Shary
Shary
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Відео

COUNTDOWN TO OUR KIDNEY TRANSPLANT
Переглядів 9383 роки тому
Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, commenting, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use.
MY COVID-19 VACCINE EXPERIENCE / PFIZER VACCINE
Переглядів 3453 роки тому
#iganephropathy #dialysispatient #pfizervaccine
Animals we've seen on our morning walks.
Переглядів 1763 роки тому
#animalsroamingintoronto
NOSE BLEED AFTER MULTIPLE NASOPHARYNGEAL SWAB TEST
Переглядів 2,8 тис.3 роки тому
#epistaxis #covid19swab #nosebleed #iganephropathy
Fighting to win 💪😊
Переглядів 4143 роки тому
#iganephropathy #hemodialysis
IJ catheter insertion / Line for dialysis
Переглядів 2,1 тис.4 роки тому
#hemodialysis #kidneyfailure
Going to the hospital.🥺
Переглядів 2654 роки тому
#iganephropathy #chronickidneydisease
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Переглядів 2854 роки тому
WHAT TO EXPECT DURING SURGERY / PRE-TRANSPLANT ORIENTATION
Where have I been? My thoughts of being immunocompromised during pandemic.
Переглядів 2824 роки тому
Where have I been? My thoughts of being immunocompromised during pandemic.
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
Переглядів 9824 роки тому
HOW TO MANAGE CRAMPS IN CKD / WORST SYMPTOMS ATM
UPDATE OF PRE-TRANSPLANT WORK UP
Переглядів 6394 роки тому
UPDATE OF PRE-TRANSPLANT WORK UP
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
Переглядів 8584 роки тому
CHOOSING BETWEEN HEMODIALYSIS & PERITONEAL DIALYSIS
HOW I KNEW THAT MY KIDNEY WAS FAILING | SIGNS & SYMPTOMS OF KIDNEY FAILURE
Переглядів 1,1 тис.4 роки тому
#iganephpropathy #kidneydisease
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
Переглядів 105 тис.4 роки тому
HOW I INJECT MYSELF WITH PRE-FILLED EPO (ERYTHROPOIETIN)
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Переглядів 5254 роки тому
MY RENAL DETOX SMOOTHIE | IT'S VERY BERRY GOOD!
Monthly Blood Test | CKD LIFE
Переглядів 4574 роки тому
Monthly Blood Test | CKD LIFE
Anemia signs & symptoms and treatment
Переглядів 6214 роки тому
Anemia signs & symptoms and treatment
BREAKFAST MEAL FOR GAINING WEIGHT
Переглядів 6424 роки тому
BREAKFAST MEAL FOR GAINING WEIGHT
Question and Answer About My Personal Life/ Kidney Disease Vlog |
Переглядів 6154 роки тому
Question and Answer About My Personal Life/ Kidney Disease Vlog |
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Переглядів 5454 роки тому
CARDIO WORKOUT AT HOME WITH NO EQUIPMENT/ FIRST ATTEMPT
Mental Health Effect of CKD/ Things I learned
Переглядів 4934 роки тому
Mental Health Effect of CKD/ Things I learned
Autoimmune Diseases Reality/ Effects in my body.
Переглядів 6654 роки тому
Autoimmune Diseases Reality/ Effects in my body.
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Переглядів 3234 роки тому
Snorkeling in Pescador Island,Cebu | Turtles and Sardines Spotted
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Переглядів 4614 роки тому
Tips for traveling with Chronic Disease| Iga Nepropathy| CKD
Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
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Morning walk to Bae| Uttuh Falls Kiangan, Ifugao
Medications side effects/ kidney failure symptoms
Переглядів 6134 роки тому
Medications side effects/ kidney failure symptoms
Banaue Rice Terraces in Philippines
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Banaue Rice Terraces in Philippines
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Переглядів 7154 роки тому
Cliff Jumping and Canyoneering in Kawasan Falls, Cebu
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019
Переглядів 2194 роки тому
Bean Buzzled Challenge part 2| katuwaan sa Pinas| Philippines trip 2019

КОМЕНТАРІ

  • @marybetimbol
    @marybetimbol 9 днів тому

    Thank you so much. The fact that you are a Filipina and you are so simple.gave me the courage to give myself the injection. It is my 4th and you're right the more tines you inject it seems more painful. But I got through this thanks to you. As I was watching you, I went ahead and followed you, gave myself the shot. Be blessed.and God's peace to you.

