Відео

The Women, Girls, and Persons with the Potential to Menstruate (WGPPM) and Bleeding Disorders Initiative is an outreach program aimed at improving diagnosis of bleeding disorders and improving the quality of life in women, girls, and people with the potential to menstruate. Our outreach program consists of distributing period packs to university health centers, school nurses, local clinics, and...

On April 17, 2024 Whitehall Borough Mayor James Nowalk proclaimed April 17th as World Hemophilia Day. Melinda Perry, WPBDF Board Member and Whitehall resident, graciously accepted the proclamation on behalf of her son, Ryker. #CommunitySupport #WorldHemophiliaDay

Our campers at Camp Hot-to-Clot created this Bleeding Disorders Myth Busting PSA in 2016, which won third place at NACCHO (North American Camping Conference for Hemophilia Organizations)! The NACCHO Cup recognizes excellence and innovation in bleeding disorders camp programming. That year, Camp Hot-to-Clot won $1,000 to use for camp! We’re so proud of the campers of Camp Hot-to-Clot for the gre...

Team Captain, Stephanie, and her family joined the Unite for Bleeding Disorders Walk in 2019 under the name Sammi’s Supporters. Since then, their team has grown and they’ve changed their name from Sammi’s Supporters to Factor 5. They walk to celebrate their family of five affected by von Willebrand Disease, along with loads of friends and family! Stephanie is also a co-chair of the 2023 Unite f...

Thank you to RTG-Entertainment and student volunteers from the University of Pittsburgh (PittServes) for collecting footage and walk interviews during the 2022 Unite for Bleeding Disorders Walk! UNITE for hope. UNITE for community. UNITE to make a difference. The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family,...

UNITE for hope. UNITE for community. UNITE to make a difference. The Unite for Bleeding Disorders Walk brings our community together. It unites families with bleeding disorders and chapters with family, friends, neighbors, and coworkers to support important programs and services to help people with Hemophilia, von Willebrand Disease, and other rare bleeding disorders in our community. The 2022 ...

Joni Osip, RN, MS, CNP joins us to share her weight loss story. Resources: Food Junkies by Vera Tarman - www.amazon.com/Food-Junkies-Recovery-Addiction/dp/B07SLD7JN8/ref=sr_1_1?dchild=1&keywords=food junkie&qid=1634568197&sr=8-1 Food Junkies Podcast - www.foodjunkiespodcast.com/ Dr. Robert Lustig - robertlustig.com/ Western Pennsylvania Bleeding Disorders Foundation's Stay In Motion Program: If...

Cheri McShea, PT, DPT from the Hemophilia Center of Western Pennsylvania shares the benefits of physical activity and provides a few guidelines to keep in mind when becoming more active. Download the Powerpoint and follow along at: www.wpcnhf.org/wp-content/uploads/2021/10/physical_activity_guidelines_sim.pptx Resources: HCWP Stay In Motion line: 412-209-7337 or stayinmotion@vitalant.org Wester...

Cheri McShea, PT, DPT from the Hemophilia Center of Western Pennsylvania teaches us about joint and muscle bleeds, how to prevent them, and how to treat them. Download the Powerpoint and follow along at:www.wpcnhf.org/wp-content/uploads/2021/10/joint_and_muscle_bleeds_sim.pptx Resources: HCWP Stay In Motion line: 412-209-7337 or stayinmotion@vitalant.org National Hemophilia Foundation's Playing...

Katherine Bush, LCSW from the Hemophilia Center of Western Pennsylvania teaches us how to set goals and make changes. Download the Powerpoint and follow along at: www.wpcnhf.org/wp-content/uploads/2021/10/goal_setting_sim-2.pptx Resources: HCWP Stay In Motion line: 412-209-7337 or stayinmotion@vitalant.org Habit Tracking Apps Habitica (iphone and android): habitica.com/static/home Habit Tracker...

The pinwheel is an important symbol of our community. As it spins, it turns movement into action. Please join us for our Unite for Bleeding Disorders Pinwheel Ceremony! #UniteforBleedingDisorders #PinwheelCeremony #UniteTough

Instructions for making and decorating blood drop sugar cookies, along with a description of the blood clotting process.

Tracy and Bob volunteer to give back to the community and to raise awareness for bleeding disorders. They’ve been volunteering for over 5 years! Tracy and Bob work hard all year long to collect and build raffle baskets, which they donate to the Walk and other WPCNHF events. They also run the raffle ticket table at the walk each year. Tracy also helps with Chapter mailings! We are so happy to ha...

Mike and Michelle volunteer for their grandson, 3-year-old Ryker. Ryker was diagnosed with Hemophilia A when he was about 3-4 months old and these grandparents have been heavily involved with WPCNHF ever since! They work hard to raise critical funds for the community and donate much of their time to securing in-kind donations for the Unite for Bleeding Disorders Walk and Take A Bough, as well a...

Camp Hot-to-Clot Message from Kat & Kit

Camp Hot-to-Clot Message from Nurse Kim

Camp Hot-to-Clot Message from Kat

Camp Hot-to-Clot Message from Kit

Camp Hot-to-Clot Message from Janet

Camp Hot-to-Clot Message from Mike

WPCNHF's 2020 Unite for Bleeding Disorders Walk!

DIY Terrarium- Let's Get Creative

Run for Their Lives 5K - Course Preview

2016 Hemophilia Walk

WPCNHF Family Camp Song

Ryan White Youth Award Recipient Nikole Scappe

WPCNHF - Public Awareness Weekend