Відео

Non-24 is my problem. Try booking a flight two weeks ahead and the find out, as the date gets closer, that it falls into your sleep cycle. Any appointment made a few days or more in the future might be sabotaged by sleep cycle. And then try to explain it to anyone else. If I had a common disease people could accept it. But most people are unable or unwilling to use my condition as a reason for cancelling plans. Family members are the toughest of all to convince. And they are also the most commonly affected bystanders I upset.

N-24 is my problem. After seeing this video and reading some comments I feel less like a freak. Its rarity is reflected in how hard it is to find anything that matches my condition. The testimonial slides you showed is ME. Thanks for sharing this.

Please, for the love of all that is good, do not use "loneliness" as a reason for such a serious sleep disorder. It is not a joke. We suffer daily with this & it is not a psychological disorder. I live with this & it can make you lonely when you can't be around other people because of the times one is awake when everyone else is asleep but it is not what causes this disorder. It's common sense. Put yourself in our shoes & then you won't say it's that. This is a perfect example as to why we struggle to get a diagnosis if we try because the incredible majority in the medical field have no earthly idea what causes it. The best hope is the genetic research. May we not give up hope regardless of the assumptions constantly made about us. We are not lazy, irresponsible, undisciplined, poor planners. We fight every f'ckin day to find a way to get things done & still get sleep somehow. Again, this is not a psychological disorder. We are resilient, determined, master planners, creative, advocates of our own health condition, careful, very in-sync with our bodies, some of us are ADHD, Autistic or AuDHD- non-Neurotypical & extremely patient but the list could go on. The genetics look likes it will show us the way. This is not a social issue. Come live in our shoes & picture what it would be like for you personally if you truly want to understand.

I have this disorder and wasn't aware of it or i always wondered that's the name of this disorder until i ask chatgpt about my sleep pattern, and it suggested that it's 'Non-24-Hour Sleep-Wake Disorder,' at least now i know there are more people who have this delayed sleep each day like me, i am not the only one ;(

Can you please tell us does melatonin help

It's honestly wonderful hearing about other people who have this. I already assumed it wasn't just a me thing - I've been getting my eight hours, etc, it's clearly *healthy*, just not *normal*. I'm sighted, by the way - maybe I should just keep my curtains open more to stop his from happening lol

I was quite honored to present the survey results paper at the NIH on behalf of Circadian Sleep Disorders Network. Sleep Medicine’s publication of our paper has given us additional credibility - we ARE gaining attention. Thanks to Peter Mansbach, James Fadden and Lynn McGovern for the survey AND the paper as well as to the hundreds of circadian rhythm sleep disorder sufferers who responded to the survey. It was 7 years in the making!

Thank you. I have it all. Delayed Sleep. Non 24. Depression. Loneliness. Id be interested to know what chromosomes I have that are effecting my sleep.

Thank you Alex and thank you CSD-N !

The only reason I found this video is by asking ChatGPT "what disability is having a 26 hour day+night cycle?" assuming it'll tell me there is none and i should just be more disciplined. None of the doctors I've consulted have ever brought this up. GPT said 0.03% of sighted people have this so approx 1/3333. It could be wrong but that's still a tiny percentage. I am a sighted but have had 'visual snow' all my life accompanied by almost daily migraines. Completely impossible to live a normal life. Great to know this isn't me 'making things up' as people have claimed.

So, I guess this would be covered under the Americans, disability act, and IDA, the individuals with disabilities education act? Whenever I was doing my educational readings, I never heard anything about non-24. However, it would’ve been good to use it as a thesis topic During those educational courses. I wonder if Louis Braille, from Cook, France, would’ve had this disorder in his own time. 3:05

Hey I do this...

I'm also wondering if being on computers for many hours per day is making this more common in our society, since light entering our eyes is apparently the MAIN way our bodies know when it's daytime, ,and when it's night.... and hence, when we should be up vs when we should sleep. If anyone wants to dialogue about this, and share experiences, I'm curious what you think about this!! -Fred PS. I am sighted, so obviously what I'm talking about would not apply to the blind, since their eyes can't see light.

I strongly suspect I have this, as I've experienced the 25-26 hour pattern for many years, but when I get to the point that I'm getting up too late, and hence staying up too late the following night, I'll force myself to stay up the next night so on the following night I'll be so exhausted, I can go to bed earlier (instead of progressing "around the clock"). Then the cycle will repeat again, getting up at a reasonable hour for a few days, but staying up too late and gradually getting back to the point where I'm up til 5 or 6am, and sleeping until afternoon. If anyone has any thoughts, knowledge or experience about this, or any suggestions, I'm all ears. I'm retired so my schedule I completely flexible, but I haven't made morning appointments for years because I don't want to miss them. I'm not blind by the way, though I'm nearsighted and wear glasses... and I'm VERY curious whether the fact that my eyes are EXTREMELY sensitive to light (some times more than others, it comes and goes)... sometimes to the point of pain, and I've almost had to pull over several times while driving when the light is too bright, or say it's raining, and oncoming headlights hit the drops on my windshield and the light is magnified. I'm thinking the use of artificial lights at night (while up all night) is messing with the light-sensing function of my eyes, which is tied to my circadian rhythm, and body temperature, melatonin and cortisol from what I've been reading, so my body basically has no @#$%ing idea what time it is, LOL. Pardon my language... there must be natural ways to correct this, I am not a fan of pharmaceuticals. Thanks for any useful input or information you might have!!! -Fred Z

