- 175
- 161 719
ALS United Greater New York
United States
Приєднався 16 лип 2008
As one of the largest ALS service organizations, ALS United Greater New York supports and empowers the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care to individuals and families affected by ALS.
Talk. Learn. Connect. - Genetics & ALS
Learn about updates to recommendations for genetic testing, genetic counseling, and gene-targeted drug development.
Presenter: Elizabeth Harrington is a certified genetic counselor in the Eleanor and Lou Gehrig ALS Center at Columbia University. She helped develop and now directs the ALS Families Project, a study designed for family members affected by genetic forms of ALS, designed to understand the genetic underpinnings of familial ALS and the impact on affected families.
Presenter: Elizabeth Harrington is a certified genetic counselor in the Eleanor and Lou Gehrig ALS Center at Columbia University. She helped develop and now directs the ALS Families Project, a study designed for family members affected by genetic forms of ALS, designed to understand the genetic underpinnings of familial ALS and the impact on affected families.
Переглядів: 43
Відео
Dan Doctoroff, Jacob K. Javits Lifetime Achievement Award honoree
Переглядів 110Місяць тому
We are so thankful to our friends and creators at BBDO Worldwide for creating this short video about our Jacob K. Javits Lifetime Achievement Award honoree, Dan Doctoroff, Founder and Chairman of Target ALS. Having lost both his father and uncle to ALS, Daniel L. Doctoroff founded Target ALS, a transformative biomedical research nonprofit, in 2013 to accelerate the discovery of effective treatm...
Conversations With...Exploring Hard Decisions While Living with ALS
Переглядів 362 місяці тому
Welcome to "Conversations With... Exploring Hard Decisions While Living with ALS," presented by ALS United Greater New York with our staff hosts Nancy Brenner and Debbie Schlossberg. This episode addresses the benefits of pre-planning a funeral. Join our ALS United Greater NY hosts and Funeral Director Christopher Hassan as we explore key factors in pre-planning.
2024 Education & Resource Summit" My ALS Journey Thoughts, Reflections, and Unsolicited Advice.
Переглядів 413 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
2024 Education & Resource Summit: Respiratory Therapies
Переглядів 273 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
2024 Education & Resource Summit: Voice Banking and Beyond
Переглядів 153 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
2024 Education & Resource Summit: Accessibility Services of ALS United Greater New York
Переглядів 173 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
2024 Education & Resource Summit: In-Home Care Finding and Funding a Caregiver
Переглядів 263 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
2024 Education & Resource Summit: Patient and Caregiver Recommendations for Hospital Visits
Переглядів 903 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more!
2024 Education & Resource Summit: Nutrition & ALS
Переглядів 533 місяці тому
A two-day virtual Education and Resource Summit was recorded on Thursday, May 16, and Friday, May 17. Session topics included Genetics and ALS, Drug Therapies, Nutrition, Respiratory Therapies in ALS, and much more.
ALS United Greater New York - Luckiest Man
Переглядів 706 місяців тому
Lou Gehrig delivered one of the most famous speeches in sports history when on July 4th, 1939 he said the immortal words, "Fans, for the past two weeks you have been reading about the bad break I got. Yet today I consider myself the luckiest man on the face of the Earth." In this tribute, he is joined by some extraordinary people, who face what Lou did that very day.
Conversations With...Exploring Hard Decisions While Living with ALS, Episode Two.
Переглядів 1627 місяців тому
Welcome to "Conversations With... Exploring Hard Decisions While Living with ALS," presented by ALS United Greater New York with our staff hosts Nancy Brenner and Debbie Schlossberg. This sis part two of our first episode where we discussed the gift of legacy and memory. How might we want to be remembered? What creative steps can we take to ensure that our stories live on?
ALS United GNY 2024 Education & Resource Summit - My ALS Journey
Переглядів 728 місяців тому
Dr. Ajay Sampat is an Associate Clinical Professor of Neurology and Sleep Medicine at the University of California, Davis. He completed his medical school at the University of Chicago Pritzker School of medicine, followed by a neurology residency at Northwestern Memorial Hospital. He will be covering lessons that he has learned as a neurologist-turn-patient over the last two years living with ALS.
ALS United GNY 2024 Education & Resource Summit - Respiratory Therapies
Переглядів 448 місяців тому
Presenter Christine Mason has been a Respiratory Therapist for over 30 years. For the first 10 years after graduating college, she worked as an RT at Bryn Mawr Hospital. Although she worked on every floor of the hospital, Ishe mostly covered the ICU/CCU and the ED. In 2000, I relocated to NY and changed careers entirely. I started working at Wyeth Pharmaceuticals. In September of 2012, she star...
