The Adaptive Family
The Adaptive Family
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The Transverse Myelitis Mountain
Transverse Myelitis in my life is like a Mountain that grows every day. It is my job every day to climb that mountain. My Fitness, Nutrition, Rest, and recovery are the steps I take to scale that mountain. No matter how perfect of a day I could live making the right decision, that Mountain will grow the next day. I could quit but that Mountain will grow to impossible heights.
I take on this Mountain knowing that I will never reach the top of it but I do get higher and higher.
Переглядів: 807

Відео

Interview with Piero
Переглядів 1862 роки тому
My interview with a fellow brother battling and living his best life with Transverse Myelitis
Transverse Myelitis: My Superpower
Переглядів 1632 роки тому
Transverse Myelitis: My Superpower
Transverse Myelitis : Bladder and Bowel
Переглядів 1,8 тис.2 роки тому
Bladder and Bowel talk, My ongoing battle with it and what I've done to improve it.
Transverse Myelitis VS The Heat
Переглядів 5222 роки тому
I go over my Transverse Myelitis symptoms when it comes to the heat and the steps i took to grow more tolerant to climate.
The Return
Переглядів 3712 роки тому
My apology video for my absence and my return to my channel
Sports therapy
Переглядів 2733 роки тому
Sports therapy
Communication
Переглядів 913 роки тому
C•O•M•M•U•N•I•C•A•T•I•O•N It’s much harder than the simple definition of a sender 🗣 relaying a message 📜 to a receiver 📞. Communication in a marriage is KEY 🔑 There is A LOT of messages constantly being sent and received. Our morning routine within the first 1️⃣5️⃣ minutes requires a lot of coordination and navigation due to all the little humans (our children) we are responsible for. First off...
CrossFit Open Mens Neuromuscular: Open 21.1
Переглядів 1643 роки тому
Its my 1st time at participating in the CrossFit Open 21! I am an adaptive athlete with a neurological disease. I am in the adaptive league. I am determined to break the barriers my disease has been placing on me. I don’t accept defeat. I am going on all and plan to give it my all to see what opportunities can open up to help provide for the treatment and care my body needs. I struggle daily ju...
Transverse Myelitis: It shows up on vacation
Переглядів 2813 роки тому
🌴Paradise was short lived🌴 And it has been difficult for JCruz to get back to a regular routine. Just 7 days of vacation has put him back a few weeks of progress. His pain has intensified from a 5️⃣ to a 8️⃣scale for a few days straight. If only we could have left Transverse Myelitis behind. But nope, it joined us on our “vacation” 🤦🏼‍♀️We were quickly reminded that “vacation” is no longer “vac...
My life with Transverse Myelitis: Continuing to push forward after some valley’s
Переглядів 2203 роки тому
Since the beginning of 2021, life has gotten out of control & difficult. My body was not cooperating with what my mind and will were set to do. Everyday I was gassed out, throbbing pain, spasms, fatigued and emotionally struggling by 12pm daily. The thought of working out just so I can remain mobile with minimized discomfort made me anxious. I have been working out for more than 700 days. Yes, ...
Overcoming Transverse Myelitis together as a team with health & wellness
Переглядів 3733 роки тому
We are competitive beings. We enjoy competing with each other with fitness and pretty much anything else 😂 Husband has Transverse Myelitis and wife has been on along side of him WITHIN this journey of diagnosis & on going recovery. Together, we focus on our overall health and fitness in order to keep our household functioning. We focus on staying motivated and inspiring others to take their hea...
Transverse Myelitis; Revisiting day 1
Переглядів 3133 роки тому
Jan 25th, a day that is hard to process but hope to turn it into a day to celebrate. As much as I try to stay composed, its hard when this anniversary comes around. I tell myself that I am not controlled by this day and that I will not let this day fill me with emotions to slow me down. But my body, My body knows what day it is, my body begins to get anxious, it begins to hurt, cramp up, and st...
Marriage Vows: Transverse Myelitis gifted us hard “in sickness & in health” experience
Переглядів 2813 роки тому
Transverse Myelitis has decided to join us in our marriage. Within the first 3 years of marriage, J.Cruz had been diagnosed with a VERY RARE disease. Not one medical professional could give us a reason as to why he had inflammation in this spine. He was a healthy 31 year old male with NO previous medical conditions. We had a pivotal moment in our marriage whether we are going to move forward to...
Battlefield: mindset to function with Transverse Myelitis & other rare diseases
Переглядів 1563 роки тому
We cannot control the outcome of our efforts, but we can control our efforts to effect our outcome.
Stronger together: my best supporter while living with Transverse Myelitis
Переглядів 993 роки тому
Stronger together: my best supporter while living with Transverse Myelitis
Transverse Myelitis encouraged: He’s not done with me yet
Переглядів 2353 роки тому
Transverse Myelitis encouraged: He’s not done with me yet
The Meeting: Searching for a doctor who is knowledgeable with Transverse Myelitis
Переглядів 1713 роки тому
The Meeting: Searching for a doctor who is knowledgeable with Transverse Myelitis
The Comeback: Transverse Myelitis takes a TOLL & I have to push forward
Переглядів 1374 роки тому
The Comeback: Transverse Myelitis takes a TOLL & I have to push forward
Status of my heart even though I struggle with Transverse Myelitis
Переглядів 1554 роки тому
Status of my heart even though I struggle with Transverse Myelitis
ANOTHER DAY IN THE OFFICE WITH TRANSVERSE MYELITIS
Переглядів 2594 роки тому
ANOTHER DAY IN THE OFFICE WITH TRANSVERSE MYELITIS
What drives me: living life with Transverse Myelitis & it’s symptoms
Переглядів 8944 роки тому
What drives me: living life with Transverse Myelitis & it’s symptoms
Day in my shoes with Transverse Myelitis
Переглядів 1,3 тис.4 роки тому
Day in my shoes with Transverse Myelitis
My Acute Transverse Myelitis Story
Переглядів 6 тис.4 роки тому
My Acute Transverse Myelitis Story
Does eating Healthy = Weight Loss?
Переглядів 1114 роки тому
Does eating Healthy = Weight Loss?
Within. Health & Wellness: Why Transverse Myelitis lead me to motivate others to live a healthy life
Переглядів 2674 роки тому
Within. Health & Wellness: Why Transverse Myelitis lead me to motivate others to live a healthy life

