- 88
- 15 446
Sail For Epilepsy
United States
Приєднався 19 сер 2020
Philip Haydon is a neuroscientist with medically controlled post-traumatic epilepsy. He and the Sail For Epilepsy team are on a mission to sail the ocean's of the world to raise awareness of epilepsy. Sail For Epilepsy's goals are to:
• inspire people with epilepsy
• promote awareness of epilepsy and educate the public
• raise funds to support research for a cure
The voyages are about more than sailing. We will make landfall during the project to engage with local epilepsy communities and interact live with our Virtual Shipmates while we sail. Our hope is that this voyage will inspire people with epilepsy, their families, and their caregivers to ask themselves, are you able to do something to improve your quality of life? Can you take one extra step to do something you haven’t done before, with the necessary guardrails in place?
• inspire people with epilepsy
• promote awareness of epilepsy and educate the public
• raise funds to support research for a cure
The voyages are about more than sailing. We will make landfall during the project to engage with local epilepsy communities and interact live with our Virtual Shipmates while we sail. Our hope is that this voyage will inspire people with epilepsy, their families, and their caregivers to ask themselves, are you able to do something to improve your quality of life? Can you take one extra step to do something you haven’t done before, with the necessary guardrails in place?
Moments from the Newport Bermuda Race
Some of the moments that resulted in our first place finish in the double-handed division of this year's @bermudarace
➥ Visit www.sailforepilepsy.org for more information
🔔 Click to subscribe to our channel: bit.ly/3OGkb3F
🙌 Support our mission: bit.ly/3H37bn7
➥ Visit www.sailforepilepsy.org for more information
🔔 Click to subscribe to our channel: bit.ly/3OGkb3F
🙌 Support our mission: bit.ly/3H37bn7
Переглядів: 16
Відео
Virtual Shipmate: Remington
Переглядів 1214 днів тому
Today, Phil is sailing for Virtual Shipmate Remington, from Martinsville, Indiana. His One More Step towards living a fuller life is playing sports and chasing his dream of becoming a real estate agent. We applaud you for these efforts and would live to hear your answers to the questions Phil asks in the video! Thanks for joining us on this journey. ➥ Visit www.sailforepilepsy.org for more info...
The Scientist and the Sailor
Переглядів 12321 день тому
A glimpse into the friendship and respect between Phil and his co-skipper, Joe "Coop" Cooper, for the Bermuda Short-Handed Return Race. Coop is an advisor to Sail For Epilepsy, an experienced sailor, a coach, and recently served in the role of Fleet Communications for the @bermudarace. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Sup...
Virtual Shipmate: Heather Crane
Переглядів 74Місяць тому
Yesterday Phil was sailing for Virtual Shipmate Heather Crane, who has accepted the One More Step Challenge (www.sailforepilepsy.org/join-one-more-step-challenge/shipmates/), choosing to do something to live a fuller life. She loves to cook but has been nervous about it since developing myoclonus (a sudden involuntary muscle jerk, shake, or spasm). However, she has signed up for a cooking class...
Our Mission for the Newport Bermuda Race
Переглядів 684Місяць тому
Phil is entering the Newport Bermuda Race (@bermudarace) not only to compete, but also to engage with a community of people effected by epilepsy. Instead of focusing on ways your disability might hold you back, strive to live the fullest life possible, with any necessary safety measures in place. Our race is dedicated to Virtual Shipmate West Tarricone (2007 - 2024). ➥ Visit www.sailforepilepsy...
Overnight Sail Training
Переглядів 161Місяць тому
Last big training day before the @bermudarace! Last weekend Phil and Alex sailed 120 nautical miles to practice sail changes, test all the systems on board and work on their sleep schedules. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7 @North_Sails @JeanneauOfficiel @JeanneauAmerica @NeboatworksInc...
A Race to the Start Line
Переглядів 802 місяці тому
Just getting to the start line is a race in itself. Our thanks to the teams at Safe Harbor New England Boatworks (@NeboatworksInc), North Sails (@North_Sails, Harken (@harken), and Kingdom Marine for their efforts this winter and last week to get Fearless launched and ready for the sailing season. We'll be training for the next month in the lead up to the Newport Bermuda Race (@bermudarace), on...
Winter Project: Mast Track Upgrade
Переглядів 923 місяці тому
After experiencing an equipment failure that hampered performance during the 2023 Bermuda 1-2, we decided to implement an upgrade to the mast track aboard Fearless. This winter we installed a @harken track and sliders that removes the need for a mast gate (which had covered the slot that our old sliders fed into on the mast). We're about two months away from the start of the @bermudarace and we...
