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CAR-T and ME
United States
Приєднався 22 чер 2012
This is a first hand look at what I went through for my CAR T-Cell Therapy for my Non Hodgkins Lymphoma. Prior to my experience, I could not find anyone to connect with that had been through CAR T treatment. All of the videos I found were doctors discussing the procedure. Hopefully this will help you understand what I experienced. Leave a comment and subscribe if you have any questions. It looks like this treatment will be more common in the future as more clinical trials conclude. Thank you to the doctors, nurses, and everyone else at Banner MD Anderson Cancer Center and Banner Gateway Medical Center for your caring and professional service.
Відео
FEEL THE CALMNESS - 90 Seconds of Peace
Переглядів 172 роки тому
I made put this together to help you take a brief moment to think of something else. Hope it helps. Let me know. I will make more. Picture yourself on a sailboat in the Pacific. Feel the PEACE. I took these shots when we had a break from COVID in May 2021 for our 40th anniversary. Enjoy. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoe...
MIND VACATION - 2 Minutes to Wonder
Переглядів 92 роки тому
I made put this together to help you take a brief moment to think of something else. Hope it helps. Let me know. I will make more. I took my wife to Albuquerque for the their annual ballon festival for her birthday a couple years ago. Enjoy. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for...
HIGH ANXIETY!!! 2nd PET Scan 90 Days After CAR-T
Переглядів 552 роки тому
HIGH ANXIETY! 2nd PET Scan 90 days after CAR-T. Okay they suit you up and bring you to your private room to inject a radioactive solution into your body. They give you an hour to let it circulate before the scan. Note the many caution signs. The solution adheres to cancerous cells and lights up so the doctors can see if the treatment is having an impact. No cancer! Hooray! Make sure you drink a...
RELAX and Breath for 3 Minutes
Переглядів 112 роки тому
I made put this together to help you take a brief moment to think of something else. Hope it helps. Let me know. I will make more. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregive...
2nd Evusheld Shot WATCH OUT COVID
Переглядів 1382 роки тому
The FDA authorized emergency use of Evusheld for immunocompromised patients. Evusheld is two synthetic monoclonal antibiotics injected separately into each hip. It is meant for people that can't take the vaccine or that can't develop the antibodies from the vaccine. I had my second shot as recommended by my doctor and approved by the manufacturer and the FDA. For the most current information ab...
IVIG to Boost My Immune System
Переглядів 542 роки тому
IVIG boosts my immune system by infusing a donor's healthy antibodies into my blood stream. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregivers with more information from someone t...
Evusheld Injections, a Shield Against COVID
Переглядів 1202 роки тому
The FDA authorized emergency use of Evusheld for immunocompromised patients. Evusheld is two synthetic monoclonal antibiotics injected separately into each hip. It is meant for people that can't take the vaccine or that can't develop the antibodies from the vaccine. I received my dual shots in January soon after it became available. For the most current information about Evusheld, go to Evushel...
I am RADIOACTIVE!!! First PET Scan After CAR T
Переглядів 1112 роки тому
PET Scan day. Okay they suit you up and bring you to your private room to inject a radioactive solution into your body. They give you an hour to let it circulate before the scan. Note the many caution signs. The solution adheres to cancerous cells and lights up so the doctors can see if the treatment is having an impact. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My...
Keeping Hope Alive During Cancer Treatment - You Are Not Alone
Переглядів 912 роки тому
My dear wife, my ultimate caregiver, ordered custom wrist bands supporting my cancer fight and sent them out to family and friends. Each day while I was in the hospital she brought more pictures to add to my album. This was a loving way to show that I wasn't alone. This video explains the process and shows some of the many people that showed their support. What do you think? Let us know if you ...
Post CAR T Cell Therapy PET Scan RESULTS
Переглядів 752 роки тому
30 days after my CAR-T treatment I had a PET scan. Here are the results. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregivers with more information from someone that has been throug...
Eps1 What is it like preparing for your CAR T-Cell therapy?
Переглядів 1822 роки тому
These are my experiences from the blood draw three weeks prior to my CAR-T cell therapy infusion until the day I entered the hospital. You'll learn about the things that need to happen prior to my treatment. Afterward, go to Eps 2 to see my 10 day experience in the hospital getting the infusion and it's impact on my cancer. Some of this video looks pretty scary. It was freaky having that port p...
Eps 3 What is it like after CAR T-cell therapy? My CAR T-Cell Therapy Experience
Переглядів 1392 роки тому
This covers my experiences from the time I left the hospital after CAR-T until the day I had my first PET scan a month later. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregivers wi...
What was it like after I left the hospital after Car T?
Переглядів 402 роки тому
Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregivers with more information from someone that has been through it. Subscribe and follow our story. Leave a comment. CAR-T and Me - My ...