КОМЕНТАРІ

  • @michaelorsini9695
    @michaelorsini9695 21 день тому

    I've had it for past 5 months. I can walk with a walker and for short distances without a walker. But I still have a lot of pain in my hands, arms, elbows, feet. Still have urinary problems peeing all the time and constipation as well. I try to stay active...hope this eventually gets better...we'll see...

  • @shahidhussainranjhani1642
    @shahidhussainranjhani1642 Місяць тому

    I wants to know about your medical treatment?

  • @pearlpandey859
    @pearlpandey859 4 місяці тому

    Anybody who recovered from Tm in india i am searching for hospital

  • @agiusproductions5092
    @agiusproductions5092 4 місяці тому

    Hey bro have you tried stem cells or considering it if so has it helped I’m 22 dealing with pretty similar situation

  • @madhavmahatma7113
    @madhavmahatma7113 5 місяців тому

    Thanks for sharing your experience

  • @Theworkingmantv
    @Theworkingmantv 6 місяців тому

    Yo bro what’s your instagram????

  • @adalinerose7451
    @adalinerose7451 6 місяців тому

    On May 21st, 2007, my life changed as well. In my case it took 6 months to be properly diagnosed. It's really amazing what a person can adjust to when they have no choice. Botox shots in my bladder every 6 months has been life changing for me. As far as BM, I'm good for about 3/4's of the time. Though it took me awhile to accept and realize once I get the feeling to go, I need to go then, there's no waiting. I've never spoken to other people who also have TM so I like to share that a really deep tissue massage is like a gift from God! It's the only time that almost all my pain goes away. Well, until I fall and everything tightens right back up. But a deep tissue massage every day would be wonderful! I also used to go to the YMCA just to use the Hot Tub and the minute I step in, every single muscle in my body relaxes! Once I climb back out, all my muscles tighten up again.

