Motor Neurone Disease NZ
Motor Neurone Disease NZ
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Motor Neurone Disease NZ Parliamentary Hui - June 2023
On 20 June 2023, Motor Neurone Disease NZ held a Parliamentary Hui to recognise the mahi provided by everyone involved with motor neurone disease (MND) across Aotearoa New Zealand, look to the future of services needed to support people with MND, their carers, and whānau, and provide an update on research.
Переглядів: 43

Відео

MNDNZ CEO's Surprise Ice Bucket Challenge To Launch MND Action Month 2023 mndactionmonth.org.nz
Переглядів 75Рік тому
MND New Zealand CEO Scott Arrol receives a surprise visit to help launch MND Action Month. Craig Waalkens, who is living with motor neurone disease drops in to share his perspective on the important work done for Kiwis living with MND, and to deliver a surprise ice bucketing!
The 2022 MND Ice Bucket Challenge Supercut
Переглядів 1382 роки тому
That a wrap for this year's MND Ice Bucket Challenge for MND Awareness Week in New Zealand! Huge thanks to all the amazing people who pitched in to make this year's challenge a big success!
Ice The Exec with The MND Ice Bucket Challenge
Переглядів 2032 роки тому
Will your business, school, or group take on the MND Ice Bucket Challenge and aim to raise $1,000? This June for MND Awareness Week, we are raising vital funds to make a difference in the lives of people living with Motor Neurone Disease. June 21st is global MND/ALS awareness day. mndicebucketchallenge2022.raisely.com/
Colliers Highbrook MND Ice Bucket Challenge
Переглядів 6713 роки тому
Colliers raise funds to support MND New Zealand during Motor Neurone Disease Awareness Month! mnd-ice-bucket-challenge.raisely.com/colliershighbrookicebucketchallenge
David’s Unusables 60”
Переглядів 8 тис.3 роки тому
David’s still got plenty of items to sell, all to help fund vital support for those living with MND. Watch below to see why everything must go!
Davids Unusables 30"
Переглядів 1403 роки тому
David’s still got plenty of items to sell, all to help fund vital support for those living with MND. Watch below to see why everything must go!
Davids Unusables 15"
Переглядів 543 роки тому
David’s still got plenty of items to sell, all to help fund vital support for those living with MND. Watch below to see why everything must go!
Davids Unusables 15"
Переглядів 463 роки тому
David’s still got plenty of items to sell, all to help fund vital support for those living with MND. Watch below to see why everything must go!
Thank you for supporting Motor Neurone Disease Awareness Month
Переглядів 604 роки тому
It takes a team to support people living with Motor Neurone Disease . Emirates Team New Zealand are a valuable part of the team in helping to raise awareness about Motor Neurone Disease.
The Corporate Ice Bucket Challenge
Переглядів 424 роки тому
The Corporate Ice Bucket Challenge
Join the team supporting MND Awareness Month
Переглядів 484 роки тому
Join the team supporting MND Awareness Month
Emirates Team New Zealand supports Motor Neurone Disease Awareness Month 2020
Переглядів 994 роки тому
Emirates Team New Zealand supports Motor Neurone Disease Awareness Month 2020
MND New Zealand Conference highlights
Переглядів 2374 роки тому
MND New Zealand Conference highlights
MND New Zealand Conference Session 2 : Caring for and supporting those with MND
Переглядів 3774 роки тому
MND New Zealand Conference Session 2 : Caring for and supporting those with MND
MND New Zealand Research Conference Session 1: Understanding and diagnosing MND
Переглядів 4164 роки тому
MND New Zealand Research Conference Session 1: Understanding and diagnosing MND
The Corporate Ice Bucket Challenge 2019
Переглядів 3424 роки тому
The Corporate Ice Bucket Challenge 2019
Walk 2 D'Feet MND 2019
Переглядів 664 роки тому
Walk 2 D'Feet MND 2019
An Update on MND Research - Homegrown and Abroad - 21 June 2019
Переглядів 2725 років тому
An Update on MND Research - Homegrown and Abroad - 21 June 2019
David Seymour - Self-preservation over pride - June 2019
Переглядів 4715 років тому
David Seymour - Self-preservation over pride - June 2019
Walk 2 D'Feet MND 2018 (30s TVC)
Переглядів 1,3 тис.6 років тому
Walk 2 D'Feet MND 2018 (30s TVC)
Walk 2 D'Feet MND 2018 (15s TVC)
Переглядів 986 років тому
Walk 2 D'Feet MND 2018 (15s TVC)
Kirsty's MND story
Переглядів 10 тис.6 років тому
Kirsty's MND story
Graeme's MND story
Переглядів 3,1 тис.6 років тому
Graeme's MND story
MND: It Happened To Us 2017
Переглядів 4877 років тому
MND: It Happened To Us 2017
With Your Help We Can Fight MND (2017)
Переглядів 3547 років тому
With Your Help We Can Fight MND (2017)
With Your Help We Can Fight MND (2017 TVC)
Переглядів 6487 років тому
With Your Help We Can Fight MND (2017 TVC)
"Bugger you, MND!" says Tony Treloar for Global MND Awareness Day 2017
Переглядів 1407 років тому
"Bugger you, MND!" says Tony Treloar for Global MND Awareness Day 2017
Message to people with MND from Team New Zealand
Переглядів 1,7 тис.7 років тому
Message to people with MND from Team New Zealand

