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Birdshot Uveitis Society
United Kingdom
Приєднався 11 тра 2011
Birdshot Uveitis Society is a support group for people with the rare, hard to treat autoimmune posterior uveitis called Birdshot Chorioretinopathy. It is a registered as a charity in England and Wales No: 1145349.
Victoria Makepeace-Warne - Birdshot Uveitis and Nutrition
Victoria Makepeace-Warne - Birdshot Uveitis and Nutrition
Переглядів: 872
Відео
The Birdshot Uveitis Society
Переглядів 8257 років тому
Short talk about setting up the patient support group and charity by Annie at a Moorfields Co-creation workshop. - Moorfields Vanguard. The whole toolkit for hospitals can be found at: www.networkedcaretookit.org.uk
Birdshot Charity Shoot 2016
Переглядів 3168 років тому
or the fourth time in as many years the beautiful Royal Berkshire Shooting school was the venue for John Hall’s Birdshot Uveitis Charity Clay Shoot day, sponsored by John F Hunt. The weather was not very early June-like but it did not prevent the 28 teams of four having tremendous fun on the 10 stands provided. Before the auction Miles Stanford, Professor of Clinical Ophthalmology at Guy’s and ...
Mindfulness - an introduction to the practice - Mark Westmoquette
Переглядів 1748 років тому
Mindfulness - an introduction to the practice - Mark Westmoquette
Living with Birdshot - some personal reflections
Переглядів 2,4 тис.8 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Alastair Denniston - Birdshot Biobank and Database
Переглядів 3378 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Omar Mahroo - Not just there to sit and look pretty (The RETeval scanner)
Переглядів 6238 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Laura Morton - Supercell analysis for Birdshot
Переглядів 2118 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Professor Andrew Dick, Introduction to the Birdshot Day No 3 and the opening session
Переглядів 5228 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Dr David Makanjuola - Staying well on immunosuppressive therapy
Переглядів 1,6 тис.8 років тому
website: birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all th...
Adam Mapani - Uveitis Nurse Specialist role
Переглядів 7078 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
First Session - the role of the pharmacist and some Q & A's
Переглядів 1878 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Professor Philip Murray - Introduction to Session 2
Переглядів 1858 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Moorfields BRC for organising the filming and editing of these short films which capture all the talks f...
Julian Jackson - Fight for Sight/BUS partnership
Переглядів 1918 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology for organising ...
Professor Glen Jeffery - Red light influence
Переглядів 14 тис.8 років тому
birdshot.org.uk/ Birdshot Chorioretinopathy, or Birdshot Uveitis as we now call it is a rare and potentially blinding chronic posterior uveitis. This presentation was filmed at the Birdshot Day No 3 held in November 2015. It was put on for both patients and professionals. Many thanks to NIHR Biomedical Research Centre at Moorfields Eye Hospital and UCL Institute of Ophthalmology for organising ...
Jonas Kuiper - A bird of many feathers
Переглядів 7088 років тому
Jonas Kuiper - A bird of many feathers
Carlos Pavesio - Ozurdex, Iluvien and Retisert
Переглядів 2,5 тис.8 років тому
Carlos Pavesio - Ozurdex, Iluvien and Retisert
Richard Lee - Landscape of Translational Research in Ocular Eye Disease
Переглядів 4958 років тому
Richard Lee - Landscape of Translational Research in Ocular Eye Disease
Professor Edd James -Polymorphic ERAP1
Переглядів 6058 років тому
Professor Edd James -Polymorphic ERAP1
Pearse Keane - Advances in Retinal Imaging
Переглядів 4598 років тому
Pearse Keane - Advances in Retinal Imaging
Nick Collins, Living with Low Vision - 2nd Birdshot Day 2012
Переглядів 76512 років тому
Nick Collins, Living with Low Vision - 2nd Birdshot Day 2012
Nick Bucknall, In Remission - 2nd Birdshot Day 2012
Переглядів 66812 років тому
Nick Bucknall, In Remission - 2nd Birdshot Day 2012
Colin, Birdshot Effects - 2nd Birdshot Day 2012
Переглядів 46912 років тому
Colin, Birdshot Effects - 2nd Birdshot Day 2012
Sandra, Birdshot Effects - 2nd Birdshot Day 2012
Переглядів 52112 років тому
Sandra, Birdshot Effects - 2nd Birdshot Day 2012
Helen, Birdshot in Israel - 2nd Birdshot Day 2012
Переглядів 21212 років тому
Helen, Birdshot in Israel - 2nd Birdshot Day 2012
Liam, A family with Birdshot - 2nd Birdshot Day 2012
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Liam, A family with Birdshot - 2nd Birdshot Day 2012
Ann, A family with Birdshot - 2nd Birdshot Day 2012
Переглядів 42612 років тому
Ann, A family with Birdshot - 2nd Birdshot Day 2012
Annie, Stable Birdshot - 2nd Birdshot Day 2012
Переглядів 31012 років тому
Annie, Stable Birdshot - 2nd Birdshot Day 2012
Miss Narciss Okhravi, The National Birdshot Research Network - 2nd Birdshot Day 2012
Переглядів 39512 років тому
Miss Narciss Okhravi, The National Birdshot Research Network - 2nd Birdshot Day 2012
Thank you for this very helpful information.
Very interesting talk 👍
Are you still taking meds or no longer?
This is very helpful. Thanks so much.
Wow, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria/angioedema was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!
I need this society to contact me !!! BJ/ATL/USA
I was diagnosed with this horrible disease 10 years ago!!! This along with chronic BACK pain has been HELL !!! BJ/ATL
Thank you for your devotion and knowledge.. a friend of mine was diagnosed with bird shot 20 years ago ..he hasn’t made any progression because of lack of information and support .due to lack of knowledge and vision issues not being able to access websites...he’s now interested in a support group in the New York City Staten Island area.. can you help him find support? thank you and God bless you Sandy New York City🙏🏼
Thank you.
Is 660 nm red light as effective as 670? How about near infra-red? Both commonly available in light boxes.
That's a great question Jenny! I would love the answer to your question also.
All lights we can easily find are 660.....
@@SparksandBubbles Thanks. Everyone says to just use the 660, but I would love to get some 670. I don't know why the scientists settled on 670 as they don't seem to be commonly available. I think someone just tried 670 and it worked, so that's what all the scientists use now. No trials that I can see.
Never looked at these circus to personally know per device. Your self or some one that knows circuit design. Consider putting a variable resister network on the portion of the drivers (chip) that make the emissions be 660. Unless they put a PLL type chip in the circuit the output should be regulatable.
it is not only the wavelength, if the intensity or energy is too high it may damage eye regardless if is 670 or 810 nm.
What amount of Vit. D should an older person take each day (as a supplement.) Thanks.
A joke as a social worker...
because he has no site? Knowing him and what he stands for personally, i think you'll find he has more compassion and knowledge in what he does than many, sighted or not
Carlos saved my left eye - Top guy !!
Great to hear this.
Well Done Lorraine! A big Wuuuuhooooo to Youuuuuu! D and BA
Sadly we can't see what he's pointing to when we see the slides.
Excellent!
I'm glad this is up. I stumbled across this by accident! I'm even in it!!! Real Ale