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Cure IBM - Inclusion Body Myositis
United States
Приєднався 17 гру 2017
Cure IBM is dedicated to inclusion body myositis (IBM), a muscle disease that affects adults. Cure IBM promotes education, awareness, and research.
The IndeeLift and Inclusion Body Myositis
Demonstration of the benefit of the IndeeLift, a device for raising people up off the floor, for people with inclusion body myositis. The device has many additional uses, including helping people stand up from low chairs, toilets, and beds. The device also allows people with IBM to voluntarily lower themselves to the floor to accomplish various tasks, knowing that they will be able to stand back up.
For information about purchasing the HFL-400-FTS IndeeLift:
mobility-offer-signup.indeelift.com/program/
IndeeLift HFL-400-FTS Fact Sheet:
cureibm.org/wp-content/uploads/2021/07/HFL-400-FTS-Data-Sheet-6-7-21.pdf
Jerry King, another man with inclusion body myositis, has also reviewed the IndeeLift in a UA-cam video:
ua-cam.com/video/u4dJ1AfYfaY/v-deo.html
For more information about inclusion body myositis, visit the Cure IBM website:
cureibm.org/
For more information about falls with inclusion body myositis, including tips about fall prevention, visit the Cure IBM falls webpage:
cureibm.org/treatment/falls/
For information about purchasing the HFL-400-FTS IndeeLift:
mobility-offer-signup.indeelift.com/program/
IndeeLift HFL-400-FTS Fact Sheet:
cureibm.org/wp-content/uploads/2021/07/HFL-400-FTS-Data-Sheet-6-7-21.pdf
Jerry King, another man with inclusion body myositis, has also reviewed the IndeeLift in a UA-cam video:
ua-cam.com/video/u4dJ1AfYfaY/v-deo.html
For more information about inclusion body myositis, visit the Cure IBM website:
cureibm.org/
For more information about falls with inclusion body myositis, including tips about fall prevention, visit the Cure IBM falls webpage:
cureibm.org/treatment/falls/
Переглядів: 10 472
Відео
Inclusion Body Myositis and the Million Dollar Bike Ride 2019
Переглядів 1,5 тис.5 років тому
Cure IBM and Inclusion Body Myositis have a team in the 2019 Million Dollar Bike Ride in Philadelphia, PA on June 8, 2019. Join us! 100% of the money raised will fund a research grant for the study of inclusion body myositis. Meet four people with IBM and learn about this fundraising event, which is sponsored by the Orphan Disease Center at the University of Pennsylvania.
Joe Sanchez Fights Inclusion Body Myositis with Exercise
Переглядів 8 тис.5 років тому
Joe Sanchez talks about his personal experience with exercise and sporadic inclusion body myositis (IBM). He discusses how walking and physical therapy have helped him cope with his muscle disease by improving his functioning. In this video he demonstrates numerous physical therapy exercises. Joe has also incorporated movement and fun into his daily routine, such as playing table tennis and sho...
Fundraising for Inclusion Body Myositis - Patrick Warner
Переглядів 3766 років тому
Patrick Warner talks about fundraising for his muscle disease, giving practical and inspirational tips that are useful for anyone with a rare disease. He discusses talking about your disease, advocacy, and his personal experience hosting events to raise donations. Money is needed for research, which can lead to treatment! Read about more of Patrick's tips for living with inclusion body myositis...
Talking about your Rare Disease and Asking for Help - Patrick Warner
Переглядів 1,3 тис.6 років тому
Patrick Warner discusses why it is helpful to talk about his rare muscle disease, inclusion body myositis, and gives tips for others who may have difficulty asking for help with their disability. His advice is both practical and inspirational. Read about Patrick Warner and his tips for living with inclusion body myositis, and see more of his videos, in the April, 2018 Cure IBM Blog articles: cu...
Shoes for Inclusion Body Myositis - Patrick Warner
Переглядів 1,5 тис.6 років тому
VANS shoes have helped Patrick Warner deal with his muscle disease, inclusion body myositis. He discusses the advantages of these slip-on shoes with their firm, but comfortable, flat soles. A graphic artist, he shows some custom shoes decorated with his personal artwork. He also demonstrates the use of a long shoe horn. Read about more of Patrick's tips for living with inclusion body myositis, ...
Towel Modification for Inclusion Body Myositis - Patrick Warner
Переглядів 2 тис.6 років тому
Inclusion body myositis causes weak hand grip, making it difficult to grasp a towel well enough to dry off after a shower or bath. Patrick Warner demonstates a towel modification that allows him to easily use a towel despite his finger weakness. Read about more of Patrick's tips for living with inclusion body myositis, and see more videos, in the April, 2018 Cure IBM Blog articles about Patrick...
Accessible Laundry Room for Inclusion Body Myositis - Patrick Warner
Переглядів 8046 років тому
A laundry room designed for independent use by a person with inclusion body myositis (IBM), a muscle disease, is demonstrated by Patrick Warner. A front-loaded washing machine and dryer allow him to remove wet clothes from the washer despite his weak hands. The machines are elevated so that he can sit on his rollator seat while working. A zip tie has been added to the dryer door so he can use h...
Accessible Kitchen for Inclusion Body Myositis - Patrick Warner
Переглядів 1,6 тис.6 років тому
A kitchen designed for independent use by a person with inclusion body myositis (IBM), a muscle disease, is demonstrated by Patrick Warner. His stovetop, counter, sink, and refrigerator shelves are all at the same height, which helps him prepare foods and cook while seated in his electric scooter. Read about Patrick Warner and his tips for living with inclusion body myositis, and see more of hi...
Running for Hope: Inspiration from Martin Jarry - Inclusion Body Myositis
Переглядів 6596 років тому
When Martin Jarry learned he had a rare muscle disease called Inclusion Body Myositis (IBM), he decided to do something about it. He used a robotic device called an exoskeleton to help him run a 10K race, generating publicity for his little-known disease. Martin has been a source of inspiration and hope to others with IBM. In this video, he gives advice and encouragement to other patients who a...