Відео

I have SMA sydrome found on ct scan with contrast after losing going from 130 pounds to 109 pounds in a year of constant nausea last week I have gone down from 116 pounds to 109 pounds and constant nausea and agonizing pain in lower abdomen. My condition is so bad I got another diagnosis on top of everything which is chronic fatigue syndrome and it’s not my fault because I have been averaging 2700-3000 calories a day for the last 4 years and haven’t had a problem until a year ago. I have been forced not to eat lunch since nausea peaks at this time so I’m stuck eating a 1,500 calorie breakfast and a 1,500 calorie dinner and nearly dying of dehydration even though I’m consuming 5 liters of liquid a day.

I was diagnosed with this with Long Covid. I’m on multiple antihistamines and mast cell stabilizers so I can function better. I can eat pretty normally now too. Not fully. Like, gluten and other foods will trigger reactions like fatigue and lethargy, sneezing, tongue sores, distention, and GI issues. It’s been both fascinating and terrifying at the same time. Thanks for shedding some light on this rarely mentioned medical condition. We’ve been floating alone out here for a few years now.

I’m not understanding that’s can you do more videos exsplaining this in depth more ?

Thank you for the tip. I wish I could loose weight but that's not the case here. .I'll try this. Right now I have a cotton ball in my ear to stop the double echo or kazoo sound which first started as the normal tinnitus ship humming sound when docked 😢😰 that simply got to loud to handle.

Thank you❤please make more of these

Love your posts and shorts! You're terrific!

Also after I eat I can relax and blood sugar up and normal but if I get up and walk or do anything mobile it drops super fast to super low in 70s. I have no hypoglycemia symptoms with this though and it’ll come back up on its own if I sit still. What can be wrong? Drs just say my blood work is good and healthy. I feel hopeless.

Also, this is a sign and reminder your meal plan likely needs to increase!

You aren't able to provide any medical advice but I would love to know your hot-take on anorexia and it's effect on congenital heart disease. Like HCM, DCM, etc.

Thank you for making these videos <3

This is something that I am going through right now. My well-meaning doctors will see high cholesterol and encourage me to eat things with less cholesterol. Even had a nurse who didn't look at my file but only at the lab results call me to encourage me to exercise daily... When I almost fall out daily from over-exercise lol.

Next day my flu shot

Im scared now😰

Can this cause body odor???and what doctor is best to diagnose this?

i got my flu shot today!

Hope I’m not dying!

I have all the symptoms you described here can you help me

What happens when a person breaks a long bone? I lost 30# when I broke my ankle.

Beside the sympthoms you described that I also have, the sound of my voice vibrate such that it is like electric shocks in my brain, is that part of autophony or another issue?

Gastroparesis should NOT be put in an ED category! We are starving, NOT BY CHOICE! This is why we can't get help!!!!!! If we eat more we're just going to be in excruciating pain or vomit!

I phi, I just found you . This Makayla Day. I was in Denver clinic and you were my dr. I am glad to hear you had build a clinic. I am for sure 👍 you will do great. I miss you 😊 best wishes for your future

Thanks

i got 3 yesterday and one of them is cancer prevention

MCAS doesn't equal EDs. 🤬

I don’t truly know what you’re implying when you say eating disorders and mast cell activation syndrome. If you are mentioning AFRID then this would totally make sense if a long history of foods have caused reactions and such therefore causing a fear of eating. Mcas goes along with Connective Tissue Disease many of us have had GI symptoms our entire life which causes distrust. I have the trifecta of Ehlers Danlos Mcas Dysautonomia along as full GI dysmotality, I was also accused of having eating disorders due to my low body mass but I never had a hard time mentally with food or my body image. In fact I loved food and have consistently tried to find ways where I could eat it safely to sustain me. Unless the patient has a history of having an ED we should not state there’s a correlation between the two. It harms us when doctors assume our GI issues are directed from disordered eating.

I got mine a couple hours ago

I got my shot today but I'm fine

Thanks

I got mine yesterday 😂

It’s not a eating Disorder dumbass it’s a medical condition that they actually have test for and treatment wtf this lady talking about get lost

I got my shot today😊

Hi, I have a problem in my ear. I always feel sensitive in high pitch sound like spoon and plate clashing, dog barks or when someone hammering nails. It only buzz when i hear the sound. it feels like it is loud for me. Both ears but right ear is a bit worst than my left. Also if i touch at the bottom of my ear down to the neck its also buzzing but only for the right ear my left ear down to neck is normal no buzzing. Can u help me what is this. Thank you so much. I really need your help.

Me… yes, AT SCHOOL

Can you give advise for extreme anemia and iron deficiency with anorexia? Is it possible that the iron ferritin value drops further and further when you start to restrict extremely?over years?

Thanks for sharing. This still happens to me often many years later.

my cholesterol was 307 and ldl was 227, and i had high calcium because not only am i anorexic but i was on keto too. i thought my life was over and i’d never be able to have the foods i used to love, like cake, ice cream & cultural greek foods because i’d drop dead from a heart attack at 18 years old. the fact that this is common makes me feel a lot better.

Damn. I’ve heard so many people use the term “sick enough” but never quite understood. This was a nice insight into what that works looks like. Thank you 🙏🏻

Can the effects of ARFID include hypoglycemia? Is it as serious as other eating disorders? Thank you for this series, it's been incredibly helpful.

most doctors minimize this issue. they just aren’t that concerned about it. x4 docs for me.

Can you please do a video about migraines and headaches in anorexia?

Hyper metabolism is very rare though

Wise words, as always, Dr. G! I've dearly missed you. And I can say that I have personally seen the amazing resilience of my own liver and these labs returning to normal during nutritional rehabilitation.

Weight loss is not the cause it's chronic infection of eustachian tube

Yeahhhh ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

Not all gastroparesis is caused by eating disorder. I'm diagnosed with gastro prices and never did I ever have an eating disorder

Thank you for sharing this! There’s not enough information out there and it’s so important

Had an idiot surgeon tell me yes, yes, you should eat only small meals. Small meals r good. Like it was a good thing I can only eat a couple of ounces at times. He totally didn't care what I was saying. Didnt think gallbladder surgery will help my gastroparesis! Told him no thanks, quit him and the GI Dr that sent me to him and got a new gi Dr and some REAL help! Be your own advocate.

❤❤❤

agreed

i have this issue