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PAIN.PAUSE.LIVE.
Germany
Приєднався 30 січ 2022
Cutting edge psychology for chronic pain patients to empower you.
Regain quality and sense of life. Learn how to deal better with chronic pain and co-occuring symptoms like frustration, depression and anxiety.
As a psychologist and licensed psychotherapist in Germany I have been specialized in the treatment of chronic pain patients for over 25 years. Being honored with the German Award for Pain Medicine and Research in 2022, I helped to spread Acceptance and Commitment Therapy for pain patients in Germany and developed a peer program .
My mission is to help you to live a life with sense and meaning despite of chronic pain. No matter which kind of pain you suffer from you're welcome here (back pain, fibromyalgia, migraine, neuropathic pain, crps etc.).
Here you get information, inspiration and exercises to help you to maneuver through the unfair situation that the pain creates in your life.
Regain quality and sense of life. Learn how to deal better with chronic pain and co-occuring symptoms like frustration, depression and anxiety.
As a psychologist and licensed psychotherapist in Germany I have been specialized in the treatment of chronic pain patients for over 25 years. Being honored with the German Award for Pain Medicine and Research in 2022, I helped to spread Acceptance and Commitment Therapy for pain patients in Germany and developed a peer program .
My mission is to help you to live a life with sense and meaning despite of chronic pain. No matter which kind of pain you suffer from you're welcome here (back pain, fibromyalgia, migraine, neuropathic pain, crps etc.).
Here you get information, inspiration and exercises to help you to maneuver through the unfair situation that the pain creates in your life.
Beyond Widespread Pain: The Science Behind Fibromyalgia's Hidden Effects
Fibromyalgia is often characterized by widespread pain, but that's just the tip of the iceberg. This complex condition can also cause a variety of effects, impacting everything from sleep and digestion to mood and cognitive function.
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
In this video, Gideon, a chronic pain specialist and fellow sufferer himself, delves into the latest scientific research on Fibromyalgia. You'll learn about:
* The surprising science behind Fibromyalgia's hidden effects, like fatigue, brain fog, and gut issues.
* Potential causes, including autoimmune mechanisms and nervous system dysfunction.
* How these hidden effects can be linked and contribute to your overall experience of Fibromyalgia.
* The path towards better treatments, fueled by a deeper understanding of the condition.
Don't suffer in silence. Watch this video and gain a deeper understanding of Fibromyalgia's hidden effects. Knowledge is power!
Chapters:
0:00 Fibromyalgia
1:42 Autoimmune Basis for Fibromyalgia?
3:30 Widespread Pain
4:33 Fatigue & Sleep Disturbances
5:17 IBS - Irritable Bowl Syndrom
5:56 Sensory Sensitivity
6:31 Autonomic Nervous System Dysfunction
7:01 Hypothalamic - Pituitary - Adrenal Dysfunction?
Have a look at my website: painpauselive.com
Join me on Facebook: painpauselive
Disclaimer: Pain.Pause.Live. is no substitute for a regular psychotherapy nor for medical treatment. We want to help you to gain and build up your quality of life despite chronic pain. If you suffer from chronic pain please turn to a doctor or a hospital for therapy.
Our mission is to provide you with scientifically proven, cutting edge psychological knowledge so you can regain responsibility over the quality of your life and lead into a direction of sense and meaning.
#pain.pause.live. #gideonfranck #chronicpain
Sources:
Kostine, M., Alvarez-Ciara, A., Olivan-Blazquez, B., Aguilar, H., Bondet, V., Delgado-Frias, E., ... & Arancibia-Carcamo, I. L. (2021). Fibromyalgia patient antibodies increase excitability of dorsal root ganglion sensory neurons. Journal of Clinical Investigation.
Sluka, K. A., & Clauw, D. J. (2016). Neurobiology of fibromyalgia and chronic widespread pain. Neuroscience, 338, 114-129.