КОМЕНТАРІ

  • @williammewett5050
    @williammewett5050 2 місяці тому

    This breaks my heart.

  • @williammewett5050
    @williammewett5050 4 місяці тому

    Congratulations on the King’s Birthday honours list award Dr. Scotter. Please keep up the good work.

  • @nedsilva3838
    @nedsilva3838 7 місяців тому

    💯 "promosm"

  • @williehellesoe663
    @williehellesoe663 8 місяців тому

    Awesome Natalie. ❤❤

  • @stephenmyers4319
    @stephenmyers4319 Рік тому

    Would love to know how this bloke is going now

  • @noname-tj3rp
    @noname-tj3rp 2 роки тому

    What an incredibly kind man, you can see it in his eyes and hear it in this voice. God's got a big mansion waiting for him :) Thank you for your lovely advice Neil

  • @knives564
    @knives564 2 роки тому

    If I can do this challenge will there be at least a substantial amount of money donated to the cause? If so then I would be more than down to do this as many times as it takes to help raise money :0

  • @markabramson2538
    @markabramson2538 2 роки тому

    Where can the film be seen in the US?

  • @spydie
    @spydie 3 роки тому

    When is the video going to be released and where will it be released?

  • @elipsis620304
    @elipsis620304 3 роки тому

    There is no such thing as an incurable disease, and that includes MND. The fact that physicians, scientists, or researchers don't know the root of a disease, doesn't mean it is unknown to all. The cure of any disease is on the tip of the tongue - so to speak.

  • @dhall058
    @dhall058 3 роки тому

    I'm reading Royd Tolkien's book right now, and it's a beautiful tribute to his brother. Lots of tears resulting so far. I highly recommend it.

  • @sallyjames3511
    @sallyjames3511 3 роки тому

    Good on you David. My partner Gerry was diagnosed at about the same time as you were but unfortunately did not last as long as you have. He also believed in getting out as much as possible too. We had a wee coat made for our dog and they would ride the busses and trains and go all over town. We had a group of friends who came every night for about a year. They brought food, did the dishes and winched him into bed somewhere else and they were still there to get him into bed. . It was a dinner party of eight every night unless we went out. Our medical system was brilliant .

  • @teyanagarry7258
    @teyanagarry7258 3 роки тому

    Life wouldn't have being guaranteed if not for Dr Madida who I came across his UA-cam channel and used his herbal supplements for my COPD disease. I was really scared not to die because my ailment was complicated but I am grateful to Dr Madida today that he was able to save me with his herbal treatment.

  • @chaiyoatid7996
    @chaiyoatid7996 3 роки тому

    So many goods was said about Doctor Madida on UA-cam and i was desperate to get cured of herpes virus. My greatest joy was that Dr Madida was a genuine and safe person who did sent me the herbal medicine I requested for, I used it as he instructed me and after then all the symptoms I use to have all stopped. I went for another diagnosis and my doctor confirmed me Herpes virus Negative after so many and strictly test I undergo. I don't know about all other doctors but Dr Madida is this greatest herbalist I have ever known.