Eps 2 What is like getting CAR T-cell Therapy? My CAR T-Cell Therapy Experience
Переглядів 6712 роки тому
This covers my hospital stay where I received my CAR-T infusion until I was released ten days later. Thanks for following my journey to treat Non Hodgkins Lymphoma - DLBCL. My name's Don May and I live in Phoenix Arizona. I've been battling this cancer for over seven years and I'm still fighting. We created this channel to support cancer patients and their caregivers with more information from ...
What was it like after I came home from CAR T-Cell Therapy?
Переглядів 652 роки тому
What was it like after I came home from CAR T-Cell Therapy?
What was it like in the hospital after receiving my CAR T-cell therapy?
Переглядів 1,3 тис.2 роки тому
What was it like in the hospital after receiving my CAR T-cell therapy?
No Wheelchair Today! 13 Days After Infusion // My CAR T-Cell Treatment Journey
Переглядів 1092 роки тому
No Wheelchair Today! 13 Days After Infusion // My CAR T-Cell Treatment Journey
First Day of Chemo 5 Days Before Infusion // My CAR T-Cell Treatment Journey
Переглядів 662 роки тому
First Day of Chemo 5 Days Before Infusion // My CAR T-Cell Treatment Journey
Team Meeting LET'S GO! 7 Days Before Infusion // My CAR T-Cell Treatment Journey
Переглядів 782 роки тому
Team Meeting LET'S GO! 7 Days Before Infusion // My CAR T-Cell Treatment Journey
Second Day of Chemo 4 Days Before Infusion // My CAR T-Cell Treatment Journey
Переглядів 442 роки тому
Second Day of Chemo 4 Days Before Infusion // My CAR T-Cell Treatment Journey
Third Day of Chemo 3 Days Before Infusion // My CAR T-Cell Treatment Journey
Переглядів 302 роки тому
Third Day of Chemo 3 Days Before Infusion // My CAR T-Cell Treatment Journey
Chemo Side Effects UGH!!! 1 day Before Infusion // My CAR T-Cell Treatment Journey
Переглядів 352 роки тому
Chemo Side Effects UGH!!! 1 day Before Infusion // My CAR T-Cell Treatment Journey
BIG DAY! HELLO T-CELLS! Infusion Day // My CAR-T Cancer Treatment Journey
Переглядів 1482 роки тому
BIG DAY! HELLO T-CELLS! Infusion Day // My CAR-T Cancer Treatment Journey
KILLING CANCER CELLS 1 Day After Infusion // My CAR T-Cell Treatment Journey
Переглядів 432 роки тому
KILLING CANCER CELLS 1 Day After Infusion // My CAR T-Cell Treatment Journey
Should I Feel This Good? 4 days After Infusion // My CAR T-Cell Treatment Journey
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Should I Feel This Good? 4 days After Infusion // My CAR T-Cell Treatment Journey
Laps Around the Unit 5 Days After Infusion // My CAR T-Cell Treatment Journey
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Laps Around the Unit 5 Days After Infusion // My CAR T-Cell Treatment Journey
CRS Slams Me 6 Days After Infusion // My CAR-T Cancer Treatment Journey
Переглядів 652 роки тому
CRS Slams Me 6 Days After Infusion // My CAR-T Cancer Treatment Journey
Fever, Chills, Aches and Naps 7 Days After Infusion // My CAR T-Cell Treatment Journey
Переглядів 572 роки тому
Fever, Chills, Aches and Naps 7 Days After Infusion // My CAR T-Cell Treatment Journey
NO FEVERS! 9 Days After Infusion // My CAR T-Cell Treatment Journey
Переглядів 202 роки тому
NO FEVERS! 9 Days After Infusion // My CAR T-Cell Treatment Journey
YAY🎉
Hi Don! Are you still here with us? Your videos are very helpful and put my mind at ease. Thank you for documenting everything about your CAR-T cell therapy journey. I will share them on my social media platforms where a lot of people who have cancer and may need CAR-T cell therapy in the future follow me. I hope you are well and you respond :)
How are you doing man? Are you still there?
More info about Evusheld. theconversation.com/amp/how-does-the-covid-19-prevention-drug-evusheld-work-and-who-should-receive-it-an-infectious-disease-specialist-explains-179527
Great news Don. Keep the videos coming- so helpful to share your progress!
Hello man. I am curious to how its going your treatment? Thanks and i hope you get fully cured!
So far my 90 day PET scan showed no cancer whatsoever.
@@car-tandme1628 nice man! Keep it up!
Hows it going in 2022?
Going good. Cancer free according to my latest PET scan.
@@car-tandme1628 thats nice to know! Blessings 👍
God bless you Thank you for putting your experience out here for us. I am praying for you! What is your cancer? My hubby has esophageal We’re in cycle 4 of chemo now
You are welcome. Hope it helps.