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Lilia’s Lens
United States
Приєднався 20 бер 2014
I'm a 24 year old living with Fibromyalgia and want to share my journey along with random moments from my life.
10 year guaiversary!!!🎉
Ten years ago I started the Guaifenesin Protocol and it changed my life. Since then I was able to actually live life and do things like graduate high school and college, start grad school, and function.
www.fibromyalgiatreatment.com/
www.fibromyalgiatreatment.com/
Переглядів: 2
Відео
Getting towards the end of the semester!
Переглядів 1014 днів тому
Getting towards the end of the semester!
Things that make life more accessible with a chronic illness
Переглядів 914 днів тому
This video is about some of the things I use daily or when needed to help with my chronic illnesses. I go through things I carry in my bag with me along with other random things that help make life more accessible for me.
finals in grad school with a chronic illness
Переглядів 1014 днів тому
Today I had a final in one of my classes so I spent the day studying and resting.
a day in grad school with a chronic illness
Переглядів 914 днів тому
This year is my ten year guaiversary and so I decided to do a little 10 day countdown to celebrate. For the next ten days I am going to have videos like vlogs, doing fun life stuff, and chronic illness/guiafenesin protocol stuff as a countdown to my 10 year guaiversary update on 12/18. Feels crazy that it was 10 years ago! I am excited to be creative and making videos again 😊
10 years ago I got sick and this is how life has been
Переглядів 388 місяців тому
This is a little video essay with pictures and a voiceover of my reflection of the last 10 years. In February 2014 I got really sick, in April 2014 I got a diagnosis, and in December 2014 I started the guaifenesin protocol. Socials: liliaslifethroughalens www.tiktok.com/@liliaslifethroughalens?_t=8lCy3hCUhcU&_r=1
8 year guaiversary update
Переглядів 120Рік тому
December 18th, 2022 was my 8 year guaiversary and I was finally able to make an update video.
college week in my life with a chronic illness: halloween costume and migraine
Переглядів 772 роки тому
this week I decided to do a little update since we are over halfway through the semester. I got my halloween costume which was exciting, but I was also fighting a migraine. I also had a realization about my sleep.
fort day | reading, rain, trader joes trip
Переглядів 192 роки тому
today I just read all day, went to trader joes, and it rained! I finished the vogage of the dawn treader, read the hunting wives, and started such a fun age.
august
Переглядів 32 роки тому
August was a crazy month filled with lots of new things and last summer moments.
my first week away at college
Переглядів 222 роки тому
this is my first week away at college. it had it's ups and downs, but I made it through! i'm in my third year psych major.
progress on guaifenesin protocol (fibromyalgia/school/life update)
Переглядів 4652 роки тому
I finally was able to make a progress video for my guaiversary that happened in December and also do a little update on my life. I have been busy with work, school, and transferring.
21 books from 2021 I can’t stop thinking about
Переглядів 72 роки тому
21 books from 2021 I can’t stop thinking about
finishing my second year of college and getting the Pfizer vaccine (life/channel update)
Переглядів 313 роки тому
finishing my second year of college and getting the Pfizer vaccine (life/channel update)
finishing my first semester of college with a chronic illness/life update
Переглядів 365 років тому
finishing my first semester of college with a chronic illness/life update
What's In My College Bag Chronic Illness Edition
Переглядів 1755 років тому
What's In My College Bag Chronic Illness Edition
How My Chronic Illness Makes Me Different And Changed My Life For The Better
Переглядів 535 років тому
How My Chronic Illness Makes Me Different And Changed My Life For The Better
4 Year Guaiversary And First Semester Of My Senior Year
Переглядів 435 років тому
4 Year Guaiversary And First Semester Of My Senior Year
6 Month Daith Piercing For Migraines Update
Переглядів 836 років тому
6 Month Daith Piercing For Migraines Update
Progress On Guaifenesin Protocol! (9-26-18)
Переглядів 6226 років тому
Progress On Guaifenesin Protocol! (9-26-18)
Do you have to do this perfectly? I have the pills but I haven't been able to replace stuff like toothpaste. I just want to feel better 😢
Yes. If you do not follow it completely it will not work. I recommend reading the book as it helps explain a lot. For toothpaste I recommend Tom’s of Maine silly strawberry.
thank you for all your updates and sharing your story with the internet! my girlfriend (21) is contemplating guaifenesin and we are exploring all the resources and information available. it's been so great to hear your experiences and stories as someone who is also young and still physically and mentally growing. we are working through St Amand's book and the protocol prep, but taking things slow since my girlfriend can often be a hypochondriac when trying new things and her fibro symptoms are a sensitive subject. if you don't mind sharing, what dosage are you taking? how bad were the first few weeks/months of reversal pain? how did you know when you reached your first set of "good days" on the treatment? how often do you have reversal cycles now that you have been on the protocol for so long? and is there any other information someone just getting started should know about the pain and pain cycles, etc? thank you so much for any and all information <33 have a great day!
Hi! Everyone reacts differently but I am a low dose so I take 300 mg. I would recommend joining the Facebook group because it’s really amazing to have support and hear a bunch of other peoples stories. It can be scary to start, especially when medical things are scary which I 100% understand. Wishing the both of you healing thoughts with your journey!
Would you say the guai protocol is working? And do you know how much salicylate is allowed and how long it stays in ur body to block the guai? Thank you
The protocol is definitely working. I wasn’t really able to function at all before. You can’t really have any salicylates. The website www.fibromyalgiatreatment.com really has more info. It blocks for 24 hours after you take or apply something that would block.
