- 68
- 91 802
The Shape Game
United States
Приєднався 19 лют 2016
This channel was created to document my Cancer Journey. From the diagnosis, to the surgery. There should be a video for whatever information you're looking for! :)
William
William
Thanksgiving in a Bag? (Lay's Turkey Dinner Chips & Jerk Chicken Chips)
Hope you enjoyed this different kind of video! Thanks for watching, and subscribe to the channel if you're new here!
For those interested in supporting the channel, here's a link to my Bandcamp.
neonnightslofi.bandcamp.com/
For those interested in supporting the channel, here's a link to my Bandcamp.
neonnightslofi.bandcamp.com/
Переглядів: 39
Відео
6 Years since Glioblastoma Diagnosis (Short Video)
Переглядів 17321 день тому
Here's to many more years, always positive, filled with hope and joy! If you would like to support the channel monetarily, here's a link to my Bandcamp! My Bandcamp: neonnightslofi.bandcamp.com/ My other UA-cam channel: youtube.com/@NeonNightsLo-fi?si=wd_3_2em3BlwOipK
Life, GoFundMe Update, & More Videos Soon! (October 2024)
Переглядів 158Місяць тому
My Bandcamp: neonnightslofi.bandcamp.com/ My other UA-cam channel: youtube.com/@NeonNightsLo-fi?si=wd_3_2em3BlwOipK
Canada, Insurance, & Falling in Love (March 2024)
Переглядів 5278 місяців тому
Long time no see! Hope you all had a great New Year's and holiday season. Here is my other channel that I mentioned in the video. youtube.com/@NeonNightsLo-fi?si=wd_3_2em3BlwOipK
5 Years since Glioblastoma Diagnosis (September 2023)
Переглядів 1,5 тис.Рік тому
I cannot believe it has been 5 crazy years so far! Thank you everyone for your consistently kind comments, and encouraging messages. Here is to another 5 years! Music: Neon Nights Musician: Me! (William) URL: neonnightslofi.bandcamp.com/
Top 10 Concerts I've Been To (Music Monday)
Переглядів 61Рік тому
In no particular order, here are my current top 10 concerts that I have been lucky enough to see!
MRI Update & Where to Find Me (August 2023)
Переглядів 561Рік тому
Hey there! This is my update video for August 2023. Music: Lofi Study Musician: FASSounds URL: pixabay.com/music/lofi-study-112191/
Let's Play "Pajama Sam 3: You Are What You Eat from Your Head to Your Feet" (Part 1?)
Переглядів 237Рік тому
Trying something a little different! Let me know what you guys all think!
April MRI Update! (2023)
Переглядів 824Рік тому
Spring time in Texas, and the MRI results are bloomin'!
28th Birthday, 1000 Subscribers, & Whales! (March 2023 Update)
Переглядів 239Рік тому
Hope the new year has found you well!
This song is for YOU!! (Positivity)
Переглядів 1652 роки тому
Hope this dose of happiness and positivity helps you in your journey :) Living in the Moment by Jason Mraz
Doctor's Life Expectancy Estimates (Mini Rant)
Переглядів 1 тис.2 роки тому
In today's video I discuss the problems I have with doctors in regards to informing their patients of life expectancy after cancer diagnosis. The music in this video was not made by me!
Cancer Free!! (October 2022 MRI Results)
Переглядів 5302 роки тому
Stay strong, stay positive, and keep fighting! :)
Wild Country EP by Wake Owl (Music Monday)
Переглядів 462 роки тому
Wild Country EP by Wake Owl (Music Monday)
Imaginary Man by Rayland Baxter (Music Monday)
Переглядів 602 роки тому
Imaginary Man by Rayland Baxter (Music Monday)
Positivity and Life (Shape Game Mini's)
Переглядів 2342 роки тому
Positivity and Life (Shape Game Mini's)
Turning 27 and Making Music! (February Updates)
Переглядів 1772 роки тому
Turning 27 and Making Music! (February Updates)
Labs and Customer Service: Waiting for a Bucket
Переглядів 3173 роки тому
Labs and Customer Service: Waiting for a Bucket
MRI Update: More Chemo (August 2021)
Переглядів 1,1 тис.3 роки тому
MRI Update: More Chemo (August 2021)
June 2021 MRI Update + I met Winnie the Pooh!!
Переглядів 5493 роки тому
June 2021 MRI Update I met Winnie the Pooh!!