  • @darrellmckelvie
    @darrellmckelvie 6 місяців тому

    Thank you. ❤️ On the best days, or in a dream, I’m running up the mountain. Most days, I’m rolling my wheelchair up it. My family keeps asking when I’ll reach the peak. I just keep moving, head up as high as I can hold it. Thank you for sharing. Keep it up. 👏 I needed this today

  • @djelliott4524
    @djelliott4524 7 місяців тому

    Hey brother, thank u for sharing your story and stories. I'm in abt month 7 of what TM after being convinced it was stenosis...actally thought it was tumors in spine or brain...anyway, where were u physically at the 2 yr mark? Neurologist said I was luck to have a "mild" case. Im working to get more information. Hopefully you are one of the lucky ones that made a recovery 🙏🏻...if you're watching this I pray for you and that you heal inside and out. God Bless

  • @agiusproductions5092
    @agiusproductions5092 7 місяців тому

    Dam bro I’m going through the same thing everyday I’m training everyday feel like I’m lose more mobile and strong wake up the next day and I’m back stiff again I’m only 6 weeks post how long was it for u until the little improvement stuck and became permanent? And when did just get to the timeline where it just kept restarting every day Thanks bro appreciate u making these vids

    • @theadaptivefamily
      @theadaptivefamily 6 місяців тому

      I’m sorry to hear that but glad to hear you’re hitting the training. In regards to stiffness it’s gotten better as I learned to recover better but I’m stiff every morning, after every nap, or after sitting long durations. But a combo of tracing and recovery helps minimize the time it take for the stiffness to go away once I’m up. Hope that makes sense

    • @agiusproductions5092
      @agiusproductions5092 6 місяців тому

      Yeah brother it’s so frustrating I have lost sense of soft touch as well from the chest down pins and needles in my legs aswell and strength in my right hand and left hip left calf other then training is there anything else you reckon I should try so that can help me and when do you think your recovery stopped and became stabilised and sore no more permanent improvement thanks for responding appreciate it

  • @djelliott4524
    @djelliott4524 7 місяців тому

    Thank u for sharing brother. Im 6 months in. Got VERY lucky with mine. Shingles virus flare up then immune system went crazy. Im always looking for more info on this as Im sure most that watch this video are as well. Neurologist thought I was done progressing and I pray he's right. Letting the body do what it needs to do, that was well said. Finding a way to be grateful each day. Glad Ive found some youtube channels that address this. So rare. 140 ppl a yr in the states!?

    • @theadaptivefamily
      @theadaptivefamily 6 місяців тому

      Thank you for sharing and keep it up! God bless you and let me know how I can help

  • @WhitneySt0rmy
    @WhitneySt0rmy 7 місяців тому

    My cousin developed this in '06 very quickly. She was 18. She was totally paralyzed and put on a ventilator on day 1. It took doctors over a month to properly diagnose her. Which means she didn't receive care or medication that might've helped her recover more mobility as she recovered. She could never do more than lift her arms. She passed away from multiple organ failure 2 years ago. She chose not to get lifesaving treatments. Your story and some in this comment section have given me more hope in the medical world. It seems doctors are at least a bit more knowledgeable about this now. I'm here today because I miss my best friend and cousin. She was so kind and I know she would be very happy that most people do get better from this. I pray that you continue to recover and get better and stronger. And same for everyone else that got this horrible disease. 🙏🏻

    • @theadaptivefamily
      @theadaptivefamily 6 місяців тому

      Thank you so much for sharing your store. I really appreciate it very much. God bless you and your love ones. We keep fighting for those who cannot

  • @thomasgflynn
    @thomasgflynn 9 місяців тому

    Hi, I was diagnosed with transverse myelitis 5 years ago. My onset was similar but much quicker than yours. I got out of my chair after watching TV late one nigh with my wife and I noticed a slight inbalance in my walking. I wasn't sure what it was and proceeded to walk about the bedrooom for about an hour getting worse and worse as time went on. I woke my wife up while I was holding onto the walls for balance and when I got to the hospital, my legs gave out. The nurces said I looked like a new born baby deer stumblinf around. The res of my story is similar to yours. I can walk with some pain and weakness. I have a spial stimulator and a pain pump with directed morphine for pain while walking and sitting (especially while sitting).. And now, more than previously, my mental state is dark. Vey dark. I'm hoping someone can write about the mental state to possibly help me....

