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SMA vlogs
Приєднався 1 лип 2022
Sma vlogs was created on September 13th of 2023 by a group of people all living with SMA and various other disorders, this channel was created to advocate for others and spread awareness, this channel brings you into the depths of a group of people all living with SMA and other various disorders whether its educational videos, upbeat vlog style content or Day in the Life type of content this channel wants to share all aspects of there life, the good the bad the ugly and everything in between, the main creator is named doc who has been having SMA the longest time out of everyone Donny who is the co-executive producer is the second longest diagnosed with SMA, they hope you enjoy the deep dive into there life and with that thanks for checking out SMA vlogs! this channel plans to publish 3 or 2 videos per week
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There are loads of ways to keep our channel up and continue to support our work!
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📢 Share!
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I've Never Made This Mistake Before?! | Chemotherapy Mishap? | Chemo #55
Hey, everyone come back to another weekly vlog! While I have to tell you the dreading mistake I made on October 27th, 2024! , on this particular day, I had thought my chemo was on that day since we had miscalculated the day I had to do chemotherapy! During editing and discussing chemotherapy, I had thought that I was doing that round of chemotherapy way too early it was only after I had been on it for an hour or two that I realized that I was doing the chemotherapy on the wrong day and I was doing this round of chemotherapy way too early! We are so sorry for this mishap and we had never thought we would ever make this mistake!, so this video is being uploaded on a Monday of October 28th, 2024, but I had originally done this chemotherapy on Sunday of October 27th, 2024 which was my ALS anniversary! Witch by the way a video was uploaded discussing that topic so please enjoy it! Or click the link in the description for that information on my ALS (amyotrophic lateral sclerosis) but to actually wrap up the schedule I am going to upload a new video on chemotherapy on November 1st Friday! I'm not going to chemotherapy on Monday since that will be way too much chemo for my body to handle, so I decided to go through the round of chemotherapy on October 27th, rather than October 28th which is the video you all will be receiving but I will not be on chemotherapy and in fact, I Will stick to regular 4-day chemo sessions as always this was just a mishap! Thank you for reading and now to the actual description!
ok so today's video starts out a little more different than regular rather than the normal intro then suspected I introduce the video with a black screen discussing on what big mistake I had made don't worry this doesn't affect me it just throws my brain off schedule so nothing to worry about there lol , then the actually vlog starts off on october 27th where I had originally thought I was doing chemotherapy on that day however I would be mistaken , but in that segment I was talking about my recent ALS progression and how I was on my 5th month which is followed by a discussion of Mcdonalds on where we got a yummy Mcdonalds reward for doing some simple stuff so we thank mom for ordering us a big mack , small fry and a medium carmel frappe , which is often my favorite go to meal as my t rex small atriphied mouth tries to eat the bare minum of soft yummy delicious salty fries, after the indulgence of a good meal the vlog continues where it was filmed October 24th the big day of donnys 1 year anniversary , we are in a classroom with mrs lawson a good fellow teacher of ours and we decided on this day that we would discuss donnys 1 year spinal cord injur-versry which is a big deal since 1 year is not a particularly simple subject it is a remakaring of a life altering injury she was very proud and exclaimed her joy to us, followed by which another story of a very strong person and many encouraging words one of which presented the fact of suicide and how she was happy to be existing which btw relates to me a lot and it really hit some heartstrigs of mine since that it not a light topic so those suffering from addiction or sucidal thoughts if you want to skip over that bit there will be time lapse so please feel free if too sensitive for you skip that part, later it shows another clip that was filmed the very day of donny singing and expressing his joy about there friends lovely jackpot as he shows the jackpot there is singing and apparently falling cores as willam a C5/C6 incomplete quaderpligc stugggles with his core strength once again. then the vlog sadly makes an abrupt end we apologize for this vlog being so short as we had an unexpected mistake and we would have probably filmed more thank you all for the support and we appreciate yall clicking and watching this video shortly after it cuts to an animated black screen subscribe, like, and notification bell screen and music fads.
