Відео

2001 M/S FIGHTER HERE, I DONT KNOW IT ALL NEVER CLAIMED I DO, SOME TIMES YOU HAVE TO STAND YOUR GROUND WITH DOCTORS I KNOW ME BETTER THAN HE KNOWS ME, SEE HIM 15-20 MINUTES EVERY 6 MONTHS ! 🤔

Hi Cassie, My name is Tabby, and I’m the science editor for Science at One, a show on IC Radio at Imperial College London. I came across this video about your experience with dysphagia and I’d love to interview you for a radio segment I’m working on about new research into 3D-printed food for people with dysphagia. Let me know if that's something you would be interested in doing.

I know this is an old video. But I have a question? Were you able to work at all? I’m a nurse and stand/walk all day~ and the symptoms are making it nearly impossible to work. I’m still waiting to see a Neurologist because appointments are months out. Yes, even though I work in a hospital ~ I got no preferential treatment. I love my job as well. Thank you for spreading positivity and awareness ❤. I don’t know anyone who has MS, so I feel so alone and scared.

YES!! THEY THOUGHT MINE WAS LYME'S FOR 2 YEARS!!!!

I hope you're doing ok! That good video! Alot in common with you regarding how you felt at first before going to get a diagnosis. I just found out in June of 2024. So it's still new to me. It would be awesome if you made some more videos. This really helped! ✌️💚. Thank you!

hi, hope you are doing well

How are you doing, Cassie?? Good, I hope!!

Thank you for this video. I am waiting to see my neurologist as I have had the MRI’s now. He suspects I have had it some time. It was helpful to hear about the diagnosis format. I also think it’s important to get a diagnosis so that the treatments are effective and correct for your condition.

Girl when i had my mri was during covid, so i had to wear a mask in there and they stuffed all the empty spaces with wedges 😭 it was the worssstttt lol Im grateful for you sharing your story, thank you!

❤thank you Cassie! Prayers for you! I hope I’m diagnosed soon. I so exhausted. Prayers for all of us.

I get anxiety with them too.

thanks for the video. i had mri 2 days ago which showed i have some whote matters but they not active and when you mentioned stomach problems could cause it i was kinda relife. i suffer ulcer and gastritis for last 10 years and im eating badly and my stomach always hurt. hope you doing okay nowadays.

My Daughther was diasnoiged with MS an so was I But they also found she has Johnney Cunninham Disease , A another Piron Disease.

I just discovered this video. Thanks for sharing. Wishing you good luck in your journey.

Needed this right now! Thanks

I have MS use canes to walk I had to have my shoe on my left shoe. I got lucky. For 37 years. I never said the word never thought about it. I've been going to the doctor and saying all of the symptoms I had still didn't thnk about MS I Had terrible migraine. I had an MRI just recently. They said you have MS. Yes I do. now I am 82 years old.. so I'm hoping I'll get better.. I can't get to a doctor to treat my Ms until the 21st of June . I have glaucoma. Never gave it a thought. Why my eyesight is getting so I'm blind in the right eye. left eye is not much better.. I get cramps in my legs. Having a little trouble walking. 10 times I feel like things are crawling on me and I go to rub it down and there's nothing there. So thank you for your tape I enjoyed watching you. I didn't know migraines had anything to do with Ms but it said on the MRI . It does. So thank you very much. I would like to hear from you again

I’ve been diagnosed with fibromyalgia, which has a lot of weird similar symptoms, for close to 20-25 yrs. Now after MRI I’m going to neurologist. It won’t surprise me. But my husband used to find it off putting that I wake up and then have to lay down or have days of needing especially since he is still working to lay down . We are both 64. And sometimes the mere thought of taking a shower sometimes is just overwhelming! I am on disability for my fibromyalgia.I commend your family for helping you

Was ur dizziness like a light headedness?

Have you stayed with the same DMT ? I’m on ocravus thanks

How are you 🫶

Thanks for the props 😂❤ and for bravely sharing your story! You are adorable! My mother had MS. It’s so important what you shared that mom’s need to tune into their bodies and needs instead of putting themselves on the back burner. We honestly needs billboards that say “A Ladies Night Out is not self care”

Thank you for this video. There is no need to apologize for anything. I appreciate you taking the time to give all of the details. A family member of mine is currently in the hospital. MRI results came back with lesions on the spine. Spinal tap is tomorrow. Thanks again for sharing your experience.

You are amazing 🤩. Great video and really really helpful x

How you doing Cassie?

Get a homeopath.

The flu vaccine crippled my dad. He took it about 12 years ago. The covid vaccine is something you really need to educate yourself about because it causes the very same symptoms you are having and others. It's because the wrong people have their hands in our medical system.

Omg 😱 your dx sounds sooo much like mine. 🙏🏽🙏🏽🙏🏽

At 5 years old. I contacted poliomyelitis and encephalitis. I'm 75 now. And am glad I slipped by so many problems with my body. I thought P and E were quite enough. Then came numerous complications from those things. I guess age cures a lot.

I'm so sorry this has struck you strong. Your cavalierness is scary as, as a woman, you don't take care of yourself. BTW, I've had MS for 24 years..I've seen it all. Take care of yourself; if you don't like your care, go somewhere else.

Best explanation ever. Thanks 🙏 ❤

Thank you for sharing your journey ❤ My husband has all the symptoms of MS. Seeing doc on Friday.

Good Examples!

