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Im sure it will work as well as the DOg sensitivity training they tells them SHOOT first make excuses later

A few years ago i got really into wanting to learj ASL [so i could communicate with ANYONE deaf that I came across] i just thought it would be very useful to have that skill... but i camenacross someone in the deaf community who feltnthat NON deaf people shouldnt learn sign language. They were passionate about deaf culture and only keeping it FOR deaf people.. and it kindof deterred me from learning as i didnt wantbto offend anyone as the only reason i was gonna learn asl in firstbplace was to he able to help and communicate wity deaf ppl.

My uncle, Deaf non-verbal from birth, carried a State of Maryland issued card he kept in his glove box which indicated Deaf.

I think ALL business, restuarants, hospitals, schools, police force, even when a [erson gets income tax done, etc should make it manitory in all areas of the cites, towns and even post offices.

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[Visual Description] Opening Slide: The Cocoon is a vlog series brought to you by Pink Wings of Hope, a program of DEAF, Inc. - www.deafinc.org/pink [Visual Description] Hosted by Stephanie. Picture of Stephanie inside a circle. Stephanie has long curly hair, with a black blouse, and is wearing glasses. [Visual Description] Now we see Stephanie sitting down on a chair with striped materials. The background is grey greenish color. There’s a lamp on the left side. [Stephanie] We will be interviewing a pharmacist. Often, we go to our pharmacy and aren't sure what to ask our pharmacist about whether it is okay to take certain medications with our current treatments. We assume they know everything because they work directly with medications. Let's find out what kind of questions we should be asking or what the pharmacist wishes we would ask them I am honored to have Dr. Kelsey Alderks with us. Please tell me about yourself. How long have you been a pharmacist? [Visual Description] Two women sitting down on a grey couch. On the left is an interpreter wearing a black shirt with dark grey plaid pants. On the right, we see Dr. Kelsy Alderks, a pharmacist. She has blonde hair, wearing glasses, and wearing a teal dress. The background is a grey greenish color. There’s a lamp on the right side of Dr. Alderks. [Dr. Alderks] My name is Kelsey Alderks. I am originally from Northern Illinois. I moved to Saint Louis about five years ago, and I have been a pharmacist for 12 years, and have worked in a pharmacy for 16 years. [Stephanie] What is the role of a pharmacist? [Dr. Alderks] There are a lot of different things that your pharmacist does. A lot of things people don't think about. So, we do dispense medication which is typically what you expect when you think of a pharmacist. But also we look at all of your diseases, we assess your vaccinations, and the most important thing we do is look at drug-to-drug interactions and help prevent any problems that might come from those. [Stephanie] What made you decide to learn sign language? [Dr. Alderks] When I was at pharmacy school in Des Moines, I worked at a Target and my pharmacist was deaf. She was the manager. Her name was Bethany, and I was her technician or assistant for the six years that I was in school. So, I was so impressed with how she connected with her customers and how amazing the entire sign language (deaf) world was. And I finished school being a pharmacist. But since then, I want to kind of marry those two things that I love the most. So, signing and medication. [Stephanie] Why is it important for a person to communicate with their pharmacist? [Dr. Alderks] Just like you, as the patient, assume that the pharmacist knows everything. We assume that you understand the complex part of medication and it's not always that simple. It is so important to tell your pharmacist how you're feeling, the side effects you experience, any other medical conditions, or especially if you're using another pharmacy so that we can look at the problem as a whole and not miss any holes that might affect your health moving forward. [Stephanie] What type of questions do you wish Deaf, Hard of Hearing, and DeafBlind individuals would ask a pharmacist when they are undergoing treatment for cancer? [Dr. Alderks] I wish they were honest about how the medication made them feel and ask how we can improve it. A lot of medications, while they're there to help you feel better. They have side effects that can make taking them hard. So if they were as open and honest about it, about “I'm nauseous”, “I can't sleep” or other problems you're experiencing. And they asked about that. We could make it a lot easier. You just don't know what you don't know. Communicating with a hearing person is often a challenge for the Deaf, Hard of Hearing, and DeafBlind people, as well as understanding medical terminology, or even remembering the long name of a medication. [Stephanie] How would you suggest us communicate with our pharmacist? [Dr. Alderks] I think the best way to go about that is to make sure your pharmacist knows that you are deaf or hard of hearing so that they can plan for extra time to go over everything about the medication with you. It's important to not take the pamphlet home that comes with the medication, that lists all the scary side effects with it, and read that on your own. It can be very overwhelming. The words are hard to understand, but rather if your pharmacist knows that you need extra time with them to explain what's happening with their medication, they can make it more concise for you to understand and then have that relationship and they can spend more time and make you a priority so that your medication you can stay on for your health. [Stephanie] Is it okay for a person to go to any pharmacy store to pick up medicine, or should we stay with one company? Why? [Dr. Alderks] It's very important when you can to get all of your medications at the same pharmacy because our computers don't all connect. And let's say you're picking up a medication for blood pressure one place or chemo at another, they might interact and cause you to have a harmful episode coming up. Your pharmacist won't know that. Same thing with over-the-counter vitamins, herbs, and supplements. They're all very important to make sure your pharmacist is aware to prevent any drug-to-drug interactions, so sticking with one pharmacist is the only way to do it. [Stephanie] Why do pharmacists sometimes disagree with a medication prescription and call the doctor to change it? Why cannot they just accept what the doctor prescribes and fill it? [Dr. Alderks] I like to explain that to people because it gets asked a lot, especially if you come up to the counter, a pharmacy counter, and you're frustrated that your medication isn't ready and we tell you, “Hey, I'm waiting for the doctor to change it or fix it.” I like to explain it the way in an education system, the principal knows a lot about a lot of different things, but the Special Ed teacher knows everything there is to know about special education. Same way with doctors and pharmacists. We are the medication experts. We spent our entire school, all six years learning about that. We know it in and out. Doctors don't have as much time spent with medication because they're also learning diagnosis and how to treat and how to look at wounds and stuff like that. So they are so knowledgeable, so helpful. However, there are times when they make a choice or send over a dose that we just have more education behind. And it's really a collaborative effort when we get there to make sure we make the best choice for you as a patient. [Stephanie] Should they ask you questions like does my medication interact with any other medicines, supplements or food? [Dr. Alderks] Yes. Vitamins, supplements, herbs. All important to make sure your pharmacist knows you're taking. But I think the most important one that you just said is food. So many medications can interact with food or are better absorbed with different kinds of food. So going through your diet, although it takes a longer time to stand at the counter and talk through, can really help make sure you feel the best when you're on medications that might not always initially start that way. [Stephanie] Should we ask our pharmacist which over-the-counter medicine is safe when going through chemo or radiation? [Dr. Alderks] Definitely. Chemo and radiation. Chemo, specifically, are very strong medication. They're not something that's light or delicate on your body. So, anything over the counter, it could be the baby aspirin. Something very simple could wreak havoc after you're on chemo. So again, open communication with your pharmacist is so important. They are usually more accessible than getting a hold of your doctor right away. [Stephanie] Should they tell you they have cancer? [Dr. Alderks] Yes. Please make sure to tell your pharmacist if you have cancer or any other more simple health conditions in your past, like high blood pressure, high cholesterol, all of these things can change how effective your medication is and help make your process to healing better. [Stephanie] Any advice you would like to share with us? [Dr. Alderks] Definitely. If you are Deaf, Hard of Hearing or DeafBlind, please make sure you tell your pharmacist that so that we can make sure we spend the necessary time with you, give you the right resources so that you can stay on your meds. And we can make sure we get you to your right health goal. The other part of it is to find a pharmacist that you know and trust. The better we know you, and the longer we have that relationship, the better health we're going to get for you in the end. Thank you. Again, my name is Dr. Kelsey Alderkss. Bye, everyone. [Stephanie] WOW! What wonderful information! I have learned some new things. Thank you for taking time out of your busy schedule to be interviewed by us. This information will help Deaf, Hard of Hearing, and DeafBlind individuals communicate better with their pharmacists. If you have any more questions or need more support, please contact your pharmacist or reach out to us at Pink Wings of Hope. [Visual Description] Deaf Organizations Fund Logo - This program, material or resource is supported by Deaf Organizations Fund (DOF). The content is solely the responsibility of the author(s) and does not necessarily represent the official views of DOF. For more information, visit www.DeafOrganizationsFund.org. [Visual Description] Closing Slide: The Cocoon is a vlog series brought to you by Pink Wings of Hope, a program of DEAF, Inc. - www.deafinc.org/pink