This is an Official SMA Vlogs Video: I've Never Made This Mistake Before?! | Chemotherapy Mishap? | Chemo #55
SUPPORT THE CHANNEL
👍 Like!
💬 Comment!
📢 Share!
🔔 Subscribe! - UClDa_ajI7II6sJUChiDZwQw
Subscribe: ua-cam.com/channels/lDa_ajI7II6sJUChiDZwQw.html
Follow Us on Social Media:
Sadly our Instagram account got deleted! Please follow our tumbler here ➡ www.tumblr.com/smalife1234?source=share
📷 Docs Instagram: doc_mcstuffins_james_levine?igsh=MjljN3dqNG1tOXpv
📷 Donnys Instagram : donny32024?igsh=NHdnbjFoamllYzZr
📺 Watch the NEWEST videos! : ua-cam.com/video/ui-6ytp_3zE/v-deo.html
🔔SUBSCRIBE TO OUR CHANNEL: ua-cam.com/channels/lDa_ajI7II6sJUChiDZwQw.html
_____________________________________________________________________________________
Time stamps
Mistake discussion & chemo - 00:00 - 0:46
Discussion of Donny & Me - 0:46 - 3:44
Donny,s jackpot - 3:45 - 4:29
Outro - 4:30 - 4:45
ok so today's video starts out a little more different than regular rather than the normal intro then suspected I introduce the video with a black screen discussing on what big mistake I had made don't worry this doesn't affect me it just throws my brain off schedule so nothing to worry about there lol , then the actually vlog starts off on october 27th where I had originally thought I was doing chemotherapy on that day however I would be mistaken , but in that segment I was talking about my recent ALS progression and how I was on my 5th month which is followed by a discussion of Mcdonalds on where we got a yummy Mcdonalds reward for doing some simple stuff so we thank mom for ordering us a big mack , small fry and a medium carmel frappe , which is often my favorite go to meal as my t rex small atriphied mouth tries to eat the bare minum of soft yummy delicious salty fries, after the indulgence of a good meal the vlog continues where it was filmed October 24th the big day of donnys 1 year anniversary , we are in a classroom with mrs lawson a good fellow teacher of ours and we decided on this day that we would discuss donnys 1 year spinal cord injur-versry which is a big deal since 1 year is not a particularly simple subject it is a remakaring of a life altering injury she was very proud and exclaimed her joy to us, followed by which another story of a very strong person and many encouraging words one of which presented the fact of suicide and how she was happy to be existing which btw relates to me a lot and it really hit some heartstrigs of mine since that it not a light topic so those suffering from addiction or sucidal thoughts if you want to skip over that bit there will be time lapse so please feel free if too sensitive for you skip that part, later it shows another clip that was filmed the very day of donny singing and expressing his joy about there friends lovely jackpot as he shows the jackpot there is singing and apparently falling cores as willam a C5/C6 incomplete quaderpligc stugggles with his core strength once again. then the vlog sadly makes an abrupt end we apologize for this vlog being so short as we had an unexpected mistake and we would have probably filmed more thank you all for the support and we appreciate yall clicking and watching this video shortly after it cuts to an animated black screen subscribe, like, and notification bell screen and music fads.
This is an Official SMA Vlogs Video: I've Never Made This Mistake Before?! | Chemotherapy Mishap? | Chemo #55
SUPPORT THE CHANNEL
👍 Like!
💬 Comment!
📢 Share!
