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Good morning help 4 HD. Just a heads up I kind of have a hard time hearing when you are talking with out turning up volume on my phone

Hyper sexuality is never talked about in the appointments. Marital rape is never discussed..

apathy and the discription is my post Caregiver attitude.

I was just made aware of this , and now it makes so much sense to me 🤔

Thank you, Lauren for telling your story. It's so exciting to hear something positive and beneficial for our HD warriors! And Katie...everybody goes for "the" F-word first. I usually tell them to go ahead and get it out of their system.LOLOL

definately do not confront or try to reason.... change the subject, deflect! as for lawyer, mine diffinatelly delayed to inrease his percentage. (to the point I just dropped my case and he got nothing, i got reduce retirement) to midigate nightmare and improvide speel duration avoid cheadet cheese before bed

Thank you for sharing.

great explanation! 😍

I would think anyone can get it if it runs in the family. Skin color don't matter. I've lost 2 aunts to Huntingtons and have a slew of cousins that have to get tested. It's terrible. I pray for anyone whom has it or has had a family member with it.

More information please

Thank you!

Thank you as always Help4HD for everything you do and ARE!❤

These will be SO helpful for our community members and caregivers!! Ava and I are excited to do a video!

Good talk about what to do and not do while seeking HD trials.

Wonderful interview! Thank you for putting this out there. -Dr. M.

The stories of medical malpractice that hd patients have to deal with never stops surprisingly me. So happy to see that is behind you and doing well now.

What an eloquent speaker! Amazing story! Heading out to Walmart this afternoon!

Thank you! I love your story and your blog!

How can one participate on your fund raisers

I got HD from my father gave it to me my brother my sister and my other brother my father died around 72 both of my brothers are alive with symptoms but we don't speak to each other and my sister at 42 committed suicide I have a CAG of 56 and I am 46 I also have a voice for those who are suffering from it because I still have my wits about me and I'm on many medications for each symptom so I may not look like I have it but I'm on a lot of medication so if you have any questions about what type of medications I'm on or what works for me or what we're doing to keep me going feel free to drop me a line and I will answer, 💜💙💜💙💜💙

Hi I am Wendy and I have Huntington's disease my whole family I got it from my father he died at 72 with it my sister she died at 42 due to suicide my brother he's still alive but we don't go near each other my other brother he's in his fifties too and we don't speak to each other my kids had a 50-50 chance of none of my daughters is 23 30 don't have it my career is not very bad because I am on medications they've got me on a medication for each symptom I'm taking about 20 to 30 pills a day they work but all they can do is just keep upping them until they can't up them no more if you have any questions I am open and I am willing to explain or tell you my experience with having HD and being in an HD family💜💙💜💙

Hi guys ❤

Thank you both for allowing me to share a part of our story. I love you both and can't wait to see you in SD!!!❤

one of the moments I remember (and maybe beginning to embellish) was when "Wife to be" informed me. half a century ago, before the vast information of the internet. second meeting, can't share that conversation.

Placebos blow my mind when it comes to a terminal disease. It can be heartbreaking.

There are so many breakthroughs with cancer through A I. What will this mean for HD and especially Juvenile Diabetes?

Thanks so much for sharing! A lot of good insight here for families.

even "out of pocket", unable to find reliable assistance in NC

Well done as always! Thanks for all that you do to pull these events together

Great video! I also think with technology today, never before has a small group of people had the ability to reach such a wide audience to raise awareness.

What is Huntingtons

Do you have an email address? I need advice.

" . . . North Carolina is lacking . . ." More like non existance or even detrimental, (well at least several years ago) Similair to Providing the Help4HD information for First Responders, I wonder if the Emergancy Room or Hospital staffing would be acceptant of a lay person trying to inform them. (ie local was very arrogant during few visits) For my serving EMS and Sheriff Office I have bought them lunch with the return favor is to watch and be aware of families in the area

Great interview. Lauren is spot on regarding the difficulty around the lack of awareness of the cognitive impact. Everyone in the HD community is so aware, but this is frequently lost on much of the general public. Thanks for sharing!

Thanks so much for sharing!

What is that exactly?

I pray that God gives you all the strength and health you need.

Yes you are HD community....I learn more every day!

Thank you for sharing your story.

when I looked into LTC insurance decades past, the exclusioning wording for coverage was vague enough to allow Insurance refuse coverage. I was lucky enough to plan saving

Thank you Katie and Katrina for this update. As hard as it is to hear this news I am excited to hear and see all the clinical outcomes with the hopes it will bring about an eventual medication. I continue to pray that it wont take too long. Love you both so much and all of your efforts seen and unseen for our community ❤️.

I work on a unit specific for HD. We just got our first resident with JoHD ... 27y.o. thank you for sharing your story. It will help me to help our resident.

I found research on pubmed with pictures that showed cat's claw- a rain forest herb-that I have knowledge of and experience of can remove the black spots from the brain of the poor mice they used. Cat's claw takes down the blood pressure so hawthorn berries needs to be used as well to avoid this. I have a patient/ informally adopted 44 year old that I would like to help but the doctor and the brother are not agreeable to that.

I’m so sorry Ashley. This disease is so cruel and nobody deserves this terrible affliction. Your future you envisioned for yourself was robbed from you. Please keep sharing your story. I am gene positive for HD myself and it is so scary.

You are so amazing. Ashley, I wish we could take a piece of your pain and struggle. You are bringing so much attention to HD.

Great job Kevin! I enjoyed getting to "meet" your brother Katrina!! You are the best advocate and caregiver! Hugs!

Thank you ladies for allowing me a platform to express these intense emotions. I would not have chosen anywhere different. Y'all are the most genuine and kind women I have ever solen too.. thank you for all you do for all you do. ❣️❣️❣️❣️

Good job Autumn! We love you 💜

Love you Autumn!!! You are an inspiration 💜💜💜

What a gift to treasure always!