I always worry. I'm an ASL interpreter. My bros are police officers, so is my dad. So police are trained to watch for hand movements. Deaf on sign language or writing. Imagine the deaf person reaching the glove box for paper and pen- and officer tells her stop.

Really had to add some feminist propaganda in there huh? Just had to make the male the aggressor huh? What a joke.

cell phones exist and so does paper. waiting for 10 minutes for an intrepretor is dumb.

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[Visual Description] Opening Slide: The Cocoon is a vlog series brought to you by Pink Wings of Hope, a program of DEAF, Inc. - www.deafinc.org/pink [Visual Description] Hosted by Stephanie. Picture of Stephanie inside a circle. Stephanie has long curly hair, with a black blouse, and is wearing glasses. [Visual Description] In a studio with a light purple background with a PIP of a group of people consoling a woman who seems to be crying. Standing in the studio on the right side is Stephanie who has long curly hair, with a black blouse, and is wearing glasses. [Stephanie] There are many cancer support groups in the United States for individuals who are battling cancer, where they can find more information, peer support and a safe space to ask questions. There are also groups for caregivers. Most support groups, typically led by staff or volunteers from a medical center, are often willing to provide sign language interpreters if requested. Private support groups, such as through a church, may not provide interpreting services or may not be able to afford them. Some of you may feel that a support group may not be as important or a waste of your time due to communication barriers. Allow me to explain why it may be important to join a support group while you are going through your cancer journey. [Visual Description] Stephanie and a survivor sit at a restaurant table across from each other. Both individuals are white females, both have long curly hair. On the left, Stephanie wears a black short-sleeved teeshirt, and on the right, the survivor wears a black long-sleeved shirt. [Stephanie] This peer support group is together right now. How do you feel about this support group? [Survivor] I love it! There’s a lot of inputs. It’s beneficial for us. I get to learn from many different people. They share their experiences and journey. It’s important. You’re not alone. You don’t feel alone. [Stephanie] Do you feel that peer support group is important? Why? [Survivor] Because you’re not alone. Someone else has a similar experience and you can learn from each other’s experiences. [Visual Description] Back in the studio, with a light purple background and PIP of 4 young people signing with each other. Stephanie is standing on the right side. [Stephanie] Communication is how you would get more information and/or gain knowledge. Most people get access to information or gain knowledge through communication with their medical providers and reading information. [Visual Description] The PIP changes to a chart showing various cancer treatment options. The list shows Hormone Therapy, Surgery, Bone Marrow Transplantation, Chemotherapy, Targeted Therapy, Radiation Therapy, and Immunotherapy. [Stephanie] The more you learn about your cancer, what treatment does, and you become more aware of what to expect, the more you will feel in control with what is happening to your body. This will help you make better decisions and help you manage your daily life as comfortably as possible while you go through treatment. [Visual Description] Back to the restaurant with Stephanie and a Deaf Caregiver, a white female, who has a long dark blonde hair, is wearing light purple long-sleeve sweatshirt [Stephanie] As a caregiver, what resources did you wish you knew about that you could get? What did you wish to know, to prepare yourself? [Caregiver I wish I knew… to know someone else I could reach out to and understand what will happen next like a step-by-step and understanding of what is happening next. So you don’t feel lost. [Visual Description] Back in the studio, with a light purple background and PIP of 4 young people help a fifth person climb over a rock. Stephanie is standing on the right side. [Stephanie] The primary goal is to offer peer support by sharing personal experiences and insights with others who may have gone through what you are going through. All individuals in the group may have cancer but may be at a different stage or receive different types of treatment. While their journey may not be the same as yours, they can relate and understand what you're going through. In a group, you can ask questions like “what was it like when you went through chemo?” or ask sensitive questions, like “did you regret choosing to have total mastectomy than going through aggressive chemo?” In a group, you will receive support, and information and may get suggestions or tips from your peers. Others will share theiropinions, but remember their opinion comes from their own experience or perspective. [Visual Description] Back to the restaurant with Stephanie and the same caregiver. [Stephanie] This helps you prepare in the future and know what to do. [Caregiver] I learned what to expect when caring for my husband. I understand what he goes through is normal. It’s chemo, it’s not him. It’s chemo. It helps to understand. [Stephanie] Also, you can learn how to take care of yourself better. [Caregiver] Yes. [Stephanie] You can help him better. Without self-care, it’s worthless, right? [Caregiver] Right. [Stephanie] This support group helps you feel at ease. [Visual Description] Back in the studio, with a light purple background and PIP of 3 people signing together. Stephanie is standing on the right side. When it comes to your treatment, it is always best to discuss your questions and concerns with your medical team because your body and your cancer or tumor will be different than others. Again, the main goal for a peer support group is so that you feel supported, and that you are not alone. It is also a place where you can share community resources. Are you looking for a peer support group? Do you know where to start? Start with your medical team and ask for a list of support groups in your hometown. Unfortunately, there are not very many peer-support for the Deaf, hard of hearing or DeafBlind individuals in the United States. [Visual Description] The PIP changes to a chart showing Pink Wings of Hope’s logo, which is a pink circle, with a pink ribbon with wings on it- in the shape of a butterfly, and the name Pink Wings of Hope on the left side of the inner circle. It has a trademark logo. [Stephanie] Pink Wings of Hope is one of the very few peer-led support programs for Deaf, hard of hearing, and DeafBlind individuals in the country. I would like to tell you a little more about Pink Wings of Hope. It is a program under DEAF, Inc., a non-profit agency based in St. Louis, Missouri, and has a dedicated Community Advocate that specializes in this area. The primary communication used is sign language. Even though Pink Wings of Hope is located in St. Louis, MO, we serve anyone in the country. If you are seeking peer support, please contact us! [Visual Description] Deaf Organizations Fund Logo - This program, material or resource is supported by Deaf Organizations Fund (DOF). The content is solely the responsibility of the author(s) and does not necessarily represent the official views of DOF. For more information, visit www.DeafOrganizationsFund.org. [Visual Description] Closing Slide: The Cocoon is a vlog series brought to you by Pink Wings of Hope, a program of DEAF, Inc. - www.deafinc.org/pink

