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IC Connect
Приєднався 26 вер 2018
Een dagboek tijdens IC opname
Per jaar worden er ongeveer 80.000 mensen opgenomen op de intensive care. Dat is een ingrijpende gebeurtenis met veel nieuwe informatie en een steeds veranderende situatie. Voormalige IC-patiënten hebben echter geen volledig beeld van hun opname; hun herinneringen zijn versnipperd en liggen niet in lijn met de werkelijkheid. Dit kan tot lichamelijke en psychische klachten leiden na de opname. Deze klachten heten PICS: het Post Intensive Care Syndroom.
Het verwerken van een IC-opname gaat mogelijk beter wanneer familieleden, vrienden en verpleegkundigen een dagboek bijhouden voor de patiënt. Zo’n dagboek geeft de patiënt inzicht in wat er precies gebeurd is op de intensive care en helpt bovendien om het vertrouwen in eigen kunnen te herstellen. Ook vanuit onze achterban wordt het gebruik van een dagboek geadviseerd, voor zowel patiënten als naasten.
Op het Health Valley Event, waar de Nationale Zorginnovatieprijs werd uitgereikt, heeft ‘POST-IC, het dagboek voor morgen’ de publieksprijs gewonnen, bestaande uit een geldbedrag van 5.000 euro. Van dit prijzengeld hebben wij, FCIC en IC Connect samen met Games For Health, een voorlichtingsfilm gemaakt voor het gebruik en het belang van een dagboek op de intensive care.
Wij zijn dan ook trots u onze nieuwste voorlichtingsfilm ‘Een dagboek tijdens IC-opname’ te mogen presenteren.
Het verwerken van een IC-opname gaat mogelijk beter wanneer familieleden, vrienden en verpleegkundigen een dagboek bijhouden voor de patiënt. Zo’n dagboek geeft de patiënt inzicht in wat er precies gebeurd is op de intensive care en helpt bovendien om het vertrouwen in eigen kunnen te herstellen. Ook vanuit onze achterban wordt het gebruik van een dagboek geadviseerd, voor zowel patiënten als naasten.
Op het Health Valley Event, waar de Nationale Zorginnovatieprijs werd uitgereikt, heeft ‘POST-IC, het dagboek voor morgen’ de publieksprijs gewonnen, bestaande uit een geldbedrag van 5.000 euro. Van dit prijzengeld hebben wij, FCIC en IC Connect samen met Games For Health, een voorlichtingsfilm gemaakt voor het gebruik en het belang van een dagboek op de intensive care.
Wij zijn dan ook trots u onze nieuwste voorlichtingsfilm ‘Een dagboek tijdens IC-opname’ te mogen presenteren.
Переглядів: 720
Відео
Boodschap voor al het IC personeel
Переглядів 1092 роки тому
Vanuit de patiëntenorganisatie IC Connect en FCIC willen wij, namens onze achterban, jullie een hart onder de riem steken. Wij hebben op jullie IC’s gelegen als patiënt of waren er als naasten of nabestaanden. Wij kennen letterlijk die andere kant. En nu hebben wij een boodschap aan jullie. Een boodschap zonder ons geluid, zonder onze stem, net als toen op de IC.
Non Invasieve Beademing
Переглядів 7 тис.3 роки тому
In deze video een beknopte uitleg over Non Invasieve beademing op de IC. Meer informatie lees je op: www.icconnect.nl
Zuurstoftherapie en Optiflow
Переглядів 11 тис.3 роки тому
Omdat Optiflow therapie een effectieve behandeling is voor COVID patiënten op de afdeling en op de intensive care hebben we daar een film over gemaakt. Door het inzetten van Optiflow kan vaak een IC opname voorkomen worden.
Cognitive and psychological problems after an ICU stay
Переглядів 10 тис.3 роки тому
In this video you learn everything about cognitive and psychological problems after an ICU stay. For more information about this subject, visit www.icconnect.nl
Post Intensive Care Syndrome Family
Переглядів 3,9 тис.3 роки тому
In this video you learn everything about Post Intensive Care Syndrome Family. For more information about this subject, visit: www.icconnect.nl.
