Відео

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You are speaking apartheid language that majority of S. African don't understand!! How selfish. Take your disease to your grave you junglelister

48 years old here had since birth. Meds hasn't helped me. Was told i wouldn't live past 5. Water intake and knowing the warning signs of my body got me this far. Now im stage 4 ckd as well. My Lord Jesus is my great physician.

'promo sm'

I go to bed at 7pm every night. Work full time in a chaotic job. Dont socialise. Thats how i keep it stable. Meds exact timing.

We have a whatsapp group with a few ladies with the same disease. You should join our group

I believe I got it too. Few years Ago I got brain injury by getting hit by sharp knifelike piece of metal, not actual knife though. It was nothing and I could continue my daily life. Few years later I realised I was suffering about incontinence, though I thougth I can do some workouts to keep my pelvic floor in good contition, but everytime I did manage to get it to control it came back each time harder. First it was just few little drops. I think I realised this few month ago that something is not rigth , I had to go to pee and drink all the time my bladder is exploding after drinking. I am pretty sure it is Diabetes Insipidus and I really want to see doctor who diagnoses it. I really hope medicine will help for this cause

also Chinese medicine doctor put me on rehmania, for kidneys, this helped me improve. rehmania herb has been researched clinically in sugar diebetes to help prevent kidney failure.

you can't regulate your body temperature when dehydrated. having a fever can be a sign your dehydration has reached life-threatening levels and should be in an ambulance. i have DI and been waiting for water deprivation test to find out what type of diebetes insiphidus i have. some things that have helped my dehydration levels: mineral water (make sure its low sodium one), coconut water (don't drink if your sodium bloods are high) replenishes elelctroytes and dandelion root and leaf tea boil for 15 mins in a pot, drink 3 cups a day.

My daughter was diagnosed with Moyamoya in 2020 and had a cranial burr hole surgery in 2021, she’s currently in a remedial school yet still struggling academically, I’d like to hear from parents of kids who have been diagnosed with Moyamoya, how to navigate this journey post diagnosis.

It's by chance i found Kirsti's video. I'm about to be placed on the street. A woman who was one of the top 10% earners in this country. I've been diagnosed with cushings by Prof Wing and Prof Paget and my story goes a bit further. I have through research found that the abuse I have experienced since being a baby has left me with diagnosed CPTSD as well. At Kirsti got the chance to have her tumour removed. I still have mine. No medical aid, no one listens, so now I live with migraines and the excessive tiredness.

💯 ᵖʳᵒᵐᵒˢᵐ

I smoked from 14 to 35 years old, in the last years I smoked an average of 30 cigarettes a day (1 pack and a half). I gave my life to Jesus, and I felt the need not to smoke or consume alcohol anymore, with the alcoholic drink it was overnight, I threw away what I had of beer and cachaça at home... ! I agreed with my wife to try to smoke the least amount of cigarettes I could in one day so with a lot of effort on my part I smoked 12 cigarettes, for one week she gave me 12 cigarettes every day for me to consume, the other week it was 11 cigarettes a day day, the other 10... and each week it decreased by 1 per day. everything was going well, until it reached 4 cigarettes... I started stealing cigarettes from her, and ended up smoking 7, 8 cigarettes a day. until one day that during a prayer I was sincere to God, and said that I couldn't stop smoking and that I didn't really have the strength and that I really wanted to and asked God to help me and take the pleasure of smoking from me... One day inside the church during a preaching that a pastor was doing, I heard a voice speaking in my ear clearly; - "So far I've let you try, to show that you're not capable. From today you don't smoke because I don't want to! I was so scared that when my wife told me what I had heard, she saw in me a frightened and admired person, who started to cry because she saw that I was not delirious. Upon leaving the church my car had been broken into and my documents and my wife's documents had been stolen, along with the vehicle's sound. But I knew that if I got over that nervousness and anger I felt at seeing my car like that I wouldn't smoke anymore (it was like a test to confirm my convictions in the voice I heard). I called my wife and we went home , I took everything I had connected to tobacco ( tobacco , paper , lighter , matches , cigarette pack ....) I put it on a piece of paper and rolled it up we went to the street, and on a sidewalk I threw alcohol and I prayed to God; - Lord, trusting the voice I heard today I know that I will no longer feel like smoking, in Jesus name I set fire to all these elements linked to cigarettes! And by the honor and glory of God I was freed, in the name of Jesus! Vinicius Cruz. ua-cam.com/video/xrQA5Jx9R3Y/v-deo.html&ab_channel=Vin%C3%ADciusCruz