ALS United GNY 2024 Education & Resource Summit Voice Banking and Beyond
Переглядів 148 місяців тому
Presenter Trinity Deibert comes to Bridging Voice with over 15 years of experience with pwALS and AAC. Previously she has provided services to people living with ALS through a community-based home care agency in Portland, Oregon. Trinity has a strong focus on educating other clinicians to provide the best services possible to those with ALS and caregivers of those with ALS.
ALS United GNY 2024 Education & Resource Summit - Equipment Loan/Home Access/Assistive Technology
Переглядів 178 місяців тому
ALS United GNY 2024 Education & Resource Summit - Equipment Loan/Home Access/Assistive Technology
ALS United GNY 2024 Education & Resource Summit - In Home Care
Переглядів 348 місяців тому
ALS United GNY 2024 Education & Resource Summit - In Home Care
ALS United GNY 2024 Education & Resource Summit - Recommendations for Hospital Visits
Переглядів 228 місяців тому
ALS United GNY 2024 Education & Resource Summit - Recommendations for Hospital Visits
ALS United GNY 2024 Education & Resource Summit - Nutrition & ALS
Переглядів 478 місяців тому
ALS United GNY 2024 Education & Resource Summit - Nutrition & ALS
ALS United GNY 2024 Education & Resource Summit - How and When to Talk About ALS w/ Children
Переглядів 658 місяців тому
ALS United GNY 2024 Education & Resource Summit - How and When to Talk About ALS w/ Children
ALS United GNY 2024 Education & Resource Summit - ALS Genetics Options Today, Opportunities Tomorrow
Переглядів 838 місяців тому
ALS United GNY 2024 Education & Resource Summit - ALS Genetics Options Today, Opportunities Tomorrow
ALS United GNY 2024 Education & Resource Summit - Understanding the FTD in a FTD/ALS Diagnosis
Переглядів 668 місяців тому
ALS United GNY 2024 Education & Resource Summit - Understanding the FTD in a FTD/ALS Diagnosis
ALS United GNY 2024 Education & Resource Summit - VA Services & Benefits for People with ALS
Переглядів 588 місяців тому
ALS United GNY 2024 Education & Resource Summit - VA Services & Benefits for People with ALS
ALS United GNY 2024 Education & Resource Summit Drug Therapies
Переглядів 468 місяців тому
ALS United GNY 2024 Education & Resource Summit Drug Therapies
ALS United GNY 2024 Education & Resource Summit - Welcome followed by Perspectives on Caregiving
Переглядів 588 місяців тому
ALS United GNY 2024 Education & Resource Summit - Welcome followed by Perspectives on Caregiving
ALS United GNY 2024 Education & Resource Summit - Creating Purposeful Connections: Palliative Care
Переглядів 298 місяців тому
ALS United GNY 2024 Education & Resource Summit - Creating Purposeful Connections: Palliative Care
Conversations With.. Exploring Hard Decisions While Living with ALS
Переглядів 968 місяців тому
Conversations With.. Exploring Hard Decisions While Living with ALS
Her ALS Story - Iron Horse Award, Lou Gehrig Legacy Gala 2023
Переглядів 8 тис.Рік тому
Her ALS Story - Iron Horse Award, Lou Gehrig Legacy Gala 2023
2023 Education & Resource Summit Navigating the ALS Journey - Pharmacological Therapies in ALS
Переглядів 58Рік тому
2023 Education & Resource Summit Navigating the ALS Journey - Pharmacological Therapies in ALS
2023 Education & Resource Summit: Navigating the ALS Journey - NY Estate Planning & Medicaid
Переглядів 81Рік тому
2023 Education & Resource Summit: Navigating the ALS Journey - NY Estate Planning & Medicaid
Only 1.4 viewed, why is this blocked
We hear you😊
Thank you very very much
It breaks my heart. Why is the research so slow. I pray for you & all the poor people suffering. Xx ❤
in amyotrophic lateral sclerosis there are cramps and pains please answer
As a layman, i appreciated this explanation. My older mother has dementia and a recent ALS diagnosis - genetic testing revealed a previously unknown mutation of UBQLN2. She submitted a skin biopsy for further study. As her son I have a 50% chance of having this mutation but without a confirmed link I have no idea how likely this unknown mutation is responsible for her ALS. Given family history where her mother and Aunt both had dimensia I’m a bit concerned. Don’t know if anyone will see this comment (3yrs post video),but curious on an expert’s thoughts about how long this type of research takes or how concerned I should be :). Even without any response I enjoyed this video 😊
What is ALS what does that stand for
Iam first person als mnd no family no genitic iam young girl moon from Pakistan
Please help me iam young moon from Pakistan
This treatment is very expensive
As a blk woman, unfortunately this disease isn’t very well known in the blk community. A lot of us don’t know that much about this horrible disease. I’m so sorry this beautiful sista, has to go through this. I often wonder, why God would allow such a horrible disease to be placed upon a beautiful soul like samone. I don’t know if this young sista is still alive & fighting . But if she is, I’m praying for you queen 🙏🏽
May you have peace and prosperity
beautiful person
Terrible disease, great attitudes….