Cognitieve en psychische klachten na de IC
Переглядів 2,4 тис.4 роки тому
In deze video vertellen we je alles over cognitieve en psychische klachten a een opname op de intensive care. Kijk voor meer informatie op www.icconnect.nl
PICS-F
Переглядів 3,5 тис.4 роки тому
Ook voor de naasten van IC-patiënten is de IC-opname een indringende en zeer stressvolle gebeurtenis. Familie en andere naasten kunnen hierdoor zelf psychische klachten krijgen die we het Post Intensive Care Syndroom-Familie (PICS-F) noemen. In dit nieuwe filmpje leggen we uit wat PICS-F inhoudt. Kijk voor meer informatie op www.icconnect.nl
Familieparticipatie op de IC
Переглядів 1,9 тис.4 роки тому
In deze video vertellen we je alles over familieparticipatie op de intensive care. Kijk voor meer informatie op www.icconnect.nl
Beademing op de IC
Переглядів 12 тис.4 роки тому
We leggen je in deze video uit hoe invasieve beademing op de IC werkt, wat ARDS is en waarom er soms wordt gekozen voor buikligging. Ook laten we zien wat een tracheostoma is.
ICU acquired weakness
Переглядів 21 тис.5 років тому
Some of the (former) ICU patients experience IC-acquired muscle weakness during and after their ICU admission. In this video we explain what that is and how important it is that early rehabilitation is started. This video was produced in collaboration with the Rehabilitation and IC department of the AMC, with Hoge School Arnhem Nijmegen High School and with IC Connect and FCIC.
Post Intensive Care Syndrome
Переглядів 14 тис.5 років тому
In this video we tell you everything about Post Intensive Care Syndrome. For more information about this subject, visit: www.icconnect.nl.
IC-verworven spierzwakte
Переглядів 8 тис.5 років тому
Een deel van de (voormalig) IC-patiënten krijgen tijdens en na hun IC-opname te maken met IC-verworven spierzwakte. In dit filmpje leggen we uit wat dat is en hoe belangrijk het is dat vroeg met revalidatie begonnen wordt. Dit filmpje kwam tot stand in samenwerking met de afdeling Revalidatie en IC van het AMC, met de Hoge School Arnhem Nijmegen en met IC Connect en FCIC.
Delirium in the ICU
Переглядів 23 тис.5 років тому
In this animation we tell you everything about delirium. More information about this subject: www.icconnect.nl.
Delier op de intensive care
Переглядів 16 тис.5 років тому
In deze animatie vertellen we je over delier. Kijk voor meer informatie hierover op: www.icconnect.nl.
FCIC symposium PICS; (her)ken jij het?
Переглядів 2716 років тому
FCIC symposium PICS; (her)ken jij het?
I had this in a 21 day coma vented...I saw crazy shit....I was also treated like shit ..my loved ones were not supportive
I have pics from Covid icu stay
I guess those caught up in 2020 Rockerfeller medicine horror DNR show were shit out of luck
Dorean is very lucky I had no help from.any one when I came home 😢
This has happened to me twice first icu coma was a week second was much worse a month in a coma on ecmo I don't think I will every recover mentally from this I'm always stopping mid sentence have trouble with my words flashbacks anxiety etc the list goes on the last coma was a year ago 😢
So relatable. Just two years out from Ecmo recovery
Kan de NICU misschien ook in het PICS-F betrokken worden?