I was diagnosed with NDI as a baby. I'm 46 now with 2 kids. Besides a low sodium diet and drinking lots of water, I had a normal childhood.

do you have a weight change between highs and lows

I Known myself to be a fighter ever since I got diagnosed with Myasthenia gravis, having symptoms reoccurrence of muscle or arms and legs weakness, impaired voice, double vision, difficulty swallowing, fatigue, shortness of breath and drooping of upper eyelid. I was pain everyday, My greatest Joy is that today I don't experience any of this symptoms anymore and I am completely cured of Myasthenia gravis after using a herbal medicine from Dr Madida on UA-cam

I can tell you how to cure yourself like I have with mg I'm completely holistic now. I cured myself with a specific diet.

My son has this he is 43 now He was diagnosed at 7 months

Peter Cushing syndrome can cause you to blow up Alderan and boss around Darth Vader

Lupus and fibromyalgia about 30 years now it’s kidneys I also don’t have a colon 🧎‍♀️🇿🇦Our God is in control Amen 🙏🤲🇿🇦🌺

I live in Gauteng

Hi me and my brother where born with it. Only 2 in England. Ot 2 drink 30 to 40 pints of water aday. Can't sleep more then 3,4 hours at a time. Still on the same meds since birth. My brother became slightly brain damage as hospital could help. Starve his brain with oxygen. Due 2 not drinking enough. Got know help here. Been told we would grow. Now my brother is 42 and 5ft 10inches. I'm 38 5ft 11inches. Salt not yeah.

When grace is at work. So many things give way. What so many people have use to mock me. God have turn it to a testimony in my life.Thank God Almighty who use Herb doctor itepu on UA-cam to cure me from HERPES virus with his herbs medication indeed very effective

Ya operaron a mi esposa glándula suprerenal derecha.... ojalá no sea maligno

Sincere condolences from an ex colleague at Murray Medical

Very inspirational! Keep pushing hard! You rock!

Thanks

Good

Very informative. Thank You!

I had pituitary surgery in 2018 . I got 40% better but still having symptoms. Soon I will be starting the istruisa drug. Hopefully it finally cures me.

I had adrenal cushing's when I was 6 until I was 18. Then I had surgery to remove it but they left part of my gland and now I'm having symptoms and signs all over again with some liver fibrosis. It's hard when not many people understand or can relate.

Wonderful lady! you go for it! xx Vee

"I literally wanted something to be wrong with me. Because you don't understand why you gain all of this weight, you just want an answer." I feel this. I have these same thoughts and feel like a hypochondriac. I have been gaining a lot of weight with no explained reason. I have been pleading to my doctors for the last few years that I felt something was off. My last doctor just kept reiterating that I need to just eat right and exercise like I haven't been doing that already. It sucks to feel like you're crazy. Sorry to hear you have migraines post-op. Hopefully it continues to get better! It's people like you that share your story that keep me fighting for an answer.

You are an incredible team and are doing such an amazing job! Well done. Your patients are lucky to have you fighting for them, loving them, supporting them and doing all you do in order to provide the best lives possible. Well done team Rare!

Doctor said the Herpes virus does not have medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn't a special virus - your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body, But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells , natural herbs kills the virus totally not just reducing the out break. Get natural herbs cure from dr akhigbe reach him through WhatsApp +2349046230269

Doctor said the Herpes virus does not have medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn't a special virus - your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body, But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells , natural herbs kills the virus totally not just reducing the out break. Get natural herbs cure from dr akhigbe reach him through WhatsApp +2349046230269

Bonjour adem seyedrom sotots SOS

Hey Iman how can i get hold of you guys,

Thanks for the video, gives us hope

lets go!!!

Very informative, excellent!

I know how you feel and It’s going to be okay. I’m sending you my best wishes.

Thanks to Dr ukabuo UA-cam who help me to cure my HPV virus with his Herb's

3 weeks I was under Madidaherbalcenter.weebly.com herbal treatment for herpes virus and after the treatment I did a test that confirmed me negative though I have being prognosis before but Dr Madida cured me.