Repacking & Re-arming My Life Vest
Переглядів 514 місяці тому
A key piece of safety equipment aboard any boat is a life vest. Those we use at Sail For Epilepsy auto-inflate when submerged in water - here's how I recently re-armed it after testing it out. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Join the One More Step Challenge
Переглядів 1367 місяців тому
Would you like to come aboard with us as we sail the oceans of the world? Join the One More Step Challenge to become a Virtual Shipmate! We’ll add your name to our boat so you can join us as we sail. www.sailforepilepsy.org/join-one-more-step-challenge/ Phil Haydon has not let post-traumatic epilepsy prevent him from living a full life. He is fortunate that his seizures have been controlled fo...
Sail For Epilepsy, Final Training Day 2023
Переглядів 508 місяців тому
Phil and co-skipper Alex spend one last day out on the water for the 2023 training season. With their sights set on the Newport Bermuda Race on June 21, 2024, after a series of winter projects, training will begin again in April. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7 @North_Sails @JeanneauOf...
Sail for Hope 2023: Live Start!
Переглядів 389 місяців тому
On September 30, 2023, Phil and Alex started the Sail For Hope race in Newport RI, sailing double-handed aboard Fearless, the Sunfast 3300 that is being used by Sail For Epilepsy. Watch the excitement of a start and active first 30 minutes of a race! ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Voyage Routing
Переглядів 1211 місяців тому
What does Phil do the night before a race? One critical item is planning the voyage route, based on the predicted wind speed and direction. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click to subscribe to our channel: bit.ly/3OGkb3F 🙌 Support our mission: bit.ly/3H37bn7
Solo-Twin 2023: Virtual Shipmates
Переглядів 2211 місяців тому
On Friday July 28th, Phil and Alex are competing in the Solo-Twin, an overnight race from Newport, RI. They will be sailing for 3 of our Virtual Shipmates, who may live on 3 different continents, but are all connected by epilepsy and participating in the One More Step Challenge. Watch the video to learn a little bit more about them. ➥ Visit www.sailforepilepsy.org for more information 🔔 Click t...
50 Years of Epilepsy
Переглядів 34Рік тому
On July 6, 1973 I was riding my bike home from school when someone threw a house brick that accidentally hit me the head. I started having seizures soon after and lost a piece of skull. After surgery to fit a plate and several years of trying different medication, I gained control of my seizures and have been seizure free for over 40 years. On this 50th Anniversary I take a moment to thank the ...
Emotional Strategies While Sailing Offshore
Переглядів 10Рік тому
Emotional Strategies While Sailing Offshore
Atlantic Crossing Adventure: May 15 - June 25, 2022
Переглядів 862 роки тому
Atlantic Crossing Adventure: May 15 - June 25, 2022
Virtual Shipmate: Ricardo, Matosinhos, Portugal
Переглядів 322 роки тому
Virtual Shipmate: Ricardo, Matosinhos, Portugal
Meet the Crew: Atlantic Crossing Adventure, Leg 2
Переглядів 302 роки тому
Meet the Crew: Atlantic Crossing Adventure, Leg 2
Phil - Nice to meet you and your team at RBYC and big thanks to Joe Cooper for his excellent summary of your program. Congrats on the win and continued good luck. I’ll be following! Andy from SKADI
We'll pass along your well wishes to the guys as they race home!
How did you and followed the dancing bear in the race
It’s my current battle with epilepsy, I get panic attacks all the time just because I’m alone somewhere. Learning to combat it but it’s hard.
Your page means more than you would know.
Thanks for these videos. What life jackets do you guys use?
We like the Spinlock Deckvest Vito, with tether.
very nice!
Very cool. Nice to see that the journey and mission are going well.
Your project is going great! We will be in Seattle in August for a couple of days. Would love to see you guys! Phil
Such an inspirational and heartwarming interview!
And Greg?
Thank you for this. I actually always wanted to know how they do this…especially for long journeys. :) All the best.
A Message from Phil: I am glad that you found it helpful. I have been really surprised how simple the process.
I’m planning a shore party here, 1300, 6 July. Happy sailing until then.
Hi Phil, Thank you for the message from the middle of the Atlantic. I was due to do my Level 2 training later this week but it has been cancelled last minute and reoganised for the end of August. The main training I am doing is more fitness approached. Thank you for thinking I am 31 which I wish I was but I am actually 51. Keep up the good work and may you have fair winds and following Seas. Sean
God Bless all of you and safe travels for epilepsy awareness. 🙏💕🥰🏝
really good to see content like this i just recently got diagnosed with epilepsy as i had a tonic clonic seizure just over a month ago and am on anti seizure meds as of now so, so far so good but my dream job was to be a pilot but it is kind of off the table now with my recent diagnosis but sailing or working on a boat has always been a another dream of mine really hoping i can do something like this in the future.
There are so many similarities.Though I didnt want to be a pilot a a profession I did want to learn to pilot a plane. But, clearly that was out. Then I slowly looked for other dreams. When I was young I used to do white water kayaking. After my head injury I felt that was too dangerous. But I love being on the water. So eventually I decided to learn to sail and got hooked. Keep being positive and you will find something that fits.
@@Fearless-sailing thanks! Looking forward to it