- 20
- 17 689
Hypersomnolence Australia
Приєднався 1 вер 2014
Australian Not For Profit Organisation. Advocacy, Education, Awareness and Support for Disorders of Hypersomnolence eg: Idiopathic Hypersomnia & Narcolepsy.
Living with Idiopathic Hypersomnia & Narcolepsy - Beyond Medication. 6 Sept 2023
Special presentation by Gina Dennis (Madcap Narcolepsy) during a joint Living with Idiopathic Hypersomnia & Living with Narcolepsy Community Group catch up. For more information about our "Living with..." community groups please go to the Support Group page on our website: www.hypersomnolenceaustralia.org.au/supportgroup
Переглядів: 541
Відео
What is Idiopathic Hypersomnia?
Переглядів 644Рік тому
Idiopathic Hypersomnia (IH) is a chronic neurological disorder that causes an insatiable need for sleep. Despite extraordinary amounts of good quality sleep people with IH feel like they are in a constant state of sleepiness. Some say they never feel fully awake. But IH is much more than that, learn more: www.hypersomnolenceaustralia.org.au/what-is-idiopathic-hypersomnia
Living with IH: Cognitive Behavioural Therapy for Hypersomnolence (CBT-H)
Переглядів 343Рік тому
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? with Dr Sara Winter
Idiopathic Hypersomnia Diet and Nutrition 2023
Переглядів 675Рік тому
This presentation will provide you with information that will help you better understand what good nutrition is and how it can improve your overall health and wellbeing. The aim is to maximize the positive potential of your diet when living with Hypersomnia.
Idiopathic Hypersomnia & Narcolepsy Education Day - Question & Answer Session
Переглядів 1522 роки тому
Live Q&A Session with Prof. Yves Dauvillers, Prof. Ron Grunstein, Michelle Chadwick, Fiona Mobbs, Dr David Cunnington, and Dr Sara Winter. Idiopathic Hypersomnia & Narcolepsy Education Day, 10th April 2022. Brisbane, Qld, Australia.
What Is Idiopathic Hypersomnia? - Prof. Yves Dauvilliers , Idiopathic Hypersomnia Education Day.
Переглядів 2462 роки тому
What is Idiopathic Hypersomnia and how does it differ from narcolepsy? Idiopathic Hypersomnia & Narcolepsy Education Day, April 2022.
Overview of Current Idiopathic Hypersomnia and Narcolepsy Research - Prof Yves Dauvilliers
Переглядів 4932 роки тому
Prof. Yves Dauvilliers gives an overview of current Idiopathic Hypersomnia and Narcolepsy research. Causes, diagnostics, and treatment at the Idiopathic Hypersomnia & Narcolepsy Education Day April 2022
Why Is Australia Behind re: Idiopathic Hypersomnia? What Can We Do About It? - Prof Grunstein
Переглядів 1142 роки тому
Why are medications not available in Australia that are available elsewhere in the world? Why is research not being done in Australia? Prof. Ron Grunstein explains why Australia is so far behind the rest of the world with regard to Idiopathic Hypersomnia and Narcolepsy, and what we can do about it. Idiopathic Hypersomnia & Narcolepsy Education Day, April 2022
Access to Medications to Treat Central Disorders of Hypersomnolence - Dr David Cunnington
Переглядів 752 роки тому
How do we increase access availability of medications to treat central disorders of hypersomnolence in Australasia? Challenges and potential solutions. During this talk Dr Cunnington reviews the regulatory bodies involved in new medication prescription and the processes to get medications subsidised and onto the government pharmaceutical benefits scheme. He also reviews current obstacles to new...
Living with Idiopathic Hypersomnia - Michelle Chadwick
Переглядів 1,1 тис.2 роки тому
Michelle shares not only her own experience but also what she has learned from the many, many hours she has spent listening to people living with IH all over the world. The goal of her talk is to help doctors and other allied health care professionals, and also family and friends of loved ones with IH get a better understanding of the challenges people with IH face so that they can hopefully pr...
Managing Hypersomnolence - implementing and maintaining practical strategies. Dr Sara Winter
Переглядів 1292 роки тому
Dr Winter speaks about the grief that can be associated with acquiring a chronic illness such as Idiopathic Hypersomnia and Narcolepsy, and practical tips on management of hypersomnolence as well as the depression and anxiety that often comes with IH and narcolepsy. Idiopathic Hypersomnia & Narcolepsy Education Day, April 2022.
Living with Narcolepsy with Cataplexy - Fiona Mobbs
Переглядів 1942 роки тому
"Imagine anywhere, anytime, your body going completely limp and collapsing to the ground. You can’t move, speak, or open your eyes. You are conscious though and can hear everything around you. You fight back the tears as the feelings of humiliation, fear and frustration appear. You wonder how long this one will last. If a friend or family member is with you, it’s not so bad. If you are on your ...
Idiopathic Hypersomnia Awareness Week 2022 - How to make your own poster
Переглядів 2032 роки тому
Help to raise awareness of Idiopathic Hypersomnia this year by creating your own poster using Canva then upload it to social media during the IHAW2022 - 5-11th September, with #IHAW2022 and #LivingwithIH. You can also tag the IH Awareness Week social media @IHAWeek
Michelle Chadwick's work and the importance of sleep health acknowledged in parliament
Переглядів 1083 роки тому
Michelle Chadwick's work and the importance of sleep health acknowledged in parliament
Imagine never feeling like you have ever had any sleep - despite sleeping more than anyone you know!
Переглядів 5054 роки тому
Imagine never feeling like you have ever had any sleep - despite sleeping more than anyone you know!
Pressure building on SA Government to re-open sleep laboratory at Royal Adelaide Hospital
Переглядів 1125 років тому
Pressure building on SA Government to re-open sleep laboratory at Royal Adelaide Hospital
Idiopathic Hypersomnia - Dr B. Roth World Sleep Day
Переглядів 3,5 тис.10 років тому
Idiopathic Hypersomnia - Dr B. Roth World Sleep Day
Dr Bhatia and Anne discuss Idiopathic Hypersomnia
Переглядів 8 тис.10 років тому
Dr Bhatia and Anne discuss Idiopathic Hypersomnia
Thank you for been so brave
I still haven't been recognised in Yorkshire since 1971 o..I don't know what to say 😢❤
Che farmaci usi? E che dieta segui?
Everything you need to know can be found here: www.hypersomnolenceaustralia.org.au/single-post/life-after-diagnosis-live-your-best-life
❤❤❤❤
Those Suffering 🙏🙏🙏🙏🙏🙏 Best for You No Easy Answers ✌
I can't hear this? Is it just me?
We have checked the sound and there is no problem with it so, yes, it appears it must just be you.
I have THIS! Thank you for giving a name to this for me! Years ago, I fell asleep in the middle of Ringling Brothers' circus at Hampton Colloseum.
Check out our website for more information and a factsheet you can share with others www.hypersomnolenceaustralia.com/
I have Hypersomnia as well. I myself on average sleep 18-22 hours and sometimes sleep 3 days at a time. If I have to live with Hypersomnia I would rather only sleep as much as she does it at least isn't days.
Check out our website for more information and a factsheet you can share with others www.hypersomnolenceaustralia.com/
I have this problem and been suffering for the last ten years! Had sleep studies done and they don't know what is causing it,