Eil.jf opjoidrn mrg mijmlrvrnmjormmskhsnnje klrtdy klrtx meg dr negrrd ik.geffvjillif noooy holp kleys niry meg bhkir ok kfnnjilof fkngsorafjx jrng jillof niry hijmgasybjollif nlkndeling hflpfnmkk nirhnok hfpl sanortalk noog hijnis vrijpostih vfchyennlm.edn.man ook
Great video! It would be even greater if you could publish versions in different languages, in my case german. But I guess arabic, Turkish or Russian version would be very important
I was having wild delusions, reliving some of the most exciting times of my life, in the most vivid fashion. In my mind, I was on jump run, ready to skydive out of a DC3 three miles above the earth . . . going to be the last man out, my favorite position. It was the maximal flying of my body. Bursting into brilliant sunshine outside the airplane door, I immediately assumed a head dive with my arms tucked behind me (in my mind), feeling the familiar buffeting as I fell beneath the prop blast, watching from upside down as the belly of the enormous silvery plane started to shoot skyward, its huge propellers whirling in slow motion, earth and clouds below mirrored on its underbelly. I was musing over the odd sight of flaps and wheels down (as if landing) while still miles above the ground (all to slow down and minimize wind shock to the exiting jumpers). I tucked my arms in extra tight in a head-down dive to accelerate briskly to over 220 miles per hour, nothing more than my speckled blue helmet and shoulders against thin upper air to resist the tug of the huge planet below, moving more than the length of a football field every second, the wind roaring by furiously at thrice hurricane speed, louder than anything-ever. Passing between the tops of two enormous puffy white clouds, I rocketed into the clear chasm between them, green earth and sparkling deep blue sea far below, in my wild, thrilling rush down to join my friends, just barely visible, in the colorful snowflake formation, growing larger every second as other jumpers joined in, far, far below . . . I was flipping back and forth between being present there in the ICU and being out of my mind in the adrenaline-soaked delusions of a gorgeous skydive. I was between nutty-and getting it. For two days I blabbered about skydiving, airplanes, and the Internet to all who would listen. As my physical brain gradually recovered its bearings, I entered a strange and exhausting paranoid universe. In short, I was a little crazy.
This is what's happening to me 😭😭😭
❤ ThankYou for this information
Thank you for this
American Version: Ricardo abandoned Doreen and they are both in huge medical debt. Ricardo took all of Doreen's friends and then Covid would leave Doreen, in hospital, alone, again. fin
2020: 15 days in ICU and lost 13 kilos of weight. Extreme pain in legs and feet! 2023 : still not recovered. Depressed. Life and work affected a lot. Please help if you know anything about recovery! Warm Regards!
My grandma straight up saw Sadako at the foot of her bed when she was in the hospital with a broken hip. She didn't phrase it that way, but she said "a woman in white with long black hair" was standing at her bed. Sounded completely like a yurei. My mom, who was there at the time, freaked the fuck out (thought she kept it quiet and to herself). She knew it was an hallucination but still found it incredibly unsettling.
It was visiting her to see if she was ready to pass on? . Probably does a lot of work in hospitals whatever it's mission is, maybe to assist the soul to cross over. I hope she recovered 100%.
The whole world should know about delirium, Google it ,read about it,ask about it
Happened to my father! He was smart had the whole world ahead of him and now he can’t do his check book. Turned into a person that needs constant care.
My dad had a heart attack and spent two weeks in the ICU. While sedated he would try to pull out his breathing tube and IVs and all the other wires they had hooked up to him, so they tied him down to the bed. When they finally woke him up, he was still tied down so he FREAKED out. He literally thought he was being tortured like he was in the movie Hostel. He said he was seeing cockroaches crawling all around the room and he thought he was going to be tortured to death so his plan was to knock the nurse out with a chair then break the window with it and escape into the nearby green belt. He ended up getting one hand and leg free and was able to stand up and instantly collapsed. Eventually he recognized me and I'll never forget the look of shock on his face. He immediately asked me to get a gun and a knife and to cut him loose because they were trying to kill him. I said "No dad, they just saved your life." and he looked at me like I was crazy. The nurses essentially left it up to me to calm him down, and didn't even really try to explain anything to him or help him understand what he had just been through. Imagine waking up after an unknown amount of time in an unfamiliar place, tied to the bed, wired up to all sorts of machines and IV lines, drugged up and confused with unfamiliar people coming in and out of the room poking and prodding you and not untying you. That would scare the shit out of anybody. So they judged him like he was bat shit crazy. One of the nurses refused even give him a bed pan to relieve himself, let alone untie him to use the bathroom, so he was basically forced to shit in his bed. Of course that pissed off the nurse who had to clean it up, so apparently he threatened my dad and said "You're gonna be eating this shit here pretty soon." so we reported him and apparently that wasn't the first time he's said/done something like that. Those ICU nurses are so highly trained and experienced, the RNs are basically doctors themselves. Most of the nurses were really nice and pulled off the equivalent of a miracle so they deserve nothing but respect, but guys like that (not to mention the nurse who kept messing up his oxygen tube and medication doses last time he was in the hospital, almost killed him) just give them all a bad name.
