Fibromyalgi- & Smerteforeningen
Fibromyalgi- & Smerteforeningen
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Proteiner i blodet og kroniske smerter
I Sverige er en gruppe forskere i gang med at undersøge mulige sammenhænge mellem sammensætningen af proteiner i blodet og kroniske smertetilstande såsom fibromyalgi. Det kan være en nøgle til at forstå de biologiske mekanismer bag smerterne. Forskningen er på et tidligt stadie, men er vigtig for den fremtidige udvikling af målrettede værktøjer til at diagnosticere og behandle fibromyalgi. Smerteforsker Karin Wåhlén fortæller mere om denne spændende forskning.
Переглядів: 51

Відео

Epigenetik del 2: Forskning i epigenetik og fibromyalgi - Interview med Daniel Ciampi de Andrade
Переглядів 2187 місяців тому
Fibromyalgi- & Smerteforeningen interviewer med Associate Professor ved Aalborg Universitet Daniel Ciampi de Andrade, en af de førende eksperter i epigenetik. Videoen er anden del af et interview i to dele.
Epigenetik del 1: Hvad er epigenetik - Interview med Daniel Ciampi de Andrade
Переглядів 2617 місяців тому
Fibromyalgi- & Smerteforeningen interviewer med Associate Professor ved Aalborg Universitet Daniel Ciampi de Andrade, en af de førende eksperter i epigenetik. Videoen er første del af et interview i to dele.
Fibromyalgi - Interview med professor og fibromyalgiekspert Eva Kosek
Переглядів 914Рік тому
Interview med professor ved Karolinska Instituttet Eva Kosek, der er en af verdens førende forskere og eksperter i fibromyalgi.
En solstrålehistorie om fleksjob med Karina og Torben - FSF
Переглядів 3032 роки тому
Hør Karina Lange Bach fortælle om sin vej til et fleksjob i virksomheden RealRåd, hvor hun rådgiver private kunder om optimering af deres realkreditlån. På sin arbejdsplads arbejder Karina tæt sammen med sin chef Torben Andersen, der har stor forståelse for Karinas situation og sørger for at arbejdsugen er tilpasset Karinas behov, så hun føler sig tilpas i sit arbejde. Det er en rigtig solstrål...
Joana Vicente - Bliv ved med at drømme
Переглядів 1263 роки тому
Joana Vicente er fra Portugal og blev diagnosticeret med fibromyalgi allerede som 17-årig. Joana har startet en støttegruppe for unge med fibromyalgi i Portugal, hvor mange unge fibromyalgiramte lider under manglende hjælp og støtte.
Behov for lettere adgang til fastholdelsesfleksjob
Переглядів 2033 роки тому
Det skal være lettere at få et fastholdelsesfleksjob på ens nuværende arbejdsplads. Det mener vi i FSF sammen med vores alliancepartnere i VærdigReform.
Ung med fibromyalgi
Переглядів 7853 роки тому
Luna er en ung kvinde med fibromyalgi, og hun venter sit første barn. Se den meget personlige video med Luna.
Lises liv med fibromyalgi
Переглядів 1,9 тис.3 роки тому
Lise Vedel Mortensen er nydiagnosticeret med fibromyalgi og fortæller i denne meget personlige video om, hvad hun gør sig af tanker om livet med fibromyalgi og om sine drømme for fremtiden.
Prinsessen på ærten
Переглядів 7203 роки тому
At leve med fibromyalgi er som at være prinsessen på ærten. Hun vågnede hver dag med uforklarlige smerter, og sådan er livet med fibromyalgiens kroniske smerter. Det fortæller Birgit Bie Johansen i denne meget personlige video fra den smukke danske sommer anno 2021.
Stine Amris om fibromyalgi
Переглядів 5 тис.3 роки тому
Overlæge Stine Amris fra Parker Instituttet er en af verdens førende eksperter i den kroniske smertesygdom fibromyalgi. Hun fortæller her om, hvad fibromyalgi er for en sygdom.
Anna David og Margaretha David om fibromyalgi
Переглядів 1,3 тис.3 роки тому
Sangerinden Anna Davids mor, Margaretha David, har levet med fibromyalgiens smerter i mere end 25 år. Derfor har Anna David konsekvenserne af fibromyalgien tæt inde på livet. Anna David er blevet ambassadør for Fibromyalgi- & Smerteforeningen, fordi hun vil gøre en forskel for både fibromyalgiramte og pårørende ved at skabe øget synlighed om livet med fibromyalgiens usynlige smerter.
Dreamless For a While
Переглядів 1025 років тому
Sara Krage Petersen presents her own beautiful and touching poem about life with fibromyalgia. Sara was diagnosed with fibromyalgia at the age of 26. (Photographer: Tobias Horvath - www.tobiashorvath.dk)
Drømmeløs for en stund
Переглядів 3035 років тому
Se video med Sara Krage Petersen, der fremfører et smukt og rørende digt om sit liv med fibromyalgi. Sara blev diagnosticeret med fibromyalgi som 26-årig. (Fotograf: Tobias Horvath - www.tobiashorvath.dk). Husk, at hvis du er ung med fibromyalgi, kan du få hjælp hos Dansk Fibromyalgi-Forening (DFF). Ring eller skriv til os på tlf. 33 23 55 60 / dff@fibromyalgi.dk. Du kan også komme med i DFF's ...
7 Tips for Living for Fibromyalgia
Переглядів 17 тис.5 років тому
Simon Stones provides his 7 personal tips and recommendations for living the best possible life with fibromyalgia. Simon was diagnosed with fibromyalgia at the age of 18 and he is the President of ENFA - the European Network of Fibromyalgia Associations.
7 tips til livet med fibromyalgi
Переглядів 2,6 тис.5 років тому
7 tips til livet med fibromyalgi
I am also Sara...
Переглядів 585 років тому
I am also Sara...
Jeg er også bare Sara...
Переглядів 3795 років тому
Jeg er også bare Sara...
Danish Fibromyalgia Award 2019
Переглядів 565 років тому
Danish Fibromyalgia Award 2019
Fibromyalgiprisen 2019
Переглядів 1985 років тому
Fibromyalgiprisen 2019
A Moment in Time
Переглядів 315 років тому
A Moment in Time
Et øjebliksbillede
Переглядів 5525 років тому
Et øjebliksbillede
Keep Dreaming
Переглядів 565 років тому
Keep Dreaming
Broken Glass Raining from the Sky - young with fibromyalgia
Переглядів 975 років тому
Broken Glass Raining from the Sky - young with fibromyalgia
Himlen regner med glasskår - ung med fibromyalgi
Переглядів 1,1 тис.5 років тому
Himlen regner med glasskår - ung med fibromyalgi
Nej til meningsløse arbejdsprøvninger
Переглядів 1055 років тому
Nej til meningsløse arbejdsprøvninger
Lettere adgang til fastholdelsesfleksjob
Переглядів 815 років тому
Lettere adgang til fastholdelsesfleksjob

