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Dr. Anne Maitland: "The Price Paid When Your Immune System Misfires" (Day 2, Block 12)
Dr. Anne Maitland, Director of Allergy & Immunology Services at the Metrodora Institute and Assistant Professor at the Icahn School of Medicine at Mount Sinai, New York, USA, presents her talk on the consequences of immune system dysfunction in Long COVID. She delves into how miscommunication between the immune system, nervous system, and epithelial barriers can lead to chronic inflammatory conditions, highlighting the crucial role of mast cells. Dr. Maitland also discusses strategies to identify and manage mast cell activation disorders in patients suffering from complex immune-mediated conditions.
Follow Dr. Anne Maitland on Twitter: x.com/asktheallergist
Q & A kindly moderated by Lauren Goshen (x.com/lgoshen ).
📱 Follow UniteToFight2024 on social media:
Twitter: x.com/U2Fight_World
Instagram: unitetofight2024
Website: unitetofight2024.world
Thank you for watching and supporting the UniteToFight2024 conference. Your engagement helps drive awareness and support for those affected by Long COVID and ME/CFS.
Переглядів: 626

Відео

Dr. Daniel Martins: Long COVID19 and the Brain: A Neuroimmunopsychiatry Account (Day 2, Block 12)
Переглядів 283Місяць тому
Dr. Daniel Martins, MD, PhD, Senior Research Fellow in the Department of Neuroimaging at the Institute of Psychiatry, Psychology, and Neuroscience, King’s College, London, UK, presents an in-depth exploration of the neuroimmunopsychiatric impacts of Long COVID. In his talk, Dr. Martins delves into how SARS-CoV-2 can disrupt brain function through mechanisms like neuroinflammation and blood-brai...
Dr. Danielle Beckman: SARS-CoV-2 Neuroinvasion, Brain Fog & Cognitive Dysfunction (Day 2, Block 12)
Переглядів 726Місяць тому
Danielle Beckman, PhD, Neuroscientist at the University of California, Davis, presents her research on the neuroinvasive potential of SARS-CoV-2 and its role in neuroinflammation, brain fog, and cognitive dysfunction in Long COVID patients. In this session, Dr. Beckman discusses how SARS-CoV-2 affects various brain cells, leading to neuronal damage and persistent neurological symptoms. Her work...
Dr. Linda N. Geng: Clinical & Research Efforts from the Stanford LC Collaborative (Day 2, Block 11)
Переглядів 210Місяць тому
Dr. Linda N. Geng, Clinical Associate Professor at Stanford University and Co-Director of the Post-Acute COVID-19 Syndrome Center, shares the latest clinical and research efforts from the Stanford Long COVID Collaborative at #UniteToFight2024. She highlights key observations from their long COVID clinic, ongoing clinical trials, and the importance of developing better care models to support vul...
Paul Hennessy: "Wake up call" (Day 2, Block 11)
Переглядів 119Місяць тому
Paul Hennessy, Long COVID advocate, delivers a powerful wake-up call to both the public and government in his talk “Wake Up Call” at UniteToFight2024. As an activist, Paul addresses the systemic failures surrounding Long COVID, calling for urgent action on clean air, better prevention tools, funding for research, and compassionate care for Long COVID patients. His plea is a passionate reminder ...
LC/DC: Washington D.C. March 15th, 2024 (Day 2, Break 7)
Переглядів 125Місяць тому
The LC/DC community video captures the powerful voices of patients, advocates, and activists who gathered in front of the Lincoln Memorial for the first Long COVID Awareness Day on March 15, 2024, in Washington D.C. This rally, organized by Long COVID patient and nurse Dara York, called on Congress and President Biden to take urgent action on prevention, research, and treatment for Long COVID. ...