I'm so sorry you and your family experienced this. It's horrific. It sounds SO similar to my mom's heart attack. Upsetting that these hospitals aren't aware and trained for delirium. Apparently it's EXTREMELY common.
Bro I went through something very similar, at one point I thought the nurses were out to get me (the only reason I lie still was because I had the conscience to think about the consequences of pulling an IV out)
I hope your dad is doing better now. Mine is experiencing ICU delirium right now and it is so unsettling because he has never had memory issues before. I hope it gets better soon because I miss him, how he was before.
@@jpeg42069 Thank you, he is for the most part. He still has heart problems but he hasn't been in the hospital for about a year now. Luckily the psychosis only lasted for about 2 and a half days before he was more or less back to himself. The nurses told me it can last up to a week for some people, so if it hasn't been that long yet for your pop I would guess he will be back to normal relatively soon. I wish you guys all the luck in the world ✌🏽
Good video but this really softens the blow. The reality of ICU acquired weakness is a living nightmare. My father is going through this right now and this video does not do justice to the horror that is ICU acquired weakness.
Lol no OT no party.
This is a very simplistic representation and it sounds so sweet and positive. My life as I knew it has been taken and only after nearly 2 years am I learning what actually happened to me. Things were never explained clearly and the follow up has been non existent. I was reluctant to claim medical negligence as my life was saved after over 100 days in ICU. On the day I was to be moved to another ward an ICU consultant said to me as he walked away, “Your journey is just beginning”. Little did I know that in the UK there was little help or recognition of the severity of my illness. I was dumped at home with basic care and limited physio. Had I known I wish I had died. As I was in a coma it would have been the most peaceful way to go.
I completely understand. I was put on the ventilator and was unconscious for well over a month, and stayed in ICU for a total of 7 months this past year. This road has not been easy. When I woke up, I had full blown neuropathy which never existed before. Went septic a total of five times. If it hadn't been for my mother being there with me to encourage me every step of the way (including while I was in inpatient rehab) I don't think I would have ever made it. I do hope your journey keeps improving!
Same I've been in 2 comas one was a week the second was a month and also on ecmo I only had physio in hospital nobody to help with tracheotomy wound cleaning noose physio I was left to it myself no dr came to visit me either time I don't ever think I will fully recover from this my dr was very negligent with my medication that caused me to be in coma in first place and nearly losing my life
Thank you for this educational video, IC Connect
Thank you, I was so scared for my wife.
I hope your wife is doing better now!
God bless and heal everyone who feels this.
Thank you for this. I recently spent a week in the hospital with sepsis from a UTI and while there, I experienced a lot of hallucinations. My family was so worried and confused. I was confused. I could hear my family outside my ICU doors and I could hear cops yelling at me to walk out the room backwards with hands on my head and the poor nurses were so confused! Lol I’m better now but it’s so crazy what the brain can do when your ill.
It’s so scary, huh!? Most terrifying experience I’ve ever had.
