Відео

I wanna know if it’s hereditary too

I have dysautonomia since the vaccine, Covid long exists and vax long too. good luck to every body, it is an awfull desease

It has been around 31 years now since I started to have symptoms of ME/CFS when I was in my twenties. I received all sorts of discouraging and hurtful comments from many doctors. People around me, family and friends with good intentions tried to help and came up with different suggestions, they probably ended up being frustrated that I didn't make any efforts to get better. They didn't know that the illness were so complex. I really couldn't follow their advices. By the time I got diagnosed was almost 15 years later. At the time there were only a few doctors who were seeing potential patients. I had to travel far to see one and the journey itself made me felt so sick every time. The CBT helped me to manage my life from day to day. I could cope with the illness better until the menopause symptoms added to the existing conditions. I got so depressed, may be due to hormonal imbalance. I felt like giving up and almost let go of my life. From the beginning until now, I haven't had any help from any welfare. The doctor who came to review my conditions years back didn't give me an approval for any state help because he met me when I was slightly better e.g. could have showers myself, etc. It would help to have a badge for my then husband to park nearer to the buildings, when I used a wheelchair. Now I don't really have friends. My conditions automatically made me a fussy and an unreliable person to talk, meet or arrange anything with. My friends are mostly my carers whom I pay everything privately. I also just got divorced because it must be very hard after all these years for my ex-husband. Everyone who encounters this illness has each of their own stories. We have to endure but life goes on I guess. Thank you all the people in this episode for enhancing the awareness of these conditions and hope both ladies and other sufferers whether it was from the COVID or from other causes will get better. Apologise for the long message, it did take me a few rests to write:)

Shedding is a problem for me. I’m exhausted.

Guess what? Shedding is real. I’m exhausted. Doctors gaslight all of us. I’ve had tremors ever since someone used my nose spray without my permission or knowledge.

EVIL... vax 🙏🙏🙏🙏🙏🙏🙏

The nose blowing transitions, was it intentional?

Are the covod survivors with POTS all VACCINATED? THEY DONT SAY!

Is she vaccinated? They wont say......

Just for the video, TAKE OFF THE MASK!

Unvaccinated people don't get LONG COVID....

All people with Long COVID are VACCINATED.

This video was so beautifully done. God bless you for making it, and may an intervention be found soon that can help to pull those with Long Covid out of this. Research parameters should be followed in the future, not given a nod and moved offshore. Thank you so much for your work.

I got Covid in 2020 , it lasted a year & half , it was the worse period of my life

I'm dealing with ME dysautonomia x 30 years now. I am glad you have each other!!! The majority of people lose their partners and family

Using ANU figures for long Covid and the ME/CFS support organisation there are an estimated 1.5 million Australian sufferers but nobody is talking about this.

I just stumbled upon this episode and am now scrolling through channel. I am 3.5 years in. PASC (Long Covid) MECFS POTS. Hashimotos. Psoriasis. Asthma. It’s amazing these shows are out here but the gaslighting is still going on. It’s upsetting.

I got it 25 years ago from a hepatitis vaccine. Never recovered. Back then doctors hadn't even heard the term POTS. I was diagnosed eventually with ME. This is not a new thing. It had just been ignored.

I sympathize with this young lady. I’m not in a wheel chair yet but have had my share of major problem since the vax in 2021. There has not been one Dr that takes me seriously so I just get sicker. All of these Drs that refuse to help people should have their licenses revoked. I realize that these Drs do not know what to do but do they not have the drive as a Dr to just take some time to do some research And at least try to help? I have been gaslighted and dismissed so many times that I don’t want to see another Dr! The medical field has failed the American people!!!!!!’n

I was actually diagnosed with fibromyalgia and ME/CFS as a 12 year old, back in 1992. I was learning about pacing and taking my pulse and going to physical therapy instead of being a carefree kid. I’d been having migraines and chronic pain since age 9. Don’t recommend! Then in 2020 at age 41 I was hospitalized with Covid pneumonia. Even after I was discharged and finally went back to work 2 months later, I was having the worst ME/CFS symptoms of my life plus what I now think is POTS (though I still haven’t gotten a doctor to put that down as a diagnosis… in fact they haven’t even put ME/CFS in my chart even though I told them I was diagnosed as a child!) Then less than two years after that, I was diagnosed with ovarian cancer which absolutely made it worse. Anyway. Thanks so much for sharing these survivor stories - it makes me feel less alone. 🥲