Dr. Pamela Bishop: Living With Long COVID: A patient perspective (Day 2, Block 10)
Переглядів 573Місяць тому
Pamela Bishop, PhD, a Long COVID patient and former research professor from Tennessee, USA, shares her personal journey of living with Long COVID and subsequent ME/CFS. In her talk, Dr. Bishop provides a candid and compelling account of her life before and after Long COVID, the challenges of navigating the healthcare system, and her ongoing battle against medical gaslighting. She sheds light on...
Dr. Prusty: Overlapping & differentiating biological features of ME/CFS & LongCovid (Day 2,Block 10)
Переглядів 353Місяць тому
Bhupesh K. Prusty, PhD, Professor of Science at Riga Stradins University, Riga, Latvia, presents his latest research on the overlapping and differentiating biological features of ME/CFS and Long COVID. In this presentation, he explores key differences in the biological markers between these conditions, focusing on natural antibodies like IgM and the role of fibronectin in disease pathology. Dr....
Dr. Stingl/Dr. med. Kacik: Insights from Clinical Practice. A discussion. (Day 2, Block 10)
Переглядів 524Місяць тому
Dr. Michael Stingl, Specialist in Neurology, Vienna, Austria, and Dr. med Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany, discuss insights from their clinical practice in managing complex cases of ME/CFS and Long COVID. This panel presents a series of case studies, showcasing the diagnostic challenges, therapeutic strategies, an...
COVID-19 Longhauler Advocacy Project (C19LAP) (Day 2, Break 6)
Переглядів 56Місяць тому
The COVID-19 Longhauler Advocacy Project (C19LAP) presents a powerful community video featuring messages from Long COVID patients to the medical community. This video highlights the real-life experiences and urgent needs of those living with Long COVID, emphasizing the importance of patient-centered care and support. C19LAP is a grassroots, patient-led nonprofit organization dedicated to raisin...
Dr. David Putrino: PAIS-demystifying diagnosis, pathobiology and treatment (Day 2, Block 9)
Переглядів 1,1 тис.Місяць тому
Dr. David Putrino, Director of Rehabilitation Innovation at Icahn School of Medicine at Mount Sinai, New York City, USA, presents a comprehensive overview on demystifying the diagnosis, pathobiology, and treatment of Post-Acute Infection Syndromes (PAIS). In his talk, Dr. Putrino emphasizes the importance of understanding PAIS not as mysterious conditions but as under-researched, complex chroni...
Dr. med. Michael Kacik: Vascular regulation disorder in Post COVID disease & MECFS (Day 2, Block 9)
Переглядів 510Місяць тому
Dr. med. Michael Kacik, Specialist in Internal Medicine and Angiology and Specialist in General Medicine, Münster, Germany, shares his insights on the vascular regulation disorder observed in Post COVID disease and ME/CFS patients. This presentation delves into the intricacies of endothelial function, microcirculatory diagnostics, and therapeutic approaches to vascular dysregulation, highlighti...
Dr. Martin Kräter: Deformability Cytometry, from bench to bedside (Day 2, Block 9)
Переглядів 168Місяць тому
Martin Kräter, PhD, Postdoctoral Research Fellow at the Max Planck Institute for the Science of Light, Erlangen, Germany, presents his innovative work on deformability cytometry and its potential application from bench to bedside. This technique explores the mechanical properties of blood cells, revealing insights into the deformability and stiffness of cells in conditions like Long COVID and a...