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      I am heartbroken to hear this. Our bodies failing is one thing but our mental state failing is another. Maybe a reevaluation of your environment and those around you could help change the mindset. For me in my life relationships are everything. Relationship with God, my Spouse, my family and friends. Isolation is dangerous and I even had to say good bye to some bad habits and friends that kept me spirit low. I will be praying for you for sure. Thank you for sharing

  • @russellfisher3103
    @russellfisher3103 9 місяців тому

    God bless you, thank you for sharing. Sounds like you are doing well but staying in tune with your body, thank goodness for your wife and family, god speed

  • @sharrison8155
    @sharrison8155 9 місяців тому

    Thanks for sharing because this is important info that is not discussed nearly enough!!! My son was diagnosed with MOG Antibody Disease (MOGAD) in 2019. (MOG patients can have transverse myelitis, optic neuritis, ADEM, etc.) He experiences the same issues with body temperature regulation with heat or cold exposure, and when he gets a cold or virus . Also Uhthoff's Phenomenon…It’s likely you experience this too. No one explained Uhthoff's to us in the beginning and it often makes a person feel as though they are having a relapse.

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      I have never heard of Uhthoffs before. I am going to have to take a look into it. Thank you

  • @karynd2368
    @karynd2368 10 місяців тому

    So sad to hear your story, I know 2 others who ended up with this diagnosis after getting the pfneedle , wondering if that could be a possibility since it’s been fairly rare until recently….any thoughts? Just trying to find a common denominator since these people were young and athletic and it came on suddenly, one 3 weeks later and the other 8 months later. 🤔 all the best in your recovery ❤️🙏🏻

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      It is known that it is a side effect of that treatment. Its obviously not publicized

  • @bridiellewellyn8469
    @bridiellewellyn8469 10 місяців тому

    Mine started in 2010. listening to you has helped me a lot. feel I gave in to it, which could be why ive not recovered so well. I had lots of hope in the beginning so am hoping things can still improve. good luck on your journey

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Thank you and I hope you can recover more fully

  • @humpdaddy6191
    @humpdaddy6191 11 місяців тому

    Do you have an opinion of what may have contributed to your TM?

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      A dormant gene from a Vaccine I took in 2009 but that’s just a guess

  • @valeriealv7503
    @valeriealv7503 Рік тому

    Waitin diagnosis from neuro i was hospital 8 month im walkin now livin my life halfway) no meds or pt my Lord got me strong im proof

  • @Mexzot
    @Mexzot Рік тому

    Oh FFS…thanks for turning this into a lecture on religion…not!

    • @687christian
      @687christian 11 місяців тому

      As someone who experienced total paralysis from just below the chest to my toes due to a rapid onset of Transverse Myelitis, I can tell you my story did involve the LORD's intervention. The neurologist snickered when my mom told him that God would heal me. He knew the statistics were not in my favor. I don't blame him; he saw cases like mine all the time. I'd likely feel the same way if I were in his position. However, after 3 weeks in that hospital, I was able to walk short distances with a walker. Another 3 weeks of inpatient rehabilitation and I was using a walker for greater distance. Yes, modern medicine like steroids and plasma replacement therapy helped significantly in my initial recovery. I had faith in Christ's healing power and I continued to exercise and put in the work. A couple months later I came back for an assessment: he was amazed and confessed it was a miracle. Bad things happen to decent people all the time, even praying/believing people. Sometimes God reminds us He's there. Physical healing isn't the greatest healing one can receive, but I sure am thankful to be walking and running again.