КОМЕНТАРІ

  • @salta5859
    @salta5859 4 місяці тому

    I end up withbthe same points (not all like the group..)and by f3limgbthe day inbtge mornjng and notvstressing about it, by managing energy ...my situation imoroved from iv painkiller and nearly not walkimg some days...to having made 4 days trip.cycling 35 km.per day...ok assisted bike but still. Thx for telling others.

  • @hassankh7138
    @hassankh7138 5 місяців тому

    Det er fuldstændig rigtigt.

  • @johnathanabrams8434
    @johnathanabrams8434 Рік тому

    I fake my fibromyalgia so i can get extra sympathy and having excuses from helping anybody while they feel guilty for not helping me

    • @dianeattwell6294
      @dianeattwell6294 6 місяців тому

      I sincerely hope you don’t ever experience the real thing and in the meanwhile you’re deliberately robbing yourself of enjoying your life.

    • @johnathanabrams8434
      @johnathanabrams8434 6 місяців тому

      @@dianeattwell6294 myofascial pain syndrome is the most common chronic pain condition there is. Most fibromyalgia diagnosis are just really bad cases of myofascial pain syndrome. There is also this other branch or pool of people who use fibromyalgia as a way to be lazy, Garner sympathy and just be derelicts

    • @Truerealism747
      @Truerealism747 13 днів тому

      He actually has the condition he's on many sites I think it's a depression comment

  • @zionsgirl6456
    @zionsgirl6456 2 роки тому

    You actually gave real tips & not some psychological mind over matter obvious things that we're obviously doing anyways 😅 thanks! The sleep hygiene is essential. I'm working towards those things.

  • @godstimewilliam1336
    @godstimewilliam1336 2 роки тому

    Fibromyalgia hasn't been easy, Suffered lot of pains. Glory to God 🙏 I finally got a solution using Dr Isibor Alternative Herbs I feel much better now I'm so happy

  • @toniwardell1933
    @toniwardell1933 2 роки тому

    Your symptoms are just exactly like mine

  • @KAMISEYE
    @KAMISEYE 2 роки тому

    Thank you so much for your video and I hope all out there who have to deal with things like fibromyalgia, get to have one day of feeling awesome. my prayers are with each and every one of you out there who is suffering from something remember no matter how bad it may seem there will always be someone who has it worse then you! So take the time to relish in the fact that you don't have it that bad even if it might be bad and be thankful that you can get up everyday because tomorrow is not given and the past is the past but what we can do is live for today, so stay positive be awesome just the Way you are and never give up the things you love no matter how hard it gets because when the going gets tough and the road gets rough and the journey seems like it takes forever know this when you reach the end of that journey! You will find two things, one that you can do anything you set your mind to and two that you just finished what you set out to do so pat yourself on the back for the good job and for sticking through with it no matter how hard it might have been, you achieved that you did that and now you can stand tall proud and mighty for achieving the goals you set out to obtain. May all who read this be showered in love peace happiness and a beautiful life well upon the face of this Earth.