My husband's cycle is 30 hours. In Japan,many people don't know non24.he would feel better if he lived in 30 hours cycle,though,it seems hard because some days he has to adjust to other people.

Me watching this at 4.50am …

I wonder if there are any networking people about this Topic in Germany ? That would be extremely helpful!

thanks for these important and true words !

I've had Non-24 at least all my adulthood (so over 20 years now), perhaps even longer. I'm sighted. I would pay a lot of money if there was a surgical operation that would fix this horrible disorder.

I have this and its horrible when I know I need too be up early in the morning I will stay up a full 24 hours in the days prior to an event so I will be tired enough too go too sleep early the night before and be able too wake up early. This might fix me for couples of days but never permanently. Unfortunately I do this often sometimes I fail as well somehow still not being able too sleep even on my second day of being awake. I usually go too school each day with 2 hours sleep or sometimes none at all. I really feel like I have no control in my life I’ve been dealing with this since I was a young child

Thank you.

This makes holding down a job and just normal life in general very difficult for me.

It wouldn't so much be a disorder if we accommodated for it. E.g., I'm sure there is a demand for shift workers who come in at a different time everyday. Then these "sufferers" can live in peace.

I'm the opposite...I fall asleep earlier and earlier, and wake up earlier and earlier. Right now I go to bed between 6 and 7 PM and wake up between 3 & 4 AM. FOR THE DAY. and NO NAPS.

Thank you so much!!!

Two years ago I stayed up till 3 or 4 am every day and since then I have not been able to wake up early and function. I was forced to take early morning classes for college last year and I had really bad sleep deprivation. Coffee does not give me energy, so I was constantly miserable. Yet when it got to the late evenings I would no longer be tired and would have energy to do school work until 3am. I was getting less than 8 hours of sleep every week day and it was awful. I’m now forever stuck with this cycle… I tried staying up 2 hours more each night but I just randomly woke up after only sleeping 5 hours and became extremely tired 4 hours later. This caused the whole plan to fall apart and now I’m lying awake at 5:30 am again after sitting in bed for 7 hours…

My son has CRSD but it isn't related to Narcolepsy.

most of my school day sleeping schedules are wake up at 7am, go to sleep at 1am, move around in my bed for 2 hours before falling asleep

I have never related to people in the comments so much right now. Its 6am and still can't sleep usually its about 4-8am. No matter how long I sleep I'm always really tired when I wake up too. I can never sleep early no matter how tired. I've tried everything stayed up for days. I used to work 6 days a week with hardly any sleep was miserable. No matter what I'd always not be able to sleep until certain times. I could be mentally and physically drained and still be lying in bed :( I used to sleep 10 plus hours but now I always get about 8 which feels like nothing. I wake up sometimes to random noises and dog barking, falling back asleep and waking up about 10 times is killing me slowly. My sister doesn't understand and constantly on my case. I've explained a million times that it's not possible its fucking annoying hearing her go on and on.

I think I must have this, I can never get to sleep much before 2am. I figure I haven't gotten much more than 2-4 hours of sleep per night for the last 25 years, save for those periods I worked nights. I just switched to nights for my current job, I finish my night around 330am and I'm in bed typically by 5am and up at noon. I am much happier this way and getting much more sleep, about 7 hours a day or more. And I get to wake up on my own, no alarms which is great!

I think I have dspd. I am thirteen and fall asleep around 3 am. My bed time is 8:30. Once I slept till 3pm

Ok i get all this to a degree, but what im dealing with is, just not sleeping at all. Currenty as im writing this, im going on 22 hours of being awake, after only sleeping 3hours, and before that 3hours of sleep, i was up for 37 hours stright. I dont feel tired, i was very active and was doing A LOT, i wasnt just sittin around. And this has been becoming normal the last couple weeks, i think ive gotten less then 20 hours of sleep this whole week. Im even drinking at night to just try and put myself out (hasnt been working and usally “outlast” the state and sober up in the next 5coming hours) i dont understand why im still up and i dont see very much on something like this. And no, i dont seem to experiance the effects of a sleep deprived mind. I can say that because my job requires me to hold metal parts to a .0001-.0003 of an inch tolerance on some features, witch requires attention and critical thinking. Wtf is not sleeping called, just like at all? Is there something wrong with my brain? Now i wounder if i have a tumor in my head

I always liked the graveyard shift

I fall asleep at around 7am and wake up around 3pm whenever on break from school, or in last years case all of covid stay at home period. During school I get maybe 3-4 hours of sleep at most on school nights, then on friday night ill usually pass out from exhastion around 2am and wake up the next day at 3 in the afternoon. Living like this sucks ass.