🔔 Subscribe! - UClDa_ajI7II6sJUChiDZwQw
Subscribe: ua-cam.com/channels/lDa_ajI7II6sJUChiDZwQw.html
Follow Us on Social Media:
Sadly our Instagram account got deleted! Please follow our tumbler here ➡ www.tumblr.com/smalife1234?source=share
📷 Docs Instagram: doc_mcstuffins_james_levine?igsh=MjljN3dqNG1tOXpv
📷 Donnys Instagram : donny32024?igsh=NHdnbjFoamllYzZr
📺 Watch the NEWEST videos! : ua-cam.com/video/ui-6ytp_3zE/v-deo.html
🔔SUBSCRIBE TO OUR CHANNEL: ua-cam.com/channels/lDa_ajI7II6sJUChiDZwQw.html
_____________________________________________________________________________________
Time stamps
Mistake discussion & chemo - 00:00 - 0:46
Discussion of Donny & Me - 0:46 - 3:44
Donny,s jackpot - 3:45 - 4:29
Outro - 4:30 - 4:45
Переглядів: 6
Відео
5-Month ALS Progression | Lou Gehrig's Disease
Переглядів 622 години тому
Today, on October 27th, 2024, I hit my 5th month with ALS. This is not a post to scare the untrained reader but it is a post to raise awareness and open the eyes of others. I'm about to drop some cold, hard, and daunting facts that you need to be prepared for. Keep your eyes open and your attention focused! And I must mind you, this is a long read, so keep your brain active! Amyotrophic Lateral...
Today Is a Very Big Day... | C1/C2 Completely paralyzed Quadriplegic Paralyzed 1 Year Ago Today.. ♿
Переглядів 249 годин тому
Hey everyone today Is a very big day... and we will tell you why?, although not discussed in this video. today is a very big day and we will tell you why Here is a snippet of a Tumblr post- It's October the beautiful month of fall and the scary month for the fear chilling, thrill seeking , bloody fest Halloween month! It's where all the festivities of natural Halloween goodness come along now i...
Adapting To Life: My Eighth Month As a Quadriplegic ♿
Переглядів 7116 годин тому
Emmie, an 87-year-old, is celebrating her 8th month as a Quadriplegic! Emmie was injured on February 21st, 2024 because of a bad fall at work It was around 10Am she was carrying a heavy package that she thought she could manage to the truck but Emmie fell or twisted her ankle as she fell the package tipped and landed on her chest and her neck, resulting in a C4-C5-C6-T1 incomplete Quaderplgic a...
ROUND 40| SWOLLEN EYE| SENIOR PICNIC| ADOPTION🥹 | PEP RALLY 🎉
Переглядів 14День тому
this week was amazing !! at the starting of the week, Willam wakes up with a swollen eye. but thankfully he recovered very well and it was better by the next day. then the second thing that happened this week was our senior class was able to meet the class of 2037 we had a wonderful time with them we played tag and we played duck duck goose and we painted with them and it was so much fun !! one...
A Visit To The Eye Doctor 👁️! | New Diagnosis?! & Overheating 🥵! | Chemo #52
Переглядів 71День тому
Hello everyone welcome back to another weekly vlog! This vlog is a very long one please stick with us! I hadn't had long vlogs in a while so I was sure this one would be very long! It was originally an hour and a half of footage but I managed to get it edited down to 26 minutes! I'm very proud. The week starts out on the 16th (or the end) when I start my 52nd round of chemotherapy! And that day...
8 MONTHS AS A QUADRIPLEGIC| HOW MANY CATHETERS DO I GO THROUGH?
Переглядів 2314 днів тому
today hits willams 8-month anniversary with a spinal cord injury !! in today's video Donny and Willam explain how many caths they use in a day including what types of caths they use like leg bags, open system caths, or closed system caths. they then show you the supplies they would need to start the cathing process like lube wipes mats a cathter bag and a chux pad to lie down on. they then show...
Meeting Mrs. Mauneys baby! | Chemo #51
Переглядів 13714 днів тому
Hello everyone welcome back to another video! today's video is very short but we also had an adorable surprise!, at the beginning of the vlog it shows Doc on October 12th getting ready for chemotherapy! it shows a montage of Doc getting out of her chair and hooked up on chemotherapy then on October 11th it shows mrs Mauney and her baby she holds him and talks about him the baby is seen cradled ...
ROUND 39|HURRICANE 🌀| MALFUNCTIONING PHONE| BIRTHDAY PARTY
Переглядів 1814 днів тому
this week wasn't all too good at all. the first part is when our friend docs phone started malfunctioning really bad it kept flashing on and off saying something about it not being on charge even though it was and wouldn't turn on for at least 2 hours and while they were explaining the issue doc got a cut in her lip and it started burning really bad she tried to talk some more and the talkie sh...