🏡. Hello Cassie, I've listened to your story . I believe every word you're saying * I've cried all the way through your testimony 💔. I too , have something going on . Please Never Apologize for again for Speaking Truth ! I am so appreciative and honored to see you, hear you voicing your GOOD, BAD & UGLY. HAS BLESSED US ALL ,❤.. I've had everytjing tested , scanned and my words were left , not adressed , And I am here. ... ( 10- 20 years later ) finding regeneration of lesions in the occipatal part of my brain from 2 tramatic car accidents that were never examined in the E.D. no empathy ,nor compassion shown towards me 💔 . My 1st neuro appt. was 3 months away .My primary M.D. just wrote to exam for muscle weakness ( like you said ; LISTENING EARS ? I too called the office amd reported my true symptoms ! I had appt. In One (1) week after I caled. Head to Toe scan after blood drawn. Complete cardiac work up and U.S . Bone marrow Biopsy all completed very quickly and I had to have withon 1 (one ). Week . My livet was terrible ! I go to a wonderful cancer care center for a transfusion l I have precursors to bone cancer . So , I wait .... My hesrt ❤ is on your side Thank you for helping me lift my voice and cry out softly and sweetly 🕯️. I want life ! But my pain is extreme so I keep Moving . I don't lay awake and Worry Because I KNOW GOD IS IN CONTROL.....💫. We have to just BREATHE... BEING YOUR BEAUTIFUL SELF Cassie 🗒️🕯️ MAY HAVE SAVED ANOTHER BEAUTIFUL PERSON TODAY 37:19 WITH " YOUR S 37:19 TORY *.

I am now 64 and I have through the years (many) suffered… I have had bloodwork done through the years…I asked to be tested for Lyme and West Nile but they refused…(until recently I did test for West Nile)…. Talking about so many symptoms and bizarre symptoms as well… I am now down to thinking MS… most everything you’ve said… I have been through and still going through… to the point of pure collapse….so I now know that an MRI is needed…I am glad I came across this video… thanks.. I don’t feel like I’m losing my mind…

Oh wow I feel like a vampire I have a lot of light sensitivity

Waffel

Ur dealing with parasites that have got out of control multiplying and eating away at the myelin sheath. Look up Pam (live disease free).

omg i left my mri , i was to scared . i couldnt

I’m only a couple of minutes in and this is by far the best and clearest explanation of what MS is. Thank you 😊

The disease with a 1000 faces as the doktors here in Denmark says. I have had MS for more than 50 year, and only known about it for 30 years. I’m 68 years Old. Doctors where reluctan to give incurable diseases/diagnoses back then. Yes, Women ned to pay attention to their own Health!!!!!! SO I have foght MS my entire life and Will fight on. Life is beatyfull!!!! Remember: Your are stronger than You Think. Excuse my English! I know - the spelling is bad….🇩🇰

You didn't mention how relapses are treated. Or did I miss it? Or don't they use IV Solu Medrol or oral steroids anymore to try to stop the relapse in order to prevent severe or permanent damage to the myelin & nerve? I thought it was still protocol for treatment of MS exacerbation/relapse.

God bless us all w/this unpredi ctable disease❤🎉

I’ve just started my journey with a neurologist, due to an MRI from my endocrinologist said I have changes in my brain and needed to go to one..I literally have all the symptoms, so I don’t know what the future brings..I’ve been to many doctors about different things and them saying nothing is wrong, just normal..guessing about things and I take 28 medications and needing to added other prescriptions…this has been going on for 10 years..im very nervous for them saying nothing is wrong 😢

Thank you for sharing! I feel very similar to your story (super claustrophobic) except long story short I did have brain lessions but also a large tumor. Underwent major brain surgery last July and removed all of it. Scans every 6 months for 2 years. Then 1 per year however, also have to do cervical, thoracic and lunbar scans. So MRI machine and are forced friends so to speak. I am waiting for lumbar puncture at year mark after surgery and hope I can get some answers. I have stenosis, DDD and bone spurs that make lying flat excruciating not to mention the claustrophobia. So sorry you had bad hospital staff as it makes a difference. Can't wait to see your next video and praying for you! 😊

Most ms side affects i think are from mmr vax that we had as kids also chemicals we are atound.

Hi Cassie, Thank you so much for sharing your story! I have watched many MS diagnosis stories, but yours is the best one I've heard. I have had very weird, seemingly unrelated symptoms for several decades now, but in the past 2 years, my health has declined drastically. I feel absolutely horrible every day! The most debilitating symptoms are numbness, weakness, and pain in my feet and legs, and unrelenting fatigue. In 2 years' time, I have been tested for everything under the sun with all kinds of blood work, with everything coming out "fine". At my insistence, I asked to see a neurologist last year, which was a disappointing and unfruitful experience. He asked me a bunch of questions, did a basic exam, and did testing by sticking needles in my muscles with an electrical current (can't remember what it's called?). At the end of the appointment, he said "you have neuropathy, and I can prescribe drugs for that". I already knew I had neuropathy, that was pretty obvious! But what is causing it is the question? He said come back in 2 months, but I never went back, and I never took the medication. I have spent so much money and time trying to find out what's wrong with me, and I'm disgusted with the "medical system". No one takes me seriously, and no one cares enough to really try to figure out what is wrong. I've been to primary care doctors, the ER, naturopaths, chiropractors, you name it! I'm losing hope, and getting more scared every day, as I continue to get worse.

Hi sweet girl! I am diagnosed with RRMS from 1998 and a never drink medicine for that , but now after 2 dose of vaccine things get worse! Coincidence? Maybe!!! Do you take any medication! Thanks

Texas polluted tapwater and the flu vaccines causes neuromuscular diseases.

Thank you for sharing.😢

Thank you