Fallon, N., Chiu, Y., Nurmikko, T., & Stancak, A. (2018). Functional connectivity networks in the study of fibromyalgia. Journal of Integrative Neuroscience, 17(1), 1-8.
Sluka, K. A., & Clauw, D. J. (2016). Neurobiology of fibromyalgia and chronic widespread pain. Neuroscience, 338, 114-129.
Petersel, D. L., Dror, V., & Cheung, R. (2011). Central amplification and fibromyalgia: disorder of pain processing. Journal of neuroscience research, 89(1), 29-34.
Bigatti, S. M., Hernandez, A. M., Cronan, T. A., & Rand, K. L. (2008). Sleep disturbances in fibromyalgia syndrome: relationship to pain and depression. Arthritis Care & Research, 59(7), 961-967.
Minerbi, A., Gonzalez, E., Brereton, N. J., Anjarkouchian, A., Dewar, K., Fitzcharles, M. A., ... & Shir, Y. (2019). Altered microbiome composition in individuals with fibromyalgia. Pain, 160(11), 2589-2602.
Marum, A. P., Leitão, A. L., Brito, M. J., Variz, P., Alves, M., Vieira, L., ... & Bourbon, M. (2017). Increased intestinal permeability in fibromyalgia: a possible mechanism for pain transmission. Journal of Clinical Medicine, 6(12), 115.
Pimentel, M., Morales, W., Pokkunuri, V., Brikos, C., Kim, S. M., Kim, S. E., ... & Marsh, Z. (2015). Autoimmunity links vinculin to the pathophysiology of chronic functional bowel changes following Campylobacter jejuni infection in a rat model. Digestive diseases and sciences, 60(5), 1195-1205.
Wouters, M. M., Balemans, D., Van Wanrooy, S., Dooley, J., Cibert-Goton, V., Alpizar, Y. A., ... & Boeckxstaens, G. E. (2016). Histamine receptor H1-mediated sensitization of TRPV1 mediates visceral hypersensitivity and symptoms in patients with irritable bowel syndrome. Gastroenterology, 150(4), 875-887.
Kulshreshtha, P., & Deepak, K. K. (2013). Autonomic nervous system profile in fibromyalgia patients and its modulation by clinical variables. Clinical physiology and functional imaging, 33(2), 121-128.
[1] Prevalence and Correlates of Alpha-Delta Sleep in Major ... - NCBI www.ncbi.nlm.nih.gov/pmc/articles/PMC3159543/
[2] Alpha Waves and Your Sleep - Verywell Health www.verywellhealth.com/understanding-alpha-activity-3014847
[3] Sleep - Alpha Intrusion on Overnight Polysomnogram www.swjpcc.com/sleep/2014/6/5/alpha-intrusion-on-overnight-polysomnogram.html
[4] Sleep EEG Signatures in COVID-19 Survivors - SpringerLink link.springer.com/article/10.1007/s41782-021-00174-0
[5] Alpha Wave - an overview | ScienceDirect Topics www.sciencedirect.com/topics/neuroscience/alpha-wave
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
In this video, Gideon, a chronic pain specialist and fellow sufferer himself, delves into the latest scientific research on Fibromyalgia. You'll learn about:
* The surprising science behind Fibromyalgia's hidden effects, like fatigue, brain fog, and gut issues.
* Potential causes, including autoimmune mechanisms and nervous system dysfunction.
* How these hidden effects can be linked and contribute to your overall experience of Fibromyalgia.
* The path towards better treatments, fueled by a deeper understanding of the condition.
Don't suffer in silence. Watch this video and gain a deeper understanding of Fibromyalgia's hidden effects. Knowledge is power!
Chapters:
0:00 Fibromyalgia
1:42 Autoimmune Basis for Fibromyalgia?
3:30 Widespread Pain
4:33 Fatigue & Sleep Disturbances
5:17 IBS - Irritable Bowl Syndrom
5:56 Sensory Sensitivity
6:31 Autonomic Nervous System Dysfunction
7:01 Hypothalamic - Pituitary - Adrenal Dysfunction?