BIRTHDAY BASH 🎉!! | Chemo #50
Переглядів 1814 днів тому
Hello everyone welcome to another weekly vlog! today's vlog is a tad bit short my apologies! in the beginning of the vlog, it shows Doc talking about her chemo then light instrumental music begins in the background showing a montage of Doc getting out of her chair and set up on chemotherapy! then it shows a black screen with text saying "The Biggest thing this week! was a birthday bash! Alex an...
ROUND 38 | CRACKED TABLET | SKIN WALKER| HORRID SMELL | DEATH| ALMOST BANNED 🚫
Переглядів 19521 день тому
this was a horrible week to say the least. the beginning of the week already started out bad Willam and Donny's tablet cracked!! the second time within a month which isn't fun. then after that, they were going to hang out with their friends just driving around as they thought but they didn't clearly say the plans so they ended up going to Pet Smart which was fine but they then go to a creek and...
Will Our Bad Luck Ever Stop.. | Chemo #49 | College meeting 🤝
Переглядів 721 день тому
Hello everyone welcome back to another weekly vlog! in today's vlog, we filmed a clip of me on my 49th round of chemotherapy and I talked about how our luck was pretty bad this week as our whole UA-cam channel almost got DELETED!! in the beginning of the vlog, I try moonpies that were created/released in 1917! we had one in the past but it was a very long time ago and we,d thought we, 'd try it...
Category 4 Hurricane 🌀 & Skin Walker Sighting!! & Overheating🥵 |Emmie Felt Faint! | Chemo #48
Переглядів 828 днів тому
Hello, Everyone welcome back to another weekly vlog today, 's weekly video doc talks about her 48th round of chemotherapy and she talks about how this week was scary! Then it cuts to a clip filmed September 26th showing some muscles shown on the 3D laptop and then it shows a clip of them on a bus and the fact that the bus was having issues and Emmie gives an update on hurricane Helene and will ...
4-Month ALS Progression | Lou Gehrig's Disease
Переглядів 98Місяць тому
4-Month ALS Progression | Lou Gehrig's Disease
ROUND 37| SURPRISE HANGOUT| HURRICANE| GRANDMA'S | OVERHEATING | MAJOR ISSUES
Переглядів 11Місяць тому
ROUND 37| SURPRISE HANGOUT| HURRICANE| GRANDMA'S | OVERHEATING | MAJOR ISSUES
This Night Was Scary! | Happy Birthday To Dad! 🎉| Chemo #47
Переглядів 7Місяць тому
This Night Was Scary! | Happy Birthday To Dad! 🎉| Chemo #47
Did We Survive This Crazy Night?! | Chemo #46
Переглядів 185Місяць тому
Did We Survive This Crazy Night?! | Chemo #46
Adapting to Life My Seventh Month As a Quadriplegic ♿
Переглядів 34Місяць тому
Adapting to Life My Seventh Month As a Quadriplegic ♿
ROUND 36| CATHETER CHANGES 🚾 | PEP RALLY 🎉 | VENOMOUS SPIDER 🕷️| BUS RULES ?
Переглядів 7Місяць тому
ROUND 36| CATHETER CHANGES 🚾 | PEP RALLY 🎉 | VENOMOUS SPIDER 🕷️| BUS RULES ?
A Paraplegic Caths So Much! | Daily Catheter Routine! & construction on AC | Chemo #45
Переглядів 32Місяць тому
A Paraplegic Caths So Much! | Daily Catheter Routine! & construction on AC | Chemo #45
I Got Bad News About My Cancer.. | Dr. Appointment & ALS Medication Refill | Chemo #44
Переглядів 19Місяць тому
I Got Bad News About My Cancer.. | Dr. Appointment & ALS Medication Refill | Chemo #44
ROUND 35| MARRIED💍| DOCTOR'S APPOINTMENT | WEIRD KNOCK? | HIGH SCORE.
