Відео

Thank you for watching and reaching out! We are not medical professionals, so we cannot provide specific advice. We are happy to know you're currently seen at the Hemophilia Treatment Center (HTC) at the U. of Kentucky. But no matter the facility, if you're treater understands that you are not receiving the care you feel you need and deserve, and no changes are made, CHES always recommends looking for additional resources. Your state has a second HTC at U. of Louisville for consideration. Here is a complete directory of the CDC's nationally, recognized HTC's. dbdgateway.cdc.gov/HTCDirSearch.aspx We also encourage you to sign up for CHES announcements and resources (ches.education/communications-profile-form), such as our bi-monthly e-newsletter and/or our annual print publication that provides a variety of information from new treatments, drug trials, mental health support, and much more. We also offer upcoming webinars, and announcements on our live programs. Although it's too late to attend this year, our OneDrop program, created for ultra rare bleeding disorders (factor 7 included), was created for those who need support from onsite medical professionals and other experts on relative topics, as well as a supportive community of patients and family members who face similar challenges seeking treatment, and all too often - an official bleeding disorder diagnosis. More info on OneDrop can be found here. ches.education/one-drop Best wishes to you, and please feel free to reach out to us personally at info@ches.education for any needs we might help you with!

Thank you for reaching out, and we are so sorry to hear of the loss of your mom. We applaud your proactive interest in this topic and wish your daughter the best. In my role as a dad with a bleeding disorder and two diagnosed daughters, I am their biggest advocate. We hope you continue to share resources such as this video to educate others that women can and do have issues with bleeding.

Thank you kindly!