I am appalled that police in particular think ASL is aggressive? How the hell is having expressive facial expressions aggressive?!?!? I’m sorry but if you think someone’s singing is aggressive (whatever that is supposed to mean) you deserve to be publicly laughed at. It’s easily the most absurd thing I’ve ever heard!

Would you travel to Canada .?

Nancy is a great person. 🤟

Okay, that’s it, I need to get back in another ASL class. I took 2 semesters in college, and had a Deaf roommate which was amazing, but now I haven’t had a chance to communicate with any Deaf people so I’ve forgotten so much. I learned a lot from her about what the Deaf have to go through in the hearing community, it can be horrible.

I am in virginia and I am an artist, too, but of drawing and of digital art, and of being a published author. Is being a HOH writer important, too? I wrote to help others know to not accept bullying. My poems also express about caregiving of others who have mental illness. Does it matter that I live in virginia, not in Missouri state, anymore?

I support him, too. Hope he continues this important work.

I am so glad for you that you have kept going and beat the odds. Well done you are a star. Love from Australia.

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Your dedication to making a difference is truly inspiring. I would be thrilled to connect and explore collaboration opportunities to further amplify the impact of GiveSTLDay. We sent an email, please take a look.

Welcome

It astounds me that cops are so pignorant of how to interact with at risk citizens. It’s almost like they take the bottom of the barrel, and/or just take what they can get when it comes to applicants. Their egos are so large there is no room for the possibility that a citizen isn’t intentionally defying “lawful commands”.

This is excellent and I will share with our local police

ua-cam.com/video/gUhyTtO1pAc/v-deo.html

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath.] [Visual Description: De Linda Brite, Director of Community Programs - a white female, dressed in a blue shirt in front of a purple background.] [De Linda Brite] Hi, October is Breast Cancer Awareness Month. I would like to take a moment to recognize this awareness and to remember the 4 co-founders who created Pink Wings of Hope in 2009 and those who have passed away to breast cancer. [Image Description: Four white females looking at the camera with hands on hips, dressed in black with one pink accessory on each of them.] [De Linda Brite] It is very important to take mammogram examination every year for preventive and early detection, so talk with your doctor about getting an appointment scheduled. Also, this month is our one-year anniversary with Pink Wings of Hope’s V-log series called The Cocoon. Several people have asked what the meaning behind the name was. [Image Description: Cocoon Logo - Cursive ‘The Cocoon’ with a cocoon line drawing at the end. A butterfly flying above.] [De Linda Brite] As a caterpillar, it must wrap itself into a cocoon or a chrysalis and go through a transformation before they can become a butterfly. The mission of PWOH is to provide information, resources, and peer support in ASL, to Deaf, hard of hearing, and DeafBlind individuals, who are facing their battle with cancer. A person who has cancer would be like the caterpillar inside the cocoon, going through all the changes in their body. We have a team of amazing volunteers, who we call “Butterflies”, ready to provide support, hence a butterfly sitting on a branch, next to the cocoon. I invite you to watch the behind the scenes and bloopers of our work, enjoy! [A series of bloopers. Stephanie Wilcox begins to sign ‘Women’ but stops herself and shakes her head. Stephanie is laughing and signing, “Good job! Good job!” and gives Dr. Jensen a high five. Stephanie is sitting at a table, signing, “Good? Was that good? Oh! You’re recording? Really recording?” Stephanie is in front of a green screen, signing, “Some…” and claps her hand together, pressing her forehead on her fingers. Stephanie is in front of a green screen and says, “Women’s breast cancer…why did I say women??” then looks at the camera in shock. A video of Stephanie signing her script in front of a camera and a green screen. Then a video of De Linda Brite and Stephanie sitting on a bench, practicing the next script.] [De Linda Brite] One of the co-founders, who passed away from breast cancer, came up with this meaning. It was her dream and passion to have a vlog series for you and I am extremely honored to make her dream come true. [Image Description: A white female smiling at the camera, long blonde hair, sitting in front of a green background. Titled, “In Memory of Annette Nitko.” [De Linda Brite] In one year, The Cocoon has reached over 14, 600 views in all social media. From that, we have received contacts from all over United States, Canada and other countries, asking for resources or peer support. All of our videos are available to watch, look for Pink Wings of Hope in Facebook or UA-cam. [Image Description: Follow us! Facebook logo: Pink Wings of Hope. Instagram Logo: @pinkwingsofhope. UA-cam logo: @deafinc. Thank you!] [De Linda Brite] Happy one year anniversary! [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.] [Image Description: Pink Wings of Hope Logo and contact information. (314) 714-6398. pwoh@deafinc.org. www.deafinc.org/pink]