  • @6yhm
    @6yhm Місяць тому

    How are you now?

  • @6yhm
    @6yhm Місяць тому

    Pwd ka po ba mag vlog daily food intake mo po at paano pineparepare like measurement ng mgs spices etc. Salamat and Godspeed! I am a;so diagnose IgA nephropathy

    • @lifewithshary9779
      @lifewithshary9779 29 днів тому

      @6yhm I mostly eat Filipino food. Minsan hindi rin healthy kasi minsan sinusunod ko lang din ang cravings ko pero Sabi ng dietician ko na it's important low sodium tayo at walang processed food.

  • @tautiapue6428
    @tautiapue6428 Місяць тому

    Thank you sharing

  • @AreebaShahid-k8i
    @AreebaShahid-k8i Місяць тому

    I’m just 20 years old and diagnosed with stage 4 iga nephropathy 💔I’m on steroids and chemotherapy injections…getting worst side effects ever💔can’t face anyone right now

  • @meenamattu4984
    @meenamattu4984 2 місяці тому

    Hi Shary, thanks for sharing. I hope you're well? How are you keeping now? xx

  • @meenamattu4984
    @meenamattu4984 2 місяці тому

    Thank you for sharing, I've just been told I will need to start epo so this really helps :)

  • @leelyn101
    @leelyn101 2 місяці тому

    How are you na po today?

  • @isratjahanfarhana9502
    @isratjahanfarhana9502 3 місяці тому

    What is your diagnosis? My brother is a patient of FSGS. Can you tell the whole journey?

    • @lifewithshary9779
      @lifewithshary9779 3 місяці тому

      @isratjahanfarhana9502 iga nephropathy is my initial diagnosis.

    • @isratjahanfarhana9502
      @isratjahanfarhana9502 3 місяці тому

      @@lifewithshary9779 this is the first time you have this transplant? Before transplant how many days did you have dialysis? Who donated the kidney? How are you right now?

    • @lifewithshary9779
      @lifewithshary9779 3 місяці тому

      @isratjahanfarhana9502 I did 8 months dialysis and had a family donor. It worked for 3 years but unfortunately lost it due to Bk virus.

  • @maryanndy6480
    @maryanndy6480 4 місяці тому

    Thank you for sharing Ms Shary it helps a lot.. I’m researching on how to do it for my brother. Thank God I found you here.. God bless you more’

  • @rheajoymacni8545
    @rheajoymacni8545 4 місяці тому

    Huggsssssss 😢 you know it's hard to live with this disease. We live in Philippines and we don't have resources to have a better fight with this disease. I feel envious you live there. :'(

    • @lifewithshary9779
      @lifewithshary9779 4 місяці тому

      @rheajoymacni8545 sorry po. I hope magimprove ang healthcare ng makatulong sa pagpapagaling ng bawat isa.

  • @abhishek7592
    @abhishek7592 4 місяці тому

    Thank you for the video ❤

  • @marianilsson7616
    @marianilsson7616 4 місяці тому

    Parasite infection is the cause of anemia

  • @riobella6846
    @riobella6846 5 місяців тому

    ❤ sending you love and good wibes. Hope your health improves

  • @lepavis
    @lepavis 5 місяців тому

    Cyclists likes here

  • @amiee713
    @amiee713 5 місяців тому

    How are you doing can you update

    • @lifewithshary9779
      @lifewithshary9779 5 місяців тому

      @amiee713 Hi . Unfortunately I will be needing another transplant due to Bk virus

    • @hpc5663
      @hpc5663 3 місяці тому

      Be strong. ❤You'll get over it​@lifewithshary9779

  • @xd-zm5yu
    @xd-zm5yu 6 місяців тому

    How r you today ma'am

  • @shepopop
    @shepopop 6 місяців тому

    Since my mom had been vaccinated for Covi x2 yearly plus flu jabs and tested . Her health has deteriorated at a speed , it’s frightening . From extremely healthy to piss poor . Now bleeding of the nose daily for the past 6 months .

