Відео

I hate the comments of its in your head, or its because you are over weight. Ive been suffering since I was a baby and was finally taken seriously at 21 and now I am nearly 36 and its taken my life away.

Brilliant insight into a terrible disease. Proud to say I know some of the people in this film, this is outstanding. Well done xx

From the first time I presented to A and E with a joint subluxation, to getting a formal medical diagnosis of hypermobility, took 33 years. I'm now having genetic tests as I have symptoms of one of the rarer types. Thanks for making this moving film. I was struck by the unusual demographic of so many medical students with EDS.

thank you for making this. Very important do teach and spread the word on EDS

🙌🏼🙌🏼🙌🏼♥️♥️♥️

Thank you ❤

The only way I have found I could get any diagnosis and care is private, I'm disabled and I can't afford it 😢

I experienced a spinal CSF leak which is a type of headache more prevalent in the EDS/HDS community. Thankfully Dr Simon Ellis and his team at UHNM got me fixed and my symptoms all vanished including many of my EDS symptoms too. Forever thankful. It’s a pity there was no mention of autism and adhd which virtually all people with symptomatic joint hypermobility experience including marfans patients. Please remember hEDS and HSD are incredibly common whereas the other types are not.

I feel this is so true, just because they don't understand it they fob you off! Surely just to know who to send these patients too ❤

I’ve shared this everywhere this morning! As someone living with EDS I could relate to something everyone said in this video. Thank you for making such an in-depth look at EDS 🖤

Amazing documentary - As someone that lives with EDS I can 100% relate - thank you so much for sharing 🤍🖤🦓

Thank you to everyone who took part and produced this film. ❤