Norsk Covidforening (Day 2, Lunch Break)
Переглядів 117Місяць тому
“Norsk Covidforening” is a patient organization in Norway supporting those affected by Long COVID. Their goals include increasing knowledge about COVID-19’s long-term effects, supporting patients and their families, promoting a secure social safety net, and advocating for more medical research on post-COVID conditions. They are committed to ensuring Long COVID patients are taken seriously by he...
Colectivo Covid Persistente Comunidad Valenciana (Day 2, Lunch Break)
Переглядів 62Місяць тому
María García from “Colectivo Covid Persistente Comunidad Valenciana” shares her journey of living with Long COVID for over two and a half years. In her heartfelt message, María discusses the disparities in healthcare across Spain’s regions and highlights the urgent need for equitable treatment, dedicated research, and better social support systems for Long COVID patients. She calls on medical p...
Millions Missing Mexico (Day 2, Lunch Break)
Переглядів 93Місяць тому
Millions Missing Mexico (Day 2, Lunch Break)
Long Covid Advocacy (Day 2, Lunch Break)
Переглядів 157Місяць тому
Long Covid Advocacy (Day 2, Lunch Break)
Dr. Sayoni Das: Precision Medicine for Long COVID and ME/CFS (Day 2, Block 8)
Переглядів 178Місяць тому
Dr. Sayoni Das: Precision Medicine for Long COVID and ME/CFS (Day 2, Block 8)
Jeff Lubell: A Longitudinal Perspective on ME/CFS (Day 2, Block 8)
Переглядів 330Місяць тому
Jeff Lubell: A Longitudinal Perspective on ME/CFS (Day 2, Block 8)
MEAction UK and MEAction Scotland (Day 2, Break 5)
Переглядів 114Місяць тому
MEAction UK and MEAction Scotland (Day 2, Break 5)
Tom Molmans: Holism done right: addressing psychic trauma in LC and ME/CFS (Day 2, Block 7)
Переглядів 291Місяць тому
Tom Molmans: Holism done right: addressing psychic trauma in LC and ME/CFS (Day 2, Block 7)
Fiona Campbell: Unmet needs and stigma of Long COVID after vaccination (Day 2, Block 7)
Переглядів 140Місяць тому
Fiona Campbell: Unmet needs and stigma of Long COVID after vaccination (Day 2, Block 7)
Dr. Anna Brooks: New Zealand's Long COVID Landscape (Day 2, Block 7)
Переглядів 153Місяць тому
Dr. Anna Brooks: New Zealand's Long COVID Landscape (Day 2, Block 7)
Dr. Rae Duncan: Long Covid Phenotyping as an aid to successful treatments (Day 2, Block 7)
Переглядів 352Місяць тому
Dr. Rae Duncan: Long Covid Phenotyping as an aid to successful treatments (Day 2, Block 7)
Edo Plantinga & Joanneke van Der Nagel: The Long Covid Toolkit (Day 1, Block 6)
Переглядів 1522 місяці тому
Edo Plantinga & Joanneke van Der Nagel: The Long Covid Toolkit (Day 1, Block 6)
Harry Leeming: Unlocking wearable technology to measure and manage Long Covid (Day 1, Block 6)
Переглядів 2712 місяці тому
Harry Leeming: Unlocking wearable technology to measure and manage Long Covid (Day 1, Block 6)
Prof. Dr. Georg Schomerus: Is there a Stigma of Long COVID? (Day 2, Block 7)
Переглядів 5842 місяці тому
Prof. Dr. Georg Schomerus: Is there a Stigma of Long COVID? (Day 2, Block 7)
Clayton Powers/Amy Mooney: Occupational and Physical Therapy Guide to PEM & Pacing (Day 1, Block 6)
Переглядів 3552 місяці тому
Clayton Powers/Amy Mooney: Occupational and Physical Therapy Guide to PEM & Pacing (Day 1, Block 6)
Bettina Grande: Maintaining one's own identity despite PEM (Day 1, Block 6)
Переглядів 4502 місяці тому
Bettina Grande: Maintaining one's own identity despite PEM (Day 1, Block 6)
Dr. Alison Cohen & Gina Assaf: Impact of extended-course Paxlovid in Long COVID (Day 1, Block 6)
Переглядів 2442 місяці тому
Dr. Alison Cohen & Gina Assaf: Impact of extended-course Paxlovid in Long COVID (Day 1, Block 6)

