders share the story behind Adaptive Shoes!
Переглядів 1485 місяців тому
The Groundbreaking Journey of Cadense | The founders share the story behind Adaptive Shoes!
Ask the founder: Interview Series with Dr. Susko - What is next for Cadense?
Переглядів 6 тис.7 місяців тому
Ask the founder: Interview Series with Dr. Susko - What is next for Cadense?
Ask the Founder: Interview Series with Dr . Susko - Why did you start Cadense
Переглядів 447 місяців тому
Ask the Founder: Interview Series with Dr . Susko - Why did you start Cadense
Ask the founder: Interview Series with Dr. Susko - What was the development of the Cadense shoe like
Переглядів 297 місяців тому
Ask the founder: Interview Series with Dr. Susko - What was the development of the Cadense shoe like
Ask the founder: Interview Series with Dr. Susko - What makes Cadense shoes different?
Переглядів 1,3 тис.7 місяців тому
Ask the founder: Interview Series with Dr. Susko - What makes Cadense shoes different?
Ask the founder: Interview Series with Dr. Susko - How Cadense Started
Переглядів 527 місяців тому
Ask the founder: Interview Series with Dr. Susko - How Cadense Started

КОМЕНТАРІ

  • @RobertSetter
    @RobertSetter 3 дні тому

    Mason's TikTok version of this ad led me both to your product and to the Tenbusch brothers' other socials. For both, I am grateful. I am always looking for more positive representation and even a quarter of the way into the twenty-first century, finding products that contribute to quality of life to such an astounding degree as these do is rare. I am also a CP. I just ended my first full day using my size 8 blacks and I am already flabbergasted in the best way at what they've done for my gait! I am thinking of running these by my dad now that I have them. He was diagnosed with Parkinson's a few years ago, is doing well having undergone DBS, but I fervently believe these could help him in his day to day as well.

  • @testing9485
    @testing9485 6 днів тому

    Not easy to get on. My brother helped me and still had problems getting my foot in the shoe. We will figure it out. Still great. I walked 25 steps for the first time since July 2. And I did it back too. So a total of 50 steps

  • @Burncity10
    @Burncity10 19 днів тому

    What happens when its hard for me to bend my knee though? 🤔? Because if my stroke.

  • @Wpglauren
    @Wpglauren 19 днів тому

    Great presentation! Looks like they helped a lot 💝

  • @declangallagher1448
    @declangallagher1448 22 дні тому

    This is a good comedy skit.

  • @smellymann6996
    @smellymann6996 27 днів тому

    Tired legs after a marathon? That doesn't sound normal. You should get that checked out

  • @clivekempson4411
    @clivekempson4411 29 днів тому

    Tyler, definitely a game changer for a lot of people.

  • @Harleylady
    @Harleylady Місяць тому

    Thanks for reviewing. I’m my own worse trip hazard too with damage from MS😂. Praying these help.

  • @Harleylady
    @Harleylady Місяць тому

    Thanks for reviewing. I’m my own worse trip hazard too with damage from MS😂. Praying these help.

    • @CadenseAdaptive
      @CadenseAdaptive 22 дні тому

      You should give them a try - we back every purchase with a 30-day risk-free trial.

    • @Harleylady
      @Harleylady 21 день тому

      I’m on the wait list as I placed my order. Thanks!

  • @user-kd2it2bk6u
    @user-kd2it2bk6u Місяць тому

    Hello, are you planning to expand your Cadense Coaches Program of Physical therapist, doctors to the other countries in the future? Czech Republic? We treat people in special spas in my country from public health insurance - Třeboň, Bechyně...I am sure that the patients would appreciate the novelty.

    • @CadenseAdaptive
      @CadenseAdaptive 28 днів тому

      Hi there, yes we will expand our program into Europe. We are planning to launch Cadense in Q1 of 2025 in the UK and most EU countries.

    • @PostStrokeOrg
      @PostStrokeOrg 21 день тому

      @@CadenseAdaptive That's fantastic!

  • @clivekempson2236
    @clivekempson2236 Місяць тому

    Your positivity about the shoes is great.

  • @TheArtistana
    @TheArtistana Місяць тому

    I really want these sneakers but we cannot agree get them in here in Australia I can be a rep

    • @CadenseAdaptive
      @CadenseAdaptive Місяць тому

      Hi there, currently we only ship to the US, be we are expanding into other geographies in 2025. Please stay tuned!

  • @TheArtistana
    @TheArtistana Місяць тому

    Its a reals shame that I does not deliver yo Australia I have ms for 26 year

    • @CadenseAdaptive
      @CadenseAdaptive 28 днів тому

      Hi there - we are working on rolling out our shoes beyond the US. Please stay tuned!