Brave girl ❤️

My brother has this- hereditary. Diagnosed as an infant. He's 30 yo now- successful software engineer with 2 kids of his own.

I almost lost my son to SC anemia if not for Dr Solution who helped me in curing my son's sickle cell anemia. I was made to believe there was no cure by medical doctors but now I believe otherwise because my son was cured from SC late 2018. I came across reviews about how someone cured his sickle cell anemia with help from Dr Solution, at first I didn't believe because I was not so sure but I still went ahead to give it a try. I contacted the Dr and told him everything and he told me that he will prepare a herbal medicine for me which I will give to my son, and few days after we had this conversation, he prepared the medication and sent it to me. After the 2 weeks of using the herbals as instructed by the doctor, I took my son for checkup with no assurance but faith, and behold the results came and showed that he was totally free from sickle cell anemia. You can also reach out to this exceptional Doctor on Email: solutionhealinghome@gmail. com Call or WhatsApp + 234 8077683109

Truthfully, I never thought I will be cure from HIV after taking Dr.Abumere HIV/Aids herbal medicine. Dr Abumere cured my 7 Years HIV virus, I was told by my doctor that there’s no possible cure for HIV. I started taking my ARV’s, My CD4 was 77 and viral load was 112,450. I saw testimony in Facebook and UA-cam on how people got cured from HIV and other diseases after taking Dr. Abumere herb medicine, and I contacted him, He sent me the medication which I took for fourteen days before I went for check-up and I became Negative. Indeed he is really God sent to all, he also have herb cure for ALS, HEPATITIS, DIABETES, BAD BREATH, STD, CANCER, HERPES, FIBROID, IRRITABLE BOWEL SYNDROME (IBS), WART, LIVER DISEASE, KIDNEY DISEASE, BODY ITCHING, PREGNANCY HERBAL MeEDICINE, PSORIASIS and many more, you can as contact him if you have any problem on doctorabumrer6@gnail.com or whatsapp +2349021975055

Thank you to Rare Diseases SA to take time to put together videos and zoom info session on MG. The worst part of this rare disease is being so terribly alone.