КОМЕНТАРІ

  • @galefralin2886
    @galefralin2886 10 днів тому

    I have vaccine injury from 2 Pfizers. I only got covid almost 3 years after my was injury. I have endothelial and nerve damage in my head. My symptoms are head pain/pressure, neuropathy in both feet and histamine intolerance. The vaccines are what destroyed my health and caused these conditions, not my immune system.

  • @zajdz75
    @zajdz75 18 днів тому

    Also had long COVID from mild December 2020 infection. My symptoms were exacerbated in spring of 21’ and am wondering how much vaccine shedding played a role. It took several years to clear. Ivermectin, low dose Naltrexone and 3-4 days of fasting (water and black coffee) seemed to be most effective. Speedy healing to those suffering.

  • @Geoffreycovid
    @Geoffreycovid 26 днів тому

    Guanfacine and NAC has proven effective in the Yale study. Improvements can be seen on qEEG too. Symptom improvement experienced in executive function primarily but also memory and mood control.

  • @robinczifrik1015
    @robinczifrik1015 Місяць тому

    This is such helpful information! Thank you very much!!

  • @travisstirling2157
    @travisstirling2157 Місяць тому

    I suffer from the burning chest pain you have described. Did I understand you correctly that exercise will increase the damage, no matter which chestpain I suffer from?

  • @李学波-p8d
    @李学波-p8d Місяць тому

    新冠病毒厉害 i need drug!!!!

  • @weirdsciencetv4999
    @weirdsciencetv4999 Місяць тому

    You cant magically grow brain cells that were lost. Not in that massive numbers. Wear N95 guys

  • @FindingFI
    @FindingFI Місяць тому

    Wow! One of the best presentations I’ve seen on covid and the only one I’ve seen on viral brain damage. Why isn’t this being communicated by public health leaders? What can we do to advocate translating this into public policy?

    • @DanielleB-j7c
      @DanielleB-j7c 28 днів тому

      Thank you! I'm trying my best to spread this data, but there is a lot of resistance from public leaders, medical doctors, and others to accept this knowledge. The data shows that the brain is not as protected and isolated as science thought it was, but I guess it takes time to accept it and change things.

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Thank you guys for all you do 🙏🏼💕

  • @gabrielericciuto317
    @gabrielericciuto317 Місяць тому

    Thank you

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Thank you for all you do 🙏🏼💕

  • @gabrielericciuto317
    @gabrielericciuto317 Місяць тому

    Thank you

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    She is amazing!

  • @gabrielericciuto317
    @gabrielericciuto317 Місяць тому

    Thank you

  • @MrFilip121
    @MrFilip121 Місяць тому

    I wonder if substances like 9-Me-BC or dihexa can help with brain damage.

    • @jenniferw1595
      @jenniferw1595 Місяць тому

      What are these substances? Antivirals?

    • @MrFilip121
      @MrFilip121 Місяць тому

      @@jenniferw1595 no, 9-Me-BC (9-methyl-beta-carboline) is a nootropic compound that has neuroprotective and neurogenic properties. It works by increasing the production of dopamine and promoting the growth of new neurons, which could help with cognitive decline or brain damage by improving neuroplasticity and cognitive function. Dihexa, on the other hand, is a peptide that was originally developed to treat neurodegenerative conditions like Alzheimer's. It promotes synaptogenesis (the formation of new synapses), which enhances brain connectivity and repair. Both 9-Me-BC and Dihexa have potential to aid recovery from brain damage, though more research is needed.

    • @MrFilip121
      @MrFilip121 Місяць тому

      @@jenniferw1595 9-Me-BC () is a nootropic compound that has neuroprotective and neurogenic properties. It works by increasing the production of dopamine and promoting the growth of new neurons, which could help with cognitive decline or brain damage by improving neuroplasticity and cognitive function. Dihexa, on the other hand, is a peptide that was originally developed to treat neurodegenerative conditions like Alzheimer's. It promotes synaptogenesis (the formation of new synapses), which enhances brain connectivity and repair. Both 9-Me-BC and Dihexa have potential to aid recovery from brain damage

    • @MrFilip121
      @MrFilip121 Місяць тому

      @@jenniferw1595 No, nootropics. For some reason, youtube deletes my full comment.

  • @postproduction2339
    @postproduction2339 Місяць тому

    Thank you for this talk/ update, excellent work as always. I've been looking forward to another interview with Dr. Rae Duncan since discovering her previous presentations.