  • @pct7901
    @pct7901 Місяць тому

    I ordered mine so they will be coming in September. Hope they get here before I go to see THE ARK in Tennessee 🥰

    • @CadenseAdaptive
      @CadenseAdaptive 22 дні тому

      Your shoes will be shipping so soon. Please let us know what you think!

  • @nabihanasir2326
    @nabihanasir2326 2 місяці тому

    Rooting for you, Jim!❤

  • @x03niobium
    @x03niobium 2 місяці тому

    youre doing great jim, stay strong and god bless!!❤️

  • @LeeL-l7p
    @LeeL-l7p 2 місяці тому

    Excellent information! I'm looking forward to receiving my shoes this month. I am a stroke survivor with residual left foot drop. I've been using the CIONIC Neural Sleeve with great success. Since it stimulates upper leg muscles and not just dorsiflexion I am anxious to see how they work in combination.

    • @TheArtistana
      @TheArtistana Місяць тому

      I WANT THE SLEEVE TO BUT I can't perches here in Australia

    • @CadenseAdaptive
      @CadenseAdaptive Місяць тому

      Hi there. Please let us know how the shoes work for you!

    • @LeeL-l7p
      @LeeL-l7p Місяць тому

      ​@@CadenseAdaptive Hi! Thanks for following up. I am super impressed with the shoes. They look wonderful and are so helpful! I am over 34 years post stroke and have been modifying my left shoes since almost as long. They are excellent at helping me notice and hopefully overcome the habit of circumduction that I've developed over the years. I just started using them with the CIONIC Neural Sleeve today. What a dynamite combo! Thanks for the perseverance and care that went into making these available!

  • @adaerediauwa3441
    @adaerediauwa3441 2 місяці тому

    I’m 30 months post stroke and my right foot is heavy will your shoe help.

    • @CadenseAdaptive
      @CadenseAdaptive 22 дні тому

      Hi there. The best way to find out is to try a pair. We back every purchase with a 30-day risk free trial!

  • @sweetsmilz22
    @sweetsmilz22 3 місяці тому

    I have cp and balance is an issue for me … these won’t make me slip?? It’s so hard for me to find shoes 🫠I’ve also had a double knee replacement

    • @CadenseAdaptive
      @CadenseAdaptive 2 місяці тому

      Hello! it is hard for us to tell if the shoes are going to work for what you are describing without seeing you walk. Our shoes have been designed for individuals with walking difficulties, like shuffling, hip hike, or circumduction. If you have trouble clearing the ground while swinging your leg forward while walking, the shoes might be good for you. You can see how the shoe works on this page: cadense.com/pages/how-it-works

  • @sweetsmilz22
    @sweetsmilz22 3 місяці тому

    How can I get Cadense to send me a pair? I have such a hard time finding shoes 🫠 I also have Cp

  • @lala_land86
    @lala_land86 3 місяці тому

    Hi, i came across these shoes while feeling sorry for myself that I can't find anything for my stupid painful destroyed feet and I would really like to have a pair, but i am in the uk and you're in America, do you have any plans to get them here or could you possibly get in touch with me about shipping them? They look perfect for me, i just need something to help me with not feeling like im walking with buckets of concrete 😔

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      Hello! We do not currently ship internationally, however we expect to offer international shipping next year. If you would like to be notified, please share your email address with us and we will add you to our mailing list. You can email us directly- support@cadense.com

  • @kathleenhurley4621
    @kathleenhurley4621 3 місяці тому

    I’ve noticed my calves and quads are sore, I guess I’m working on muscles I’ve not been using, this was an eye opener. I’m still getting accustomed to them. Walking heel toe is really easy with this shoe, especially with my foot drop, I also am wearing an AFO with them.

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      Happy to hear that they are helping with your foot drop. We've found that some people who normally circumduct their gait (use a movement pattern to swing the leg wide), adapt to take straighter steps with this shoe using the scuffs. In that case, because there is a new movement pattern, muscles will be engaged in a way they have not been and in that case, you would expect some soreness similar to lifting weights in a new way you haven't done in a while. A stroke patient in our beta test ended up with a much stronger calf muscle in an affected leg due to this hypertrophy. Also, be on the lookout - Our R&D team led by Dr. Susko is currently also working on a AFO-specific design that we hope to launch later in 2024!

    • @kathleenhurley4621
      @kathleenhurley4621 3 місяці тому

      @@CadenseAdaptive I’d love to be on a waitlist for the new shoe for AFO wearer’s .

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      @@kathleenhurley4621 can you please email us- support@cadense.com - happy to add you!

  • @LeeL-l7p
    @LeeL-l7p 4 місяці тому

    Thank you so much for recording this session! I am looking forward to getting my shoes in July. I also appreciate that you are designing these to help people with mobility challenges. 👋

    • @CadenseAdaptive
      @CadenseAdaptive 4 місяці тому

      Thank you for attending! We hope you love your shoes- please keep us updated!

