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Gisela P.
New Zealand
Приєднався 26 тра 2024
I document my life with MCAS, dysphagia and esophageal dysmotility through a series of video diaries that I started to record from May 2024 onwards. The videos are labeled in consecutive order #1, #2 etc., so they can be viewed as a continuing story in which one episode builds on the next. Some episodes are in vlog format, others are short educational talks about the health problems I face on a daily basis and the ways I deal with them.
I also post "Shorts" on a regular basis. Unlike the video diaries, these are about our beautiful New Zealand landscapes, beaches, hiking, my dogs and exercise.
If you like my content, please consider subscribing to my channel.
I also post "Shorts" on a regular basis. Unlike the video diaries, these are about our beautiful New Zealand landscapes, beaches, hiking, my dogs and exercise.
If you like my content, please consider subscribing to my channel.
#15 Nonspecific esophageal motility disorder (NEMD)
I received my diagnosis this week. After clinical evaluation of all tests I was diagnosed with Nonspecific Esophageal Motility Disorder (NEMD). My condition does not meet the diagnostic criteria for achalasia which was a relief to hear. On the other hand - there's not that much that can be done about it either. The road ahead will be interesting.
Переглядів: 21
Відео
#14 Histamine triggering foods and what multi-system poisoning feels like 😭
Переглядів 132 місяці тому
Unfortunately, I experienced another episode of histamine poisoning last week. But, that's the reality of my health condition.
#13 Finally able to eat again
Переглядів 262 місяці тому
The past two or three weeks have been going well. Although still severely limited in my food choices I am finally getting enough nutrition again so I'm feeling much better now. I still have no answer what causes the transit time through the esophagus to be so slow but hoping to know more by the end of the monh.
#12 Drive to Hamilton for esophageal #manometry testing / early morning sunrise in the Bay of Plenty
Переглядів 172 місяці тому
In this episode I take you along for a road trip to the New Zealand city of Hamilton where I had a medical appointment for esophageal manometry testing. The video follows me from Monday 12 August through to Thursday 15 August 2024. The good news is that I tolerated the procedure very well and the weather was absolutely stunning - a wonderful day for such a long car journey (we spent a total of ...
#11 Nutritional challenges with histamine intolerance and esophageal dysmotility
Переглядів 173 місяці тому
#11 Nutritional challenges with histamine intolerance and esophageal dysmotility
#10 Barium swallow test for esophageal dysmotility - July 2024
Переглядів 293 місяці тому
#10 Barium swallow test for esophageal dysmotility - July 2024
#9 The good, the bad, the sad and the small victories
Переглядів 143 місяці тому
#9 The good, the bad, the sad and the small victories
#8 New #migraine prophylaxis and other changes
Переглядів 223 місяці тому
#8 New #migraine prophylaxis and other changes
#7 Achalasia?! - Esophageal dysmotility; my new health challenge 🤕
Переглядів 244 місяці тому
#7 Achalasia?! - Esophageal dysmotility; my new health challenge 🤕
#6 #Gastroscopy & hospital vlog / 02 - 05 July 2024
Переглядів 7164 місяці тому
#6 #Gastroscopy & hospital vlog / 02 - 05 July 2024
#5 What's in my #hospital bag | Emergency Room & Short Stay Edition
Переглядів 474 місяці тому
#5 What's in my #hospital bag | Emergency Room & Short Stay Edition
#4 Stomach paralysis & #hospital vlog | 😭🤕
Переглядів 604 місяці тому
#4 Stomach paralysis & #hospital vlog | 😭🤕
#2 Food-induced #anaphylaxis and how to use my #epipen ®
Переглядів 445 місяців тому
#2 Food-induced #anaphylaxis and how to use my #epipen ®
#1 Cyclic Vomiting Syndrome (CVS) - A #migraine disorder. On the way to a potential second diagnosis
Переглядів 235 місяців тому
#1 Cyclic Vomiting Syndrome (CVS) - A #migraine disorder. On the way to a potential second diagnosis
Living with Mast Cell Activation Syndrome [Channel Introduction]
Переглядів 555 місяців тому
Living with Mast Cell Activation Syndrome [Channel Introduction]
I’m getting one on October 9th it starts at 1:30 can’t eat or drink anything I’m scared
It's a very safe procedure. I've had several over the years and never had any problems. It only takes about 10 mins and it's all done. The not eating and drinking beforehand is definitely the worst part! 😅
@@realGiselaP thank you
Aww cool, they cleared the wood away👌
0:00 Start 0:05 Fitness hike and I take a tumble 1:54 Road trip to Hamilton and an early morning sunrise in the Bay of Plenty 2:45 Arrival at clinic and manometry testing 3:21 to end: Explanations on manometry testing, how the experience was for me, and helpful information if you are scheduled to have this test
Beautiful ❤️❤️
😂😂😂😂😂❤э❤❤
Gisborne town beach is so beautiful🙏🏽
00:00 Start 01:00 Tuesday, 22 July 2024 ~ Out for a morning tea .... that took 5 hours! :) 03:18 Wednesday, 23 July 2024 ~ On the beach (beach clips starting at 05:10 ) 05:47 Wednesday evening - struggling with exhaustion and brain fog 07:05 Thursday, 24 July 2024 ~ Will I be well enough to start going to the gym again? 08:56 Jacob the collie says hello 13:34 Friday, 25 July 2024 ~ Recap and outro
00:00 Start 01:22 What's happening this week (and collie Jacob says 'hello' again!) 05:03 Hitting the gym and a small piece of fruit causes a lot of grief 05:53 Barium swallow test for esophageal dysmotility 07:30 Debrief 12:44 Outro
00:00 Start 0:46 Gastroscopy appointment received 2:41 Tuesday evening, feeling rough 3:40 Pre-admission 4:31 Gastroscopy day; Day Surgery Unit 7:24 Results and the way forward
00:00 Start 0:10 Skin prick testing appointment 0:49 How does a skin prick test work? 03:23 Application of trace amounts of allergens to forearm 06:00 Results 07:22 The way forward and outro
00:00 Start 0:15 Another anaphylactic reaction to food 1:02 Taken to the ED (Emergency Department) by ambulance 2:53 The day after 3:06 Showing you the EpiPen and training device 4:55 How to use the pen 6:21 More allergy testing
00:00 Start 0:08 Outpatient appointment (Neurosurgical Department) 0:40 My first (debilitating) migraine 1:32 Emergency Department visit and discovery of large fluid-filled cyst in my head 2:20 Diagnosed with severe migraines 4:12 Referral to Neurology for Cyclic Vomiting Syndrome (CVS)
00:00 Start 0:28 My MCAS diagnosis 1:03 Allergic reactions 1:55 My triggers 3:16 My symptoms 3:49 Outro