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Assuming you listened because you or someone else has Transverse Myelitis. Hoping for the best in that recovery

    • @Mexzot
      @Mexzot 8 місяців тому

      @@theadaptivefamily Thanks...yes it's a recent fun edition to my life's story. Thanks for the kind sentiment, likewise to you! No disrespect for your faith, I just don't share it, so it was annoying when looking for data and facts!

    • @WhitneySt0rmy
      @WhitneySt0rmy 7 місяців тому

      ​@@Mexzot Having such a negative and *visceral* reaction to someone speaking about their religion reflects poorly on you, not the religious person. I've done plenty of UA-cam searches on this condition. There are a lot of, "factual," videos on it made by doctors. This obviously isn't that kind of video. I hope you heal, mind and body. 💚

    • @Mexzot
      @Mexzot 7 місяців тому

      @@WhitneySt0rmy Perhaps, but the reality was I was in considerable pain, looking for information and had to invest quiet a bit of time (about 19mins) before it turned into a lecture on how his faith is what helped him through. I have no issue with his religious beliefs or faith, to each his own! My annoyance, which I feel is justified, was just the time invested before discovering it was only really about faith…if the title had reflected that then I wouldn’t have been annoyed that basically it was a total waste of my time. It’s the same as if someone came to my door, started telling me a story and after 20mins realised it was a sermon I had no interest in, because it became more of a story about how special he is and not sharing information. Personally I feel it’s arrogant to feel others share your beliefs…but hey, you do you! Regardless of the above, I have sympathy for anyone who has this condition, my only suggestion would be the title be changed to “My Transverse Myelitis Journey and how my faith in God helped me”, because as someone who had a very similar journey (slightly worse from a diagnostic perspective), I don’t believe “I was chosen by god to experience this”….it’s just a crap thing that happens to random people!

  • @uncivilizedrebirth
    @uncivilizedrebirth Рік тому

    Our stories are so close. Brother, I know the pain. I was diagnosed in 2015. I can fully empathize with you. People have no idea. Merry Christmas! Now I am fully recovered. You look to be doing well. Right on. Torture

    • @AnuSingh-ks6rg
      @AnuSingh-ks6rg 8 місяців тому

      Hello Sir would you tell how did u recovered any special treatment or hospital neurologist??? bcoz my brother has been diagnosed with ATM since 2014 no recovery at all...we are so done please reply

    • @uncivilizedrebirth
      @uncivilizedrebirth 8 місяців тому

      @@AnuSingh-ks6rg Yes, I can help.

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Thank you. What do you mean by recovered? Would like some clarification. Thank you

    • @AnuSingh-ks6rg
      @AnuSingh-ks6rg 8 місяців тому

      @@uncivilizedrebirth Sir actually we are in India Please let us know the hospital, any special neurologist for consultation.

    • @pearlpandey859
      @pearlpandey859 4 місяці тому

      ​@@AnuSingh-ks6rgdid you got the hospital let me tell also plz

  • @davidclancy3885
    @davidclancy3885 Рік тому

    Hi thank you for your video and i am glad your doing vrry well.. I am 6 months into TM. I cant pass bowel movemts. And bladder issues just dribbiling and sometimes not been able to wee at all.. But my question is do you have frozen and numbe feet and legs? Thank you.. Well done your a great dad also..

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Thank you. Have your tired strengthening you core like pelvic floor exercises? That helped and continues to help me with bowel and bladder. In regards to frozen feet it comes and goes. It mainly my right foot that feels frozen some times

  • @jannaolsen3557
    @jannaolsen3557 Рік тому

    You are so good. I have similar issues.

  • @annewhite9351
    @annewhite9351 Рік тому

    It sounds much like a spinal stroke. I had one in 1992 and it went undiagnosed for almost 30 years.

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Sorry to hear that

    • @86diggler
      @86diggler 4 місяці тому

      How did you end up getting a diagnosis of spinal stroke after such a long period of time?

