Відео

I am barely in the process of diagnoses. I first started 4 yrs ago with a high fever that lasted 3 days. I felt sick and crummy. And everyone at work got sick, even my husband. Didn't think much of it. But this was two weeks before Covid was declared officially in the U.S and quarintine. To make the story short, it triggered an chronic eye disease called keratitis dendritic. I was fine after treatment. Yet, two years I got sick from a respetory infection working with kids ( I was a teacher). I had to be in medical leave because I had 5 ulcers in my eye (keratitis dendritic aka herpedic eye).Took strong doces of acyclovir. Fom there on, I hade dry eye syndrome, the trigeminal nerve pain, the 8 months after,ezcema on my neck and chin, then I became sensitive to most sunblocks, acept the one with zinc oxide. Then after fighting this for 4 years, in mid August I almost fainted. And I started have other symptoms like, sever trigeminal shock pain, dehydration. I would drink water and nothing helped, my eye were more dry than usual. My knees and ankles started to hurt. Then my stomach, lower back and last my hands and feel started to burn. So here I am trying to get things figured out in Mexico because here in the USA there is no appointments with the rheumatologist till Feb.24th 2025. I already have had 3 espisodes of pain in this month and a half. No treatment yet, till testing is done. I feel scared. I am a mother of 3 young children. I want to be able to live long for them. Is there hope for me? I need guidance.Also, no one in my family has this disease. Could have covid triggered this autoimmune disease?

God bless ❤

These are great! Thanks, Vickie. 💕💕💕

Hi Vickie 👋😃👋 Oh this reminds me of my late 20's workout with Denise Austin she was an enthusiastic instructor and your doing great as well!! 👏🎉👏🎉👏

I have calium and vitamin d off the doctor, as I have osteoporosis and I have iron because I'm anaemic.

I live in England. I've got a hospital appointment next month for the diagnosis, but my dentist said she thinks I've definitely got it. She's the one who got the appointment with the dental expert. I choke in my sleep, and when I'm outside in the cold talking. My throat and mouth are extremely dry. It has affected my eyes badly. My chest feels on fire.

Watched some of your other videos and you have the Best Personality and video editing skills❤

Your lovely 😊 plz don't use microwave

Because you need fluid to for nuerotransmitters to work well . Dryness makes it hard . Yah i experienced all that and people think im saying something bad or a lie and its not that its because i get what i want to say mixed up or i say things inaccurately. Then im looked at like im lying or being rude. I do have borderline diabetes. And tinnitis.

I ate 4 tins of sardines a day for a week and I now don't have dry eyes any more and my mouth is no longer dry. I eat sardines about 3 x week now to maintain the tears and saliva. What the body needs is Vitamin A. Not beta-carotene. But real, animal based, Vitamin A. And the omega 3s. I also massage the salivary glands and tear ducts. Vitamin D status is also important. Vitamin D is an immune modulator and adequate Vitamin D levels are crucial to control auto-immune conditions. But the sardines, man that was miraculous! Oh, and I was diagnosed about 25 years ago and only just figured this out this year.

Thank you for this. I realized that regular "movement" has harsh impact like i did a few jumps the other day not very high and been having right knee pain for almost a week. Will do in the morning. Greetings from nyc.

20 yrs now Similar to your case. Have you ever tried natural remedies or did vit D levels?

thank you very much 😍

This is great Vickie! I’ll save this to do tomorrow as it’s midnight here right now. Btw I wanted to email you but couldn’t find your emails for some reason. Would you mind emailing me so I can have your email address? Many thanks! ❤

It’s called capillaritis, by the way, vasculitis is super serious. SD can cause SV vasculitis so testing is good. You get prednisone everyday?! They tell me that’s real bad for you. You get Plaquenil? My doc won’t give me anything until I get major organ involvement

I just went to the doctor for the random bruising and the man told me that it was an AGE SPOT (I’m 47.) I had one bruise that was a circular shape, he said it was RINGWORM. I suggested anemia. But I do take aspirin everyday. I also get pigmented purpura (had a biopsy) some blistering and some kind of eczema. Also, I flush severely in my face and neck and I sweat. I have primary SD.

vitamin E helped more then anything for me

You have such a wonderful attitude. Very inspiring and helpful.

