- 51
- 180 757
Shary
Canada
Приєднався 8 чер 2017
Відео
COUNTDOWN TO OUR KIDNEY TRANSPLANT
Переглядів 9383 роки тому
Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, commenting, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use.
MY COVID-19 VACCINE EXPERIENCE / PFIZER VACCINE
Переглядів 3453 роки тому
#iganephropathy #dialysispatient #pfizervaccine
NOSE BLEED AFTER MULTIPLE NASOPHARYNGEAL SWAB TEST
Переглядів 2,8 тис.3 роки тому
#epistaxis #covid19swab #nosebleed #iganephropathy
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Переглядів 2854 роки тому
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Where have I been? My thoughts of being immunocompromised during pandemic.
Переглядів 2824 роки тому
Where have I been? My thoughts of being immunocompromised during pandemic.
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
Переглядів 9824 роки тому
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
Переглядів 8584 роки тому
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
HOW I KNEW THAT MY KIDNEY WAS FAILING | SIGNS & SYMPTOMS OF KIDNEY FAILURE
Переглядів 1,1 тис.4 роки тому
#iganephpropathy #kidneydisease
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
Переглядів 105 тис.4 роки тому
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Переглядів 5254 роки тому
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Question and Answer About My Personal Life/ Kidney Disease Vlog |
Переглядів 6154 роки тому
Question and Answer About My Personal Life/ Kidney Disease Vlog |
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Переглядів 5454 роки тому
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Mental Health Effect of CKD/ Things I learned
Переглядів 4934 роки тому
Mental Health Effect of CKD/ Things I learned
Autoimmune Diseases Reality/ Effects in my body.
Переглядів 6654 роки тому
Autoimmune Diseases Reality/ Effects in my body.
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Переглядів 3234 роки тому
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Переглядів 4614 роки тому
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
Переглядів 5364 роки тому
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
Medications side effects/ kidney failure symptoms
Переглядів 6134 роки тому
Medications side effects/ kidney failure symptoms
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Переглядів 7154 роки тому
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
Переглядів 2194 роки тому
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
Thank you so much. The fact that you are a Filipina and you are so simple.gave me the courage to give myself the injection. It is my 4th and you're right the more tines you inject it seems more painful. But I got through this thanks to you. As I was watching you, I went ahead and followed you, gave myself the shot. Be blessed.and God's peace to you.
How are you now?
Pwd ka po ba mag vlog daily food intake mo po at paano pineparepare like measurement ng mgs spices etc. Salamat and Godspeed! I am a;so diagnose IgA nephropathy
@6yhm I mostly eat Filipino food. Minsan hindi rin healthy kasi minsan sinusunod ko lang din ang cravings ko pero Sabi ng dietician ko na it's important low sodium tayo at walang processed food.
Thank you sharing
I’m just 20 years old and diagnosed with stage 4 iga nephropathy 💔I’m on steroids and chemotherapy injections…getting worst side effects ever💔can’t face anyone right now
Hi Shary, thanks for sharing. I hope you're well? How are you keeping now? xx
Thank you for sharing, I've just been told I will need to start epo so this really helps :)
How are you na po today?
What is your diagnosis? My brother is a patient of FSGS. Can you tell the whole journey?
@isratjahanfarhana9502 iga nephropathy is my initial diagnosis.
@@lifewithshary9779 this is the first time you have this transplant? Before transplant how many days did you have dialysis? Who donated the kidney? How are you right now?
@isratjahanfarhana9502 I did 8 months dialysis and had a family donor. It worked for 3 years but unfortunately lost it due to Bk virus.
Thank you for sharing Ms Shary it helps a lot.. I’m researching on how to do it for my brother. Thank God I found you here.. God bless you more’
Huggsssssss 😢 you know it's hard to live with this disease. We live in Philippines and we don't have resources to have a better fight with this disease. I feel envious you live there. :'(
@rheajoymacni8545 sorry po. I hope magimprove ang healthcare ng makatulong sa pagpapagaling ng bawat isa.
Thank you for the video ❤
Parasite infection is the cause of anemia
❤ sending you love and good wibes. Hope your health improves
Cyclists likes here
How are you doing can you update
@amiee713 Hi . Unfortunately I will be needing another transplant due to Bk virus
Be strong. ❤You'll get over it@lifewithshary9779
How r you today ma'am
Since my mom had been vaccinated for Covi x2 yearly plus flu jabs and tested . Her health has deteriorated at a speed , it’s frightening . From extremely healthy to piss poor . Now bleeding of the nose daily for the past 6 months .
