Sickle In Africa
Sickle In Africa
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World Sickle Cell Disease Webinar: Day 3 (21 June 2024)
On Day 3, the panel discussed the challenges and potential solutions in managing sickle cell disease, with a focus on improving access to care, advancing research, and addressing stigma. They highlighted the importance of education, community engagement, and the establishment of post-transplant clinics to improve patient outcomes. The meeting also featured discussions on emerging research areas, including pharmacogenomics, and the importance of solidarity and learning from patient experiences.
Переглядів: 5

Відео

World Sickle Cell Disease Webinar: Day 2 (20 June 2024)
Переглядів 1721 день тому
On Day 2 of the World Sickle Cell Disease Webinar, held in recognition of World Sickle Cell Day, focused on improving access to established and emerging treatments for sickle cell disease. The panel highlighted the need for early diagnosis through blood tests, the use of health cards for children, and an increase in focus on clinical management of the disease. They also emphasized the importanc...
World Sickle Cell Day Webinar: Day 1 (19 June 2024)
Переглядів 9928 днів тому
On Day 1 of the World Sickle Cell Day Webinar convened by Professor Julie Makani to commemorate World Sickle Cell Day, the panel emphasized sickle cell disease's status as a global health priority, discussing the progress in treatment, as well as the continued need for newborn screening and access to essential drugs.
Translational Research and Implementation Science: A decade of progress with emphasis on SCD
Переглядів 6Місяць тому
Prof George Mensah provides a brief review of research advances while identifying challenges and barriers in SCD translational research 00:00 Presentation by Prof George Mensah 56:06 QnA Introduction session
Basics of Implementation Science - 31 May 2023
Переглядів 92 місяці тому
Prof Peprah, the director of implementation science at New York University's Global Health School of Public Health, discusses the origin of implementation research, its roots, and key concepts. He defines implementation as scientific uptake of evidence-based practices into routine practice to improve quality and effectiveness of services. He highlights the lack of uptake of clinical innovations...
Patients Webinar 2024: Psychological Distress in Adult Sickle Cell Disease Patients in Africa
Переглядів 1143 місяці тому
Living with sickle cell disease (SCD) presents a multifaceted challenge, impacting both physical health and psychosocial well-being. The condition is characterized by periodic episodes of pain, varying in intensity and duration, ranging from a few hours to several days or even weeks. While some individuals may experience no pain, others endure frequent crises, leading to multiple hospitalizatio...
Day2: MUHAS Symposium, 13 July 2023, Dar es Salaam, Tanzania
Переглядів 3911 місяців тому
00:00 Plenary - Clinical Management of Sickle Cell Disease in Sub-Saharan Africa - Prof. Ibrahima Diagne (Saint Louis, Senegal) 35:20 Panel Discussion 1:55:30 Moderator Introduction - Dr Victoria Nembaware 1:58:40 Public Health Interventions for SCD - Dr. Omary Ubuguyu (TZ) 2:27:00 Moderator Introduction to Panel discussion - Dr Victoria Nembaware 2:29:50 Panel Discussion 4:07:55 Plenary - COVI...
SickleInAfrica EDGE Training: Session 4 - Revision Session
Переглядів 26Рік тому
Training for SickleIAfrica Research Fellows: Revision session Date: 12 April 2023 00:00 Catching up and clarification conversations 15:59 Training/ Recap starts 44:23 Session ends 45:10 Demo without sound 49:10 Wrapping up the meeting
SickleInAfrica EDGE Training: Session 3 - Setting up site teams and using calendar as part of a team