    • @melissapratt143
      @melissapratt143 3 місяці тому

      I am expecting my Cadence shoes in July. I'm only 115 pounds and after watching this video, now I am a little concerned if I will be able to get the most out of my shoes when they come. I will wait until they come and report back. Thank you for this video. Also I circumduct my right leg and scuff my right toe but I don't have foot drop.

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      @@melissapratt143 please keep us posted when you receive your shoes! Our return policy allows for returns within 30 days of delivery with no restocking fee and free return shipping. We are here to help - support@cadense.com

  • @sobankousik
    @sobankousik 4 місяці тому

    Is it possible to do international shipping ( India ) ?

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      Hello! We do not currently ship internationally, however we expect to offer international shipping next year. If you would like to be notified, please email us and we will add you to our mailing list. support@cadense.com

    • @clovers72
      @clovers72 3 місяці тому

      @@CadenseAdaptive I had the same question. I am in Australia.

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      @@clovers72 Hello! We do not currently ship internationally, however we expect to offer international shipping next year. If you would like to be notified, please email us and we will add you to our mailing list. support@cadense.com

    • @zeke5128
      @zeke5128 2 місяці тому

      Do the inserts come out? I typically wear a 10.5 wide womens in brooks to accommodate my MAFO. What size would you recommend? If I need a mens size , what would you recommend?

    • @CadenseAdaptive
      @CadenseAdaptive 2 місяці тому

      @@clovers72 please email us if you'd like to be added to our notification list: support@cadense.com

  • @Wpglauren
    @Wpglauren 4 місяці тому

    Awesome to hear! It makes my heart sing to hear that these shoes can open up options to others 🥰🫰

  • @Wpglauren
    @Wpglauren 4 місяці тому

    Thanks for this vid, very helpful in understanding how these shoes work! 😊

    • @CadenseAdaptive
      @CadenseAdaptive 4 місяці тому

      Glad to hear that! Please let us know if you have any questions: cadense.com/

  • @user-sx1ev9pk9f
    @user-sx1ev9pk9f 4 місяці тому

    I would like to purchase.. where can I purchase a pair..

    • @CadenseAdaptive
      @CadenseAdaptive 4 місяці тому

      You can purchase directly from our website: cadense.com/

  • @ernestreid9296
    @ernestreid9296 5 місяців тому

    I have had my CADENSE for a few weeks and I am getting more comfortable with then. They do work with my STEP--SMART brace and FLOPSTOP and some of my other drop foot braces. (I put a plastic wire tie through the bottom lace holes so I have something to hook my braces to) What I like about the shoes is they do let me know when I am not walking correctly. Sometimes it sounds like I have tap shoes on. I am learning to pay more attention to my feet. I have to remember not to use the front of my foot getting out of the car.

    • @CadenseAdaptive
      @CadenseAdaptive 3 місяці тому

      Thanks for the update - glad the shoes are working well! Yes, for a slight clicking noise - It depends on the surface. For carpets, it's silent. If your heels strike, it's unnoticeable. If you toe skid, you will hear the sound and know that you've done this. This is an intentional biofeedback feature we've included in the design. Please keep us posted!

  • @Sbannmarie
    @Sbannmarie 6 місяців тому

    Unless your demonstrating to the blind- Highly recommend visually demonstrate exactly what your talking about.

  • @mymultiplescarcast8687
    @mymultiplescarcast8687 8 місяців тому

    Let me start by saying - awesome shoes. Thanks for all of your hard work. Really appreciate someone trying to tackle the issue of gait / foot drop in such a cool, novel way. But... Not to send negative...Are you working with people who are as messed up as me from MS? I, too, only use one hand, BUT because I have left-sided weakness, there's no way I can lift my left leg while seated and slide my foot into a shoe. I can don a shoe, but it doesn't look as pretty and seamless as the video. I cross my weak leg over my strong leg and, with one hand, pull the shoe down onto my foot (that is usually inside an AFO). A different donning procedure entirely. If you don't mind a suggestion. Make some videos with Stroke, MS, and CP patients. I really want to purchase these shoes, but if I can't see disabled people using the product, I'm less likely to spend the cash. I saw a video on IG of a person wearing an AFO with their Cadense shoes while using a cane (which was great) but am I supposed to account for my AFO when picking the size that I need? Your FAQ doesn't mention that. Any info would be helpful Thanks in advance Linda. PS: Is there any way the entire shoe could be black so it could be worn with nonathletic outfits and pass as a casual all-black shoe?

    • @CadenseAdaptive
      @CadenseAdaptive 5 місяців тому

      Hi Linda, sorry we missed your comment here. We have a few videos of people with MS, Stroke and other ailments that we can share. Some of them you'll be able to find on our IG @cadenseadaptive as well. Should you want to speak to one of our team members, please feel free to call us at 805-225-7765 or email us at support@cadense.com