Have a look at my website: painpauselive.com
Join me on Facebook: painpauselive
Disclaimer: Pain.Pause.Live. is no substitute for a regular psychotherapy nor for medical treatment. We want to help you to gain and build up your quality of life despite chronic pain. If you suffer from chronic pain please turn to a doctor or a hospital for therapy.
Our mission is to provide you with scientifically proven, cutting edge psychological knowledge so you can regain responsibility over the quality of your life and lead into a direction of sense and meaning.
#pain.pause.live. #gideonfranck #chronicpain
Sources:
Kostine, M., Alvarez-Ciara, A., Olivan-Blazquez, B., Aguilar, H., Bondet, V., Delgado-Frias, E., ... & Arancibia-Carcamo, I. L. (2021). Fibromyalgia patient antibodies increase excitability of dorsal root ganglion sensory neurons. Journal of Clinical Investigation.
Sluka, K. A., & Clauw, D. J. (2016). Neurobiology of fibromyalgia and chronic widespread pain. Neuroscience, 338, 114-129.
Fallon, N., Chiu, Y., Nurmikko, T., & Stancak, A. (2018). Functional connectivity networks in the study of fibromyalgia. Journal of Integrative Neuroscience, 17(1), 1-8.
Sluka, K. A., & Clauw, D. J. (2016). Neurobiology of fibromyalgia and chronic widespread pain. Neuroscience, 338, 114-129.
Petersel, D. L., Dror, V., & Cheung, R. (2011). Central amplification and fibromyalgia: disorder of pain processing. Journal of neuroscience research, 89(1), 29-34.
Bigatti, S. M., Hernandez, A. M., Cronan, T. A., & Rand, K. L. (2008). Sleep disturbances in fibromyalgia syndrome: relationship to pain and depression. Arthritis Care & Research, 59(7), 961-967.
Minerbi, A., Gonzalez, E., Brereton, N. J., Anjarkouchian, A., Dewar, K., Fitzcharles, M. A., ... & Shir, Y. (2019). Altered microbiome composition in individuals with fibromyalgia. Pain, 160(11), 2589-2602.
Marum, A. P., Leitão, A. L., Brito, M. J., Variz, P., Alves, M., Vieira, L., ... & Bourbon, M. (2017). Increased intestinal permeability in fibromyalgia: a possible mechanism for pain transmission. Journal of Clinical Medicine, 6(12), 115.
Pimentel, M., Morales, W., Pokkunuri, V., Brikos, C., Kim, S. M., Kim, S. E., ... & Marsh, Z. (2015). Autoimmunity links vinculin to the pathophysiology of chronic functional bowel changes following Campylobacter jejuni infection in a rat model. Digestive diseases and sciences, 60(5), 1195-1205.
Wouters, M. M., Balemans, D., Van Wanrooy, S., Dooley, J., Cibert-Goton, V., Alpizar, Y. A., ... & Boeckxstaens, G. E. (2016). Histamine receptor H1-mediated sensitization of TRPV1 mediates visceral hypersensitivity and symptoms in patients with irritable bowel syndrome. Gastroenterology, 150(4), 875-887.
Kulshreshtha, P., & Deepak, K. K. (2013). Autonomic nervous system profile in fibromyalgia patients and its modulation by clinical variables. Clinical physiology and functional imaging, 33(2), 121-128.
[1] Prevalence and Correlates of Alpha-Delta Sleep in Major ... - NCBI www.ncbi.nlm.nih.gov/pmc/articles/PMC3159543/
[2] Alpha Waves and Your Sleep - Verywell Health www.verywellhealth.com/understanding-alpha-activity-3014847
[3] Sleep - Alpha Intrusion on Overnight Polysomnogram www.swjpcc.com/sleep/2014/6/5/alpha-intrusion-on-overnight-polysomnogram.html
[4] Sleep EEG Signatures in COVID-19 Survivors - SpringerLink link.springer.com/article/10.1007/s41782-021-00174-0
[5] Alpha Wave - an overview | ScienceDirect Topics www.sciencedirect.com/topics/neuroscience/alpha-wave
Переглядів: 943
Відео
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when the pain is 24/7 and intense in the face ? I absolutely don't understand when you say that when the pain comes with attacks, it is worse. NO, no and no. If the pain is intense and 24/7, it is the worse !
