Conquering CHD
Conquering CHD
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CHDWISE: PTSD
Conquering CHD is partnering with the Ollie Hinkle Heart Foundation on a series of mental health webinars. Our first webinar focuses on PTSD. Join us as with dive into the world of PTSD and how it can manifest in children and parents.
Переглядів: 83

Відео

CHD WISE: Fuel 2 Trial
Переглядів 1703 місяці тому
The FUEL-2 Study is a phase 3, double-blind, placebo-controlled study researching the efficacy and safety of an investigational medication, udenafil, for teenagers 12-18 years of age who had the Fontan procedure. To ask any questions regarding the trial please reach out by visiting www.fuel2study.com/
CHDWise- Cardiac Health and Fitness
Переглядів 1729 місяців тому
Get ready as we dive into Cardiac Health and Fitness with experts from Children's Hospital Colorado.
Conquering CHD Wise- Pregnancy and CHD
Переглядів 81Рік тому
Conquering CHD Wise- Pregnancy and CHD
Conquering CHD 2023 Heart Month Message
Переглядів 52Рік тому
We are so excited Heart Month is here! Conquering CHD is a team sport! Whatever your connection to congenital heart disease, we all play a crucial position on the team. Celebrate this most exciting time of year for the heart community with us as we unite to give knowledge, a voice, and hope to all those we meet! Visit our 2023 Heart Month landing page to learn ways you can get involved or donat...
Heart & Sole 2022 Kick off Video
Переглядів 342 роки тому
Heart & Sole 2022 Kick off Video
HC 2022 Advocating, Navigating, and Managing Your Path School, Work, and Disability
Переглядів 412 роки тому
Our recent Heart Connection 2022 episode was a live webinar on Advocating, Navigating, and Managing Your Path: School, Work, Disability - including information on available disability accommodations. We were joined by Estella Moore, LCSW, FAACM from the Emory Adult Congenital Heart Center in Atlanta, Georgia. Recorded live on August 15, 2022.
HC 2022 What is Transition and Why Does it Matter
Переглядів 272 роки тому
Our recent Heart Connection 2022 episode was a live webinar discussing the topic of transition from pediatric CHD care to adult CHD care. We were joined by panelists from Texas Children’s Hospital, Tulane University, as well as a parent of a child with CHD and CHD advocate, and a patient with CHD. Recorded live August 2, 2022
HC 2022: The Impact of CHD on Neurodevelopment - From Infancy to Adulthood
Переглядів 1772 роки тому
This webinar focuses on the impact congenital heart disease has on neurodevelopment, not just in infancy and childhood, but also into adulthood. Bring your questions and your own lived experiences to share with this panel who have expertise in neuropsychology, neurodevelopment, and cardiac intensive care.
HC 2022 Navigating the K 12 Education System with CHD
Переглядів 982 роки тому
This webinar will focus on navigating the world of K-12 education with congenital heart disease, including IEPs, 504s, Health Plans, and services and evaluations to ask for. Bring your questions and your own lived experiences to share with this panel who have expertise in neuropsychology, Educational Achievement Partnerships, and K-12 education. We hope to empower our participants with scientif...
HC 2022 - Neurodevelopment in CHD: Overcoming Obstacles
Переглядів 902 роки тому
Our most recent Heart Connection 2022 episode was a live webinar on neurodevelopment in CHD and the impacts of prenatal factors. We were joined by an expert panel from UT Southwestern Medical Center and Children’s Health in Dallas, Texas!
Precision Medicine The Future of Congenital Heart Disease Care?
Переглядів 2492 роки тому
Recorded on January 11, 2022, featuring Dr. Joy Lincoln, Director, Cardiovascular Research, The Herma Heart Institute, Children’s Wisconsin; Dr. Michael Mitchell, Chief of Cardiothoracic Surgery, Surgical Director of The Herma Heart Institute, Children's Wisconsin; Dr. Aoy Tomita-Mitchell, Professor in the division of pediatric cardiothoracic surgery; Children's Research Institute, Medical Coll...
"It takes a team:" A Discussion about Feeding and Nutrition in CHD
Переглядів 1122 роки тому
Recorded on December 15, 2021, featuring Megan Horsley, a pediatric dietitian at Cincinnati Children’s Hospital Medical Center, Dr. Julie Lavoie, the director of Enteral Feeding Program & Cardiac Quality & Outcomes at Children’s Wisconsin, and Jenn Fridgen, a physical therapist working with feeding and development in single-ventricle patients at Seattle Children’s. You can find additional resou...
Helping Your Child Cope with Their CHD Care: From Clinic Visits, to Procedures, to Hospital Stays
Переглядів 982 роки тому
Recorded Live on December 7, 2021, featuring Dr. Peter Wearden of Nemours Children’s Health in Florida and Jenna Read, a Certified Child Life Specialist of Nemours Children’s Health in Delaware. You can find additional resources at www.conqueringchd.org/chd-care-doesnt-have-to-be-scary/
Transparency & Public Reporting: What Is It and Why Does It Matter?
Переглядів 982 роки тому
Recorded on October 4, 2021, featuring Dr. Cindy Barrett, Dr. Jim Jaggers, and Dr. Dunbar Ivy, of the Heart Institute at Children's Hospital Colorado, and Mary Kincaid, mother of Jason who is three years post-transplant.
CHD Wise: Promoting Mental Health for Children with CHD and Their Families
Переглядів 1662 роки тому
CHD Wise: Promoting Mental Health for Children with CHD and Their Families
Pediatric CHD and COVID 19: Vaccines, Variants, and Very Important Decisions
Переглядів 873 роки тому
Pediatric CHD and COVID 19: Vaccines, Variants, and Very Important Decisions
Resilience - Ken
Переглядів 593 роки тому
Resilience - Ken
Mental Health - Meghan
Переглядів 4133 роки тому
Mental Health - Meghan
A Full Life - Roslyn
Переглядів 703 роки тому
A Full Life - Roslyn
Falling Out of Care - Claire
Переглядів 1073 роки тому
Falling Out of Care - Claire
CHD Wise: Back to School 2021
Переглядів 733 роки тому
CHD Wise: Back to School 2021
What I Wish I Had Been Told About CHD
Переглядів 1383 роки тому
What I Wish I Had Been Told About CHD
Participating in Research
Переглядів 603 роки тому
Participating in Research
Congressional Messages for Conference 2021
Переглядів 203 роки тому
Congressional Messages for Conference 2021
Access to Care versus Access to Quality Care Panel
Переглядів 303 роки тому
Access to Care versus Access to Quality Care Panel
Cultural Differences in CHD Care Panel
Переглядів 363 роки тому
Cultural Differences in CHD Care Panel
Implicit Versus Explicit Bias Panel
Переглядів 393 роки тому
Implicit Versus Explicit Bias Panel
Wrap Up & Call to Action
Переглядів 363 роки тому
Wrap Up & Call to Action
Barriers to ACHD Care Panel
Переглядів 213 роки тому
Barriers to ACHD Care Panel