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The EDS Life
Приєднався 2 чер 2017
Welcome to The EDS Life...
We are two sisters from Australia who vlog daily on snapchat about what it's really like for us to live with Ehlers Danlos Syndrome.
EDS is a rare, genetic, connective tissue disorder that effects every single part of our bodies.. and it can become a real struggle to try and live a relatively normal life with this often-times invisible and sometimes debilitating illness.
Hit subscribe, add us on snapchat, or like us on facebook to catch our vlog videos every day.
Snapchat - Rae: rae-cassandra90
Snapchat - Beth: martee_bee
Facebook: The EDS Life
We are two sisters from Australia who vlog daily on snapchat about what it's really like for us to live with Ehlers Danlos Syndrome.
EDS is a rare, genetic, connective tissue disorder that effects every single part of our bodies.. and it can become a real struggle to try and live a relatively normal life with this often-times invisible and sometimes debilitating illness.
Hit subscribe, add us on snapchat, or like us on facebook to catch our vlog videos every day.
Snapchat - Rae: rae-cassandra90
Snapchat - Beth: martee_bee
Facebook: The EDS Life
Mumma Spoonie's last day with me 😔
Hit Subscribe and become a member of The EDS Life Family!
Add me on snapchat for live updates at:
www.snapchat.com/add/martee_bee
And you can also like us on facebook at:
m. The-EDS-Life-807594546064513/
We post new vlogs every day about daily life with Ehlers Danlos Syndrome!
For more information on EDS, visit:
www.healthline.com/health/ehlers-danlos-syndrome
Add me on snapchat for live updates at:
www.snapchat.com/add/martee_bee
And you can also like us on facebook at:
m. The-EDS-Life-807594546064513/
We post new vlogs every day about daily life with Ehlers Danlos Syndrome!
For more information on EDS, visit:
www.healthline.com/health/ehlers-danlos-syndrome
Переглядів: 49
Відео
AND WE'RE BACK!!!
Переглядів 387 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
Exploring my own city with friends!!!
Переглядів 77 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
WE SAW WONDER WOMAN!!!
Переглядів 187 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
Always choose staying home with board games!!!
Переглядів 87 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
Checking out the city with Mumma Spoonie ❤️
Переглядів 87 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
OOOP, SOMEONE GOT CAUGHT? 🚔
Переглядів 217 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
THE STRUGGLE IS REAL 😴💩
Переглядів 147 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
CT SCANNING MY PANCREAS 💉😬
Переглядів 407 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
ALWAYS WITH THE MEDICAL MYSTERIES 🤔🤷♀️
Переглядів 167 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
IS MY GALLBLADDER TRYING TO KILL ME? 😬
Переглядів 317 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
CHILL DAY WITH EPHRAM 😴😌
Переглядів 107 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
MYSTERY STABBING PAIN 😣😓
Переглядів 287 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
Meet Mamma Spoonie! My amazing, inspirational mother!
Переглядів 447 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/martee_bee And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
ENDED UP IN HOSPITAL | EMERGENCY ROOM VLOG 😵🚨
Переглядів 9217 років тому
Hit Subscribe and become a member of The EDS Life Family! Add me on snapchat for live updates at: www.snapchat.com/add/rae-cassandra90 And you can also like us on facebook at: m. The-EDS-Life-807594546064513/ We post new vlogs every day about daily life with Ehlers Danlos Syndrome! For more information on EDS, visit: www.healthline.com/health/ehlers-danlos-syndrome
The unpredictable side of EDS explained
Переглядів 457 років тому
The unpredictable side of EDS explained
EDSers: check out an indented tendon just from bumping it!
Переглядів 177 років тому
EDSers: check out an indented tendon just from bumping it!
Showers and Walking: everyday struggles
Переглядів 837 років тому
Showers and Walking: everyday struggles
MY 6 YEAR OLD TRIED TO TAKE A WEAPON TO SCHOOL 😳🔪
Переглядів 527 років тому
MY 6 YEAR OLD TRIED TO TAKE A WEAPON TO SCHOOL 😳🔪
WOKE UP WITH A DISLOCATED SHOULDER! 😱
Переглядів 1077 років тому
WOKE UP WITH A DISLOCATED SHOULDER! 😱
Spending time with some amazing people! Including the incredible, beautiful, Mel!
Переглядів 207 років тому
Spending time with some amazing people! Including the incredible, beautiful, Mel!
First day vlogging! (Still getting used to this)
Переглядів 227 років тому
First day vlogging! (Still getting used to this)
😲👩✈️🤣🤣👗🧍♀️
There were no sneezes
This just happen to me today…my shoulder popped out about 15 times before but today I woke up with a dislocated shoulder and that was the worse pain ever
Hello, you seem not active. Either way, I pesonally have EDS-like symptoms and once I had 'mild' acute pancreatitis, which wasn't according to the doctors alcohol-related or gallbladder related. So I'm interested in a possible connection between the two.
That actually just happened to me yesterday! It was cold out so I was already tense. As I held the door of my backyard open, I sneezed hard and an immediate pain shot up the left wingbone on my upper left side of my back. And now whenever I breathe in too deep or rotate my left arm a certain way, the pain is felt. I have no idea how to correct it other than to constantly stretch the muscle with care and patience.
I am wondering how you are doing now?
The fears with regards to the shower are too real. On top of the possibility of hurting yourself it also could just tire you out way too much for the rest of the day.. When my shoulder subluxes I can never get it back into the right place. Usually takes a week or so before I can lift something up without wincing. Literally feel your pain 💙