Відео

Thanks so much for reaching out. Unfortunately, there is no blood test for fibromyalgia. It can be solely diagnosed by a number of different symptoms that make up the whole syndrome.

Thank you so much for this comment. Reading this I am really touched, by your mothers and your story and especially by the journey that you’re experiencing right now. It’s so extremely important to find your own way on this journey because in chronic pain therapy there’s never the same way for everybody. And because I know that most people have a long story of struggle until they get to this point I created PPL to help you to get earlier on this path. So it’s wonderful to hear that you need less meds to get along better - YAY 😃

I'm so sorry, but there's no "cure" yet. But starting the journey of recovery is possible I think. If you like to you're warmly invited to check out the website of PPL: www.painpauselive.com

Dear Marian, thanks for this comment, it's not only important for you but for others also. It sounds like you've been through quite some journey within the health system. I'm sorry to hear that there hasn't been any help for you yet. The name fibromyalgia comes from the most common symptom of widespread pain especially concerning the muscles and ligaments, so it is purely descriptive. The other symptoms are very varied between people who suffer from it. That's why we speak about a syndrom. But still I think that we can do things to get better. I'd like to invite you, if you want, to get my free pdf on the pillars of a holistic pain treatment here. Hope it might be a first step of help. From there you can discover what PPL has to offer (free or paid as you like). Here's the link to the pdf: www.painpauselive.com/6-pillars

You are absolutely right! Phibro is a complex disease with a whole lot of systems in the body, losing their grip to normal functioning. That’s why we call it a syndrome. And because of our better understanding, a new kind of pain has been added by research: nociplastic pain. For a little more in-depth information you can watch my other video on fibromyalgia or visit my website painpauselive.com

It's sad to hear this. If you don't mind, let me ask: What's been possible for you to deal with your pain so far?

Thanks so much! 😊 Mind if I ask, what could you relate to mostly?

It has to be thoroughly diagnosed, because there are some conditions with some of the same symptoms. If done correctly fibro might be the right diagnosis. What have you been doing about it?

If you don’t want to accept that diagnosis and I don’t blame you, I’d be looking into elimination of neurological conditions, and mri scans to eliminate spinal impingements

I’m sorry to hear that your experiences with doctors haven’t been good. What have you been missing in these contacts?

Hey, Debbie, you are so right. When even doctors don’t believe you, it’s an awful place to be. How do you deal with it? I bet there are a lot of others out there who experience these situations.

I do take Gabapentin but want to go more natural products.

Hey Diana, happy to hear that you found something helpful for your sleep. As you might have experienced, you had to try out different things before you found something that fits you. And that’s something very important because in chronic pain and especially and fibromyalgia there is no one size fits all and it sometimes takes a lot of patience to get to this point.

Dear Josephione, I'm so sorry to hear that. And sorry to hear that my video had nothing new for you. There seems to be a long way to go from findings in research to any remedies - if there are any. Unfortunately we know that most kinds of medication don't work for fibromyalgia. So most GPs are just as helpless as their patients. So I can understand perfectly well, that you want to switch to natural therapies. Did you ever try any mind-body therapy? If yes, what is your experience with it?

The absolute best dietary source of Thiamine, B1 is pork.

Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.

Thank you.

Thanks your comment. What you write is not really true, at least misleading. While Nuro inflammation, plays a role in every kind of pain, it’s not the nerves themselves that have to be inflamed. AND viruses are just one cause for the symptoms of fibromyalgia. I know, that we like to find only one cause for everything, but this doesn’t fit here at all. I think this point is outright dangerous, to present one solution for every possible disease.

Thanks so much. Yap, not having to deal with neuropathy is really a blessing.

I don’t agree at all. It downplays the symptoms and the suffering of those with fibromyalgia. While exercise and nutrition are important, it only plays a role for a subgroup. Btw, pharmaceutical companies don’t make a big business out of patients with fibro, since most drugs don’t work well. If you’re not sure, please take a look at the guidelines.

Well, basically all this is leading to neuroplasticity or is an effect of it. Neuroplasticity in chronic pain isn’t new either but now we have a category like nociplastic pain and first research on neuroinflammation (about which we don’t know enough yet) that might to different treatment schemas. On the psychological side some are already out and the program of Pain.Pause.Live. incorporates them. Within the next weeks an updated video will come. 🤓

No, I would say replenishing the body's bicarbonates is the way forward. Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.

I'm so sorry to hear that. And it sounds like you've dealt with it over a longer time, right? And it sounds like you've tried a lot to get rid of the symptoms - nothing really worked. No wonder you're fed up. It's often so exhausting to find a way to recovery, even if a full recovery is not always possible. It sometimes is like finding a way through a labyrinth. What's often missing is something like a thread that leads you through it. Do you have someone to help you through these turbulent waters? With this I'd like to send you a whole lot of courage from the bottom of my heart - as a little beacon to light up your world. What seems to me a bit special is the fact that you ended up in the ER. While fibro can be quite debilitating and really bad, the ER is not the usual place where to end up. Since I don't know anything about you at all, I can't really comment on this from a professional point of view. But fibro-like symptoms can be caused by other diseases too. Did you get checked for these?

