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MNDireland
Приєднався 19 лис 2009
The IMNDA is dedicated to providing care for people with Motor Neurone Disease, their carers and families as well supporting research into the causes and treatments of MND.
www.imnda.ie
Email fundraising@imnda.ie / info@imnda.ie
Freefone 1800 403 403
www.imnda.ie
Email fundraising@imnda.ie / info@imnda.ie
Freefone 1800 403 403
Eileen Butler shares her story of Living with Motor Neurone Disease
Eileen Butler from Meath, shares her real-life personal story of living with MND. Filmed in her own home, this videos offers an intimate view into her life, featuring conversations with her family and her MND nurse from the IMNDA.
Her story brings to light the emotional and practical challenges the family faces daily and outlines how we can do more to support those with MND while at the same time, shows an appreciation as to how far society has already come and the support offered by many.
Her story brings to light the emotional and practical challenges the family faces daily and outlines how we can do more to support those with MND while at the same time, shows an appreciation as to how far society has already come and the support offered by many.
Переглядів: 916
Відео
John Daly shared his story of living with Motor Neurone Disease
Переглядів 716Місяць тому
Sadly John has passed away but his wife Deirdre gave us permission to share his story and continue to raise awareness. John Daly from Dublin, shared his real-life personal story of living with MND. Filmed in his own home, this videos offers an intimate view into his life, featuring conversations with his family and his MND nurse from the IMNDA. His story brings to light the emotional and practi...
Andres Estevez Guersanik's story of living with Motor Neurone Disease
Переглядів 888Місяць тому
Andres Estevez Guersanik from Dublin, shares his real-life personal story of living with MND. Filmed in his own home, this videos offers an intimate view into his life, featuring conversations with his family and his MND nurse from the IMNDA. His story brings to light the emotional and practical challenges the family faces daily and outlines how we can do more to support those with MND while at...
The Challenges Faced by People Living with Motor Neurone Disease (MND) in Ireland.
Переглядів 90Місяць тому
This is a series of videos to raise awareness of Motor Neurone Disease and the experiences that people with the condition often face. This video depicts a fictionalised scene that many with MND experience all too often-misunderstanding and prejudice. The video features a man with MND entering a pub. As he contemplates his order internally, his thoughts are clear, and his inner voice is strong. ...
James Gillivan 4 Marathons in 4 Days
Переглядів 1052 місяці тому
James Gillivan is from Moate in Co Westmeath. He is running 4 Marathons in 4 Days along the Greenway of the Royal Canal - Athlone to Mullingar, Mullingar to Enfield, Enfield to Dublin and on the final day do the Dublin City Marathon. He is doing this because his father passed away from MND and wants to give back to IMNDA for the support his family received.
The IMNDA Annual Conference 2024 -Tara Agnew, Irish Life.
Переглядів 322 місяці тому
Tara Agnew & Garvan Kennedy are both financial advisors with Irish Life. This year Irish Life employees chose IMNDA as one of their charity partners. Tara & Garvan are going to give some pointers on the best ways to start organising finances, mistakes to avoid and tips for finding a reputable person to speak with about financial matters.
The IMNDA Annual Conference 2024 - Prof Orla Hardiman, Trinity College Dublin.
Переглядів 802 місяці тому
Prof. Orla Hardiman is Professor of Neurology at Trinity College Dublin, and a Consultant Neurologist at Beaumont Hospital. She leads the National ALS/MND Service for Ireland, and takes care of over 80% of all Irish ALS patients. Under her leadership, the multidisciplinary clinical ALS/MND team at Beaumont Hospital comprises over 20 specialist professionals with expertise in all aspects of care...
The IMNDA Annual Conference 2024 - Catherine Jennings, Caregiver.
Переглядів 1242 місяці тому
Catherine Jenning's husband Barry was diagnosed with MND in June 2018 at the age of 32. Catherine shares their experiences of the last 6 years and how they have taken on the many challenges they have faced over this time.
The IMNDA Annual Conference 2024 - Fiona Thornton, Head of Communications & Advocacy, IMNDA.
Переглядів 412 місяці тому
Fiona Thornton, Head of Communications & Advocacy, IMNDA.
The IMNDA Annual Conference - Dr Annette Llyod, Snr Clinical Psychologist, Beaumont Hospital.
Переглядів 282 місяці тому
Dr Annette Lloyd Annette is a Senior Clinical Psychologist working in the National Motor Neurone Disease service in Beaumont Hospital. She has a background working in adult mental health with a particular interest in trauma. Annette has specialist training in Cognitive Behavioural Therapy, Compassion Focussed Therapy, Dialectical Behavioural Therapy, Acceptance and Commitment Therapy and EMDR. ...
The IMNDA Annual Conference 2024 - Catriona Dixon, Living with MND.