Переглядів 13Рік тому
Training for SickleIAfrica Research Fellows on Setting up teams for your site and using calendar as part of a team Date: 5 April 2023 00:00 Overview and recap 18:48 Training starts
SickleInAfrica EDGE Training: Session 2 - Calendar management and creating a new workflow
Переглядів 31Рік тому
Training for SickleInAfrica Research Fellows on Calendar management and creating a new workflow using the EDGE system Date: 29 March 2023 00:00 Introduction - Ms Annemie Stewart 09:24 Intermission for example 13:39 Training continues
SickleInAfrica EDGE Training: Session 1 - Introduction
Переглядів 73Рік тому
Training for SickleIAfrica Research Fellows Introduction to EDGE, adding users to the EDGE system and uploading documents Date: 22 March 2023 00:00 Introduction - Dr Victoria Nembaware 16:00 Infrastructure Overview - Mr Mario Jonas 22:10 EDGE Introduction - Ms Annemie Stewart
AfSHG GrantWriting 9Feb2023
Переглядів 83Рік тому
AfSHG GrantWriting 9Feb2023
SickleInAfrica Webinar 24 November 2022
Переглядів 46Рік тому
SickleInAfrica Webinar 24 November 2022
Data Stewardship - Celia van Gelder (Dutch Techcentre for Life Sciences)
Переглядів 17Рік тому
Data Stewardship - Celia van Gelder (Dutch Techcentre for Life Sciences)
Sickle Cell Disease in Africa Model of Programmes in Tanzania and SickleInAfrica
Переглядів 58Рік тому
Sickle Cell Disease in Africa Model of Programmes in Tanzania and SickleInAfrica
Can Human Genetics Improve Health Gene Therapy for Sickle Cell Disease in Africa
Переглядів 26Рік тому
Can Human Genetics Improve Health Gene Therapy for Sickle Cell Disease in Africa
How to perform a chi squared test in R
Переглядів 482 роки тому
How to perform a chi squared test in R
French SCDO ISMB2022 Poster Video: Ms Jade Hotchkiss
Переглядів 172 роки тому
French SCDO ISMB2022 Poster Video: Ms Jade Hotchkiss
Memorial Service for Dr Gaston Kuzamunu Mazandu
Переглядів 252 роки тому
Memorial Service for Dr Gaston Kuzamunu Mazandu
"Intersection between Genetic Therapy and Society" - Prof Julie Makani (SPARCo CCC, Tanzania)
Переглядів 632 роки тому
"Intersection between Genetic Therapy and Society" - Prof Julie Makani (SPARCo CCC, Tanzania)
SIA7 Day 3: Session 11 - Ms Annemie Stewart, SADaCC
Переглядів 52 роки тому
SIA7 Day 3: Session 11 - Ms Annemie Stewart, SADaCC
SIA7 Day 3: Session 10 - Prof James Batchelor
Переглядів 72 роки тому
SIA7 Day 3: Session 10 - Prof James Batchelor
SIA7 Day 3: Session 9 - Ms Tahira Hoosen, SADaCC
Переглядів 82 роки тому
SIA7 Day 3: Session 9 - Ms Tahira Hoosen, SADaCC
SIA7 Day 1: Session 11 - Dr Shimian Zou, NHLBI
Переглядів 92 роки тому
SIA7 Day 1: Session 11 - Dr Shimian Zou, NHLBI
SickleInafrica Webinar Series Session 2: 17 February 2022
Переглядів 352 роки тому
SickleInafrica Webinar Series Session 2: 17 February 2022
SickleInafrica Webinar Series Session 1: 31 January 2022 - Prof Obiageli Nnodu
Переглядів 492 роки тому
SickleInafrica Webinar Series Session 1: 31 January 2022 - Prof Obiageli Nnodu
SickleInAfrica Database Workshop: Day 1, Session 8 - Prof Aldiouma Guindo
Переглядів 202 роки тому
SickleInAfrica Database Workshop: Day 1, Session 8 - Prof Aldiouma Guindo
SickleInAfrica Database Workshop: Day 1, Session 7 - Mr Evans Xorse Amuzu
Переглядів 122 роки тому
SickleInAfrica Database Workshop: Day 1, Session 7 - Mr Evans Xorse Amuzu
SickleInAfrica Database Workshop: Day 1, Session 6 - Ms Irene Kyamugisha
Переглядів 72 роки тому
SickleInAfrica Database Workshop: Day 1, Session 6 - Ms Irene Kyamugisha
SickleInAfrica Database Workshop: Day 1, Session 10 - Dr Emmanuel Balandya
Переглядів 62 роки тому
SickleInAfrica Database Workshop: Day 1, Session 10 - Dr Emmanuel Balandya

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