  • @nunuki100
    @nunuki100 6 місяців тому

    Im late but congrats! How are you now

  • @dhanvinsarath2382
    @dhanvinsarath2382 7 місяців тому

    My doctor telling me there is cure for it. And then i checked internet and lost my trust for him🙂

  • @amazing_stories.
    @amazing_stories. 8 місяців тому

    Mam i have injected epo injection in stomach near belly button and in evening but my injected area is paining and feeling like vomating so how should i manage

  • @renatahorackova8045
    @renatahorackova8045 8 місяців тому

    Check guy's the BAD side effects from.this 💩

  • @manvi1064
    @manvi1064 8 місяців тому

    Hi how r u now

  • @falguninayek5749
    @falguninayek5749 8 місяців тому

    My relative is affected by the disease. He is in stage1 with protienurea 0.50gm 24hr

  • @AshishKumar-wf5yq
    @AshishKumar-wf5yq 8 місяців тому

    Probably dehydration was the cause of muscle cramps at age 9

  • @rossjacobnavarro6502
    @rossjacobnavarro6502 9 місяців тому

    Hello maam nag inject po ako ng Epoetin normal pang po ba yun nag dugo? Kc po dumugo un site na .ok lang po ba yun..ty

  • @Igorota29
    @Igorota29 9 місяців тому

    Mam how are u doing now

  • @donnaparks1919
    @donnaparks1919 10 місяців тому

    I already had sinus infection when they did swab it bled right after been using sunupulse to irrigate everyday it's better but not letting them do it again.

  • @Valcey777
    @Valcey777 Рік тому

    I suddenly am having major nosebleeds and spitting up a lot of blood after having 4 tests. Most of the time when I blow my nose, blood comes out. I wondered if it was related to the PCR tests

  • @edwin6294
    @edwin6294 Рік тому

    plz say hw to deal with iga,also say wt lifestyle should i follow

    • @lifewithshary9779
      @lifewithshary9779 Рік тому

      @edwin6294 . Hi . Unfortunately my case end up failing but it would be helpful to have a stress free lifestyle. Avoid infection , dehydration and do proper diet basing on your laboratory test. Maybe your dietician can help with your proper diet.

  • @doctorsdiary101
    @doctorsdiary101 Рік тому

    Have you received any additional diagnosis above IGAN?

    • @lifewithshary9779
      @lifewithshary9779 Рік тому

      No really but I had lot of side effects of medication before abd even worst after transplant.

  • @doctorsdiary101
    @doctorsdiary101 Рік тому

    With some more time after local anesthesia the pain would have reduced. I feel really sorry for u.

    • @dhanvinsarath2382
      @dhanvinsarath2382 7 місяців тому

      My doctor telling me there is cure. Is it true? I mean the internet says the opposite

  • @jameszbierski391
    @jameszbierski391 Рік тому

    She’s cute

  • @jcfrane7916
    @jcfrane7916 Рік тому

    how r u now?

  • @thetiw-ads6786
    @thetiw-ads6786 Рік тому

    Hello. Bakit ka nag loss weight? Kasi ako din nag loss weight bigla bigla. I have also CKD

    • @lifewithshary9779
      @lifewithshary9779 Рік тому

      D na kasi maganda appetite ko nun Kaya namayat na.

    • @thetiw-ads6786
      @thetiw-ads6786 Рік тому

      @@lifewithshary9779 oh I see. Pero ngaun ok na ba appetite mo?