Thank you for responding, appreciate it greatly. Yes they checked me for heart problems ect.... all was good Thank goodness!! My Fibromyalgia is causing spasms in my back, chest, which is very painful & scary. Spasms meds. we're given, I have extreme fatigue, abdominal problems, IBS-MIXED on pre& probiotics/Metiucal . I have Fibromyalgia really bad they said, don't have much of a life anymore. I'm married 38 yrs. my husband is supportive & my family & grown children wrote me off, they think I like attention & how could anybody have so many problems back to back ? 😑 if one turns on you in my family they all do- crazy I know. Can't work due to this & no disability, have tried alot! My husband has 2 jobs, so he's not around to talk to. I'm 56 - people think I look about 30 - so that's 1 thing that's good & my weight is 140-145, 5ft. 2 inches. Stay inside for a couple of weeks at a time, sleep day & up at night. I'm very messed up wish I was making this all up. Hope I helped you on info. Please let me know if anything else. Thanks again

Hey Angela, thanks so much for opening up and giving the information. It looks as if so many things weigh on your shoulders, that's hard to bear. You know, I often say to my clients that pain is like an octopus, with its arms reaching in so many areas of the life, making it miserable. And others often have great difficulties understanding what's happening inside of us pain patients. They just have no clue what it is like - even if we tell them. If you want to know some more about my story, I made a video on UA-cam. You can find it here: ua-cam.com/video/jynU93s294s/v-deo.html I'm sure you tried out a bit to fight the symptoms til now and I'm curious what it is. If this here is too public for you, you can email me anytime (gideon@painpauselive.com) or even have a free short call: www.painpauselive.com/book-online. Keeping my fingers crossed for you.

Are you on a high oxalate diet?

Also, look up research headed by Dr Paul O'Connor from the Department of Physiology at Augusta University, Medical College of Georgia on sodium bicarbonate. It shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory in as little as two weeks.

Thanks for mentioning this! As you pointed out rightfully, it might not be fibromyalgia. While there is a huge diversity within the group of fibromyalgia, patients, not everything I mentioned in the video holds true for everybody. But high tolerance levels of pain are quite unusual for fibromyalgia. this is why the symptoms should be checked very thoroughly specialists. If it’s not fibromyalgia, the symptoms should be treated differently.

Well, the majority of patients doesn't respond with widespread pain to a cervical fusion. But sometimes central sensitization can be triggered by such a health event. This might eventually lead to symptoms like those in fibromyalgia. But this might also be far fetched. What's your doctor saying?

I had a cervical fusion over 30 yrs ago and got fibromyalgia soon after. I also have worked at a Surgery Center and have spoken to numerous patients who have also had the same outcome.

Exactly! While fibromyalgia may have a lot of different causes, it’s always mind and body together. When we feel chronic pain, both sides are absolutely interwoven, so I think it might be even worthwhile asking if this strict separation between mind and body makes any sense at all. What do you think?

Testing for what i have autism heds fybromyalgia genes for it

@@Truerealism747 I see. Hope it can identify good treatment plan for you.

Hey Paulo, thanks so much for your response to the video. Sorry to hear how much this difficult pain condition has cost you. Personally, I think that the 90s are a little far-fetched. But research for fibromyalgia is like going down the rabbit hole. There are so many ideas to follow and for the patient it’s seldom a big leap into recovery. This is partly due to the variability between people suffering from fibromyalgia water works for one doesn’t necessarily seem to work for other people. As for the psychological part, we seem to move forward consistently, but still slowly. The last year’s brought more breakthrough moments. I will address this in future videos as I decided to make my channel more about fibromyalgia. Personally, I’d be interested in the things that helped you and what didn’t. If you don’t want to comment it here, just drop me a line via email. I’d really like to hear from you.

Being low in bicarbonates causes the body to run in a hyper inflammatory mode. New research, headed by Dr Paul O'Connor, from the Department of Physiology at Augusta University, Medical College of Georgia shows that increasing bicarbonates can switch the body from pro inflammatory to anti inflammatory very quickly.

Also, make sure you are not ingesting high amounts of oxalates. Even a high tea consumption can affect some people. Spinach smoothies are an oxalate disaster.

Yes, sometimes it’s really hard to discover where the symptoms come from. Of course it might be fibromyalgia but you should wait till other possibilities are ruled out. There’s a certain number of diseases with pretty similar symptoms and these have to be checked for first. Keeping my fingers crossed for you.

@@gideonfranck5950 is it possible having genetic disorder and fibromyalgia in same body? I'm dying in pain

Hey Rocky, of course this might be possible. But not knowing you and your precise medical history, it can’t be up to me to tell you if it’s this or that. I’m sorry about that and hope you understand. It would be like a shot in the dark with one bullet. The chances I tell you something terribly wrong are pretty high. But if you like to, you can drop me a couple lines by email or a DM on Facebook.

What steps were needed to conclude about the mitochondria dysfunction? Was there any screening testing done for confirmation? Thanks!

Just found out that mitochondria disfunction can be confirmed by MGC8 and HTRA2 gene mutation test.

Wow, then you have been way better informed then most others. Congrats! 👍As I wrote in an answer before, there are a lot of new fields where scientists try to discover different things, like small fibres neuropathy etc. but nothing of it has been proven yet. Good science is a slow business. 🤷