I found your video while searching for srjogen , Im sorry to say this but the diet you show has a lot of sugars, maybe that's why you feel tired, oats are high glycemic index and molecular structure is similar to wheat, maple syrup is also sugar, I agree with introducing omega 3....

I'm in England, 86 years old and have struggled since 2018 to get a diagnosis of SS. I had 9 lip biopsies in 2018 which were "mislaid". I have all the symptoms you have spoken of. I had a stroke and lost sight in my right eye where there is still a large painful blood clot. Am so depressed as nobody here fully understands SS. Can you offer any advice please.

How do you use the flaxseed

I've lost my family. I've lost my house I live in three rooms. I am in such a mess. I have no balance I fall down red eye swelling glands swelling everywhere my girlfriend says my one hand the claw going to the bathroom every 15 days play my physician is not very invested in my health I was in a car accident many years ago and have a Gore-Tex implant in my neck, they said I have chronic regional pain syndrome and that's what I got tagged with by Major hospitals and that's what they left it at, I can't stand at the stove to make a simple meal. I made more money in one week than I do now in a month. I'm one of those people that want to work I don't even have an animal now this is the first time in my life I haven't. I was always a surfer a scuba diver horseback rider camper etc now I don't leave three rooms in 3 years I mostly lay on my bed and I'm waiting to die

Thank you for this exercise video in a chair, I definitely need these. Great explanation on how to do the exercises.

Love this! I’ll do this tomorrow! 😀🙏❤️

I like also that the discussion talks about the importance of God and faith, paring down what one can do, asking for help, finding out there are other parts of self, loss of work, the expense, disability and Social Security, being humble and choosing celebrations,etc. You are right. Your closing about self worth and God is spot on. ❤🎉🙏✝️😢

I really like that you have a support system thru your family and real friends to help you through your Sjogren's journey. Thank you for sharing. ❤❤❤

I can’t rise my arms up my joints are too dry. It’s so painful.

I don’t think these brands are the best quality.

Totally agree my neuropathy is so painful like walking over safety pins n fire my connective language is bad sometimes I don't just forget the word I for the conversation and stop midway then have to ask what I was saying

Any immunesupprents you should not have any live vacines flu covid ect will mess your immune system up

Yes i agree with you how many so called friends walk away but i felt because i wasn't giving them anything like their kids coming to play in garden ect but then you have to realize they aren't n never were real friends i have sjogrens fibromyalgia EDS neuropathy pituitary tumor RA slipped disks 13 bulging discs in back mctd breathing differculties hair n teeth loss inflammation of bowel bladder incontience hearing loss in one ear my histamine is attacking my body so i get swollen eyes lips itchy welts but this last 3 yrs. Has been the worst times sr but it definitely helps listening to you telling your story because you don't feel alone ❤

These reality / realistic videos are so important. ❤️❤️

Sending you so much love and sending healing prayers. 🙏🏻 ❤️❤️💕💕🙏🏻🙏🏻. I’m so glad you’re giving yourself the TLC you deserve. Wishing you better asap!

Thank you for this I was just diagnosed with this and rheumatoid arthritis. I've been experiencing pain since young and now I know what has been happening. Jesus is with us all thank you for your testimony ❤️❤️❤️.

I was diagnosed with SJOGRENS thank you for sharing🙏

Oh Vicki, I’m sorry I’m going to not say anymore to you about this but goodbye lupus book is so easy to read and it’s a small book because she doesn’t go into details that aren’t important just how she reversed her lupus and this is the same protocols she’s using for other people with auto immune disease OK Vicky I’m out of here. I’m not going to, come in on your channel and say anymore about this. I just want people to know about it. I’m so excited because I found her.