  • @martaarroyo-ross1013
    @martaarroyo-ross1013 Рік тому

    Thank you so much for sharing. My daughter developed this 4 months ago and has slowly been climbing this mountain. Her faith , her husband and baby, her will, her community and family have be what has cheered and supported her through through this journey. As a mother it is good to hear from you how you feel and all you go throught to try to understand her better day to day. She just turned 30 years old and wants to continue working and growing her family. We are here to support them in any way they need, to love her and to try to understand in our hearts what may be happening in her mind and body each day. Your witness helps me understand. I will add you and your family to my daily prayers. Continue with God as your best friend and He will always provide.

  • @1000sk8tr
    @1000sk8tr Рік тому

    Thank you so much for sharing your journey with us. My younger brother has not officially been diagnosed with TM as they were not able to fully prove based on just symptoms. This video provides us with some insight that we find helpful. Question: Do you 'flare' or have minor relapses when you catch a cold or flu? My younger brother seems to have this when he gets a flu or undergoes severe stress.

    • @theadaptivefamily
      @theadaptivefamily 8 місяців тому

      Thank you for your comment. Yes I do have flare up when I get sick. It’s pretty painful and scary

  • @brendabarge9883
    @brendabarge9883 Рік тому

    Thank you for your honesty! Maybe hard for some to hear, but I’m a realist and like to know what I’m dealing with!

  • @agilechange722
    @agilechange722 Рік тому

    Thank you for your story. I have Kaiser as well, and they are "not impressed" with the "less-than-dramatic" progress of my neural decay. I wish they weren't trying to minimize the cost of appropriate test (beyond an xray). They do NOT live by the "THRIVE" motto. "Every exam came out clean" is what I feel they are trying to focus on. So far, they are giving me only marginal prednisone treatment. If you can help me know what I should be asking them to look for next, please do. My only concern is that they will keep putting me off while new levels of negative symptoms appear for me.

    • @theadaptivefamily
      @theadaptivefamily Рік тому

      So they haven't diagnosed you yet?

    • @westondoesit6127
      @westondoesit6127 Рік тому

      @@theadaptivefamily no, they haven’t.

    • @humpdaddy6191
      @humpdaddy6191 11 місяців тому

      Consider yourself lucky. My son (13 years old) walked into the emergency room with a headache and never left. He was diagnosed with MOG. Your God has nothing to do with your outcome!

  • @MrGuys-gl7zb
    @MrGuys-gl7zb Рік тому

    ua-cam.com/video/wzXCqgAAXuU/v-deo.html

  • @marilynquintana8540
    @marilynquintana8540 Рік тому

    Hi My Name Is Marilyn ay Have TM. What’s merecen Do You drink

  • @scarboroughrider
    @scarboroughrider Рік тому

    I have TM , got me oct last year. I’m similiar in symptoms and outlook

    • @theadaptivefamily
      @theadaptivefamily Рік тому

      I’m sorry to hear that. I’m praying you are having a good recovery

  • @marilynquintana8540
    @marilynquintana8540 Рік тому

    Amén

  • @marilynquintana8540
    @marilynquintana8540 Рік тому

    Amén

  • @valerychaves1011
    @valerychaves1011 Рік тому

    thank you, for your valuable input, to continue trusting in God.

  • @rayforceaddict
    @rayforceaddict Рік тому

    This experience mirrors mine so much. Everything from them trying to discharge me (and they did, only for me to come back the next day paralyzed), to trying to transfer gurneys and collapsing, to them struggling to find the diagnosis, test after test coming back clean, headaches from steroids, not feeling the spinal tap, etc. Thanks for sharing your story.

    • @theadaptivefamily
      @theadaptivefamily Рік тому

      Appreciate the feedback and praying for a great recovery for you

    • @uncivilizedrebirth
      @uncivilizedrebirth 7 місяців тому

      All the symptoms follow the same onset pattern, meaning it has a structure. I believe it is caused by something in our environment that has been artificially added. If all the cases were studied a commonality would be found. A medical detective with funding could solve this. Usually, truth is stranger than fiction.

  • @arshad3588
    @arshad3588 2 роки тому

    Did u get the full control of bladder and bowel?