Is there a blood test for fibromyalgia
Thanks so much for reaching out. Unfortunately, there is no blood test for fibromyalgia. It can be solely diagnosed by a number of different symptoms that make up the whole syndrome.
Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
Edifying while remaining concise in a complex field.. good job shedding light while remaining scientific
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
Thank you, Gideon, for this video. It makes a lot of sense. I have lived with Fibromyolagia for going on 20 years now. I may have learned this from my mother who was extremely ill in my childhood. In fact, she spent more time in the hospital (often in ICU) than she did at home. We now know that besides the arthritis, she also has Chron's disease, Fibromyolagia, osteoporosis & many more health issues. I am currently weaning off of all meds and herbals, to get back to my base line. Three weeks in & I am feeling much less daily pain. I am so excited, I haven't taken an ibuprofen in 4 days 🎉 Who would have guessed my prescribed medications could be causing me pain. Or was it my fight against the pain, that was expecting pain... so I found (or created) my constant pain. I am so happy health providers are making this progress. Thank you for sharing this wonderful information 😊
Thank you so much for this comment. Reading this I am really touched, by your mothers and your story and especially by the journey that you’re experiencing right now. It’s so extremely important to find your own way on this journey because in chronic pain therapy there’s never the same way for everybody. And because I know that most people have a long story of struggle until they get to this point I created PPL to help you to get earlier on this path. So it’s wonderful to hear that you need less meds to get along better - YAY 😃
Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
👉 Treating chronic pain is so much more than just taking pills. Get a short and free overview here: www.painpauselive.com/6-pillars
I have fibromyalgia and rheumatoid arthritis
Cure please
I'm so sorry, but there's no "cure" yet. But starting the journey of recovery is possible I think. If you like to you're warmly invited to check out the website of PPL: www.painpauselive.com
I have always hated that name they gave it "fibromyalgia ". If nobody knows how to treat how and where did they get that name ?????
Dear Marian, thanks for this comment, it's not only important for you but for others also. It sounds like you've been through quite some journey within the health system. I'm sorry to hear that there hasn't been any help for you yet. The name fibromyalgia comes from the most common symptom of widespread pain especially concerning the muscles and ligaments, so it is purely descriptive. The other symptoms are very varied between people who suffer from it. That's why we speak about a syndrom. But still I think that we can do things to get better. I'd like to invite you, if you want, to get my free pdf on the pillars of a holistic pain treatment here. Hope it might be a first step of help. From there you can discover what PPL has to offer (free or paid as you like). Here's the link to the pdf: www.painpauselive.com/6-pillars
There are so many more symptoms to Fibro tells me that’s it’s more than the pain system. The body is always exhausted, sensitivity to light and sound. Constant running nose, dry eyes, and a general flu like feeling. Not to mention that humidity or severe cold makes the condition 10 times worse. My own pain doctor doesn’t have a clue about what fibromyalgia is, or what it’s like to suffer with it. Oh, and I almost forgot, twitching muscles all over the body and pins and needles especially in feet.
You are absolutely right! Phibro is a complex disease with a whole lot of systems in the body, losing their grip to normal functioning. That’s why we call it a syndrome. And because of our better understanding, a new kind of pain has been added by research: nociplastic pain. For a little more in-depth information you can watch my other video on fibromyalgia or visit my website painpauselive.com
Steam sauna! And Swimming at the local gym has helped my fibromyalgia for years
Sadly, Australians are too laid back to do anything about these issues. Australians are not even able to elect their own leader. The PM is beholden to his party, not to the people.