Im late but congrats! How are you now
My doctor telling me there is cure for it. And then i checked internet and lost my trust for him🙂
Mam i have injected epo injection in stomach near belly button and in evening but my injected area is paining and feeling like vomating so how should i manage
Check guy's the BAD side effects from.this 💩
Hi how r u now
My relative is affected by the disease. He is in stage1 with protienurea 0.50gm 24hr
Probably dehydration was the cause of muscle cramps at age 9
Hello maam nag inject po ako ng Epoetin normal pang po ba yun nag dugo? Kc po dumugo un site na .ok lang po ba yun..ty
Mam how are u doing now
I already had sinus infection when they did swab it bled right after been using sunupulse to irrigate everyday it's better but not letting them do it again.
I suddenly am having major nosebleeds and spitting up a lot of blood after having 4 tests. Most of the time when I blow my nose, blood comes out. I wondered if it was related to the PCR tests
plz say hw to deal with iga,also say wt lifestyle should i follow
@edwin6294 . Hi . Unfortunately my case end up failing but it would be helpful to have a stress free lifestyle. Avoid infection , dehydration and do proper diet basing on your laboratory test. Maybe your dietician can help with your proper diet.
Have you received any additional diagnosis above IGAN?
No really but I had lot of side effects of medication before abd even worst after transplant.
With some more time after local anesthesia the pain would have reduced. I feel really sorry for u.
My doctor telling me there is cure. Is it true? I mean the internet says the opposite
She’s cute
how r u now?
Hello. Bakit ka nag loss weight? Kasi ako din nag loss weight bigla bigla. I have also CKD
D na kasi maganda appetite ko nun Kaya namayat na.
@@lifewithshary9779 oh I see. Pero ngaun ok na ba appetite mo?
Glad your wells now, 🙏 Get better and stronger, we always on your side.
Never recap a needle to avoid needle prick injuries :)
I’m 37 I’ve had IGAN since I was 22 at the time of diagnosis. My kidney function at the time was in the mid 80s now it has dropped to 42%. I am starting a lot of different medication‘s tomorrow including Farxiga, Tarpeyo and 4 others, I am scared but I found your channel and I’m really happy that I did. It gives me some hope. Thanks for sharing your journey. I am also thinking of starting a channel to document my journey.
What were symtoms when you were 22 ?
@@talhaandaimanmustafa9372 none at all. Discovered it by random blood work
I MISS YOU DRE SHARY!!!!! 💚💚💚💚💚 LAKASAN MO PA LOOB MO
Welcome back😊
Hi, I wanna ask once lang ba iinject ang epo 400iu? Or depends pa din sa doctors order? Tyia ❤
4000 iu
Depende po sa doctors order at base na din sa blood test mo.
Hi do you still make videos
Hi . Sorry I wasn't able to post anything . I will try to give update soon.
What are the side effect
A LOT!!@😮
Thank you for sharing…. Nice explanation
Hope you are doing okay
Hi.. I have been diagnosed with Iga last Nov. Protein at 7, Urine shows 4+. I got biopsy and kidney still functioning okay but with severe filter. My filter is 35% scars. I was told that I was on late stage. And if i want to be under studies, i need to at have it down. My BP is at 150. Infammation is showing up to my face and legs (3x larger than normal), i have this burning feeling when peeing I am on my 3 months with steroids. I barely sleep 5 hrs a day. I have side effect of overeating. Fats everywhere my face. I have remove meat on my diet. I stays positive with my condition even knowing that im possible for dialysis. One thing i added is I added Kimchi last january as i have read its good... Im not sure if that helps but thta was the only added to my diet. Before kimchi, my results still at 4+. Now, I have it +2. All my results is good. I will update this comment after a few months if it really helps and all.
Thank you for sharing your story. Changing diet is hard but I'm happy you are able to do it. I hope for continues improvement and full recovery.
Thank you for your video. I was diagnosed with Igan this year and now half way through my prednisone treatment which is hard and make me feel week. My doctor says things are improving though. I feel great support from wife, family and friends which means a lot to me. I also feel God’s presence and comfort knowing He’s in control. It has helped me appreciate life and enjoying every moment in life. How are you doing now? Gos bless you!!
Hi Shary, I was diagnosed with ERD last November and undergoing dialysis 2x week. I felt better since November. Hope you are too.
hi, how long have you been doing the epo injection?
Maybe 2 years until I got my kidney transplant.
How many units did you inject mam?