[Visual Description] Title - DEAF, Inc. Special Announcement: Interpreting Manager with a blurred background. [Visual Description: Two white women standing next to each other with a decorative background. The woman on the left is wearing black clothes and has long brown hair. The woman on the right is wearing a black top with a blue jacket, she has long blond hair.] [Sarah] Hello! Thank you for taking a moment to tune in to see what we’re up to. I’m Sarah Prechtel, Executive Director at DEAF, Inc. I’m excited to introduce to you the newest member of our DEAF, Inc. family! Marena Kaminsky began her journey with DEAF, Inc. as the Manager of our Interpreting department. Marena is from Southern Illinois. She graduated from Southern Illinois University - Carbondale where she earned her bachelor’s in Psychology. While obtaining her degree, she minored in ASL completely unaware of how deeply she would fall in love with the language, culture, and people. Enough so that she went on to pursue a deeper and well-rounded education by obtaining two AAS degrees in Interpreting and Deaf Studies at John A. Logan College. Please help me welcome Marena! [Marena] I am really excited to have joined this team and the St. Louis community. As Sarah mentioned, I began my interest in ASL in college after a family member was told she would lose her hearing. I had no idea it would open a door to an amazing world. It has been nice to meet everyone, and I am excited to be part of the community soon. [Sarah] Now that Marena has had a little bit of time to get settled and become acquainted with our DEAF, Inc. team and internal processes, she is ready to meet you! Her office hours are Monday-Friday, 8:00-4:30pm. She will also be at the upcoming MO Interpreting Conference. At the end of this video, we will share with you ways you can reach her. Thank you, again, and have a wonderful day! [Visual Description: DEAF, Inc. Interpreting Services. Marena Kaminsky, Interpreting Manager. Email: mkaminsky@deafinc.org. Phone: (314) 968-8868.]

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Transcript: (1/2) [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in black shirt with Pink Wings of Hope logo and butterfly design, sitting down in front of a white wall.] [Stephanie] Hello, my name is Stephanie and thank you for joining in with us. Today, we will be focusing on skin cancer, which is the most common cancer in the United States and worldwide, how to identify any potential cancerous skin growth, and how we could prevent ourselves from being at a greater risk for skin cancer. I am honored to have this opportunity to talk with a Dermatologist. Hi Dr. Jensen, thank you for joining with us. I heard you were learning ASL in a class, would you like to introduce yourself? [Visual Description: Dr. Jenson - a white female with short hair, wearing a lab coat, sitting next to a white female dressed in black who is her interpreter. There are medical equipments and cabinets in the background.] [Dr. Jensen] Hi, my name is Dr. Jensen. My sign name is this. [Image Description: Blue background with a large woman in the center from shoulder to head, with spots on her face. Medicine bottle in front of her and a doctor holding on to a magnifying glass to look at the spots. Another doctor sits with on an enlarged science drawing of a person’s skin.] [Dr. Jenson] I am a dermatologist. [Stephanie] The Deaf, hard of hearing, and Deafblind community have been hearing about skin cancer and preventive care from time to time, but most of the the time we don’t have the equal access to all information, only bits here and there. So, let’s see if we can bring the information out here today. Let’s start with the big question- what is skin cancer? [Dr. Jensen] Skin cancer is an abnormal growth of cells from the skin and there are three most common types we see. [Image Description: A series of three images showing the three most common types of cancer with an interpreter in the upper right hand corner. Basal Cell Cancer shows an image of a red mark on the skin. Squamous Cell Cancer shows an image of a peeling bump like a mole. Melanoma Cancer shows an image of a black mole with dark coloring on the skin.] Basal Cell Cancer is the most common. Squamous Cell is the second most common cancer I see, and Melanoma Cancer of the cells that cause color in the skin: melanocytes. It's also the most concerning type of cancer to get. [Stephanie] With the most of the types of cancer, it all begins with an abnormal cell that multiply into a cluster of abnormal cells, which could lead to a cancerous tumor or a beigin. I am aware that our skin have their own cells, that functions differently than other cells in our body. How do skin cells become cancerous? [Dr. Jensen] Skin cells become cancerous as a result of damage to the DNA and that happens with cumulative sun exposure. UV radiation causes damage to the cells and then they grow and multiply. [Stephanie] What is UV? [Image Description: A medical illustration of the skin’s layers and a sun in the upper left corner. Arrows of the rays dispaying the impact of each UV light. UVA goes deeper into the skin to the dermis layer. UVB goes into the epidermis layer. UVC doesn’t touch the skin. An interpreter is placed on the upper right corner.] [Dr. Jensen] UV light is what comes from the sun. We see UVA and UVB, UVC stays up in the clouds above us. But that radiation causes the damage to the cells. [Stephanie] Please explain a little more about each of the top 3 you mentioned, Squamous Cell Cancer, Basal Cell Cancer, and Melanoma. [Image Description: A flat medical illustration of the skin’s layers. Titled Basal Cell Carinoma, the cancer cell is superficial and at the top of the first layer. An interpreter is placed on the upper right corner.] [Dr. Jensen] So Basal Cell Carcinoma is the most common cancer we see. It often starts off as a pimple that won't heal, a wound that comes and goes or something that bleeds easily. Usually in areas of more sun exposure: the head, neck, or back. It's easily treated with surgical procedures and it has a very low risk of moving throughout the body. It won't metastasize. [Image Description: A flat medical illustration of the skin’s layers. Titled Squamous Cell, the cancer cell is deeper into the first layer called epidermis. An interpreter is placed on the upper right corner.] Squamous Cell Cancer is a little more concerning in that it can travel through the body. It looks more scaly, rough looking and again happens where the sun hits the skin: head, neck, arms, and back. [Image Description: A flat medical illustration of the skin’s layers. Titled Melanoma, the cancer cell has surpassed the epidermis layer and went deep into the dermis layer. An interpreter is placed on the upper right corner.] And then Melanoma is the more worrisome type of skin cancer that comes from a mole or the cells that make color in the skin and that can travel through the body. It can cause a lot of morbidity and mortality. It also has a little more risk of passing through generations. It can be hereditary. So people with a first degree relative with Melanoma have to be more cautious. [Stephanie] We know that if we see anything different on our skin that wasn’t there before, to go see a Dermatologist but what if I have some moles or freckles, how would I notice the difference? To me, a freckle looks the same as the early sign of a melanoma. [Dr. Jensen] It's hard and I understand that to tell the difference between a normal freckle or a mole and a skin cancer or melanoma. I think it helps to have a baseline exam with the skin specialist or dermatologist so you have an understanding. And then to look for changes in any moles that you might have and to see someone if you do have a changing mole or changing spot. [Stephanie] Now I have a better understanding of the three types of skin cancer and how to identify a potential sign of a skin cancer; let’s talk about how we can take a better care of our skin and what preventive actions we should take. [Dr. Jensen] Well, it's important to take care of your skin in the sun. The sun is important for us for vitamin D production. And also, the sun feels good. So you don't have to hide fully from the sun, but you have to be smart in the sun. I recommend people wear sunblock on their face and their arms on a daily basis because you get a lot of sun driving around going to the grocery store. I tell people, sun is like chocolate. You don't want to eat it all day, but you can have little bits of it.