It's sad to hear this. If you don't mind, let me ask: What's been possible for you to deal with your pain so far?
by far the best relatable and informative video i have watched since my pain journey started 6yrs ago. Thank You.
Thanks so much! 😊 Mind if I ask, what could you relate to mostly?
Dr says I have it, be buggered I’m not accepting that diagnosis
It has to be thoroughly diagnosed, because there are some conditions with some of the same symptoms. If done correctly fibro might be the right diagnosis. What have you been doing about it?
If you don’t want to accept that diagnosis and I don’t blame you, I’d be looking into elimination of neurological conditions, and mri scans to eliminate spinal impingements
Spd causes sentral sensitivity autism
Trigger point pressure diesnt realy bother me i have heds autism adhd causation
👉 Are you interested in learning how to reduce stress and tension when in pain? Get your first easy to learn exercise for free: www.painpauselive.com/breathing-pause
Let me tell you doctors in Australia are no help
I’m sorry to hear that your experiences with doctors haven’t been good. What have you been missing in these contacts?
It is extra frustrating when people don't believe you, thinking you're a drug seeker. I wouldn't wish the pain and fatigue on anyone.
Hey, Debbie, you are so right. When even doctors don’t believe you, it’s an awful place to be. How do you deal with it? I bet there are a lot of others out there who experience these situations.
I do take Gabapentin but want to go more natural products.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
I have been using cannibidoil and find it's the only thing that helps my fm. I still have some bad days and nights but compared to how I was this is a miracle. My night delirium ie zombiefied because of lack of sleep is 90% better than it was.
Hey Diana, happy to hear that you found something helpful for your sleep. As you might have experienced, you had to try out different things before you found something that fits you. And that’s something very important because in chronic pain and especially and fibromyalgia there is no one size fits all and it sometimes takes a lot of patience to get to this point.
You sir are not telling us anything new
This is all old think.
I have suffered for decades and relate to what has been said by others all too well. I have to say that the content of this video was disappointing, in that, there is nothing new. I’ve known about cytokines etc for years but it makes no sodding difference with GPs here in the U K. I want to try natural therapies such as B1 but try❤ and get a GPs support, well you may as well plait fog! The medical profession just want to pump bodies with chemicals from drug companies. I tried them but ended up in A&E.
Dear Josephione, I'm so sorry to hear that. And sorry to hear that my video had nothing new for you. There seems to be a long way to go from findings in research to any remedies - if there are any. Unfortunately we know that most kinds of medication don't work for fibromyalgia. So most GPs are just as helpless as their patients. So I can understand perfectly well, that you want to switch to natural therapies. Did you ever try any mind-body therapy? If yes, what is your experience with it?
The absolute best dietary source of Thiamine, B1 is pork.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Thank you.
Fibromyalgia is inflamed nerves by neurotoxins from pathogens like EBV or shingles. If you have any nerve disorders like this or trigeminal neuralgia MS or ALS etc follow Medical Medium for Truth and treatments. You need answers now not in 100 years.
Thanks your comment. What you write is not really true, at least misleading. While Nuro inflammation, plays a role in every kind of pain, it’s not the nerves themselves that have to be inflamed. AND viruses are just one cause for the symptoms of fibromyalgia. I know, that we like to find only one cause for everything, but this doesn’t fit here at all. I think this point is outright dangerous, to present one solution for every possible disease.
👉 Are you interested in learning how to reduce stress and tension when in pain? Get your first easy to learn exercise for free: www.painpauselive.com/breathing-pause
Here from VRA FB GROUP. I could not imagine this type of pain. God bless
Thanks so much. Yap, not having to deal with neuropathy is really a blessing.
New?
Fibromyalgia is FAKE, the doctors a d pharmaceutical companies have brainwashed people about this, you need to understand that your body has been damaged by years of nutritional neglect, change your eating habits and exercise routine
I don’t agree at all. It downplays the symptoms and the suffering of those with fibromyalgia. While exercise and nutrition are important, it only plays a role for a subgroup. Btw, pharmaceutical companies don’t make a big business out of patients with fibro, since most drugs don’t work well. If you’re not sure, please take a look at the guidelines.