By the way, Vicky, I have really chronic asthma and eating her protocol. The smoothies and stuff is gotten me off of my inhalers goodbye lupus that’s all I can say. Please check out her channel goodbye lupus Dr. Brooke Goldner lupus is not the only thing that she’s helped people reverse

Hi Vicki, I’ve just found your channel and have gone over several of your videos and have left the same missed messages but they were like a year and two years old and I just found this one that said it was 13 days ago so I’m telling you I want to tell you about a doctor Brooke Goldner, who has a UA-cam channel called goodbye lupus she has helped so many people and people with your auto immune disease. She is 19 years free of symptoms of her lupus. If you haven’t found her, I beg you to look up her channel and her website and I really encourage you to read her book. Goodbye lupus, she also has some cookbooks a couple. They’re not expensive. She’s not getting rich off of this her husband and her both have a mission to help others reverse their diseases as much as possible where the scarring will allow scarring there still helped with her protocol. This was an accident. She just wanted to lose weight, she was getting married. Her husband had accepted that he might not have her very long together along with her own diet protocol that she followed lose weight before she realized that with losing weight and then continuing on this eating protocol suddenly she realized that she had no more lupus symptoms. She has been lupus free for 19 years, please please please look up her channel. She’s not selling anything except she does sell her books. She gives so much information online free. She has Instagram, UA-cam and another one of the other programs but her husband also has a book out. I think his name is Thomas Tadlock and, he’s really really knowledgeable too and they have a Facebook channel. If you go to smoothieshred.com you’ll get the Facebook page and then the recipes free recipes for the smoothies and stuff. They don’t sell any ingredients for your smoothies. They don’t sell anything like that they give their free, all of their information is free all the time you can her Wednesdays or live and she answers questions and she’s just a genuine person. This is not a scam. I just beg you to look at her UA-cam channel. She is known all over on the health channels, they have her as guest speaker, I just beg you to look at it. It can’t hurt but it sure might help and I am also doing her eating protocol. I’m just I have to say I’m not as good at it, but I know that the days the weeks that I have been on it really good. My symptoms of my auto immune disease go away, I just happen to be one of those people addicted to food and she also works with people and has many conversations about how to overcome these addictions which I keep following her because I’m going to do it but I know that there are a lot of people that write in and make Comments on her websites I mean on her videos about how her protocol has gotten them rid of their problems and yours is one of hers that she one of the things that she’s had a lot of success with. May God bless you and I just hope that God will let you open your heart to know that I am on the up and up and that checking her outcan’t hurt but it might help many people are having their reversal, including people with your auto immune disease. God bless you.

Vicky have you found goodbye lupus yet? It’s a book written by Dr. Brooke Goldner and she also has a UA-cam channel goodbye lupus she has written a book goodbye auto immune disease. She is helping many many people reverse their auto immune diseases and yours is one of them along with lupus, Hashimoto psoriasis and many other things and there are many many benefits from her protocol and it’s not something she sell you. The books are the only thing that she sells and she gives so much of her information. Everything she has she gives for free however it’s easier to have that little book and it’s not expensive. She also has a recipe book to recipe book one of them is called. Goodbye, hello delicious she has a website. Goodbye lupus her husband, and she accidentally found this formula of food eating that reversed her lupus as she was losing weight. The protocol was developed to help her lose weight. It’s just normal every day plant exclusive eating. I just can’t not tell you about it, I know that this is not what you have your channel for this isn’t advertising. I’m someone who is getting help from her protocol. She is so giving and her husband is and she are both so giving and they’re just interested in helping other people like her several times, she almost died from her lupus she had lupus at 16. She has been symptom-free for 19 years, I hope that anyone seeing this would at least look it up is nothing to lose. It’s not a scam. Her books are sold on Amazon. She has has a wide presence on UA-cam with people inviting her and other people who have had good results with her plan her program she’s Not in there to make money she’s just an awesome person and her husband is an awesome guy. She does not encourage anyone to get off of their medication’s until their doctor takes them off, but many people are getting their auto immune diseases reversed with this protocol. Goodbye. Auto immune disease is a book that has a lot of testimonials from people who have done her private program, and been healed with it, which is the same protocol as she lives in her goodbye lupus book. For people who can’t chew a lot of veggies and plants smoothies can be made and I do the smoothies and I love them. She is such a bright positive thinking person. I hope that you will check this out. If you see my text you’ll see that it’s not a scam that this is real every day wonderful things happening. Of course mainstream doctors are not willing to say that anyone is cured, but for those 19 years, she has been symptom-free for lupus. She was a very sick dying woman may God bless you checking this out just can’t help but it sure might help.