Transcript: (2/2) [Stephanie] When I see many different sunscreen lotions on the shelves, I get overwhelmed and so confused! I try to figure out which lotion is best for me. There are bottles with different numbers with SPF. What is SPF and why are the numbers so important? [Image Description: Yellow background with sun screen labels displaying SPF 15, SPF 30, and SPF 50] [Dr. Jensen] As far as what sunblock to use, I like to see number 30 or above. It doesn't really matter how high you go. 30 is plenty. [Image Description: A blue box of a sunscreen showing Drug Facts: Active Ingredients. Titanium Dioxide 15% and Zinc Oxide 12%. A red circle appears to show the important ingredients. An interpreter is placed on the upper right corner.] [Dr. Jensen] And more importantly, I like to see certain ingredients like zinc or titanium. Those are physical sunblock. [Image Description: An illustration of two skin layers. The first illustration is titled, “With Sunscreen” and shows the UV light bouncing off the skin. The second illustration is titled, “Without Sunscreen” and shows the UV light absorbing into the skin. An interpreter is placed on the upper right corner.] [Dr. Jensen] They work as soon as you put them on, you don't need to wait. And there's so many different versions. They don't have to look so white and pasty. They can be very easy to use on a daily basis. You do need to reapply throughout the day if you're going to be out all day, gardening or golfing. But I do recommend just a first layer in the morning for all the driving or errands we do. I tell people to put it by your toothpaste. You're going to brush your teeth every morning. So you link it to a habit you already do, it makes it easier. [Stephanie] Dr. Jensen, thank you so much for taking your time, from your busy schedule, to meet with me. The information you shared are so invaluable and very helpful. I might come back with more questions, down the road, so let’s keep in touch. People would take care of their organs, by eating healthy food or avoid any potential harm to our organs. Bikers wear helmets, football players wear pads, and we wear a seatbelt to protect our bones and organs. But people don’t realize that our skin is an organ, actually the largest organ, on our body! If people take extra care of themselves by adding protection gears to prevent any severe damage, why can’t we do the same for our skin? By putting 30 or higher SPF on your skin and a hat, when staying out in the sun for more than 30 minutes, and do a body check for any suspicious growth. If you are not sure, it wouldn’t hurt to go see a Dermatologist. At Pink Wings of Hope, we have a team of volunteers, or Butterflies as we call them, who have gone through their own cancer journey and is wanting to help other deaf, hard of hearng, and deafblind to get through theirs and not to let them feel alone. If you need someone to talk with, help in finding peer support, or if you’d like to share your journey, please reach out to us and we’d be happy to listen. [Image Description: Pink Wings of Hope Logo and contact information. (314) 714-6398. pwoh@deafinc.org. www.deafinc.org/pink] [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]

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ua-cam.com/video/hc7JP3qi5SY/v-deo.html