  • @DannyxDang
    @DannyxDang Рік тому

    Glad your wells now, 🙏 Get better and stronger, we always on your side.

  • @madeleinebrown1710
    @madeleinebrown1710 Рік тому

    Never recap a needle to avoid needle prick injuries :)

  • @MissingLeo
    @MissingLeo Рік тому

    I’m 37 I’ve had IGAN since I was 22 at the time of diagnosis. My kidney function at the time was in the mid 80s now it has dropped to 42%. I am starting a lot of different medication‘s tomorrow including Farxiga, Tarpeyo and 4 others, I am scared but I found your channel and I’m really happy that I did. It gives me some hope. Thanks for sharing your journey. I am also thinking of starting a channel to document my journey.

    • @talhaandaimanmustafa9372
      @talhaandaimanmustafa9372 Рік тому

      What were symtoms when you were 22 ?

    • @MissingLeo
      @MissingLeo Рік тому

      @@talhaandaimanmustafa9372 none at all. Discovered it by random blood work

  • @baleileimgomez
    @baleileimgomez Рік тому

    I MISS YOU DRE SHARY!!!!! 💚💚💚💚💚 LAKASAN MO PA LOOB MO

  • @ladyraketera
    @ladyraketera Рік тому

    Welcome back😊

  • @dollynotsodolly
    @dollynotsodolly Рік тому

    Hi, I wanna ask once lang ba iinject ang epo 400iu? Or depends pa din sa doctors order? Tyia ❤

  • @swagorl
    @swagorl Рік тому

    Hi do you still make videos

    • @lifewithshary9779
      @lifewithshary9779 Рік тому

      Hi . Sorry I wasn't able to post anything . I will try to give update soon.

  • @ma.elenago5057
    @ma.elenago5057 Рік тому

    What are the side effect

  • @patriciasuarez5807
    @patriciasuarez5807 Рік тому

    Thank you for sharing…. Nice explanation

  • @maryann9247
    @maryann9247 Рік тому

    Hope you are doing okay

  • @DeepDivewithLizaB
    @DeepDivewithLizaB Рік тому

    Hi.. I have been diagnosed with Iga last Nov. Protein at 7, Urine shows 4+. I got biopsy and kidney still functioning okay but with severe filter. My filter is 35% scars. I was told that I was on late stage. And if i want to be under studies, i need to at have it down. My BP is at 150. Infammation is showing up to my face and legs (3x larger than normal), i have this burning feeling when peeing I am on my 3 months with steroids. I barely sleep 5 hrs a day. I have side effect of overeating. Fats everywhere my face. I have remove meat on my diet. I stays positive with my condition even knowing that im possible for dialysis. One thing i added is I added Kimchi last january as i have read its good... Im not sure if that helps but thta was the only added to my diet. Before kimchi, my results still at 4+. Now, I have it +2. All my results is good. I will update this comment after a few months if it really helps and all.

    • @lifewithshary9779
      @lifewithshary9779 Рік тому

      Thank you for sharing your story. Changing diet is hard but I'm happy you are able to do it. I hope for continues improvement and full recovery.

  • @joeamado2704
    @joeamado2704 Рік тому

    Thank you for your video. I was diagnosed with Igan this year and now half way through my prednisone treatment which is hard and make me feel week. My doctor says things are improving though. I feel great support from wife, family and friends which means a lot to me. I also feel God’s presence and comfort knowing He’s in control. It has helped me appreciate life and enjoying every moment in life. How are you doing now? Gos bless you!!

  • @ashleydesabilla311
    @ashleydesabilla311 Рік тому

    Hi Shary, I was diagnosed with ERD last November and undergoing dialysis 2x week. I felt better since November. Hope you are too.

  • @maxolan2480
    @maxolan2480 2 роки тому

    hi, how long have you been doing the epo injection?

  • @sarahomaisahesmail628
    @sarahomaisahesmail628 2 роки тому

    How many units did you inject mam?