  • @KAMISEYE
    @KAMISEYE 2 роки тому

    Personally for me dealing with fibromyalgia is no picnic but what I found that keeps me going is my martial arts background because when we have those bad days or we can't do anything and we're feel like just giving up giving in and letting go because the pain is just so horrendous that it feels like you just got hit by a mack truck and then turn around to only realize you just stepped in the path of a moving locomotive and now I've gotten run over by a train and managed stand up only to hit your head in a bunch of beastness and watch as the beast sting you is how I choose to describe the pain of myalgia and my tricks are heat bags or rice bags and never giving up to keep pushing forward to keep persevering to keep trying no matter how hard life gets because if you give in to all that pain and all the problems then you'll never get to be the best version of yourself that you can be! And personally I find that Indica helps a lot because it allows my body to rest and allows my body to relax from the pain it does not take it away but it helps with the problem and it helps with sleeping if you have the right stuff just share it because one of the things I've noticed since I started using medical cannabis I was able to quit all the drugs they prescribed me because they were also causing problems on my body and here is this one little plant that almost there's no harm to the body and helps me to be able to function with my day-to-day life because without it I'd be crippled up somewhere unable to move and having no energy whatsoever. If you take anything away from this comment I have left then heat these words never give up never give in always keep trying to push forward no matter what because when we give in and we give up then we only have ourselves to blame! PS thank you so much for posting your video and one of my favorite things I like to do even if I only get the energy to do it once or twice a year and even if I only get to go down the hill once or twice is snowboarding and I'm going to keep doing it until I can't because that way I can live my life with no regrets saying I did that instead of wishing I had!

  • @dilshaddegum4938
    @dilshaddegum4938 2 роки тому

    I have fibromyalgia for 34 years and eating pain killers this is good information for me

    • @doratiscareno5856
      @doratiscareno5856 2 роки тому

      I too have had it for many years Im actually laying here in pain just tired of all the meds and stomach aches.. Hot shower are good sometimes Im sorry your going through this as well Take care..

  • @victoriamoses5560
    @victoriamoses5560 2 роки тому

    I was able to shrink my multiple fibroids with a herbal supplements I ordered from Dr Aluda on UA-cam. He also cures hpv and herpes..

  • @kimberlyemery7839
    @kimberlyemery7839 3 роки тому

    Excellent suggestions! Thanks.

  • @jennyc5132
    @jennyc5132 3 роки тому

    Thanks for those tips merry Christmas from Western Australia 🎅🦘🤗

  • @heathergreenhalgh2289
    @heathergreenhalgh2289 3 роки тому

    Rest. Pacing. Heat. Refuelling and having lots of water. Try taking a GOOD multivitamin REGULAR LY! Yoga or swimming. Making sure you are getting restored sLeeP. Getting rid of the guilt and clutter and needless worries. Control what you can. Forget the person you were. Our batteries just don’t recharge as quickly as they once did. It’s hard… but possible to rebalance. Blessings 👏🖐🏻🙏🏾

  • @carolferguson19
    @carolferguson19 3 роки тому

    Very good. Thank you. I have the worse case of Fibromyalgia in the world. Your tips helped me. It's probably because you have fibromyalgia also. I have been in as much pain as last stage dying cancer patients for 36 years. Have gone through this alone with no help. Been bedridden twice for years. My determination is driving me now along with medical marijuana. I started the marijuana less than a year ago. I tell them I need something for pain. I was on medically warranted pain medication for 9 years. It allowed me to do laundry and grocery shop twice a month. Had a positive outlook and walked my dog a few times a day. I stopped in 2016. My Rheumatologist retired in 2001. Trying to get better to help others.

    • @kyronepanigrahi9667
      @kyronepanigrahi9667 2 роки тому

      Hats off to you..

    • @fibrowarriors
      @fibrowarriors 2 роки тому

      Hi I feel your pain. Literally. I've had Fibro & ME for 41 years. It's been really severe the last ten years. Like you I worked for 36 years and raised my two children. The hardest part (other than the pain) is looking so well when you feel like you're dying inside. Look after yourself 🤗

  • @nicholasaird8420
    @nicholasaird8420 3 роки тому

    Excellent advice,every sufferer needs an individual approach to managing there fibromyalgia.

  • @bsunnyful
    @bsunnyful 3 роки тому

    Thank you

  • @bettymiller9786
    @bettymiller9786 3 роки тому

    So helpful for dealing wth polymyalgia pain. Thank you

  • @ritaberube5507
    @ritaberube5507 3 роки тому

    Read book: What Your Doctor May Not Tell You About Fibromyalgia by R. Paul St. Amanda, MD. And Claudia Craig Marek.

  • @tottiemae2258
    @tottiemae2258 3 роки тому

    Thank you for the very practical suggestions!

  • @judithhopes151
    @judithhopes151 3 роки тому

    Not very often we hear about men with fibromyalgia.

  • @CharlotteDahlLionheart
    @CharlotteDahlLionheart 5 років тому

    tak <3

  • @Jamile12345
    @Jamile12345 5 років тому

    😔😔😔😔Jeg har det samme