@@liliaslens thank you. For hand soaps and hand sanitizers, do I need to get salicylate free products for them too?
Yes. Anything that goes on your skin. If it’s just once and awhile at a restaurant or something like that it’s ok but not everyday use. Read the website at least and the book if you can because it really helps. If you don’t follow it correctly it doesn’t work so being careful about products is important.
@@liliaslens ty so much. I’m a nurse so only thing I can’t control is hand soap and sanitizers at work bc I constantly have to use them… bad news for me. I’ve read the book already and it was good. May I ask u what product of hand soap and toothpaste u use at home? Sorry for asking so many questions :(
@@bryankang3286 Hand soap and sanitizer at work can be hard. If you can carrying your own is useful or if you use the same bathroom keeping some in there. I use an olay one from target that is orange blossom scent or some of the softsoap brands for hand soap. For toothpaste I use toms of maine strawberry.
Hi Lilia. I love your videos. You have such a positive attitude about life, and it is truly refreshing. I've been watching your videos for a few years, and I notice that you speak alot about your fibro flaring up during periods of heightened stress. Do you think that, even through the stress, you are still much better now than prior to gaui? I am wondering because I am in my twenties and I am in a stressful job (teaching). I know it is anecdotal, but I'd love to hear what you think :)
Hi Simone! My flare ups from stress don’t even compare to how I felt before guai. I was bedridden before and now when I get a flare up from stress my body will just be a little achy, I’m more fatigued, my brain gets a little foggy, and I sometimes get a migraine. Even these things I can make less intense with things like yoga, walks, meditation, or just taking a bit to relax. Being a teacher is stressful (my mom in one) and having ways to help manage the stress also then tends to help fibro symptoms, for me at least, be less intense or flare up less.
That’s the thing, once clearing the symptoms and feeling better, we do more and get too busy. And our thoughts are that we want to spread the hope of the guaifenesin protocol for fibromyalgia. Thanks for sharing your update, and blessings on your new adventure.
This is awesome! Congrats
Can I ask if you do exercise with the protocol?
Exercising helps in general, so yes. I tend to do less impact things like yoga and walking most of the time.
@@liliaslens thanks
You look good with your head shaved! 🙂
Hiw are you? This protocol help you?
Androidcel Perú I’m doing well thank you. The protocol has helped me a lot. I wasn’t able to get out of bed and now I’m able to actually go to school and live my life. Just make sure you are following it correctly per the website www.fibromyalgiatreatment.com to make sure it works. It takes time, but it’s all worth it.
Wonderful, uplifting story, Lila!
Thank you!
How long untill you felt a difference
It depends from person to person, I started to notice I was feeling better within 7 ish months. With this protocol, you feel a little worse for a little bit before getting better.
Thankyou for the replies I’m not anywhere near there but I guess I can do it I order the product and still waiting for a diagnosis I live in australua
Julia Fuhrmann ok. Good luck! Make sure your products are salicylate free. Sending you healing thoughts!
Thank you 😘I’m trying there’s no doctors here that map. Did you have any urinary discomfort symptoms
@@juliafuhrmann2506 There are only really two that map and they are in California. Not really.
Hi I’m scared to do the protocol but need some advice help and inspiration ? Do you recommend I am scared to try .
Julia Fuhrmann I totally recommend it! About 6 years ago I couldn’t even get off the couch and now I was actually able to graduate high school and go to college full time and work. It definitely works if you do it correctly. You should check out the website www.fibromyalgiatreatment.com for more info about it.
Wow that’s amazing so happy for you I’m still waiting to get properly diagnosed I have only had it a month . Do you think it would hurt trying it even I’m not diagnosed I have the lumps all over my body and aches on trigger points
@@juliafuhrmann2506 I don't see that it would hurt to try. The only thing is that some of the bumps might go away. If you are anywhere near the LA area I recommend going to see Dr. St Amand because he can diagnose you.
Hello, I am from Australia Perth. Is it fine to buy the guaifenesine from Australia
As long as it is long acting you should be good.
How did you start it?
If you go to www.fibromyalgiatreatment.com they have everything you need to do to start correctly. I started with switching my products to safe ones and getting to know the protocol better. It took me a bit to completely read the book, but getting the products and guai was pretty easy.
I got mine done to it helps so much glad it helps you
I'm glad it helps you!
Can I please ask, how much guaifenesin do you take and how did you establish your correct doze? I have recently started but i am not sure if i am cycling on 300x2 a day. Thank you.
Hi! Have you read the book? Everyone is different in what dose they take. I take 600 2x a day while others take a lot more or less. You should start out at 300 2x a day for about a week and see if your symptoms get worse if not bump up to 600 2x a day and keep going to you start to feel worse. Are you keeping a symptom journal? This helped me find my clearing dose. Hope this helped!
This was amazing thank you and very helpful
Glad it was helpful!
It’s really strong of you to post this
Thank you!
Great video to help others to get awareness others illness. Stay positive
Thank you!
I completely understand. You're not alone in this fact because I've always felt the same way. I'm glad someone understands😊
Me too!
I’m so happy for you!!!!! I am also on the Guai protocol. Started a month and a half ago. Cant wait to feel better :)
Thank you! Good luck on the protocol! Wishing you pain free thoughts!