Neuroplacticity brain rewiring is the way forward ! .
Well, basically all this is leading to neuroplasticity or is an effect of it. Neuroplasticity in chronic pain isn’t new either but now we have a category like nociplastic pain and first research on neuroinflammation (about which we don’t know enough yet) that might to different treatment schemas. On the psychological side some are already out and the program of Pain.Pause.Live. incorporates them. Within the next weeks an updated video will come. 🤓
No, I would say replenishing the body's bicarbonates is the way forward. Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
Not latest at all, this is old news.
👉 Are you interested in learning how to reduce stress and tension when in pain? Get your first easy to learn exercise for free: www.painpauselive.com/breathing-pause
I have it severe & end up in the ER at times. It's a living hell !!!😢 My life is - why live ? Nothing helps at all . Fed - up 😢
I'm so sorry to hear that. And it sounds like you've dealt with it over a longer time, right? And it sounds like you've tried a lot to get rid of the symptoms - nothing really worked. No wonder you're fed up. It's often so exhausting to find a way to recovery, even if a full recovery is not always possible. It sometimes is like finding a way through a labyrinth. What's often missing is something like a thread that leads you through it. Do you have someone to help you through these turbulent waters? With this I'd like to send you a whole lot of courage from the bottom of my heart - as a little beacon to light up your world. What seems to me a bit special is the fact that you ended up in the ER. While fibro can be quite debilitating and really bad, the ER is not the usual place where to end up. Since I don't know anything about you at all, I can't really comment on this from a professional point of view. But fibro-like symptoms can be caused by other diseases too. Did you get checked for these?
Thank you for responding, appreciate it greatly. Yes they checked me for heart problems ect.... all was good Thank goodness!! My Fibromyalgia is causing spasms in my back, chest, which is very painful & scary. Spasms meds. we're given, I have extreme fatigue, abdominal problems, IBS-MIXED on pre& probiotics/Metiucal . I have Fibromyalgia really bad they said, don't have much of a life anymore. I'm married 38 yrs. my husband is supportive & my family & grown children wrote me off, they think I like attention & how could anybody have so many problems back to back ? 😑 if one turns on you in my family they all do- crazy I know. Can't work due to this & no disability, have tried alot! My husband has 2 jobs, so he's not around to talk to. I'm 56 - people think I look about 30 - so that's 1 thing that's good & my weight is 140-145, 5ft. 2 inches. Stay inside for a couple of weeks at a time, sleep day & up at night. I'm very messed up wish I was making this all up. Hope I helped you on info. Please let me know if anything else. Thanks again
Hey Angela, thanks so much for opening up and giving the information. It looks as if so many things weigh on your shoulders, that's hard to bear. You know, I often say to my clients that pain is like an octopus, with its arms reaching in so many areas of the life, making it miserable. And others often have great difficulties understanding what's happening inside of us pain patients. They just have no clue what it is like - even if we tell them. If you want to know some more about my story, I made a video on UA-cam. You can find it here: ua-cam.com/video/jynU93s294s/v-deo.html I'm sure you tried out a bit to fight the symptoms til now and I'm curious what it is. If this here is too public for you, you can email me anytime (gideon@painpauselive.com) or even have a free short call: www.painpauselive.com/book-online. Keeping my fingers crossed for you.
Are you on a high oxalate diet?
Also, look up research headed by Dr Paul O'Connor from the Department of Physiology at Augusta University, Medical College of Georgia on sodium bicarbonate. It shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.
I do not agree. I have a high tolerance for pain. I don’t know I’m in pain till my blood pressure goes up. So no lower pain threshold can’t be it. I think it is a neurological and nerve issue and even a disease like lupus not coming to head.
