DefeatDuchenne
DefeatDuchenne
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Industry Update: Avidity
Defeat Duchenne Canada hosted an industry partner update recorded on Thursday, October 3. In this free webinar, Avidity Biosciences shared the initial data from the EXPLORE44 TM Clinical Trial.
Tune in to the evaluation of del-zota(formerly AOC 1044)for the treatment of individuals with Duchenne muscular dystrophy mutations amenable to exon 44 skipping (DMD44)
Hear more from our Industry Partners: defeatduchenne.ca/webinars/
Переглядів: 84

Відео

Family Forum 2024: Avidity
Переглядів 1728 днів тому
Patient Advocacy Update: Avidity Speaker: Henry Nchienzia About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professional...
Family Forum 2024: Italfarmaco
Переглядів 3928 днів тому
Patient Advocacy Update: Italfarmaco Speaker: Paolo Bettica About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry profession...
Family Forum 2024: Dyne Therapeutics
Переглядів 3828 днів тому
Patient Advocacy Update: Dyne Therapeutics Speaker: Katherine Beaverson About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industr...
Family Forum 2024: PepGen
Переглядів 4828 днів тому
Patient Advocacy Update: PepGen Speaker: Alayna Tress About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals, f...
Family Forum 2024: Edgewise
Переглядів 2028 днів тому
Patient Advocacy Update: Edgewise Speaker: Drew Scruggs About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals,...
Family Forum 2024: Catalyst & Kye Pharmaceuticals
Переглядів 12228 днів тому
Patient Advocacy Update: Catalyst & Kye Pharmaceuticals Speakers: Amy Grover & John McKendry About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, cl...
Family Forum 2024: A Conversation About Accessibility
Переглядів 1328 днів тому
A Conversation About Accessibility Speakers: Dr. Jeff Preston & Leah Miltchin Carson, Easter Seals About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researche...
Family Forum 2024: The Duchenne Registry & Clinical Trials
Переглядів 4428 днів тому
The Duchenne Registry & Clinical Trials Speaker: Dr. Hugh McMillan About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry pro...
Family Forum 2024: Living with Duchenne
Переглядів 1228 днів тому
Living with Duchenne - Sharing our Stories Speakers: Terrence Ho, Torrance Ho, Eric Morden About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clin...
Family Forum 2024: Treatment Options
Переглядів 8528 днів тому
Treatment Options: What’s Available Now and in the Future Speaker: Dr. Amanda Yaworski About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicia...
Family Forum 2024: Navigating the Education System
Переглядів 1928 днів тому
Navigating the Education System - The Basics Speakers: Allison Green & Mireille Choquette About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clini...
Family Forum 2024: Keynote Speaker - Elijah Stacy
Переглядів 3728 днів тому
Keynote Speaker - Elijah Stacy About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, researchers, clinicians, and industry professionals, for a weekend full of ed...
Family Forum 2024: A Conversation with Satellos
Переглядів 20128 днів тому
A Conversation with Satellos Speakers: Frank Gleeson, Co-Founder, CEO & Dr. Ryan Mitchell, Vice President About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, re...
Family Forum 2024: A Conversation on Life Transitions
Переглядів 3228 днів тому
A Conversation on Life Transitions Speakers: Dr. Hana Alazem, Tara Previl, Eric Morden, & Emerson Bartel About the Family Forum: Defeat Duchenne Canada's Family Forum is the country's only national education program specifically designed for those living with Duchenne muscular dystrophy and their families. It provides a unique opportunity that connects our rare disease community - families, res...
Family Forum 2024: A Conversation on Endocrinology & Bone Health
Переглядів 7828 днів тому
Family Forum 2024: A Conversation on Endocrinology & Bone Health
Family Forum 2024: Message from the CEO
Переглядів 3228 днів тому
Family Forum 2024: Message from the CEO
Industry Update: Dyne
Переглядів 743 місяці тому
Industry Update: Dyne
Walk to Defeat Duchenne: Highlights
Переглядів 364 місяці тому
Walk to Defeat Duchenne: Highlights
2024 Annual General Meeting
Переглядів 2054 місяці тому
2024 Annual General Meeting
2024 Walk to Defeat Duchenne Closing Ceremonies
Переглядів 395 місяців тому
2024 Walk to Defeat Duchenne Closing Ceremonies
2024 Walk to Defeat Duchenne: Mid-Day Update
Переглядів 165 місяців тому
2024 Walk to Defeat Duchenne: Mid-Day Update
2024 Walk to Defeat Duchenne: Quebec Ambassador
Переглядів 185 місяців тому
2024 Walk to Defeat Duchenne: Quebec Ambassador
2024 Walk to Defeat Duchenne: Ontario Ambassador
Переглядів 115 місяців тому
2024 Walk to Defeat Duchenne: Ontario Ambassador
2024 Walk to Defeat Duchenne: Founder's Message
Переглядів 285 місяців тому
2024 Walk to Defeat Duchenne: Founder's Message
2024 Walk to Defeat Duchenne: Warm Up
Переглядів 165 місяців тому
2024 Walk to Defeat Duchenne: Warm Up
2024 Walk to Defeat Duchenne: Opening Ceremonies
Переглядів 425 місяців тому
2024 Walk to Defeat Duchenne: Opening Ceremonies
Industry Update: PepGen
Переглядів 1526 місяців тому
Industry Update: PepGen
Matheo's Story
Переглядів 3896 місяців тому
Matheo's Story
Defeat Duchenne Canada: Industry Partner Update with Dyne Therapeutics
Переглядів 1828 місяців тому
Defeat Duchenne Canada: Industry Partner Update with Dyne Therapeutics