Still having flares after having Covid October 2020 with GI symptoms and again in 2022 presenting as a sinus infection. Continued to have GI symptoms approximately 18 months each infection. I still periodically have flares in which I get GI symptoms- malaise, stomach pain, bloating, bowel changes that lasts approximately 2 weeks before abating. Tinnitus lasted 18 or so months and reappears when GI symptoms reappear. Have found that the medical community has been silent and have offered very little /no help; they tell me there are no studies to help in relieving symptoms or treating long Covid. I did not find the long Covid clinic at Emory, Atlanta to be helpful as their focus has been on upper respiratory symptoms. Have researched on internet and taking Vit D, B6&12, magnesium, zinc, C, antihistamines, Pepcid. My GI did give me a prescription for a medication that I was unable to take because I felt wiped out and unable to function when taking it although it did relieve some of the stomach pain. During the outbreak I felt as though physicians were baffled, had no idea how to treat so they did nothing and waited and then treated symptoms. To date I feel as though the medical community has put this behind as the active Covid pandemic subsided and when asked for treatment for long Covid there seems to be no interest, probably because there has been little research or finding going to treating the post symptoms. I have minor symptoms that I can live with. I feel terrible for those still battling severe symptoms. 🙏🏻s that the medical community will wake up and recognize long Covid as a legitimate diagnosis that needs treatment.

Funny that long covid involved people loosing their sense of smell for a few weeks in 2020. Then in 2021 it included all of the symptoms in the 9 pages of adverse effects show in the Pfizer trial (the one that they tried to keep hidden for 75 years).

Hi. I just found you. I am the founder of the Solo Streaming Sisters. I’ve struggled with chronic fatigue for 11 years with my diagnosis of RA/Lupus & Fibro. In Feb 2020 I was traveling, I began getting more fatigued and sick. I think I had Covid without knowing it, no testing at that point. I couldn’t take care of myself. I thought I was going to die. Since then my CFS has gotten worse and some days I only sleep 10 hours but always low energy. My Airstream has kept me going and has been my safe haven. I know I’m better than some, but what I show others is only 5 minutes in a day. It is horrible . But It’s only recently I was desperate and began to seriously be my own advocate. It’s horrible though. I haven’t worked, lucky enough to have lived off my inheritance and now I’m holding onto what I little I have. My Rheumy told me it’s a symptom of my fibromyalgia… nothing he can help with. Oh and that I was hormonal middle age. It’s horrible to feel no one believes me. And feel left to live out your life in bed. I respect all who is in this documentary and hope we all can find relief.

midon has help me greatly. Ivabradine stopped the adrenal surges at night so i sleep better

I have long Covid. I had it for almost a year-six months later I got Covid again - five months later I still have it. I do think my symptoms in someways are worse. I am unable to work. I help out my neighbor across the street that has MS that is the only work I have. She is extremely patient and understanding when I can’t come. Which is a lot and when I’m there I work anywhere from 1 to 3 hours depending on what I can do. I have to be careful because that can end up putting me in bed for several days. A lot of the times it feels like I just keep getting Covid over again, and I have just a few days break where I don’t have it. One thing I’m dealing with now that’s really upsetting is neurological symptoms. I was always a very avid reader and writer,now when I am writing, whether it is journaling or an article, I struggle writing the words.I will leave out vowels. I will turn the words around and write words missing letters. This is something I used to do with a little effort and then when I was done with my work I would go back and edit,now I have to edit almost every word at the time I write it. I struggle verbally as well. I can’t remember words that I’m trying to say I say words incorrectly put together that don’t make sense. I’ve been doing that a lot lately. I’ve been doing all of this a lot lately. I forget what day of the week it is all the time I have to ask people around me, or Siri or check my calendar. I almost always think it’s Saturday. None of these things were happening to me before I got Covid. As I have heard many of the people on this podcast speak out I have been to urgent care, the hospital primary Doctor and none of them really know what to do. I got the same basic care as many of the people that I heard on this podcast. One of my new symptoms which is losing my balance. Thank you so much for the work you’re doing, I know you must be helping many, and I am grateful.

I think she's preparing herself to die. Finds joy in nothing. I'd hate to be in her head...bummer. Pity party.

Have you seen the vids about ppl getting long covid symptoms from the vaccine? They may never had covid but got the vaccine and were getting some symptoms. Not sure how many ppl.

Could you do an episode on just male reproductive health and covid 19?

My fiancé is not quite as bad off as these ladies. I have to wonder if it is our plant-based vegan diet that limits the inflammation of his body. He was in perfect shape right before he got sick, bloodwork was that of someone 40 years younger. He’s waited over six months for an appointment at Chicago Northwestern hospital long-Covid clinic. He’s paid out-of-pocket to see specialists in long Covid from California. The next thing we will probably try is a well-known fasting clinic that has had some success. Trouble is when you’ve had long Covid for numerous years and it gets so entrenched. The spike proteins are evil from this laboratory borne disease. Even my own family doesn’t quite believe he is as sick as he is because he’s good at hiding it. The worst mistake was telling long-Covid people to get the vaccine when it came out. It ended up making quite a lot of them quite a bit worse. It made my partner terrifyingly sick for months.