The spirit of benevolent_benevolence be with you. [[[]]]
Please sir bato yeh injection jada lena sa side effect ha please sir bato
Kicking its butt! Lost my mama to that, so I’m sooo happy to see this.. thanks for the update
I have it as well. I live just outside of Houston and they have been wonderful. I’ve been going past the year. I wish you best luck.
I love it! Thanks for sharing your triumphant victory over an “incurable” tumor!!!❤❤❤
I did a 5 day treatment and im on my 8thday of withdrawal and it sucks.
Thank you for your presence. God bless you O:)
You have wildtype Or mutant type of tumor sir
Are you ok bro ??
Yes I am!! Just been procrastinating too much as well as adjusting to life in Canada, and living with my partner. But! If you're ever worried, I usually upload a few videos onto my side channels every other week. Since they are simple to make a upload there more frequently. (TV show clips and music remixes I've done)
2 weeks TYTMZ absolutely no side effects
Wow! That's amazing!
Hello william my father just diagnosed with GBM surjery followed with chemotherapy and radiotherapy. Now what should we do for him so that he too can live a happy life like you ❤️
I personally believe positivity, and enjoying life as much as you can. Worrying and thinking about the maybes and what ifs never seem to help much. In my opinion. ❤️ Go on vacation, watch the movies you always told yourself you'd watch one day, try new food! We should all do these things, yet it seems to take something like cancer happening to show us that we need to live life to fullest.
I hope he is alive I am still praying for him.
I'm still here! Listening to music, enjoying life, and working on videos/music. :)
My mom did surgery like you its been a month already and she started to have censure again , she will start radiotherapy this week
I hope her radiation has gone well do far. The worst thing I remember about it was the lack of appetite and being tired. I just had to tell myself that it was temporary, and it was helping me in the long run. That definitely helped me get through it!
how you are still going strong man !
Love, positivity, and good music. 🥰 That's what keeps me going! It's not always easy, life can get rough, but the rainbow is always waiting for you when the storm is over.
I hope to God that you are well, it has been 5 months since we heard from you.
I'm doing well!! I just need to stop procrastinating with the uploads on this channel haha. But my two side channels get regular uploads, so if you're ever worried you can check there!
How are you doing?
I'm doing great! New video should be uploaded soon. Thank you for checking in! 😊
@@TheShapeGameGBM just curious. I have Glioblastoma too.
❤Hope. Needed it to sleep tonight
I believe the reason why the survival numbers are so poor for glioblastoma is because doctors treat with standard of care only and standard care is not an effective protocol for glioblastoma. simple as that! Elderly people can and do survive cancer. Just look at Jimmy Carter.
Thank you for sharing. Gives me hope! Good luck!
the thing no one mentions is the constipation. I went through cycle 1 with 300 mg of temozolomide and was unable to poop until day 5.. I was not up for it and was literally exhausted by the time i was done. starting round 2 and moving up to 380 this cycle. Just ran across this. hope you are doing well.
Hi There, My father 62 age have GBM he had surgery on 29th April 2024 and now radiation started along with chemothreapy(temozolomide 140 mg). will you please give some advise to cure GBM 4th stage cancer
I truly believe positivity and enjoyment of your life while dealing with the difficulties is important. It won't always be easy, but I think it's another level of fighting the cancer through your own determination and positivity!
Hi, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will stay cancer free. Amen. I would also like to share the following six videos with you about salvation and two videos about evolution: Evolution vs. God ua-cam.com/video/uc_W9VtzJ0A/v-deo.html DESTROYING Evolution In Under 3 Minutes ua-cam.com/video/sWecPwrQv2c/v-deo.html Watch the Holy Spirit Work in Her Heart (Very Moving) ua-cam.com/video/iBEoI2u6kII/v-deo.html Fearing The Lord, God’s Discipline & Sharing The Gospel ua-cam.com/video/dES5WW66Mro/v-deo.html A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven ua-cam.com/video/IXEeMWCxyrQ/v-deo.html The Plan of Salvation ua-cam.com/video/PmkhRMPvt_0/v-deo.html How to Get Saved ua-cam.com/video/ajWdkuvrT6s/v-deo.html The Truth About Hell (Selected Scriptures) ua-cam.com/video/AVzbh_dLq3s/v-deo.html Best regards Chris “For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.