  • @chaiyoatid7996
    @chaiyoatid7996 3 роки тому

    So many goods was said about Doctor Madida on UA-cam and i was desperate to get cured of herpes virus. My greatest joy was that Dr Madida was a genuine and safe person who did sent me the herbal medicine I requested for, I used it as he instructed me and after then all the symptoms I use to have all stopped. I went for another diagnosis and my doctor confirmed me Herpes virus Negative after so many and strictly test I undergo. I don't know about all other doctors but Dr Madida is this greatest herbalist I have ever known.

  • @anne-marienordin7636
    @anne-marienordin7636 3 роки тому

    ❤️🌹

  • @channelsharon5621
    @channelsharon5621 3 роки тому

    ALS is not difficult to cure, it's nearly impossible to cure right now with the current herbal remedy from doctor Ehimare on UA-cam.And on top of that, it's extremely expensive.dr Ehimare on UA-cam reverse my father from ALS with in a short period of time.you can reach out to Dr Ehimare on UA-cam OR Whatsapp (+2349027349748). And he cure other disease and virus...

  • @carolinekremer654
    @carolinekremer654 3 роки тому

    I want to quickly say this here about this particular Dr called doctor Ehimare on UA-cam he is a real traditional herbal remedy treatment doctor who reverse my Motor Neuron disease (ALS) after been diagnosed for years and my doctor here told us there was cure for it, and I'm totally cure now no more silava lost and also do my daily activities or any symptoms.God Bless you Dr Ehimare on UA-cam and i will always continue to tell the world about you sir 🙏..

  • @mikaelfata7016
    @mikaelfata7016 3 роки тому

    Keeping you in my prayers

  • @billielewis5562
    @billielewis5562 3 роки тому

    God bless you Kirsty, I have MS and so consider myself very fortunate and very lucky in comparison to your situation, I mean this in a kind way so please take it that way. You are very brave and I admire that. I don’t give a damn for how many likes I get for my comment only to send a kind message and perhaps put a little smile on your face and for anyone or that matter that is suffering with MND/ALS. I hope and pray for a cure or even just for something GOOD to slow the progression.

  • @georgetracy9063
    @georgetracy9063 3 роки тому

    HOW MY HUSBAND GOT CURED FROM Amyotrophic lateral Sclerosis ALS . I lost my Dad to ALS 5 years ago , he suffered from the dreaded disease for 6 years with his doctor telling us he can’t be cured and all the therapies and life support machines could not save him and 3 years later my husband was also diagnosed of the same disease and i was devastated he fainted when the doctor read the diagnosis because he knew how deadly the disease was.His condition worsened and he was unable to move and he was confined to the chair the direction the disease has taken with his body is the gradual deterioration of the “Bulgar muscle,” which controls breathing, swallowing, voice, and tongue movement. His neck muscles have weakened to the point that he can’t hold his head up and the left side of his body is weaker than the right , the doctors told me all his muscles were dead, he was able to eat via a machine because he could not swallow anything. I searched and tried different neurologists and different medicines none worked and I was so scared to lose my husband. While running up and down seeking a solution I met my friend from third grade and saw me all worked up, we got talking and in the process of discussion I told him all I am facing. He felt sad and told me about Dr. Hassan who was able to cure his cousin. I was interested and he gave me his contact. I contacted him and he sent me his medicine and in a space of 3 weeks he was up on his feet again and in 4 week he recovered fully. He can do normal things like walking, eating, without any assistance whatsoever. I am so amazed at the potency and effectiveness of his medicine. I decided to share my story for you not to lose hope or feel your world has ended. Simply contact him on his Email. drhassanherbscure@gmail.com write Him on whatsapp / call +2349032582239