Clear message, clear structure, easy to understand, thank you
De beste oplossing voor betere gezondheid, langere levensduur van het lichaam (tijdelijk voortuig) en meer levensplezier en vitaliteit zou gewoon heel simpel meer natuur moeten zijn, dat zou het mooiste zijn. Maar zuurstoftherapie helpt zeker geloof ik. Bedankt voor de video.
Ugh, back then when I was 15 I had paranoia, hallucination..very bad ones, I saw things and I felt it, I don’t even know which was real and which was A living nightmare, my syndrome put me paralysed for really long time which make it worse. 11 days sleeping, and weeks of suffering, then months of depression, and now it’s scary memories.
Imej itu terlalu menyinggung perasaan
Kandungan anda sangat menyentuh
I thought I was in hell. I don't want to go back.
Delier gevolgen
Ja
And now family can’t be there like in my case due to COVID. Thanks.
I completely understand as I was ventilated for 24 days in April 2020 with Covid. Family had no involvement at all.
It is the Worst ever feeling i felt in my life.... Caused by alcohol 😥
Same. Craziest experience of my life. Thankfully the only bugs I saw were ants and not spiders, I wouldn't have been able to stay calm then lmao. Only had one night where I was having full blown paranoid delusions and hallucinations, but that's enough to remember. Had a few other small ones that stayed longer though. Like transparent auras balls (that was just cool, I didn't even question if they were real or not I just starred in awe), the ants, angles of walls being wrong. 0/10 don't recommend.
Is this Jessica from the @Crit_IC channel?
This is such a great resource! My only correction is that patients are not "sleeping" when sedated on the ventilator.
Nope usually having terrible nightmares, that are far more real than any dream they have ever had.
I just had this after lung surgery for a cist
I was having nightmares what's going on at this point.
We dont sleep. At least I didnt.
I was in hospital for 6 months and it took me a long time to be able to walk again...I still have this condition ..I am now able to walk (not long distance) but I can move about for short amounts of time..i then get very out of breath and dizzy..plus my sensation in my feet and lower ankles is not full there..I can still move about though...just not for long amounts...I went for a nerve conduction test 4 weeks ago and diagnosed me with this ..Tthere is hope and light at the end of the tunnel for anyone thinking they will never walk or get back to some normaility....Mental persistance is what helped me after 6 full months of not once being able to get out of the hospital bed...I may have slight mobility issues now and nerve issues but I am so glad to actually be alive! I was given 48 hours to live and a 1 in 10 chance of survival if I chose to go through with a ricky procedure..I cant believe I am still here...Miracles DO happen ! Keep the faith to anyone feeling low and in pain....Thank you for this fantastic upload! x
Got my nerve conduction test tomorrow, intensive care has damaged my right foot and left arm.... but glad to be here :)
@@greentambourine2323 Hi, i hope your nerve conduction test goes well and the outcome is positive, i am like yourself though as in i am just so glad i am still here...My left arm and shoulder is very weak too now and hurts when i move it in certain positions , very good luck and hope you get stronger x 🍀🍀🤗
@@RetroReminiscing Ta very much, had a brain scan and spinal scan, so now the other final tests tomorrow. They want to get to the bottom of where the damage originates as I had an ICU seizure. It is a bit annoying shuffling about in an ankle brace etc for only short distances, but the sun is shining today and all is well! Good luck with shoulder and arm 😁
@@greentambourine2323 Thanks you, I hope they manage to get to the bottom of where the issue lies so they can hopefully give you the right pain releif or help to make your quality of life easier ...i have learnt to live with certain ailments that i have due to a long stay in ICU , but there are times when it does still get me down and i think back to how i used to be...I can imagine the ankle brace must get very frustrating for you ...let me know what they say if you like after your results, i wish you all the best and have a lovely sunday 🌞
Thank you so much for posting this, I'm so worried about my wife currently in the hospital.