Omg. I’m on high dose of dex right now after brain surgery. They are sending me bonkers! I can’t believe they left you on a high dose, I got chemically coshed by my consultant last night. I’m weaning off for 20 days now. I haven’t slept for 1.5 months. It’s the most crazy experience of my life. Thanks for your video because I feel alone right now.
I feel your pain! Ready to get off these things!! Necessary for brain surgery tho.
Thank you for this video ❤ my mom was just diagnosed with HGG still waiting on the rest of the results and I have been scouring the internet for hope . You gave me that this evening 😢❤
Apologies for the late reply, but I hope all is well! Try to take the positive from something horrible like cancer. I look at it as revealing how we truly don't know what's next, and we should enjoy life to the fullest for what time we have! Be with the ones you love, the ones you always said you'd schedule time for. Watch the movies everyone always told you to watch, but you told yourself you would one day. Sit out on the backyard porch, watching the sunset as you listen to your favorite band.
Hi! I too have a Gbm. Wondering, have you had chemo or radiotherapy please? X
I did chemotherapy several times, and radiation therapy after surgery
please post your actual mri results to see images, GBM does not just vanish, hell my grade 2 astrocytoma has been removed twice and still doing chemo.
I currently don't have the MRI images with me. But yes, there are often microscopic remnants. But as long as you catch them when they get big enough, that's what matters. I try not to worry too much, and just have peace in the idea that as long as I keep regularly scheduled MRI, and trust my doctor, I'll be okay. :)
0:13 I started to take this Monday did it work for youtemozolomide I do 2pill a day and capecitabine
I I have to started it Monday
how was it?
Congratulations on your relationship! So exciting!!!!
Thank you so much!! I swear I've found my soulmate. They're everything I ever wanted, and so much more ❤️
@@TheShapeGameGBM you deserve every bit of that happiness!
My husband has same let me know how is your mom doing ❤❤❤❤❤
My mom is doing great! Still amazing, goofball mom I've always had. 🥰
God bless you my friend!!
Thank you so much for the video. My dad is currently undergoing the same treatment, though, tbh he has some major side effects like weakness on one side of the body, major fatigue and struggling to process information. But still, great to see you went through all of this stuff. God bless you! ❤
The journey can often be tough, scary, and dark. But as long as you stay positive and don't let the unhelpful worries cloud your mind, it will be much better in the long run. There are many things we cannot control, so why fill our mind with these things? Better to enjoy the company of those we love, then to worry about a life filled with sadness. You guys have got this!
Hey, happy to come across your videos! I am also diagnosed with GBM4. Already had craniotomy, radio and chemotherapy. Currently in my maintenance chemo phase. I can affirm that grumpiness after the surgery is true hahaha I was also a bit grumpy in the ICU 😆 Continue inspiring bro!
Please post the info
Got diagnosed GBM in Dec- I'm delighted to see William is thriving, I'm greatful for this channel- It's given me hope that there can be some life for me too after this!
Come stai amico mio
Congratulations! Enjoy the snow but we’ll miss you in the Lone Star (lone snowflake) state!
“So much snow” lol
Happy birthday ya old man
Love is in the Air!
Damm UA-cam let will make money again!!!
#CancerFree!!!!
Don’t get sick!!!!!
Where is the translation
canada people are english, they just use incorrect farenheight temperatures, celcius is higher grade.
Comment if you'd be interested in me posting a video about my GoFundMe information!
I would be interested in seeing a video with real proof you had craniotomy etc... GBM dont just magically get cured. its unfortunately the time of scammers everywhere, no one will donate without real evidence.
4 months we don't know about you.
Are you ok bro??
Please, tell us how you are in your new life in Canada. We are missing you. Hope everything is well!
any problems with lack of energy? while on temo?
Definitely a lack of energy. Some days it didn't seem to affect me, others it did. Diet was very important for me. Eating unhealthy food when you're not on this kind of medication already slows you down, but taking these meds and eating unhealthy food really trains your energy. Eating stuff like roast chicken, grilled salmon, etc these things should help you with those energy problems. I learned those lessons too late, so hopefully it can help you!
I start this Monday now for 12 cycles
You are on chemo and had radiation. How did/does your hair look that good???
I don't know! I think it's just luck. I never delt with any side effects revolving around hair.
@@TheShapeGameGBM Are you in remission?
*sigh* finally. Someone's personal experience.
That's exactly why I made this channel! I wanted to take the scary, technical, and complicated side and convert it into content that is easier to digest. And hopefully more friendly and positive!