My fiancé has exactly this diagnosis after four years of long Covid. He finally finally finally got approval for disability. He was a top scientist in his field before this. But there is nothing we could have or would have done different that could have or would have made a different outcome. Everyone got Covid! Shaming people for not staying home for four years is ridiculous. And the vaccine made him worse. We both got sick in 2020, he was getting better by 2021 but that vaccine threw him off the roof and put him back to square one.

Wide spectrum of severity with long covid. Unfortunately i have it. Fortunately it's not severe. I fear reinfection.

Keep hoping. So very upset for injured people. Keep on going. Hugs.

You mean Covid VAX injured? I most certainly have not been sick for three years from having Covid. I NEVER had Covid but the vaccine made me sick. I had one vax and have been sick starting the day I had the vax.

The doctor on 0:36 is spot on! I had unexplained inflammation and low WBC and got Long Covid after a Covid infection. I recently decided to buy any reasonable lab test that could explain as doctors were very reluctant doing any diagnostics. Turns out I have Lyme! Covid went on top of that and bam, LC...! Now I have a path to a solution. I believe EVERYONE should be tested for Lyme at least once every 2 years.

Two things. Every interview featured someone who would be considered obese by medical standards. I would not deem those people as healthy. Secondly, the mRNA vaccines cause bodies to replicate the spike protein which is the catalyst causing the inflammatory and immune responses which are causing long covid and other Covid related maladies. The vaccine is possibly even worse than the disease.

I woke up Jan 1 with mononucleosis caused by Epstein Barr Virus at age 40. I was misdiagnosed and put on months of antibiotics and prednisone to no avail. It turned into ME/CFS… that was in 2010. I spent years looking for help but found none. I gave up on healthcare. I am now on disability which is a death sentence with the medicaid system. I also have POTS. The grieving process of the life change was difficult and long. I am sad it took the pandemic and long covid to finally get some research done for this devastating illness. 5,238 days January 1, 2010 - May 5, 2024 I pray that answers will be found for all these participants and the rest of us. Thank you for making this video to raise awareness! ❤

Was there covid 1

Stem cells you can get in mexico for a couple thousand dollars fixed me. I was bedridden. Dr Fernando priego in chapala mexico can help you.

Me 2 exactly

35 years with M.E. after the Hep B vaccine, I was a health care worker. Every day is a battle, the NHS has been an even greater battle, people's wilful ignorance still infuriates me, I have no confidence in doctors now 😢

Could it be the jabberwocky?

CFS/ME is by no means restricted to those who have had Covid. My daughter got it after strep throat and a sequence of viral ear infections, three years before Covid. One of the diagnostiv.c features of CFS/ME is that it is initially caused by a virus. Covid is just one of many viruses which can cause it. The only reason it is being brought to our attention these days, is because Covid, and the so called vaccine, have caused such a disruption in the the health of so many people, that the syndrome itself has finally come into the public eye. My daughter also had Covid during the 'pandemic'. She had the usual Covid symtoms, but they were no worse than any other viral infection she had ever had. Her CFS/ME symptoms neither improved nor worsened as a result. Currently she is bedbound. ME has made her bedbound for periods before, but she has always recovered to a baseline state of fatigue and other physical and cognitive dysfunctions, but somewhat mobile, before. We are hoping she will recover somewhat again this time. Just waiting. There is no treatment . There is no cure. She's had to learn to accept that she is disabled for life, and to struggle through.

Look at all these weak pathetic victims

Oxygen works wonders when you do not wear a mask day in and day out. They do nothing. People need to learn the truth about gut health. I can tell just by looking at these people their gut microbiome is way out of balance. They will find out how much better they will feel, and overall health will improve when the gut is balanced. Until then, you are dog chasing it`s tail with the medical cartel establishment. You either pay the Farmer or you pay the pharma. Your choice

I'm so tired of people seeking fo blame the vaccine. It feels like continuation of covid denial and antivax ego tantrums over personal rights. This pandemic is real, it still kills people and and debilitates millions and no one is immune or safe from long covid. The medical world for the most part is doing its best to fight a monster and have worked tirekessly to try to save abd help people throughout. Wake up and stop treating sufferes like criminals or neurotics because this is bigger than all of us and we should be fighting it together. It can happen to you or someone you love and change your life! Where has human compasion and cooperation gone? Start caring about not getting covid and passing it on. If we work together instead of just blaming everyone and fighting about it we may stand a chance of curing it instead of the devestating alternative with global consequences for humanity, which so many people are just pretending is not happening!

@0:37 Long Covid, Boss! The extreme debilitating condition is called *LongCovid!*

wow

@25:20 if there is a God . . . ♥

That music is nothing but an interference with the emotional expression of these victims

I’ve been dealing with this for this going on 15 months. Even with a tilt table test some of my doctors said it’s POTS and others aren’t convinced it’s actually POTS. This is where things get tricky. POTS gets better with graded exercise, but if it’s not POTS over exercising can be detrimental and set you back. At 49 I was in the best shape of my life, before Covid.