I've put together a few notes on MG (randomly from google answers). The best source though is the rare diseases MG website - which Rare Diseases links to from their website. Myasthenia gravis is caused by an error in the transmission of nerve impulses to muscles. ... This is most often caused by antibodies to the acetylcholine receptor itself, but antibodies to other proteins, such as MuSK (Muscle-Specific Kinase) protein, also can impair transmission at the neuromuscular junction Myasthenia gravis (MG) is a chronic autoimmune disorder in which antibodies destroy the communication between nerves and muscle, resulting in weakness of the skeletal muscles. Myasthenia gravis affects the voluntary muscles of the body, especially those that control the eyes, mouth, throat and limbs. Symptoms. Muscle weakness caused by myasthenia gravis worsens as the affected muscle is used. Because symptoms usually improve with rest, muscle weakness can come and go. However, the symptoms tend to progress over time, usually reaching their worst within a few years after the onset of the disease. The most serious complications of myasthenia gravis is a myasthenia crisis. This is a condition of extreme muscle weakness, particularly of the diaphragm and chest muscles that support breathing. Breathing may become shallow or ineffective. Bulbar weakness tends to give speech a slurred, nasal quality. What is refractory myasthenia gravis? Myasthenia gravis (MG) is an autoantibody-mediated disease that compromises the acetylcholine receptors or associated structures of the postsynaptic membrane of the neuromuscular junction. ... Such patients are regarded as having MG that is 'refractory' to treatment and may represent a distinct clinical subgroup. Associations between myasthenia gravis (MG) and CNS functions have been made for over 80 years. ... Significant excessive daytime sleepiness resulting from sleep disturbances can also impair memory and the performance of MG patients on neuropsychological tests, as can the presence of mental depression. Multiple sclerosis (MS) and myasthenia gravis (MG) are autoimmune diseases affecting the central nervous system (CNS) and the neuromuscular junction (NMJ), respectively. ... Although MS and MG are distinct autoimmune diseases, some studies suggest a co-morbidity [18]. The main symptom of myasthenia gravis is a muscle weakness which gets worse over the course of the day. ... Sometimes the muscles of the limbs or the neck can be affected. This may cause problems with walking, posture and balance. The most common psychiatric comorbidities found in MG include depressive and anxiety disorders. What can make myasthenia gravis worse? Commonly-used medications like ciprofloxacin or certain other antibiotics, beta-blockers like propranolol, calcium channel blockers, Botox, muscle relaxants, lithium, magnesium, verapamil and more, can worsen the symptoms of myasthenia gravis. Why does myasthenia gravis typically cause double vision? The brain finely controls the eye muscles in order to keep the eyes aligned properly. Weakness of the eye muscles leads to misalignment of the eyes, which causes the eyes to perceive the same object in two different locations. Left untreated, the disease can affect the muscles the person uses to breath, resulting in acute respiratory failure. Muscles that control the person's limb movements may also be affected Foods rich in potassium include orange juice, bananas, potatoes, avocados and apricots. What is a common side effect of pyridostigmine mestinon for myasthenia gravis? SIDE EFFECTS: Nausea, vomiting, diarrhea, abdominal cramps, increased saliva/mucus, decreased pupil size, increased urination, or increased sweating may occur. How is myasthenia gravis crisis treated? Treatment of Myasthenic Crisis. The 2 primary pharmacologic therapies available for myasthenic crisis are intravenous immunoglobulin (IVIg) and plasma exchange (PE) (Table 3). A typical course of IVIg is 400 mg/kg daily for 5 days. Patients should be screened for IgA deficiency to avoid anaphylaxis from IVIg. How often is soliris given? It is given as an intravenous (IV) infusion once a week for one month, followed by a fifth dose one week later and then ongoing infusions once every two weeks. Soliris is also FDA-approved for the treatment of paroxysmal nocturnal hemoglobinuria and atypical hemolytic uremic syndrome. Soliris (eculizumab) is a monoclonal antibody. Eculizumab binds to proteins in the blood that can destroy red blood cells in people with genetic conditions that affect the natural defenses of red blood cells. At a cost of more than $500,000 per year, Soliris is one of the most expensive drugs in the world. Can myasthenia cause brain fog? Myasthenia Gravis Unmasked. Contrary to what most doctors still believe, MG can cause short term memory loss, cognitive fog, linguistic and comprehension changes etc... This can alarm many patients who aren't sure if it's the MG or dementia etc. ... I usually encourage patients to look at the constellation of symptoms. Amyotrophic lateral sclerosis and myasthenia gravis are distinct disorders. ALS affects nerve cells that control muscle movement, while MG controls communication between neurons and muscles, which occurs at what are known as neuromuscular junctions. ... Two cases involved patients having ALS and MG at the same time. Does Vitamin D Help myasthenia gravis? A recent pilot study has suggested a role for vitamin D deficiency in myasthenia gravis (MG), an autoimmune neuromuscular disease. In 33 patients with MG, serum vitamin D levels were significantly lower than in 50 controls.Jul 10, 2012 Can myasthenia gravis cause shortness of breath? Myasthenia gravis crisis Symptoms include shortness of breath and breathing problems. This is a medical emergency that needs hospitalisation and prompt medical treatment, including the use of a ventilator to assist breathing. Some of the triggers of myasthenic crisis include physical stress, pregnancy or infection How does myasthenia gravis affect swallowing? Severe jaw weakness may cause the jaw to hang open (the patient may sit with a hand on the chin for support). Swallowing may become difficult, and aspiration may occur with fluids, giving rise to coughing or choking while drinking. Liquids are more difficult to swallow than solid food. How common is ocular myasthenia gravis? Among patients with myasthenia gravis (MG), 75% initially complain of ocular disturbance, mainly ptosis and diplopia. Eventually, 90% of patients with MG develop ocular symptoms. About 50% of patients present solely with ocular symptoms, and about 50%-60% of these patients will progress to develop generalized disease. Does myasthenia gravis affect sleep? [Conclusion] Some studies of patients with MG show that patients with MG are associated with poor sleep quality, excessive daytime sleepiness, presence of restless syndrome, and a higher incidence of SDB, while other studies do not report such associations. What does prednisone do for myasthenia gravis? As an immunosuppressant, prednisone works by “damping down” the activity of the immune system, reducing the production of antibodies and helping the transmission of messages from nerves to muscles. This is thought to improve muscle strength, weakness, and fatigue.