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in black shirt with Pink Wings of Hope logo and butterfly design, standing behind a kitchen counter, with a pink mug.] [Stephanie] Oh…well, hello there!! I thought it would be nice to step away from the stage at DEAF, Inc., and let me share with you about my journey with lung cancer. [Image Description: Stephanie dressed in black, standing in front of a green screen with a video camera recording her. Hope Shrake, white female with brown hair, dressed in black and white plaid, holding the camera.] [Stephanie] I was just thinking about my experience with cancer. I recently celebrated 6 years of being cancer-free, I cannot believe I made it this far. (pause) You see, individuals with the same type of lung cancer that I had, they typically don’t live past 5 years. Statistics have shown that only 18% of lung cancer patients would live past 5 years. I’m one of them… [Image Description: Titled, 5-Year Survival Rate. 4 different categories: Lung Cancer 18%, Breast Cancer 89%, Colorectal Cancer 65%, Prostate Cancer 99%.] [Visual Description: Stephanie is sitting at a wooden desk in front of a mustard colored wall, with plants and a window in the background.] [Stephanie] In April, 2016, I was studying so hard for an exam. I was dealing with a lot of stress that night which led me to having a severe anxiety attack where I could not breathe normal. In the emergency room, my doctor decided to do an ct scan on my heart before starting me on my treatment, because of my family history with heart conditions. I remember that moment when the doctor was trying to tell me that he found a “mass” in one of my lungs. I was thinking, why is the doctor talking about a church mass while I was lying there, trying to calm my anxiety down. Then a few days later, I went to see my primary care physician for a follow up and that was where it finally hit me….a mass, an abnormal growth of cells, could be cancerous or benign. I had a mass in my right lung. After several tests, it was confirmed. I did have cancer, a stage 2 which was the size of a chicken egg. The type of cancer I had was Neuroendocrine Cell Cancer and it was right near my bronchi, where the air would go from the trachea into my lungs. [Image Description: Titled, “Human Respiratory System.” Graphic drawing of the lungs with labels: Larynx, Trachea, and Bronchi.” [Stephanie] Neuroendocrine cells are specialized cells responsible for repairing epithelial tissues that line the airways, intestines, and other surfaces of the body. I did not have any chest pain, difficulty breathing (other than when I was having an anxiety attack), I never smoked cigarettes or lived with someone who smoked. The cancer I had started with one abnormal cell and it multiplied into several cells which formed into a tumor. [Image Description: Pink healthy cell turns into a purple damaged cell and multiplies turning into a tumor.] [Stephanie] May 23rd of 2016 was when I had the lobectomy surgery to remove about 80% of my right lung. [Image Description: Titled, “Lobectomy.” A medical illustration of a man’s torso with the right lung being mostly gone, left lung and heart there.] The surgery was successful that I did not need any chemotherapy or radiation. However, life after surgery was very difficult for me. I had to learn to let my left lung take over my little right lung. I had to relearn how to breathe and walk at the same time; it was not as easy as you would think, I had to walk around the nurse station before I could go home. It took me a few days before I could finally complete the task. [Visual Description: A reenactment video of Stephanie walking up the stairs, pausing to breathe again after each step.] [Stephanie] The stairs were my enemy! It took me about 15 minutes to go up 16 steps, taking a breath at every step. I had to learn how to sleep again. I couldn’t sleep on my right side, or I would get some pain when my left lung, esophagus, heart, or glands begins shifting toward the space left open by the removal of the lung. It took me about a year to finally feel like I was getting myself back. This was a picture of me, a few days after my surgery, with my 9 month old granddaughter. [Image Description: Picture of Stephanie on a hospital bed, wearing a green robe, she is smiling at the camera, signing I Love You while holding her baby granddaughter.] [Visual Description: Stephanie is sitting on a wooden bench by a lake under a tree.] [Stephanie] Thinking back to that night in the ER, I am glad I had an anxiety attack, and that this doctor decided to do a ct-scan, or I would not be here, talking to you right now. Anxiety attacks can be a nuisance sometimes, but I was very grateful that I had one because it saved my life. I was so blessed to have the support of my family and friends. On the days when I didn’t have any energy to keep moving and just wanted to give up, they were my strength and they kept me going. At Pink Wings of Hope, we have a team of volunteers, or Butterflies as we call them, who have gone through their own cancer journey and is wanting to help other deaf, hard of hearing, and DeafBlind people to get through theirs and not to let them feel alone. If you need someone to talk with or need help in finding peer support, please reach out to us and we’d be happy to assist. If you’d like to share your journey with me on The Cocoon, please contact us. [Image Description: Pink Wings of Hope Logo and contact information. (314) 714-6398. pwoh@deafinc.org. www.deafinc.org/pink] [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in black shirt with Pink Wings of Hope logo and butterfly design, in front of a textured purple background.] [Image in corner: Pale pink background with white question marks surrounding three confused individuals.] [Stephanie] When you need a treatment for your fight against cancer, you have a lot to learn and think about. It is normal to feel overwhelmed and confused when talking with your doctor about different types of treatment, especially when they uses medical terminology that you are not familiar with. The most common treatments that most of us would know or have heard of is [Image in corner: Orange triangle in the middle titled ‘Treatment Option.’ On each point of the triangle is an image of a doctor wearing a mask titled surgery, another point with the image of an IV Bag titled Chemotherapy, and last point with the image of symbol of radiation titled radiation.] [Stephanie] Chemotherapy, Radiation, and Surgery. There are several other types of treatments available to use to destroy your cancerous cells. Let’s go over the top 9 treatments available in United States. [Image in Corner: A dark skinned doctor is standing over a person with cancer, an iv in their arm getting chemotherapy treatment] [Stephanie] Chemotherapy is a treatment that works against fast-growing cancer cells. This type of medication stops or slow the growth of cancer cells. Often this procedure can be use to shrink tumors that are causing pain and/or other problems. Chemotherapy may be given through an IV, injection, oral, or topical. [Image in Corner: Light blue background with a syringe.] [Stephanie] Hormone Therapy is a treatment that slows or stops the growth of breast and prostate cancers that relies on hormones to grow. This treatment may be used to destroy cancer cells that have returned or spread to other parts of your body. Hormone Therapy can be given through injection, oral, or have surgery to remove organs that produces hormones (ovaries for women and testicles for men). [Image in Corner: a person lying down on a hospital bed with a machine on their body called EHY-2000] [Stephanie] Hyperthermia is a type of treatment in which body tissue is heated to as high as 113 degrees fahrenheit to help damage the cancer cells with little to no harm to your normal tissues. This therapy can be given through a local, which is a specific or small area of the body, or a regional, which is large areas of the body. Some of the procedures would require the patient to be under anesthesia, some are not. Not all hospitals have this treatment. [Image in Corner: A chart of CAR T-Cell Therapy explaining the transfer from first removing blood to get T-Cells, create CAR T cells in the lab, create millions of CAR T cells, infuse the cells into patient, the cells bind to cancer cells and then kills them.] [Stephanie] Immunotherapy is a treatment that helps your immune system fight cancer better. Immune system is your white blood cells, fighting infections and other diseases in your body. Most often, your immune system would fight and kill off any abnormal cells. However, cancer cells have ways to avoid destruction by the immune system. Cancer cells could have genetic changes that makes them less visible to immune system, or have proteins on their surface that turn off immune cells, or change the normal cells around the tumor so they interfere with how the immune system responds to the cancer cells. This treatment is being given through an IV, oral, topical, or intravesical which means goes directly into the bladder. [Image in Corner: Machine with red light streaks, a person laying on a bed with their body including their face covered.] [Stephanie] Photodynamic Therapy uses a drug that is activated by light from a laser, called photo sensitizer, to destroy cancer cells. This type of drug can be taken orally, topical, or through an IV. After up to 72 hours, when this drug is in the cancer or pre-cancer cells, the tumor will be exposed to the light source which start destroying the cancer cells. [Image in Corner: A doctor covers a patient’s face with netting like fabric. The patient is covered in white cloth, laying on a bed with a circular machine in the background.] [Stephanie] Radiation Therapy uses high dosage of radiation to destroy cancer cells and shrink tumors. There are two types of radiation therapy called external beam radiation therapy and internal radiation therapy. External beam comes from a large machine that aims radiation at your cancer from different angles. Internal radiation therapy is a treatment where a source of radiation is put inside your body, by swallowing, through an IV or injection. The radiation source will travel in the blood to tissues, seeking out to destroy cancer cells in your body. [Image in Corner: Illustration chart of a person in the center, blood goes out of them and into stem cells. The stem cells are frozen and stored then blood goes back into the person.] [Stephanie] Stem Cell Transplant are procedures that restore blood-forming stem cells in people who have had their blood cells destroyed by the high doses of chemotherapy or radiation. Once healthy blood forming stem cells enter your body, the cells travel to the bone marrow where they can take the place of the cells that were destroyed by treatment. Stem cells do not usually work against cancer directly. Instead, they help your body’s ability to produce stem cells after treatment. [Image in Corner: Illustration of a surgery room with equipments and doctors surrounding a patient performing surgery.] [Stephanie] Surgery is available to remove cancerous tumor from your body. Many types of cancer can be treated with surgery. Surgery works best for solid tumors that are contained in one area. Surgery are not used for leukemia (type of blood cancer) or for cancers that have spread through your body. Sometimes surgery will be the only treatment you need but most often, you will also have other treatments. [Image in Corner: Groups of figures. First group, each figures are black with the caption, “Molecular and clinical profiling of patient and disease.” Second group, each figures are colored green, blue, and red with the caption, “Targeted Therapy.” Third group, each figures are the same color but with matching colored syringes.] [Stephanie] Targeted Therapy is a treatment that targets proteins that control how cancer cells grow, divide, and spread. There are two types of targeted therapy, small-molecule drugs and monoclonal antibiodies. Small- molecule drugs are so small that they could get inside a cell and find targets to destroy. Monocolonal antibiodies are proteins that were made in a lab. Remember that cancer cells could change to trick or hide from your immune system. Lab-made proteins are designed to attach itself to a specific target found on cancer cells and be visible so your immune system can see the cancerous cells better and destroy it Also this lab-made proteins can stop cancer cells from growing or cause them to self-destruct. [Image in Corner: An illustration of two people sitting at the table. One is dressed in a lab coat and the other is in an orange shirt, holding a paper and saying, “I understand!”] [Stephanie] To figure out which of the 9 different treatments would be the right one to fight your cancer cells is by doing a test called Biomarker Testing. Your doctor would be able to determine what type of cancerous cells you are dealing with and and how to destroy the bad affected cells. It is important to have open communication with your doctor with your questions or concerns. [Image in Corner: Pink Wings of Hope Logo and contact information. (314) 714-6398. pwoh@deafinc.org. www.deafinc.org/pink] [Stephanie] Pink Wings of Hope is available if you need someone to talk with or need help in finding peer support.