  • @ls081082
    @ls081082 2 роки тому

    Thank you for sharing! 🙏me senti identificada! Yo fui a emergencias 3 veces y me regresaron 2 a casa por que no me creian que estava perdiendo movilidad en mis piernas! Solo me admitieron hasta que ya la paralisis estava subiendo hacia mi pecho y perdi movilidad de mis brazos, mi bladder dejo de funcionar al igual que bowel!! Para mi fue rapido en like 5 days to be paralyzed! Y no habia doctores que supieran que me pasava! Les tomo una semana y media para diagnosticarme! 1 in a millon! Me dijieron! Pero no pude hacer pt por que tenia covid! Good to hear you had a good recovery!! Siempre es bueno escuchar los buenos resultados y hacer conocer esta terrible enfermedad que llega y cambia nuestras vidas! Y que esto pasa a cualquier persona sin inportar historial medico seas chico seas grande! Solo hay que hacer awareness de escuchar el cuerpo and not to wait go to the emergency room immediately!! La recuperacion depende de que tan rapido tengas el tratamiento y el diagnóstico!!👍

  • @KaranSingh-io6ds
    @KaranSingh-io6ds 2 роки тому

    Thank you for making these videos. This is exactly what I needed to hear to get me through the month.

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Thank you for the encouragement and motivation to do create them. I'm blessed to see them do so good work in people

    • @shahidhussainranjhani1642
      @shahidhussainranjhani1642 Місяць тому

      Hello can i contact with you? Iam shahid from Pakistan so iam suffering From Transverse myelitis

  • @KaranSingh-io6ds
    @KaranSingh-io6ds 2 роки тому

    In how many months did you first start voiding on your own?

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Do you mean whern I fully stopped using the catheter or the first time i was a le to void without a catheter?

    • @KaranSingh-io6ds
      @KaranSingh-io6ds 2 роки тому

      @@theadaptivefamily the first time you were able to void without cathing. I’m 1 1/2 months out and I was fine and can even jog a little but I still have complete urinary retention and anejaculation.

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      I would say two months after. Yet technically I don't fully void till this day

  • @shaniqueedwards6476
    @shaniqueedwards6476 2 роки тому

    Thanks for another video..... Very informative. God bless you 🙏

  • @KaranSingh-io6ds
    @KaranSingh-io6ds 2 роки тому

    Do you still have numbness in your legs or did that go away? Are you able to feel temp on legs?

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Overall the numbness on my legs have gone but I wouldn't say feeling is restored. I can't really tell texture very well and sometimes my legs twixt because they don't know what's touching them. My right leg for sure cannot feel temperature but certain parts of my right leg can. It's very weird

  • @shaniqueedwards6476
    @shaniqueedwards6476 2 роки тому

    I'm glad you are back, really motivational👍

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Thank you. Very much. I appreciate your encouragement

  • @shaniqueedwards6476
    @shaniqueedwards6476 2 роки тому

    I have NMO, and the heat is doing me really bad.

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      I'm sorry to hear that. Hopefully you can make some progress towards it

    • @shaniqueedwards6476
      @shaniqueedwards6476 2 роки тому

      What you said really motivated me,I do realize since recently that during summer symptoms increase and the body gets weak but I have been overlooking it. But now that I know, and as you advised regarding nutrition, being hydrated... Gone try that thank you.

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      I'm happy to hear that. Follow me on Instagram and we can communicate through there so I can attempt to help you out on your recovery

    • @shaniqueedwards6476
      @shaniqueedwards6476 2 роки тому

      I did... And I have recently messaged you also. #nyquese/Shanique

  • @brandonpainter163
    @brandonpainter163 2 роки тому

    Nothing but love for you my man! It’s a two way street thats how love works. Keep up the great work! You’re killing it.