  • @RebeccaMetro
    @RebeccaMetro Місяць тому

    I recovered from CFS/ME only because I took the biopsycosocial approach to my illness. I agree with Tuller that GET and CBT are not the answer. However I’m pretty sure that more people have been harmed by attempted medical interventions for theses diseases than they have by biosycosocial interventions. Tuller is all science.. while medicine is a combination or art and science.

  • @susan5431
    @susan5431 Місяць тому

    Powerful work here. I'm grateful for the rapport and openness shown between participants and that I could actually feel on the call.

  • @CNNASS
    @CNNASS Місяць тому

    Did anyone in your family including you, take COVID vaccine?

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Stop with the focus on PAXLOVID! Start trialing different antivirals and IVIG and monoclonal antibodies!

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Thank you 🙏🏼

  • @philipperessos5499
    @philipperessos5499 Місяць тому

    This is so hard! Is it a side effect of the covid jab?

    • @UniteToFight2024
      @UniteToFight2024 Місяць тому

      Anil is sick since 2007 because of a viral infection that led to ME/CFS. ME/CFS cases due to Covid vaccinations are extremely rare and will only occur after 2021, if at all.

  • @annieg4813
    @annieg4813 Місяць тому

    Thank you Pam for doing this interview. Doctors and healthcare professionals are more likely to listen to doctors, so your voice will help many patients 👏

  • @franfriel2
    @franfriel2 Місяць тому

    Thank you, Pam! I know it’s a huge sacrifice in energy to share in this way, but wow. Very powerful, moving and concise for such an enormous life altering story. I am sorry that you are struggling and experiencing greater decline. It’s infuriating. I’m am sad to say that your symptom list is very familiar. My list started in Jan 2020. And I agree, from a recovering Type A, the “pushing through” after the acute phase (and/or trauma both physical and emotional) seems to be a theme in many LC onset stories. Consequently, I BEG people to rest after an infection, and to keep resting especially with ANY signs of fatigue, anxiety, cognitive straining, head pain. I am grateful to you and everyone involved in sharing this excellent information and reality resource to help inform and shift the thinking in both the healthcare and public sectors. As you all know so painfully, it’s vital to get the truth out there. Wishing us all recovery, peace and support.

  • @gabrielericciuto317
    @gabrielericciuto317 Місяць тому

    Thank you

  • @protocode_227
    @protocode_227 Місяць тому

    I wonder whether Dr Prusty has looked into the role of MCAS in ME

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Thank you 🙏🏼 for all you do for us! ME/CFS since 1995 and it was mild with a few moderate relapses. Very mild Covid 2023 gave me Long Covid and I am now moderate/severe.

  • @erstmalzupenny266
    @erstmalzupenny266 Місяць тому

    thanks!

  • @sham4p
    @sham4p Місяць тому

    Super video!

  • @gabrielericciuto317
    @gabrielericciuto317 Місяць тому

    Thank you for the video

  • @leannecatchpole7097
    @leannecatchpole7097 Місяць тому

    Thank you David, this is a very useful overview of the key pathological systems involved in post-viral illnesses and potential treatments.

  • @sallybourliakas3173
    @sallybourliakas3173 Місяць тому

    ua-cam.com/video/k0mojFpAU00/v-deo.htmlsi=KV4vqlwuzAXVJFSQ

  • @sallybourliakas3173
    @sallybourliakas3173 Місяць тому

    ua-cam.com/video/Vwt93_Lg128/v-deo.htmlsi=F0Ro8WZ6HTk8lv0Y

  • @sallybourliakas3173
    @sallybourliakas3173 Місяць тому

    And to APPG on Coronavirus ua-cam.com/users/liveugbY-ykvRto?si=kzEIrtvUTYX3pht3

  • @sallybourliakas3173
    @sallybourliakas3173 Місяць тому

    Thank you again Dr Rae Thought I’d link in some of you discussions with David Nabarro in WHO sessions ua-cam.com/users/liveugbY-ykvRto?si=Cv8e_2COUNs0mDMy

  • @Prince9146
    @Prince9146 Місяць тому

    help us please....