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in a black button down shirt, in front of a textured purple background.] [Stephanie] What is Cancer? Where does it come from? [Image in corner: Red background, orange and yellow circles outlining a person and spreading behind] [Stephanie] Cancer is a disease in which some of the body’s cells grow uncontrollably and spread to other parts of the body. The body has trillions of cells, with new ones being developed each day. [Image in corner: Healthy pink cell transforms into purple damaged cells and multiplies.] [Stephanie] When cells develop abnormally, instead of getting rid of the cells, they grow and multiply. These abnormal cells may develop into what we call tumors. Tumors can be cancerous or non-cancerous. [Image in corner: Grey textured background. Titled, “How Cancer Spreads” and a close up of a blood vessel and cells moving through it.] [Stephanie] A tumor usually stays where it was first formed. However, if a cancerous cell breaks away from the tumor, it can travel anywhere in your body by getting into our blood vessels or lymph nodes and travel to other tissues like liver, lung, bone, or brain. There, cell can multiply and develop into another tumor. [Image in corner: Overall view of an organ with 5 different cancer growths.] [Stephanie] Most types of cancer have 5 stages: [Image in corner: Close up of the organ and cancer stages 0 to II. Small cancer growths.] [Stephanie] Stage 0 is when the cancer is still in the original location and has not spread to a nearby tissues. Stage 1 is usually a small cancer or tumor that has not grown deeply into nearby tissues. [Image in corner: Close up of the organ and cancer stages II and III, larger cancer growths.] [Stephanie] Stage 2 and 3 indicate larger cancers or tumors that have grown more deeply into tissues. [Image in corner: Close up of the organ and cancer stage IIII, bigger cancer growth in comparison to previous stages.] [Stephanie] Stage 4 means that the cancer has spread to other organs or parts of the body. There are more than 100 types of cancers, and the top 10 Cancer in America are [Graphic Description: Name of the cancers appears one by one next to Stephanie.] [Stephanie] skin cancer, lung cancer (that’s what I have), prostate cancer (for men), breast cancer, colorectal cancer, kidney cancer, bladder cancer, and non-Hodgkin’s lymphoma. Cancer can happen to anyone, from newborn baby to senior citizens. The word cancer can be intimidating or overwhelming. If you would like to know more about cancers in general or a specific cancer, we encourage you to consult with a medical professional. PWOH is also available for education support. [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in a dark purple shirt, in front of a textured purple background.] [Stephanie] When people talk about cancer, do you understand the common terms used or what it means? Today, we’re going to review common vocabulary and the most appropriate signs to use. For example, the word “cancer” is usually signed like this (demonstrate sign). Many cancer survivors do not like this sign, because “cancer does not eat you up.” It harms your body, but it does not “eat” away your organs. The most appropriate sign is to fingerspell the word (demonstrate). [Image in corner: “Cancer” a graphic outline of a human with a zoomed out cancerous cell] [Stephanie] Cancer is a disease in which some of the body’s cells grow uncontrollably and spread to other parts of the body. [Image in corner: “Tumor” a graphic outline of a human with a zoomed out cancerous cell] [Stephanie] A tumor is an abnormal mass of tissue caused by unhealthy cells. [Image in corner: “Cyst” Layers of the skin with a white sac within the tissues. Few strands of hair coming out.] [Stephanie] A cyst is a sac that may be filled with air, fluid, or other material. [Image in corner: “Biopsy” A graphic human laying down, with a potential cancer cell in their body and a biopsy needle taking a sample of the cell.] [Stephanie] A biopsy is a surgical procedure to remove a piece of the suspected tissue or a sample of cells from your body so that it can be tested for a disease. Both tumors or cysts could become cancerous or not. A biopsy may be recommended to determine whether it is cancerous. [Image in corner: “Benign” red cells grouped up into one space with a few blue cells surrounding it.] [Stephanie] Benign is a condition, tumor, or growth that is not cancerous. This means it does not spread to other parts of the body. [Image in corner: “Malignant” red cells breaking out of the space and spreading with a few blue cells surrounding it.] [Stephanie] Malignant is when the tumor is cancerous and can spread to other parts of the body. [Image in corner: “Metastatic” Cells traveling to different parts of the body such as organs, lungs, head, brain, and bones.] [Stephanie] Metastatic is when the cancer spreads to a different body part from where it started. When this happens, doctors say the cancer has “metastasized.” Your doctor may also call it “metastatic cancer,” “advanced cancer,” or “Stage 4 cancer.” These terms have different meanings though. Ask your doctor to explain where the cancer has spread. [Image in corner: “Chemotherapy” A white female nurse sitting next to a black male who is laying down with an IV in his arm. Anti-Cancer Drug is labeled on the IV bag.] [Stephanie] Chemotherapy is a treatment that uses drugs to stop the growth of cancer either by killing the cells or stopping them from dividing. [Image in corner: “Radiation Therapy” a x-ray skeleton is laying on a table with a green scan targeting their lungs.] [Stephanie] Radiation therapy is a high-energy radiation from x-rays, neutrons, protons and other sources to kill the cancer cells and shrink tumors. In this vlog, we did not cover all of the important vocabulary as the list is quite extensive! However, we hope that you find this vlog helpful in building your knowledge about cancer. [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in a black shirt, in front of a textured purple background.] [Stephanie] Most cancer patients ask this common question: [Image in corner: A cartooned white female laying in bed with a thermometer in her mouth.] [Stephanie] can we get the preventive vaccine (like flu or pneumonia shots, Coronavirus, etc.) even though we just had surgery, or a transplant, or planning to have a surgery? Are we considered at risk for any virus or airborne infection? [Image in corner: Blue background with a white outline of a roof, text underneath it saying “Stay Home.”] [Stephanie] It is recommended that people with any type of cancer to stay home and have their friends, family, or caretaker take care of their need. [Image in corner: Two human figures colored red and blue are standing far apart with a line distancing them.] [Stephanie] People are encouraged to remain socially distant when possible and to avoid any event attracting a large crowd. [Image in corner: Cartooned male wearing dark blue on a light blue background, holding a shield and a sword against yellow/orange colored germs.] [Stephanie] People with cancer who are currently treating with chemotherapy could get infection easily because of their weakened immune system. Such treatment could weaken your body’s ability to fight off disease. [Stephanie] What can you do to protect yourself from an infection? [Image in corner: Dark grey background with a title, “Types of Infections” displaying 5 different types: viral, bacterial, parasitic, fungal, and prion disease.] [Stephanie] Infection is caused by a bad bacteria or a virus. You can get the bacteria from the air, water, soil, or through the food. When germs enter your body, by touching your eyes, nose or mouth) and multiply, causing an infection, illness, or organ and/or tissue damage which could develop into a disease. [Image in corner: White background, shows images of all sorts of cleaning products.] [Stephanie] There are ways you can minimize your risk of getting contaminated. By wearing a mask and hand sanitizing frequently can reduce the risk of getting infected. Clean your countertops with an antibacterial cleaning product. [Image in corner: White background, shows 6 rolls of paper towels.] [Stephanie] Use paper towel to open a door instead of your own hand. [Image in corner: A silver box above the toilet with toilet seat covers and a hand pulling one out.] When using a public toilet, use paper product to cover the toilet seat, or use toilet paper if not available. [Image in corner: White background, displaying two circles of a cartoon male coughing. One circle has the male covering his mouth with his elbow and another circle with a line crossed through it has the male covering his mouth with his hands.] [Stephanie] Encourage your family and friends to use their elbow when sneezing and wash hands afterwards before touching any furniture. [Image in corner: White background with a list of words: Feeling warm, Chilled, Flushed, upset stomach, Diarrhea, Not feeling well, and Temperature of 100.4 F or higher.] [Stephanie] Typical symptoms of an infection are when you start feeling warm, chilled, flushed, upset stomach, diarrhea, or not feeling well. Call your doctor right away if you notice any of the symptoms and/or have a temperature of 100.4 F or higher. [Image in corner: White background of two circles. One is titled normal with many red circles and bigger pink circles labeled Neutrophils. Another circle titled Neutropenia with man red circles and 3 pink circles labeled too few neutrophils.] [Stephanie] It’s important to talk with your doctor about neutropenia, which means a blood condition of low white blood cells. White blood cells are like your soldiers, fighting against foreign objects in your body like bacteria or germs. So, if you have low white blood cells, this means that your body cannot fight off infections easily. [Image in corner: Green outline of a doctor in a circle with orange outlined chat boxes.] [Stephanie] It is critical for people who are at most risk for any disease or infection to be vaccinated. It is strongly encouraged for family and close friends to get the vaccination to protect their loved one who is dealing with Cancer or any of the life-threatening diseases. It is always best to talk with your doctor to find out what is the best preventive method for you as you deal with your cancer journey. [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]