  • @ls081082
    @ls081082 2 роки тому

    😇😃👏🙏so glad to see you here again!! Don’t feel guilty!! You went through a process God is working with you and that is awesome!! Looking forward to keep seeing you in this platform!! 👍👍

  • @KaranSingh-io6ds
    @KaranSingh-io6ds 2 роки тому

    Did you have urinary retention initially? How long did it take for you to start walking from the day you got TM? Thanks

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Thank you for your comment 1. I do have unirinary retention which is why I make sure I drink plenty of water to make sure it being filtered through. 2. From contracting the disease to taking my first un assisted step was about 4 weeks

    • @KaranSingh-io6ds
      @KaranSingh-io6ds 2 роки тому

      @@theadaptivefamily I just got diagnosed with TM about a month ago and originally I had lost most of my mobility in my legs and they were very numb. But a month out now and I’m able to walk unassisted for short distances. Im looking forward to the recovery the next few months bring me. Unfortunately I’m still have to intermittent catheterize because I have urine retention. I’m hopeful my bladder will start working on its own again. Did you have to catheterize initially as well? Thank you for sharing your story btw, it got me through the first two brutal weeks. Your an angel!

    • @theadaptivefamily
      @theadaptivefamily 2 роки тому

      Thank you for the kind words Yes I did begin catheterization when we I was discharged. Once my bladder got stronger I slowly pulled away from the frequency of using the catheter. My bladder strength came through specifi abdominal exercises

    • @darrellmckelvie
      @darrellmckelvie 6 місяців тому

      Great video, amazing advice, dope community you’re building. I found lymphatic massage to be my effective route to bladder/bowel function. It’s rare to find someone capable, and it’s a vulnerable experience. But that turned my condition around quickly (at least as far as those symptoms, which can be some of the more annoying issues). Best of luck to you both, thanks for sharing ❤

  • @danielpantss
    @danielpantss 2 роки тому

    I am the early recovery from TM, thanks for shairing

  • @GIBKEL
    @GIBKEL 2 роки тому

    This is my experience with it. It began as the worst pain I have ever experienced; worse than breaking any bone, even my back and continues to be, nearly 30 years later. Started in my mid 20’s and a constant, affecting bladder, unexplained anxiety, like I’ve done something terribly wrong but it never comes to you, just what you’ve done; as if you are being punished for an unknowable crime. Had me curled up in bed for two days and when it broke it felt like morphine tapping into a scratch that only it can itch. I eventually had a late diagnosis of MS at age 52 nearly 30 years later. I’ve been disabled and unemployable since I was 34 with frequent attacks. I began as an archaeologist and finished any college related training by giving rock talks at a visitor center near the end of being barely employable. Had a neurologist laugh me out of his office, accusing me of only drug seeking. Chased out by urologist who declared “no 20 something has an issue with peeing.” First clues only revealed later after a spinal tap. Worse medical procedure I’ve ever had. At least most scared given the kind of spinal pain you can experience. Ive had love. That is how I made to this day, only love. Friends can and will desert you as it is not comprehend-able nor relatable. I live by the day. I’ve traveled the world with one foot in front of the other following my kiwi girl. My spinal tap showed that I either had a brain tumor or severe MS. MRI with contrast revealed all the extensive lesions. Please, anyone that is experiencing this for the first time, do not chase your new diagnosis through a web search. It will break your heart and what might lay ahead. You learn to live for the moment, by the day and weight the suffering with love and passion. When I got my first two days of IV steroids, my experience was akin to the expression, “the weight of the world had been lifted.” These neurological conditions are as unique as we are. I didn’t know that it can go hand in hand with MS. You get a few minutes with a doctor, who really isn’t interested in what your experience is. Pain that radiates through my thigh bones and causes severe spasm in back, shutting down your ability to Ora even when your bladder is sending signal after signal. Deification the same . Shuts you down nearly entirely. Pain is universally ignored as it is seen as subjective and worse, it’s just as invisible to strangers or friends, and especially by doctors. Pain can only be seen by the people who truly love you, especially through this past opiate crisis, because of the mere implications of what you describe, and that is unbelievable and politically reviled. You wrestle with the relief that dying will bring at the same time that all you want to do is live.

  • @jamescoten8809
    @jamescoten8809 2 роки тому

    Did u get back to at least 80 percent

  • @lorraineophoff4984
    @lorraineophoff4984 2 роки тому

    Thank you for sharing. I have had MANY medical tests, dr appointment with Neurologist in an hour.