As someone who’s been suffering from this disorder my entire life and I’m in my 30’s now, so I never “grew out of it”, there are 2 things I have to say- 1. Our society looks at everything that’s not practised by the majority as “disorder”, “bad” etc but look at the way hunters-gatherers sleep - it’s all over the place. Our ancestors needed someone not to sleep when the majority of people sleep so that person could watch others sleeping in case there’s danger. Most likely your ancestors were those people and it became an evolutionary adaptation. Since we no longer need it in the modern world, it’s causing problems now. 2. I’ve tried every method under the sun. My body wants to sleep at 3/4am but nights when I go to sleep at 6/7am aren’t rare either. One of those methods actually helps me - try taking melatonin NOT right before you need to sleep (like 10.30 if you plan to sleep at 11p) but 2-3 hrs before that time. I take it around 8pm if I want to sleep at 10/11pm and it gives my body enough time to realize that this is not a prime energy zone time - it’s time to think about sleeping and to get ready to go to bed. There’s only one downside for me - I usually don’t wake up in the middle of my sleep if I sleep late the way my body wants. But if I sleep early with the melatonin method I sometimes wake up in the middle of the night at like 2-3 am and can’t go back to sleep bc inside my body it’s instant PARTY TIME🥳 so I might need to take another melatonin which would make it more difficult to wake up or if you don’t wanna take it you’ll pretty much have to be a zombie for the day. Just try to avoid napping on the days like that (it’s crazy difficult, I know)

Anyone else give up trying to explain this to "normal" sleep-abled people?

I straight up don't feel good when constrained to a 24-hour-cycle and never knew this was an actual disorder. If I don't have any other obligations controlling when I am awake or asleep I find my natural cycle to be about 18-20 hours awake while 8-9 hours asleep

Thank you for making this video! I'm gonna share it with people who don't understand me and others in my situation. Unfortunately my doctor is a lost cause on this as he has insisted in the past on having me do a second sleep study despite me being unable to obtain this cause of my ADHD. I asked my social worker recently to help me find a new one, I hope we're able to.

Me, 5 videos deep, each one describing me- 👁️👄👁️

I live in Spain and NO ONE knows about this disorder, even doctors, and I can't make them believe me

I used to have problems with this and then i just let my tiredness lead my sleep times and now i can hold a solid circadian rhythm as long as im fully nocturnal, sunlight has always caused me to feel tired and the lack of it wakes me up

The thing is, it shouldn't be seen as a disorder. It should be accepted as natural for some people, and it should be catered for.

Thanks

Grab a large set of headphones and let the vibration target the sleeping disorder. ua-cam.com/video/YMiqh9c08hw/v-deo.html

After so many years of struggling with early morning courses at school, I finally came across this information. I was always told that you can shift your sleeping habits by "just going to bed earlier" but that never worked out for me. I am currently taking my bachelor's degree and I am getting worse grades due to being half asleep during the courses caused by severe sleep deprivation due to the early morning courses. I have also noticed that my mental health started to degrade a lot due to this issue, causing symptoms of depression and memory loss. I am really concerned about my health and I am wondering if getting a diagnosis can help you to get late shift working hours when applying for a job. Also what jobs would you recommend which could offer a fixed late shift? I am currently studying electrical engineering and I am also planning to study applied computer science afterwards. Is there any hope for late shift schedules when applying for jobs in those domains?

This sounds like my life since I was a little kid; My mom says I've had my days and nights mixed up.

Haha fucker I can't sleep so I'm watching this I've been laying in my bed since 8 and it 11 now

Sunrise is when I sleep. I can try for hours but until I see the trees outside my window I won’t be able to sleep. The only way I can sleep before that is if I spend about an hour forcing my brain to go into random spirals of thought until my brain gets too tired. I only do that occasionally though when I have to actually do things in the morning as it is a very frustrating process

So..how do I treat it

Is quartine allows it i will bw going to b9arding school this year, ive always wznted to but the virus has brought me to the place where i would rather go on a bus but mh mother wont allow it. I recently realised i may have insomnia but came to thus conclusion i have tried to go to sleep early but quarntine has messed up my clock or something, i wont tell my doctors because mental disoreders are stigmatised here with my mom not allowing me to have a sleepoved with my bestfriend because here brother id autistic. The internet is of no help with DSPD and im now afraid that thus may affect my life in the long run.