Julie McClements
Julie McClements
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Henry Update - 2nd April 2022
Over the last few weeks, Henry has had a cough, but this soon turned into temperature spikes, a snuffly nose, and sticky eyes. Sorry if that was TMI!... After a trip to the GP and a week-long course of antibiotics, Henry's temperature spiked again. Rather than contacting the GP again, I decided I would contact Henry's Haematology consultant Bethany as she knows Henry most, and knows how I think and worry! Thankfully she was able to see him on Thursday afternoon for a quick blood test and examination.
Turns out to be something more viral and we are to just ride it out. If he doesn't improve or gets worse after a week, I'll phone back. Henry has been a proper trooper throughout all of this though. He just smiles and gets on with it, even though we are all pretty sleep-deprived! Thankful it's nothing too serious, however, it doesn't stop my mind from spiraling down those dark paths again, or my anxieties being triggered. Hopefully, this will ease with time, but for now, I just have to keep my focus right, be still, talk to God, and let it go.
Praying you are all safe and well.
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Відео

Henry Update - 26th February 2022
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Where has the time gone?! I hope you are all safe and well... thought it was a good time to post a wee update as Henry is due to start nursery next week! How mad, and awesome, is that?? I get a bit emotional, and a tiny bit anxious, thinking about it... but ultimately I am so excited for him. I remember during his treatment praying for this moment again, and here we are! So so thankful Henry re...
Henry Update - 15th January 2022
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I know I'm a bit late to the party, but Happy New Year! Hope everyone had a lovely Christmas and that your new year has started well. There has been a lot going on, thankfully not about Henry's treatment side of things. All of that is going so well and we remain so so thankful. Henry is so full of life and is just non-stop at the moment, we love it! The video explains everything that's been goi...
Henry Update - 4th December 2021
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It has definitely been a while since my last update! Medically, there haven't been too many appointments. Henry had his blood checked for the first time in a couple of months last Monday. Since the last proper update, we have been living life and watching Henry thriving more and more. I am so so thankful for all I am witnessing and experiencing as a mother. His blood came back normal and the me...
Conquer - Henry Update - 15th September 2021
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I know it's only been a few days since my last update, but Henry went to see the fracture clinic and endocrinology, so thought it was worth updating you guys on what was said, as it's good news! A lot to think about, but we are so thankful for the outcome. Also... Henry got his haircut!! Not too sure which update is bigger, but this was a big deal lol. Hope you are all safe and well.
Conquer - Henry Update - 11th September 2021
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Hope everyone is keeping well and safe! It's been a while since my last update, but there hasn't been too much to report really. Well, more so because there have been no appointments this last month! Henry has been doing amazing. He's becoming more and more strong, walking about, and climbing now. In himself, he has more confidence to try new things, and even though he stumbles and wobbles, it ...
Conquer - Henry Update 5th August 2021
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Lots have happened since my last update. We reached 1-year post-transplant, we celebrated Henry's 3rd birthday, I lost my Granny at the amazing age of 105!!... and Henry's Hickman Line has now been removed! There was a brief Covid scare, but crisis averted thankfully. We also had a virtual meeting with Bristol today and more good news was shared! Some of the medicines have been dropped as Henry...
Conquer - Henry Update - 9th July 2021
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We are well used to plans changing throughout this journey, and thankfully I don't react quite the same when they do! But there have been some changes! As the title says, there have been coughs and sniffles. Not emotional ones, and thankfully not Covid(!!)... but the McClements household did catch a pesky cold-type bug that's doing the rounds at the moment. Wiped us out a couple of days but tha...
Conquer - Henry Update 17th June 2021
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Freedom! A lot has happened since the last update. There have been X-rays, discussions with the genetics team regarding NF1 and how that looks going forward, and a visit to the fracture clinic resulting in his casts coming off! Henry’s legs are free! Still some investigations needed to determine if a bone treatment is necessary, so hopefully soon enough we will know more. Another big update is ...
Conquer - Henry Update 4th June 2021
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Sticks & Bones... Hope you are all well and enjoying this lovely weather! Henry has been doing so so well, in such amazing form and so happy, and his speech is developing more, every word we use gets copied now, yikes! We had our appointment with the bone doctor, endocrinology, on Wednesday, so I thought it was a good idea to give you a further update on that. In general, everything seems posit...
Conquer - Henry Update 24th May 2021
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Another month has passed since Henry's last blood tests! Hard to believe how fast time is passing by lately. Hopefully, get his numbers later this week but the team at Haematology are so happy with how Henry is doing, and how happy he is! He is truly thriving, even with these temporary leg casts in place. We are meeting with Endocrinology next week, which we wrongly assumed was to do with his g...
Conquer - Henry Update - 11th May 2021
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Hulk legs? Huh? I know, right? The title for this update is pretty random. But I assure you, all will become clear! Henry was up at the hospital yesterday to the fracture clinic. It's been 9 weeks since his leg casts went on, so everyone thought they were due to come off. However, the X-rays showed Henry's bones haven't healed as fast as they had hoped, and he now has new green casts on for ano...
Conquer - Henry Update 29th April 2021
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Hope everyone is keeping well and enjoying the lovely weather. Wasn't planning to do an update so soon after the previous one, but Henry made a decision on Monday after his trip to the hospital that was worth sharing! All his bloods have remained stable thankfully, and his casts are due to come off on 10th May all being well. Please pray that they come off, that his bones have healed well and c...
Conquer - Henry Update - 22nd April 2021
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I actually can't stop smiling while sharing this update with you guys. I have those happy, buzz like emotional shakes lol. It's been a few weeks since my last update and there's been some good progress. Arm cast off, catheter out.. legs in casts for another few weeks as they don't want to take them off too soon which is the best approach so we are happy... and we just had a call with Bristol, g...
Conquer - Henry Update 27th March 2021
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It's been a while since my last update, and after such a high and so much good news, things got pretty low, and really tough. Definitely the unexpected happened. I've posted a video explaining it all, and I have posted some updates on Instagram and Facebook throughout. Long story short, Henry fell and has a fracture in each leg, and a soft bend in his right arm. He has casts on his legs and arm...
Conquer - Henry Update 5th March 2021
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Conquer - Henry Update 5th March 2021
Conquer - Henry Update 19th February 2021
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Conquer - Henry Update 19th February 2021
Conquer - Henry Update 10th February 2021
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Conquer - Henry Update 10th February 2021
Conquer - Henry Update 6th February 2021
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Conquer - Henry Update 6th February 2021
Conquer - Henry Update 3rd February 2021
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Conquer - Henry Update 3rd February 2021
Conquer - Henry Update 29th January 2021
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Conquer - Henry Update 29th January 2021
Conquer - Henry Update 18th January 2021
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Conquer - Henry Update 18th January 2021
Conquer - Henry Update 15th December 2020
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Conquer - Henry Update 15th December 2020
Conquer - Henry Update 30th November 2020
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Conquer - Henry Update 30th November 2020
Letting go...
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Letting go...
Conquer - Henry Update 18th November 2020
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Conquer - Henry Update 18th November 2020
Conquer - Henry Update 11th November 2020
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Conquer - Henry Update 11th November 2020
Conquer - Henry Update 6th November 2020
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Conquer - Henry Update 6th November 2020
Conquer - Henry Update 31st October 2020
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Conquer - Henry Update 31st October 2020
Conquer - Henry Update 27th October 2020
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Conquer - Henry Update 27th October 2020

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