Відео

This is so tragic.. Meghan is such a lovely girl..

I hope they can find a way to treat these poor people. What a cruel disease.

This mom is unfucknbelievable, so strong, so patient, she lost husband, loosing her youngest daughter, and she'll have to do it all over again when her older daughter's HD starts. And she does it with such a positive attitude. People like her are rare breed, i mean to me it would be humanly impossible. I would crawl in some dark place under blanket, and stayed there.

Rest in peace, Meghan. She passed in 2014. ❤

The induced comma of 7 days could help.

How is Meghan doing now ? X

Not sure Has Meghan passed ? So very tragic and so heartbreaking.

Rest in peace beautiful Meghan ❤

As a nurse and witnessing horrific illness, Huntington’s and ALS are the worst. My best friend is currently fighting ALS. I can’t fix it. I can only support her and her family through this heartbreaking journey.

Some of Meghan's symptoms remind me of my son's severe Tourette. So stressful, especially for a highly sensitive person.

Does Katie have it?

I am doing my PhD on understanding the disease mechanisms of Huntington’s disease. It breaks my heart into thousand pieces after seeing the severity of the disease and how it effects the patient.

Meghan is beautiful! ❤️🙏🏻

This is a very sad disease. My dad died of HD, grandmother, 5 aunts, 5 cousins, and still counting. I am now 57 have not been tested, but I feel like the gene is absent. It has been a very difficult road for me to see all my precious family members suffering from this disease. When they passed I was relieved and in some strange way you feel guilt for feeling this way. I don’t like to see people suffer, especially those you love. I hope a cure is found. I have nephews who are young and hope for them a future cleared of HD. My heart goes out to Megan’s mom. She did her best.

GOD isn't responsible for diseases we get..blame it on evil men & women that their goal is to overprocess foods..spray crap in our environment..vaccines that have damaged many..we live in a world that has been infiltrated with sick people being paid$$$ to keep alot of sick..hence why many doctors treat the symptoms not the core reason..many evil sickos are having military tribunals for Crimes Against Humanity..for what they have done...why do you think so many people in authority are against President Trump...yes he's exposing them..and the evil are facing consequences..wait til you find out what "The Plan" is all about..it's a beautiful thing..I could NEVER be mad at GOD..

Y husband passed with this disease n not enough doctors are as aware of disease. It's like they're learning from us than helping us.

Moms (and Dad’s, too) like Meghan’s have strong hearts - both physically and spiritually. God bless that woman.

I hope somehow expecting parents or before people planning a family . Please get a family work up.

Rip❤

Was Meghan intellectually disabled before the HD? I onlky ask b/c of the odd way the speaker lady talked about her being extra vulnerable pre diagnoses, as opposed to other regular teens.

My Uncle Bill had this terrible disease!! I watched a sweet man turn into someone I did not even know.

Having kids when you have this disease is so irresponsible

❤❤❤❤❤❤

Megs was doomed. Audience wishes her grieving survivors all the best. Cheers!

With the availability of genetic testing hopefully this disease will be eradicated.

This story had me in tears almost immediately and I agree that Meghan was an extraordinary and extremely lovable person who would move a heart of stone. The Dr and therapist were incredible people who loved their patient. I happen to think that their feelings had everything to do with the quality and meaning in their roles. The mom is a living saint and the bond mother and daughter shared was too big to stop because her life on earth ended. I believe they are still tight, though sadly Mom has to go on and face more heartbreak. It is the cruelest disease and devastating how much suffering happens in the families. 🙏♥

As a nurse, HD was the worst thing I encountered in a patient. I cannot remember ever feeling that sad in my early career. In my later career I worked as a hospice nurse and still, HD was the worst death.

The hardest part of being a mom is not only watching your child be sick but watching two of your child's best friends dying of juvenile Huntington's disease... The minute both those kids turned 18 years old he had a vasectomy She went and got a tubal ligation and the reason why they were able to do this is because they could prove to the doctor that they both had huntingtons and so it was granted.... Then the next 4 years after that my daughter slowly watched her friends pass away... First the brother, but when his sister was dying my daughter took at the hardest,... So now we're going to jump onto a different kind of horror story medical diagnosis.... I was diagnosed with multiple sclerosis in 2003, and knowing what the different outcome is for different people... When my daughter found out I was sick She stopped at nothing to get to me to make sure that I wasn't going to die without her there... She packed up her baby She didn't know she was pregnant with my second grandson at the time, told her husband that she didn't want me to die alone and went from upstate New York to Idaho to make sure I didn't die without her there... Fast forward is now 2023 I have primary progressive multiple sclerosis which means I have upped my game... But I'm also a little over 20 years into it.... I'm not saying this for anyone feel sorry, but I know that once a cure for Huntington's is found a cure for MS can't be too much further behind... Every person there is watched this video or has a loved one with Huntington's God bless you because I worked at a nursing home and that's where I saw my first person with Huntington's and I know it's a nightmare for the family