Переглядів 582 місяці тому
Catriona Dixon was diagnosed with MND in December 2023, she shared her story of how she is living with MND at our Annual Conference in Dundalk on the 4th October.
The IMNDA Annual Conference 2024 - Shaun McCormack, Safecare Technologies.
Переглядів 152 місяці тому
Shaun McCormack, Senior Assistive Technology Consultant with Safecare Technologies delivers a presentation on 'What can technology do for me.' Shaun prides himself on being able to help users find the right solution to suit their individual needs.
The IMNDA Annual Conference 2024 - Kevin Burn, CEO, IMNDA.
Переглядів 252 місяці тому
Kevin Burn, CEO IMNDA addressing the IMNDA Annual Conference in The Fairways Hotel, Friday 4th October 2024.
The IMNDA Annual Conference 2024 - Jonathan Healy, Chairperson, IMNDA
Переглядів 162 місяці тому
The IMNDA Annual Conference 2024 - Jonathan Healy, Chairperson, IMNDA
2024 Ice Bucket Challenge Compilation Video
Переглядів 936 місяців тому
2024 Ice Bucket Challenge Compilation Video
Guide to IMNDA Services 28th May 2024
Переглядів 416 місяців тому
Guide to IMNDA Services 28th May 2024
RAM Films LAUNCHES NEW DOCUMENTARY ABOUT RUGBY LEGEND KEVIN SINFIELD
Переглядів 5807 місяців тому
RAM Films LAUNCHES NEW DOCUMENTARY ABOUT RUGBY LEGEND KEVIN SINFIELD
Ollie Johnston shares his story for the Drink Tea for MND campaign this Spring.
Переглядів 2119 місяців тому
Ollie Johnston shares his story for the Drink Tea for MND campaign this Spring.
Video ALS/MND Global Rare Disease Day
Переглядів 859 місяців тому
Video ALS/MND Global Rare Disease Day
Marty Morrissey supporting Coachford College in Cork
Переглядів 13510 місяців тому
Marty Morrissey supporting Coachford College in Cork
Lovely video, wishing you very well❤
My brother was misdiagnosed and treated for epilepsy. After finally getting a diagnosis he was dead in 5 days
So sad - but lovely man and great information.
This kind of exposure is illuminating. Thank you for sharing.
Kevin and your team you are an incredible and inspirational person and youur team we are all behind you kev and your team, there has been nothing on calender or look North to see how you and them are doing on this incredible challenge 🏃🏃
Wishing you the best.
Eileen, you're truly amazing - love to you, Joe and all the family ❤
This us really nice
Well done🎉
well done daniel
Rip one brave man
Rip Colm
Thank you for your courage Ollie. My mom was diagnosed in 2018. There's a lovely scripture in Revelation 21:3,4. The hope for the future is a world without suffering, no illness whatsoever.
. Hi Ollie. I just read your story on UA-cam. I wish you well. I would just like to remind you that all who are diagnosed with MND, do not die within the life expectancy and prognosis. 2 to 5 years. I got the very same diagnosis in 1977. 47 years ago. I'm still here. Badly wounded but I've still got a quality of life at 91+ years. I've known people here in Ireland who lived 30 years and another person 35 years with this disease.we never know when that breakthrough will arrive. I know that it will not arrive in time to save me. That does not worry me. I've had a good innings, and if something is discovered to arrest this disease and I'm not here to witness that. Then I will smile from the heavens above knowing that I have contributed something to this breakthrough and the people who are then diagnosed will benefit greatly. Andy McGovern. The longest living survivor in the world at the moment. Good luck Oliver. Acceptance is the key. :-)
Wow just amazing
Hello Sir, How are you doing? Do you want an SEO specialist & UA-cam thumbnail designer to grow your channel? Anyway, Can we have a meeting to know more clearly? Thanks
Wishing your family very well.
Thank you for sharing
Thank you for sharing
My name is Caleb Sheehan too. Praying for you, cousin.
Sorry to hear about your situation but you are not on your own bless ypuxxxxx❤🎉
P r o m o S M 😔
I knew Ed in New York, we worked together doing work for European TV stations like the BBC. Ed loved the art of filmmaking, I was unaware of any talent in music. Cool to see another side of Ed. I was sad to hear of his passing and actually found out because I had a dream that Ed and I were working on an independent film, where I remember saying "Ed is a really good cinematographer" and then I woke up, looked up his name on my phone only to find out he passed last year. It's been well over 20 years since I last saw Ed but it looks like he created a wonderful life for himself in Ireland. Rest in peace brother.
Thank you to all those involved for making this beautiful service available to those who were unable to join in person. Jennifer Kennedy (Brussels/Tramore)
Hi Jennifer, thank you for your message, you are very welcome. We hope to stream all services into the future. Kind Regards, Team IMNDA
Please help me my father is suffering from this disease
My mums called Claire Byrne I'm using her account😊😊
Rest in peace
Farewell to my old school teacher
Its a pity and at the same time maybe a good thing people only learn about MND when they need to.