  • @usefulstuff13
    @usefulstuff13 Місяць тому

    Great video. Thank you for sharing! Vielen Dank!

  • @jenniferw1595
    @jenniferw1595 Місяць тому

    Thank you 🙏🏼

  • @adammcleod5026
    @adammcleod5026 Місяць тому

    Did you take part in the global medical trial? If you took part in the medical trial then maybe you don't have long COVID, maybe you have a jab injury. No such issues with anyone I know that has not taken part in that trial.

  • @ElaineW1963
    @ElaineW1963 Місяць тому

    I've been using the free Visible app for well over a year. I find it really useful for tracking what's happening inside my body which allows me to see how much pacing I have to do. The addition of the Funcap27 measurement has been mind-blowing.

  • @IOSARBX
    @IOSARBX Місяць тому

    UniteToFight, wanna collab keep up the amazing content

  • @upupina90
    @upupina90 Місяць тому

    thank you Fiona for your precious story. I can only imagine the struggle to fight for care or understanding on top of severe health issues.

  • @me-cfs-strategiesforhealing
    @me-cfs-strategiesforhealing Місяць тому

    Excellent speech, thank you Tom.

  • @dougmicheals6037
    @dougmicheals6037 Місяць тому

    She looks like a POW reading script. I cant feel sorry for them. Trained to know better then to experiment on themselves and when it goes horribly wrong, they still use the mental gymnastics of calling it LC. She wont speak out to save her own life.

    • @upupina90
      @upupina90 Місяць тому

      you should learn some empathy and respect for peoples suffering, condescending af

    • @adammcleod5026
      @adammcleod5026 Місяць тому

      still cannot put 2 + 2 together and come up with the correct answer which is right in front of her face and in the title of the damn video. Post vaccination. Nothing to do with COVID.

  • @Denise-ux4xd
    @Denise-ux4xd Місяць тому

    Get an X-ray of the Graphene Hydroxide in your forehead & press charges.

  • @MECFSDiagnosticBiomarkers
    @MECFSDiagnosticBiomarkers Місяць тому

    All of the problems you have outlined Tom were directly caused by Psychiatrists. They didn't just happen. Psychiatry did them directly, maliciously, and criminally. This is why you should have denied your platform spot- and given it to an Immunologist or a diagnostic biomarker person.

    • @KSd9394j4h
      @KSd9394j4h Місяць тому

      I don't agree completely. It was and is not only Psychiatrists who are responsible for decades of mistreatment of ME/CFS. It's also the Neurologists, specialists for internal medicine and others who denied reading studies but instead kept their holy belief that nothing could ever exist beyond their own knowledge. Or the familiy doctors who tended to believe you but were afraid to write down a diagnose 'ME/CFS' because any 'specialist' might doubt them. It's a rather long list. I thing we do need specialists from all medical disciplines to enlighten their collegues. It's sadly much more likely that a psychiatrist would believe another psychiatrist than his patient who never studied medicine. And yes, I also do feel like we need the work of immunologists and cell biologists more than anything else.

  • @nataliiazhukova9624
    @nataliiazhukova9624 Місяць тому

    Dear Tom, your speech is fantastic, especially with recognition and description of all kinds of reasons for trauma, challenges. It's so supportive, I'm not alone with this illness:). Thank you ❤ and still getting better )

  • @frieke72
    @frieke72 2 місяці тому

    Using the free app (Netherlands). Combination with polar not available. So I use the combination with Garmin Vivoactive with Longcovid app to mimick it a bit. Looking forward for further development so I can use the international Visible and get even better insights. Keep up the good work!

  • @KdotD-ul1qp
    @KdotD-ul1qp 2 місяці тому

    Thank you so much for this App. I am using it since the congress in may 2024! It is increadibly helpful to track my symptoms and to let me know, when I need to slow down! 👍🙂🙃🤗

  • @timoluetk
    @timoluetk 2 місяці тому

    Great video!