Thanks for mentioning this! As you pointed out rightfully, it might not be fibromyalgia. While there is a huge diversity within the group of fibromyalgia, patients, not everything I mentioned in the video holds true for everybody. But high tolerance levels of pain are quite unusual for fibromyalgia. this is why the symptoms should be checked very thoroughly specialists. If it’s not fibromyalgia, the symptoms should be treated differently.
Can you develop fibromyalgia after a cervical fusion?
Well, the majority of patients doesn't respond with widespread pain to a cervical fusion. But sometimes central sensitization can be triggered by such a health event. This might eventually lead to symptoms like those in fibromyalgia. But this might also be far fetched. What's your doctor saying?
I had a cervical fusion over 30 yrs ago and got fibromyalgia soon after. I also have worked at a Surgery Center and have spoken to numerous patients who have also had the same outcome.
Mind body.
Exactly! While fibromyalgia may have a lot of different causes, it’s always mind and body together. When we feel chronic pain, both sides are absolutely interwoven, so I think it might be even worthwhile asking if this strict separation between mind and body makes any sense at all. What do you think?
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Anyone tried GeneInsight or doctor advocating for you to get genetic testing done to narrow down your options?
Testing for what i have autism heds fybromyalgia genes for it
@@Truerealism747 I see. Hope it can identify good treatment plan for you.
Thank you for the video but all the info you gave in this video was given in the 90s and so far nothing is conclusive. I have fibromyalgia since I was 16 and it’s been a nightmare after 20 years with it. I diet, workout and don’t do any drugs or alcohol and still some days I am bed ridden. My life went to sh.. and my dreams of being a bodybuilder and a successful business man are gone. I wish I could find something to help but nothing is a guarantee and the next day is just a wonder.
Hey Paulo, thanks so much for your response to the video. Sorry to hear how much this difficult pain condition has cost you. Personally, I think that the 90s are a little far-fetched. But research for fibromyalgia is like going down the rabbit hole. There are so many ideas to follow and for the patient it’s seldom a big leap into recovery. This is partly due to the variability between people suffering from fibromyalgia water works for one doesn’t necessarily seem to work for other people. As for the psychological part, we seem to move forward consistently, but still slowly. The last year’s brought more breakthrough moments. I will address this in future videos as I decided to make my channel more about fibromyalgia. Personally, I’d be interested in the things that helped you and what didn’t. If you don’t want to comment it here, just drop me a line via email. I’d really like to hear from you.
Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory very quickly.
Also, make sure you are not ingesting high amounts of oxalates. Even a high tea consumption can affect some people. Spinach smoothies are an oxalate disaster.
I have ulnar neuropathy for past 3 years and neck pain. Doctors doubted its a mND motor neuron disease and they still following my disease to confirm what it is. Past 8 months i have several body pain and joint pain and doctor said its a fibromyalgia. And mytochondria is dysfunctioned
Yes, sometimes it’s really hard to discover where the symptoms come from. Of course it might be fibromyalgia but you should wait till other possibilities are ruled out. There’s a certain number of diseases with pretty similar symptoms and these have to be checked for first. Keeping my fingers crossed for you.
@@gideonfranck5950 is it possible having genetic disorder and fibromyalgia in same body? I'm dying in pain
Hey Rocky, of course this might be possible. But not knowing you and your precise medical history, it can’t be up to me to tell you if it’s this or that. I’m sorry about that and hope you understand. It would be like a shot in the dark with one bullet. The chances I tell you something terribly wrong are pretty high. But if you like to, you can drop me a couple lines by email or a DM on Facebook.
What steps were needed to conclude about the mitochondria dysfunction? Was there any screening testing done for confirmation? Thanks!
Just found out that mitochondria disfunction can be confirmed by MGC8 and HTRA2 gene mutation test.
This is nothink new we been told this for years
Wow, then you have been way better informed then most others. Congrats! 👍As I wrote in an answer before, there are a lot of new fields where scientists try to discover different things, like small fibres neuropathy etc. but nothing of it has been proven yet. Good science is a slow business. 🤷