  • @JenniferGarcia-yy3sn
    @JenniferGarcia-yy3sn 4 роки тому

    To live is more important than to die. Even with less hope or fortune. For a living dog is better than a dead lion. My name is Jennifer Garcia, I am 69 years old. It all started toward the end of the year 2018 when I was diagnosed with amyotrophic lateral sclerosis [ALS]. I became a little child who does nothing but to depend on others for everything. I barely move my feet and hands myself. My son of blessed memory Anthony who passed on last year tried all he could to see me back on my feet but all his effort seemed impossible. The doctor said I will have to live like that for the few months I will spend on earth. The pastor gave me hope and prayers but it got to a time that I lost my faith as my health deteriorated. I began to await death by installment but on a fateful day when I went out for my normal therapy at the clinic, my very first boyfriend Stanley saw me in a wheelchair as my daughter pushed me in and he came with so much expression of disappointment on his face. He promised to go on a research on the internet to find if there is an alternative cure. He stopped at nothing until he discovered a post in google page by Darren Kent testifying how he got cured from ALS by Dr. Sani natural herbal remedies. We contacted him through his Email and WhatsApp. He told me that he has herbal healing remedies to cure not only ALS but also other incurable but management diseases. I believed or trusted him because I was left with no choice. I sent him money and He prepared his herbal mixture tonic, herbal cream and healing oil and sent them across to me.He gave me instructions which my daughter took seriously. After two weeks of treatment, I began to notice some great changes like I was able to talk clearly, eat, drink and move my hands and legs gradually. The third and fourth week I got cured.THE KEY POINT IS THAT I CAN DO THINGS NOW WITHOUT NEEDING SUPPORT OR BUGGING ANYBODY. Dr. Sani never asked me to advertise him but I think it’s what I should do to make our world a favorable and disease free one. Sharing is Caring. You can contact him today by E-mail: perfectherbalcure@gmail.com or call his tel; +2348118184266. I so much love this Dr. Sani Hassan for I owe my life to him. He is so kind and polite. Thanks for viewing.

  • @JenniferGarcia-yy3sn
    @JenniferGarcia-yy3sn 4 роки тому

    To live is more important than to die. Even with less hope or fortune. For a living dog is better than a dead lion. My name is Jennifer Garcia, I am 69 years old. It all started toward the end of the year 2018 when I was diagnosed with amyotrophic lateral sclerosis [ALS]. I became a little child who does nothing but to depend on others for everything. I barely move my feet and hands myself. My son of blessed memory Anthony who passed on last year tried all he could to see me back on my feet but all his effort seemed impossible. The doctor said I will have to live like that for the few months I will spend on earth. The pastor gave me hope and prayers but it got to a time that I lost my faith as my health deteriorated. I began to await death by installment but on a fateful day when I went out for my normal therapy at the clinic, my very first boyfriend Stanley saw me in a wheelchair as my daughter pushed me in and he came with so much expression of disappointment on his face. He promised to go on a research on the internet to find if there is an alternative cure. He stopped at nothing until he discovered a post in google page by Darren Kent testifying how he got cured from ALS by Dr. Sani natural herbal remedies. We contacted him through his Email and WhatsApp. He told me that he has herbal healing remedies to cure not only ALS but also other incurable but management diseases. I believed or trusted him because I was left with no choice. I sent him money and He prepared his herbal mixture tonic, herbal cream and healing oil and sent them across to me.He gave me instructions which my daughter took seriously. After two weeks of treatment, I began to notice some great changes like I was able to talk clearly, eat, drink and move my hands and legs gradually. The third and fourth week I got cured.THE KEY POINT IS THAT I CAN DO THINGS NOW WITHOUT NEEDING SUPPORT OR BUGGING ANYBODY. Dr. Sani never asked me to advertise him but I think it’s what I should do to make our world a favorable and disease free one. Sharing is Caring. You can contact him today by E-mail: perfectherbalcure@gmail.com or call his tel; +2348118184266. I so much love this Dr. Sani Hassan for I owe my life to him. He is so kind and polite. Thanks for viewing.