Have you heard of a book or an eating protocol called good life goodbye lupus bye Dr. Brooke Goldner? She has a UA-cam channel called goodbye lupus. She has helped many many people with auto immune diseases and other problems with her eating protocol. She accidentally reversed her lupus that she had had for many years since she was 16 years old and was expected several times to die. She has helped people with your type of auto immune with the Sjogren’s Hashimoto’s MS psoriasis, etc. this is strictly a plant-based protocol she wrote a book called goodbye lupus you can find her on UA-cam by putting in goodbye lupus. She has a Wednesday program. She shares all of her info for free and does have a program for connecting with people who are not able for some reason to stick to her program but still want help, but for the most part, everything is free all of her information she doesn’t hold back anything. Her husband is also in this with her and was one that helped her develop a protocol for losing weight as that’s his expertise and his degree is in fitness this is an amazing program, I have shared these books with many people. She also has written a book by auto immune disease anybody going through any of these things to check her out and there are other mini other doctors who have changed to plant-based they talk about the plants having too many oxalates however she has you drinking a lot of water unless you have like a kidney problem that you have to hold back on the water then she modifies the protocol until they’re able to take more but drinking a lot of water is one of the key things too, but she has been symptom-free for 19 years. She has a website goodbye lupus.com. So many people that I have talked to you about this now I am not on her program and the way that I want to be mainly because I have a problem with food addiction, but she has helped me so much and I’m getting closer and closer to being completely plant exclusive and I am I feel so much better my auto immune diseases much better at those times until I fall off the wagon however, many people are much better at things than I am however, I am not going to continue saying this because I am going to do it myself because I believe in this and I see so many people recovering and reversing their illnesses that were expected to die even people have commented that other diseases like heart problems and things have disappeared. I like her because she won’t lie to you if she doesn’t know if her protocol will help she won’t tell you it will and she always tells you don’t get off of your medication just because you’re going on this protocol you have to make sure that you’re OK before and have your doctor take you off of it so she’s a legitimate doctor, she’s has a wonderful program and many doctors returning to her for their illnesses. Many people are having her on their programs on UA-cam. She’s been asked to talk at seminars and things she’s been. She’s just an admit her program is amazing. I just beg you guys to look at it won’t hurt won’t hurt to investigate it.

Hello VIckie. I am newly diagnosed with sjogrens about 3 months ago after insisting that my doctor do blood tests. There is a shortage of rheumatologists in my area so I do not have one. Do you get nausea and diarrhea out of the blue? I get nausea and diarrhea out of the blue and have to rest for a week or so until I feel better. Also sometimes I get overly tired and have to rest a week at the time. If I get bit by a mosquito or stung by an insect it causes an itchy rash that takes weeks to heal. Thank you for your channel and sharing with me.

I just decided after 2 years of cellcept and 2 bowel obstruction that no more meds! Now just my bp meds, vitamin supplements and a day full of either work or outside activities as much as I can tolerate.

Oh my, we are a lot alike. Please take care. ❤

How many years u have this disease..

I have so much trouble swallowing pills as well and have to take them 6 times a day and that is not including my supplements. I have to wake at 4 am and take my thyroid meds because they have to be taken alone and 4 hours away from my other meds. I had thyroid cancer and have no thyroid so need optimal hormones from meds only. I have multiple autoimmune and chronic illnesses and am pretty much in agony every waking moment now. I do hide it well though. Not sure how much longer I will be able to do that. Thanks for the video! Helps to know you are not alone even though I would not wish this sort of life on anyone.

My Rheumatologist put me on Humira. It helped my skin dramatically, as well as fatigue.

love this 💕

My eye dr. said one blood test for Sjogens and said it came back negative yet I have all the symptoms. Not sure what to do?

Im from India im also sjogren's syndrome patient my age is 37 but im suffering with dry mouth dry eyes swollen gland and rashes

We're going to live until we die if it kills us!