Transcript: [Visual Description: Introduction- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope and www.deafinc.org/pink appears underneath. Cocoon Logo gets flipped into a short video of the host wearing black shirt, turning to look at the camera and Hosted by Stephanie appears.] [Visual Description: Stephanie - a white female, dressed in black shirt with Pink Wings of Hope logo and butterfly design, in front of a textured purple background.] [Image in corner: Four illustrated people looking at each other with question marks above their heads and a caption saying, “What do you say?”] [Stephanie] What would you do? What would you say if you find out that someone in your family or a close friend was recently diagnosed with cancer? Sometimes it’s tough when you see someone you care about so much dealing with cancer and you are not sure of what to say. If you’re experiencing the feeling of shock, fear, and sadness, it may be hard to keep your emotions in check and say the right thing. People who are dealing with cancer would feel the same. They have their own emotions to deal with too, while fighting cancer. [Image in corner: Blue background with speech bubbles, “Say this” and “Not this”] [Stephanie] It is okay to say, “I don’t know what to say.” The best thing you could do is just be there and listen without trying to inject your own opinion, ask some appropriate questions. [Image in corner: Four illustrated people arm in arm, all wearing a variety of different colored cancer ribbons on a silver background.] [Stephanie] Each person’s journey with cancer is different, so try avoiding comparing one experience to another. For example, their tumor may be stage 2 while other is stage 4 or one may be aggressive while the other is not. Sometimes the person who is dealing with cancer may not feel comfortable to talk about their treatment, so do not force them to talk but acknowledge that you are here for them. [Image in corner: Woman handing over a box of groceries to another woman, in front of the house and both wearing masks.] [Stephanie] There are ways to give support, for example, you could set up a list of volunteers to help with cooking or set up a meal drive, [Image in corner: Illustrated people wearing masks, two groups of individuals helping with groceries, walking, and giving tea.] [Stephanie] offer to drive to the doctor’s office or run errands, [Image in corner: Light blue background with clouds, plant, and a playhouse. Illustration of a woman and a child playing with dolls.] [Stephanie] or if they have children- help with babysitting for a couple hours or take the kids out for an activity. Don’t be afraid to ask how you could help around the house. [Image in corner: White background, three illustrated people. One person is lying in a hospital bed with an IV on her arm. Two others are standing around, one holding the hands of the woman laying down and the other handing over white flowers.] [Stephanie] Try to be mindful with what you say to a person with cancer. You may mean well but some statements can be hurtful. [Image in corner: Two illustrated people, one consoling a person with a hand on their shoulder, on a white/light blue background with clouds and grass.] [Stephanie] For example, “Everything is going to be fine” is not an appropriate thing to say to a person who is fighting Cancer. With a disease that has a percentage of casualty, and the thought of death and dying is already looming in their head, to hear someone saying, “everything is going to be fine”, they would likely take it as an insult. Because in reality, no one knows if everything would turn out fine. It’s better to avoid being a cheerleader with a positive outlook in the future. Focus on the current situation and say something supportive like “we’ll get through this together.” Instead of saying “I don’t think you’d be feeling up for it.”, say “Would you like to give it a try?”. Instead of “I had a friend who died of cancer,” say “I had a friend with cancer, and I can imagine it would be tough to go through.” [Image in corner: Wooden background, white woman with glasses, smiling and holding her wig, wearing a blue top and jacket.] [Stephanie] Instead of saying “that wig looks good on you”, say “It’s great to see you!” and if they mention their wig, listen to how they’re feeling about it and determine if now’s the right time for a compliment. It can be challenging to say the right thing when you are trying to be sensitive to their needs and emotions. [Image in corner: Two illustrated people in red chat boxes, communicating with each other.] [Stephanie] The better approach is to say that you don’t know much about that type of cancer and ask to tell you more about it? Give them the reins of what information to share or not share. Some patients might answer your questions, other patients may not want to, and that’s okay. It’s important that you do not push them to respond. All they need is for you to just be there and listen. [Visual Description: Ending- Light green background. The Cocoon logo, a purple butterfly flying over written out cursive “The Cocoon” ending with a drawn out cocoon. Pink Wings of Hope is a program of DEAF, Inc. and www.deafinc.org/pink appears underneath.]