Jesus still heals, only believe 🙏🕊💟 Psalm 103 1Bless the LORD, O my soul: and all that is within me, bless his holy name. 2Bless the LORD, O my soul, and forget not all his benefits: 3Who forgives all your iniquities; who heals all your diseases; 4Who redeems your life from destruction; who crowns you with loving kindness and tender mercies; 5Who satisfies your mouth with good things; so that your youth is renewed like the eagle's.
What is price of this voice device
Terrible Disease. My cousin had this , we were the same age.
I lost a vibrant, kind, and fun-loving HS friend to ALS. God Bless you all. With Love and Hugs ❤
greatiings from germany #ALSohappy
Great interview and love this idea!!
lovely woman. . .you could easily be my daughter. ..
Ghastly disease. Prayers.
What a lovely family bless them
\
I've smoked most of my life. But started smoking more after the first symptom showed up. After my diagnosis five years ago, I'm still riding my motorcycle. I do get cramps and have weakness in my shoulders and arms, but that's it. I will admit I smoke more CBD's now.
❤
We just lost our beautiful friend to bulbar als. Such a cruel illness. We are off to her funeral today. Devastated to have lost a beautiful friend but relieved she is free from the cruel suffering this caused.
May you all be blessed by the love of Our Lord and his unwavering promise to always be present for us, for the asking of it. Peace faith and love for you all💕🥰
I always have ALS. I wish you all the best in peace .......
Thank you for sharing your life with everyone. ☺️. I lost my brother-in-law 2 years ago to this horrific disease. I wish you light, peace and love…
Well done. Thank you.
i take thc gummies half of one and hemp gummie every 6 hours around the clock and doing great with ALs
My mother recently diagnosed with ALS
Courage to you my mother also has als
@ratd29 when diagnosed?
"promosm" 😂
Rock on Positive Paul!!!
Stay strong brother nice video.
I need help. I want medical care. I'm getting weaker. I can't move me. muscle is lost. feet begin to shrink.
ALS has touched our family also . This disease is horrible. Prayers for you and your amazing family ❤❤❤❤Samone you are beautiful ❤
Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his UA-cam channel ua-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor 🙏🏻
Hello everyone am very happy today am cure totally completely forever form ALS disease with the help of Dr omoye you can also contact him on his UA-cam channel ua-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infections Body odor ..
Doctor.loca cure me from ,ALS, I’m free for it now thank you so much you can also contact him on UA-cam channel #DrLocaHerbs
Hello everyone am very happy today am cure totally completely forever form ALS with the help of Dr omoye you can also contact him on his UA-cam channel ua-cam.com/channels/lshMWAD9EFaKUTbdbtBH7A.html He also cure all kind disease Herpes simple Diabetes medication Penis enlargement product STD infection medication Monkeypox He also cure all kinds of disease such as Herpes simplex 1&2 Diabetes medication Penis enlargement product STD infection medication Monkeypox HIV/AIDS Low sperm can Erectile dysfunction Diabetes Hepatitis Pregnancy product High blood pressure Low sugar level High sugar level Infection’s Body odor 🙏🏻….
A big thanks to you #DrLocaHerbs Just confirm am completely free from .ALS.🇺🇸❤ with the help of his wonderful herbal medicine, may God continue to bless you and your wonderful herbal medicine thanks so much doctor_loca. anyone looking for any herbal medicine should kindly contact WhatsApp place your order for his lovely herbal medicine 👇#DrLocaHerbs
Beautiful strong family xxx ❤❤❤
Courage Desi❤️❤️❤️
I recommend #Dr_aza to anyone out here On UA-cam his herbal medicine works perfectly well and It Eliminate the ALS disease just the way he prescribe it. Trust #Dr_aza Care Giver.,
Is this lady affected by ALS ? Instead of just challenges, give with open heart.
Her smile is everything 😍 ❤️ I see Samone's beauty and how she was and her family is wonderful ❤️
Iam repeating myself but I really hate ALS.
I thank God Almighty who directed Dr Alaho Olu on UA-cam to me, he cured my Dad from (ALS)….