Keep strong Charlie, I know it's difficult but just try and keep strong, your a good man
I hope Charlie gets to live another 5 or six years, I really hope soo
U r wonderful! We love u! Stay strong!
Incredible, fantastic voice, this is really beautiful, my mother was an MND sufferer.
We all Love you xxx And now you know it . We watched you everyday and thank you Mr Fingerless man
Beautiful ❤
All the best Charlie, MND is such a cruel disease. I have lost friends with it. My beautiful cousin is losing her lovely husband to MND here in Western Australia. I pray they find a cure sooner than later. 💙
Beautiful gesture Bono❤ Best wishes Charie❤
Nice, it feels hopeful.
Snake bono
Rat Desmond
Excellent. A track from 2009 altered a little. Good stuff, and best wishes to Charlie.
Sounds great.
Thats not the song
Colm Murray was a Great Irish broadcaster I have alot of memories of I'm on RTE News
You are hope and inspiration for many people suffering from MND.
Farewell Roland, you and Annette will be missed by so many people whose lives you touched xxx
Good man Paul. Lovely to hear your story. I wish you well. You are indeed living with the disease, not dying from it. Here's to 2021.
I have decided to make this post or testimony public. My husband was diagnosed with Alzheimer’s ten years ago. I loved my husband very much, and it was heartbreaking to have him develop Alzheimer's disease and to stand by and watch him decline in his ability to take care of himself, struggling with day-to-day tasks. It takes away his memory and eventually the ability to do basic tasks. Alzheimer’s doesn’t just affect the person who is diagnosed - it also turns your world as a caregiver, upside down if your loved one is grappling with the condition. To be clear, there is no pharmaceutical medicine, no magic pill that has any significant effect on the progressive downhill course of this disease. Not until we use an Herbal Medicine called BRONGEE that put an end to it. He has been well and living his best life. While there may be other different options to into. Never make your own success path a secret. There should be no shame. Contact Dr. GIMMY with drgimmyharbalsolution @ gmail. com, IG page @dr_gimmy Call/WhatsApp +2347032734647 It may also help you too. HE HAS REMEDY FOR NUMEROUS DISEASES SUCH AS: *herpes cure *Lupus cure *Cancer cure *ALS *WEIGHT-LOSS *PENIS-ENLARGEMENT
I have just watched the Motor Neuron Disease Association video of the 35th Memorial service. As a long-time survivor with this disease and as a person who attended most of those 35 AGMs. I would just like to say that I was moved emotionally by the presentation and involvement of our association to make this connection with our members. (Due to the virus restrictions). Take a bow, you wonderful Association. Not only are you involved with our members, but you never forget those who have passed on, victims of this terminal illness. It is true.: "Those you love, never die.". Thank you! Andy ~
Hi Andy, I got your book last week from the IMNDA website, I have only just started it but it is great. Thank you for writing it and giving everyone the opportunity to explore these stories of Leitrim. Meadhbh
@@meadhbhhayes9079 Thanks Meadhbh. Nothing pleases me more than someone that I have never met, getting in touch with me and saying: "I've read your book. Thank you for writing it.". But to know that the proceeds are going to the Motor Neuron Disease Association and helping out my colleagues is actually what makes my effort more rewarding. Andy ~
What a lovely song for a wonderful worthwhile Charity!!....and...i am so sorry to hear about your MND diagnosis (i never knew?)...remember Roy....you are always in my thoughts..you take care of yourself Buddy!!...i have Type 2 Diabetes and severe Hypertension, so i'm not in the best of health meself, and i'm on 7 x lots of meds for life...so i really feel for you, i wish i could give you a hug... :(
Great work guys x I’ll be drinking tea in June for MND
Hello Jan, my wife Patricia has M N D she is into her 3rd year, every thing has to be done for her, and in spite of all this she has the most wonderful sunny disposition, and every day this disease is talking a little bit of her away, she still laughs! she still has her speech and a little movement in her left hand, to move the joystick on her wheelchair. And she is naturally right handed, The I M N D A association off Ireland is a fantastic organization, what would we do without them, where would people be? and to her carers who are fantastic group of people, I will not praise myself, I am her husband, and there fore now ends my story on my beautiful wife Patricia! Our thoughts are with you and everyone who has this Evil disease,
Hello Paul, my wife Patricia has ''M N D, she is in to her 3rd year, as like yourself every thing has to be done for her, one thing she still has is her speech, and she has the most wonderful sunny disposition in spite of this evil disease, and every day talking a little bit of her away] she still laughs, and we cry together, when everyone is gone!