  • @JenniferGarcia-yy3sn
    @JenniferGarcia-yy3sn 4 роки тому

    To live is more important than to die. Even with less hope or fortune. For a living dog is better than a dead lion. My name is Jennifer Garcia, I am 69 years old. It all started toward the end of the year 2018 when I was diagnosed with amyotrophic lateral sclerosis [ALS]. I became a little child who does nothing but to depend on others for everything. I barely move my feet and hands myself. My son of blessed memory Anthony who passed on last year tried all he could to see me back on my feet but all his effort seemed impossible. The doctor said I will have to live like that for the few months I will spend on earth. The pastor gave me hope and prayers but it got to a time that I lost my faith as my health deteriorated. I began to await death by installment but on a fateful day when I went out for my normal therapy at the clinic, my very first boyfriend Stanley saw me in a wheelchair as my daughter pushed me in and he came with so much expression of disappointment on his face. He promised to go on a research on the internet to find if there is an alternative cure. He stopped at nothing until he discovered a post in google page by Darren Kent testifying how he got cured from ALS by Dr. Sani natural herbal remedies. We contacted him through his Email and WhatsApp. He told me that he has herbal healing remedies to cure not only ALS but also other incurable but management diseases. I believed or trusted him because I was left with no choice. I sent him money and He prepared his herbal mixture tonic, herbal cream and healing oil and sent them across to me.He gave me instructions which my daughter took seriously. After two weeks of treatment, I began to notice some great changes like I was able to talk clearly, eat, drink and move my hands and legs gradually. The third and fourth week I got cured.THE KEY POINT IS THAT I CAN DO THINGS NOW WITHOUT NEEDING SUPPORT OR BUGGING ANYBODY. Dr. Sani never asked me to advertise him but I think it’s what I should do to make our world a favorable and disease free one. Sharing is Caring. You can contact him today by E-mail: perfectherbalcure@gmail.com or call his tel; +2348118184266. I so much love this Dr. Sani Hassan for I owe my life to him. He is so kind and polite. Thanks for viewing.

  • @tarleighameme2291
    @tarleighameme2291 4 роки тому

    Thank you xx

  • @betorose844
    @betorose844 4 роки тому

    MND cure ua-cam.com/video/Uw-l6rfcOl4/v-deo.html

  • @brentgrayburn7028
    @brentgrayburn7028 7 років тому

    Nice departure from the race foreground. Go tnz. Such a nice message

  • @darrens7040
    @darrens7040 7 років тому

    Well done Grant.

  • @InnerMittenSignal
    @InnerMittenSignal 8 років тому

    This cheered me no end...what a brilliant video! (:D I am imagining Neil's fabulous Mansion in Heaven!

  • @2496TheTrev
    @2496TheTrev 11 років тому

    amazing, amazing, amazing, my brother has passed away after living with mnd for 2 years and 8 months you and your familys must be very proud of your efforts xxxxxx thank you for the u tube xxxxx

  • @2496TheTrev
    @2496TheTrev 11 років тому

    what you have said is so so true. Steve my brother had mnd we delt with things are they came, but we talked about how to cope with the many many challenges before they were there, then we were sort of prepared. well done to all of you for speaking together not only as a couple but as a family.

  • @TrOLLKiLLeRs1
    @TrOLLKiLLeRs1 11 років тому

    Well done to this couple in the way they are dealing with this illness. And many congrats to the MND Association for publicizing this.

  • @2496TheTrev
    @2496TheTrev 11 років тому

    your u tube is brilliant, my brother sadly passed away last november he lived with mnd for 2 years 8 months, but he was like you he made every day count, out for coffee, meals, cinima, holidays, and many hotel breaks. he has a daughter of 9 and a son aged 27 and he never got to see his grandson who is 6 months old, but he did know that he was coming into the world, i wish Steve had made a u tube message for other people to be inspired by, but we never did do one. he would have said the same xxx

  • @georginastephenson3532
    @georginastephenson3532 11 років тому

    Hi i have MS , and i no that all the things you she are so ture, the Lord keeps me going i needed to hear what you said , thank you so mush bless you in Jesus name

  • @moyraspeir1928
    @moyraspeir1928 11 років тому

    My lovely friends - love you and am inspired by you both - Go Team Ladyman! x x

  • @moyraspeir1928
    @moyraspeir1928 11 років тому

    Awesome Neil - you have a lot to share and a wonderful way of sharing - powerful. Love you and Olivia - and of course the kids (mmm - love Micky as well - don't tell Liv'). My boss hasn't met you and even he thinks you are amazing. You touch so many people's lives - far beyond what you can possible knows. Yeah - Team Neil!

  • @kiwicafe
    @kiwicafe 11 років тому

    Well said, great to see and share these clips :)

  • @kiwicafe
    @kiwicafe 11 років тому

    an awesome couple, good luck with your journey, i totally :) relate XO