The sound is clear and too low to understand.Too bad.😢

Why do her eyebrows look bizarre

A friends wife told him a year into their marriage that her Dad had huntingtons. I don't think they know about juvenile. It is a sad reality, nor fair but anyone who has this should at least fully disclose to anyone they date so later the spouse and spouses family has this knowledge. This way the spouse can have opportunity to determine ahead whether to have children or adopt. Realizing at the same time adopting one likely does not know their genetic history thus no matter families need to have full knowledge of what they maybe need to prepare for.

As a nurse this was the cruelest disease I witnessed. Hope 1 day they get a break through for this awful disease. R.I.P to all the ones who’ve passed away from H.C. Love and light to them all. 💙❤️✨✨🕊

Wow amazing team work, be so very proud. Guessing this was the best education and way to learn!! I've just watched from UK 🇬🇧 and learnt so much about this condition. Best wishes to a beautiful family, so sorry for the loss of a positive intelligent young lady. Xx

RIP Meghan, I hope you have found true peace now 🙏🏽💕

I found out about this desease in my phyc training, and it hit me hard. Very hard.

Omg I’d sell my home and get care at home No way I’d put my daughter in a Home

Is she still alive?

Lost my father to ALS it’s destroyed me this disease is life stolen so horribly

This is SO sad, symptomatic at 19 years old and gone before 30. So so so sad.

My aunt had HD, they had 5 children and all are dead now.

What a beautiful soul

Wow. Still Positive. My girl always says. I hate my LIFE. I tell her. STOP saying that. I LOVE U honey 🍯. I’m in your life. I’m not leaving you. Even later in life. This is gonna be hard for me see her decline. I’m in tears right now. People have NO IDEA the pain we see. I’m still confused what I should do. Stay as long as I can. Or She has 6 kids. I don’t know if they been tested yet? Do you get tested and know or wait till mid 30’s to test

Dating a woman who has this terrible disease. I knew something was off our first date I was thinking. Ok what’s going on. Had amazing sex which is why I’m still with her. It’s not the ONLY reason Something about her makes me stay. She has Corea Movements. She’s about 4yrs in and wow. What a fast change too. Makes them very sexual. I can’t keep up. Worst is MOOD swings. I Love 💕 her. But it’s very difficult. I only cried hard 2 times in my life. My Grandmother passing. I was told she’s dying at work. I LOST IT. Still today it hits. Hearing that my girl has 10-15 yrs to live. I lost it again. Seeing how bad it’s gonna get. Breaks my heart ♥️ Anyone who has to deal with this. Gets the BIGGEST praises. People have NO idea. Say it has to be the worst illness you can get.

A terrible terrible disease. I cared for one woman with HD in a nursing home. I walked her to the bathroom and she kicked both legs off the floor, a symptom of either uncontrolled movements or simply not understanding that this was unsafe. Thankfully, neither of us was hurt.

A terrible terrible disease. I cared for one woman with HD in a nursing home. I walked her to the bathroom and she kicked both legs off the floor, a symptom of either uncontrolled movements or simply not understanding that this was unsafe. Thankfully, neither of us was hurt.

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So much love and strength sent to you all 💖 Thank yoooooou so much 💝 🌟MEGAN🌟 🌟MUM🌟 🌟DAD🌟 🌟CAITLIN🌟

What an amazing psychologist. She reminds me of my own psychologist. I live with a severe mental illness that has serious physical side effects and at 31 my life is limited. My psychologist is like a second mother, while still remaining 100% professional. I also have an amazing psychiatrist and GP. These people really do take chronically ill young people and nurture them with all their being. I know that when I do pass, it will not have been for lack of the most appropriate treatment. I hope that whatever happens after death, Meghan is at peace, and that her incredible mother is able to keep going and be supported as much as she too needs to be.

To all families and anyone who has been diagnosed with this horrible and cruel disease. I really am so very sorry for everything that has had to go through this disease. I really do hope that we will have a cure for this horrible disease soon.