Відео

I watched a couple of your videos and I totally relate to what you're going through. I'm only 35, I have POTS and foraminal stenosis in my neck so I'm pretty much always in pain. It's a really lonely life when you suffer from chronic conditions. Anyway, always happy to hear you rant.

I understand 😢

I'm here :)

I'm always grateful for anything you share because we can all learn from each other. Your vulnerability is absolutely relatable to so many people who connect with your content. Thank you for all that you do!!!

Holy smokes. I did not know this… I’ve never had allergies my whole life but these past few years I’ve been struggling with my mental health and have had crazy bad allergy attacks. 🤯

You’re overthinking, When you have a creative mind and you don't do anything with it, it turns against you and you start creating problems, While a part of you says to yourself, “Actually, everything's fine”. Even if it's hard to hear it when you've got all that pollution in your mind and body, Try to find it anyway, You're stuck when you're in a kind of circle, But thinking about it means you're out of it, Nothing is really wrong with you or your situation, Nothing is bad, Everything is what it is, What's next? Get out of it, Put new energy into your body, Try something new, with yourself, Something you once said, “No, it's not for me”. Or something you're afraid to do,

No one could know about that, unless they have experienced it... anyways, keep it up girl, if you´re still here, you´re handling it like a pro

I know this is unrelated- but I LOVE what you did for the background, did you do that yourself?

You got all of us minions tho 😂😂😂 miss ya 😊

The number of times I’ve explained my partner’s health condition to a doctor as their advocate and been met with a blank stare or outright disbelief. 😔

hello I have a hyperadrenergic pots and I suffer for four years. my nervous system is overexcited I breathe quickly I digest poorly and especially in a standing position my heart rises high , and walking ca gets worse. My blood pressure also rises in a standing position. I live in France and here the doctors do not know much about it however my orthostatic tachycardia and my tension are visual and the doctors recognize them . I tried a beta blocker (propanolol) but my body has very bad it my heart went down to 28 bpm. Since I refuse to take any beta blockers. A doctor found out how to calm my nervous system by prescribing me Paroxetine, which is a drug that is basic prevu for panic attacks but in my case it acts quite well on noradrenaline. Unfortunately there is still the problem of the pots and tension. I can’t walk for long because I always move around with my wheelchair in the present, as a safety net in case I am exhausted by walking. It’s psychologically very hard. As much as physically . And above all, this heart problem that is overflowing prevents me from working or doing some physical effort . I don’t know what to do with my time especially. I know that my autonomic nervous system is out of order so the pot is only a symptom. I try to drink lots of water. But what to do.... it’s sad ... good luck

Damn Ari, im sorry youre going through this hun. Im thinking about you and sending positive thoughts/energy. Keep ya head up. And Your makeup is fire as always. 🔥🔥

You cannot police the world dear, stay at home if you system is so weak..maybe see an allergist to see what food you are allergic to then you can strengthen your body

Is that make-up, or do you need help?

Wtf happened to u where r u

first

True. We eat shit in this USofA

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Hi Ari

great

I too had thyroid cancer, at age 25..."the good kind"...and ha e not been the same since. Fast forward 20 years and now I have abnormal tilt table results and my lab work shows elevated norepinephrine and others. My primary care doc thinks EDS is likely (but not diagnosed) as well as Sjogrens (but not diagnosed). No focus where I am in WA (hard to believe they have all gone to cash only) so I am being sent to California. I feel so alone in all of this. I am also being sent for evaluation of a possible CSF Leak...the hits just keep coming.

I can smell the disappointment through my screen. Gtfo and find a real job.

It happens because healthcare is broken. No just in America but everywhere.

Hi, just stumbled onto your channel. I’m glad I did. I’m sorry you’re struggling. Advocating for yourself should not be so frustrating but I know that it is. 😢

I know I'm not anyone from the medical system, but as someone who can relate to your experience in some ways, I just wanted to say that I see you and hear you. Thank you for saying the things that need to be said, and may you encounter the people that you need to see you and hear you most in a timely manner. Take care 🫂

I feel guilty I haven’t came to your streams for this exact reason, but I’ve been pretty sick

Thank Allah i dont have thee extreme condition with blood pressure and heart rate, mine normally go up when standing up or when i climb a stair, usually it gets normal within 2 to 4 minutes, but i have migranes, indigestion, chest pain for over an year now, and 2 months back i was having trouble breathing when walking, also had fatigue and loss of apatite. also 2 weeks ago was having trouble swallowing saliva, saw an ent doctor, he did a barium swallow x ray and said there is no issue. I have symptoms of heart faliure, throat, and lungs cancer. Last year saw a cardiologist and he did blood and treadmill test and everything was fine, he told me clearly he has no idea why its happening. He gave me Ciplar La 40mg. This medicine works, it controls tachycardia by 60 to 70 percent.

I have this too and am untreated. It usually is brought on by viral illness. Then will decrease in severity after a few months. I just got COVID and am dealing with severe symptoms. I have constant panic attacks, SOB, can’t sleep (sleep apnea now, I think), blurry/grainy vision, etc.

Compression calf sleeves and saline infusions can help. The Alpha-2 agonists (Clonidine or Guanfacine) specifically target hyperadrenergic POTS by signaling the body to not dump so much norepinephrine and adrenaline into circulation. They've been wonderful for me. I have hypermobile Ehlers Danlos syndrome. I also have digestive motility issues, which have been eliminated by Mestinon (Pyridostigmine) - plus this medication can help a bit at mitigating POTS symptoms.

Nice video really helpt alot!

As an introvert I hate my phone going off, it's permanently on silent, people hate me for not getting back to them quick enough, which bothers me but i also find things like that draining, glad to hear I'm not the only one!

🤗

My bp as of yet only spikes sometimes but spikes drastically. It can last minutes hours or days, but in between bp low 80s/60s so idl what can help me. I think a bp medicaton will make me bottom out. Its hard to live like this i can not evem go 5 min away from my house as a passenger in a car without spiking hypertensive 😢

Dr Dianna Driscoll has a great video she made years ago on this exact diagnosis. Highly recommend for anyone with this condition.

You’ve met someone that has it, I have it

Hi❤

Were these symptoms all the time or just occasionally?

Thank you for your videos. It is so hard to find information on HyperPOTS (and even harder to find a good doctor). I’ve been struggling for years.

Thanks for sharing and I’m so sorry for what you’re going through. I am going through some stuff at the moment and can relate to a lot of what you talked about ❤

I thought Healthcare might be higher on the list

Bloody lunatics

Get a life !

Are you mentally ill?

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Oh I remembered exactly how mine began too 😅