I was in a covid19 induced coma in The UK 🏴 10 days & 2 days coming out I lost 30lb All my strength. I could not even sit up in bed thankfully it was fully mechanical and sat me up. I had to be swivelled round so I was on the edge of the bed I could Not Move! I needed 2 nurses 1 each side to lift me to my feet I had no strength NO Balance ! If let go I would have fell over My throat was sore and difficult to swallow My nose was sore from the oxygen being pumped into me. Blood pressure test permanently on my left upper arm that automatically started every half hour I had similar things on my lower legs but from my foot up to my knees these also went off every half hour to keep blood circulation. I had an injection every morning and evening into my stomach to prevent blood clots I was constantly being monitored by machines and computers around my bed buzzers and lights going off. The nurses were very professional I had drips and shunts and a catheter It’s unbelievable how you lose All your strength and conditioning! I’m very strong mentally and making a full recovery thanks to my 38 year long faith in The Lord Jesus 🕊 HE is The answer 🙏🏻
Hi there! I had very similar situation like yours. I was pregnant I I got Covid on may 25. Then I stayed 4 weeks in ICU (3 weeks with ventilator). After all, now I can move, walk but the only thing that causes me drop foot , I can’t raise my big toes and there is still numbness under my knees 😭😭😭 I really need to now when I’ll walk normal
I am so pleased you are here to tel the tale...I can totally relate as I was in hospital unabale to move for 6 months ..The things you mentioned there bring back memories of having no control or strength to move or feel anything...the nursers having to pivot you round and hold you up etc...So glad you survived and are still here!I went from 9 and a half stone on admission to 5 stone and totally unable to move let alone try and walk...It hurts me around my chest when i try to breath in too deep nowdays or if i yawn/sneeze...as my lung capacity has also shrunk and i cant walk too far without getting totally out of breath and extreme fatigue...I have been out for over a year now and try and keep active with little dancing session in my own home to geep my muscles moving so they never seeze up again lol... Have a lovely day , Sonique x
This video is great, but where is the occupational therapist? It is sad for all of us therapists, that we are never mentioned. Physio und Ergo goes hand in hand
Give them water...
Thanks, hope wellness for you all
Fun fucking shit man
Wow, thank you so much for this video. I want to use it for my families in the ICU. I cannot imagine what is PICS-F looks like for family members of COVID who can only get snatches of visuals on the daily Zoom calls.
Thank you , very informative
Augmenting four cups without surgery seems like nonsense. For a more reasonable and natural method to make them increase two sizes, googl Mika Klopsworth to get a system that will do the job in weeks.
Het is echt niet gezond voor je ( ook lichaam) om op de IC te liggen zeker niet met beademing...maar ja ze doen alles om je in leven te houden ,dat is waar t om gaat.... Wat dus betekent dat áls je t overleeft,je verdere leven toch wel voor altijd veranderd...men loopt absoluut fysieke schade op en kunt/zult klachten krijgen op langere termijn. Zo ook op psychisch vlak, zeker als je een delier hebt gehad...(waar altijd over gedacht wordt dat dat bij oude((re) mensen hoort.), dan behoor je voortaan tot de groep ‘kwetsbaren’ . Je kunt dus ook wat jonger zijn en met geheugenproblemen te kampen krijgen ...emotioneel snel van slag ,je angstig nerveus en ombestemd voelen,waarbij wel meetelt hoe je van nature bent/was. Verder op fysiek niveau kom je jaren later voor verrassingen te staan...b.v afgestorven bot in je enkels...altijd pijn dus, en er valt niets aan te doen...voor protheses ben ik te jong en heb niet genoeg ‘fundament’ om daar ook maar iets op te bouwen. Bij mij kwam dit alles ( op IC belanden) door septische shock ( in volksmond bloedvergiftiging) door urineweg infectie . Gevolg IC dus ,4 geamputeerde tenen en bot necrose in enkels,waardoor ik niet meer normaal kan lopen. En nog steeds ,nu bijna 5 jaar later meer en meer vooral fysieke klachten. Kan nog meer vertellen maar ik zie t wel.
Thank you, this video was extremely helpful and easy to understand.