Переглядів 13Місяць тому
ROUND 35| MARRIED💍| DOCTOR'S APPOINTMENT | WEIRD KNOCK? | HIGH SCORE.
SEVEN MONTHS AS A QUADRIPLEGIC| MY OVERHEATING ITEMS ♿
Переглядів 82Місяць тому
SEVEN MONTHS AS A QUADRIPLEGIC| MY OVERHEATING ITEMS ♿
Doc is still Sick! | Donny & Stuffy Got Married 💍! | Chemo #43
Переглядів 15Місяць тому
Doc is still Sick! | Donny & Stuffy Got Married 💍! | Chemo #43
ROUND 34 | SWOLLEN EYE | DONNYS SCI INJURY| SENIOR PORTRAITS | MALL DAY
Переглядів 8Місяць тому
ROUND 34 | SWOLLEN EYE | DONNYS SCI INJURY| SENIOR PORTRAITS | MALL DAY
She's Feeling Sick! | Senior Pictures & Chemo #42
Переглядів 15Місяць тому
She's Feeling Sick! | Senior Pictures & Chemo #42
This Horsefly Tried To kill Us. | Mall Trip & Talk that Needed to Happen| Chemo #41
Переглядів 6Місяць тому
This Horsefly Tried To kill Us. | Mall Trip & Talk that Needed to Happen| Chemo #41
DONNY'S SPINAL CORD INJURY...| PACEMAKER| SIP IN PUFF FULL TIME
Переглядів 43Місяць тому
DONNY'S SPINAL CORD INJURY...| PACEMAKER| SIP IN PUFF FULL TIME
I wanna be here till everyone is here 💕
@GemmaTracy-ud8iv Aww, thank you! ❤️
❤❤❤
Thanks 🙏!
Glad surgery turned out just fine ! ❤❤❤
Thank you 🥹❤️!
I'm so sorry Donny sweetheart 😢😢😢I hate that your going threw this gosh! I wish I could take it all away😢😢😢 I really do, u don't deserve this at all ,nobody does ... And if your suffering please don't continue to... hospice will make u comfortable while your there .. ❤❤❤ I'm still praying for u Donny please never lose faith in God no matter what , he has a purpose and a plan, I know it hurts so much ..😢😢I'm so sorry about that so so sorry 😢❤❤❤ please stay strong friend..
oh my gosh thanks so much i know it is tough this means so much to me i dont know weather to continue with hospice or other care facilities were still figuring it out but thanks so much i cant explain enough how much this means to me thanks so much you are simply a angel love you so much !!
I love it, keep going ❤️
Thank You So Much 🥹🫶🏻!
Hey 😂😂 love the video! Great job ! ❤❤❤
Thank you so much this was a life changing experience for Donny!
PLEASE READ THE DESCRIPTION!!
There's no picture
❤❤❤❤❤
Tf am I watching?! Troublesome….
hey so sorry for the confusion i was watching old podcast i did with my friend doc and we were watching over and she was recording i didn't know but me and here were talking about how unfair we used to be including she wanted to look back on what we used to do for podcast so sorry if we seemed weird we have autism and learning disorders and dyslexia have a wonderful day !
@@SMAvlogs_123 No worries!! I was just confused! Keep doing your thing and good luck with everything 💕
@@cemetarytrae aww thank you that means a lot ❤️❤️ sorry if it's weird 😅
@@SMAvlogs_123 Not weird at all!! And besides, nothing wrong with weird!! I tend to appreciate weirdness. Lol
@@cemetarytrae ❤️❤️ thank you!
HE WILL FEEL WONDERFUL WHEN HE LEAVES HERE!
I mean we don't want Donny to leave but thank you for condolence ❤️
That sucks hope uou recovery soon ❤😊
Aww Thank You SO MUCH !!
Bonjour c'est un vrai bébé roum ou un Faux bébé roum
He is a fake baby a reborn baby 🍼
Hey everyone 😄😁 thank you all for blowing up this video 🙂!!!!