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I have long covid I feel like I'm die-ing

I have done everything and then some on his list. Nothing works

It has been 4 years for me now. While I got much better than in the beginning, it's still not full health and combining school, student job and personal life is still a huge challenge due to this. Moreover I still can't do any sports, I can only go for walks or do 15 minutes of low intensity exercise like walking on slackline or doing yoga... I really miss running, I really miss the feeling of having enough energy for one's day

I've had a very similar experience since getting Covid February 2020. It took at least 5 to 6 months to get back on my feet, but I still had deep fatigue, shortness of breath, post erertional malaise, headaches, and muscle weakness. I got it twice after, so lots of the symptoms got worse again and continue more or less from week to week.

I’ve tested positive Covid 3 times in the fall of 2022, 2023, and 2024. I’ve had 4 Pfizer vaccinations starting when first available. Two to three weeks after a negative test each time, I started experiencing long Covid symptoms. First bout probably the worst with waking in the middle of the night with BP up to over 200/90 and inability to sleep. Thought I was having a stroke one night when my body went totally numb. I would drive to the ER and just hang out until the BP somewhat normalized. Second bout of Covid left me with h-pylori and the usually lack of sleep and BP issues. This round I am experiencing consistent high BP and gut issues. Altering my diet in attempt to expedite restoration. My GP doctor said to monitor the BP and there’s nothing that can be done about long Covid at this time. I’m coming up on 76 years old next week and also visiting a naturopath. The most any doctor seems to be capable of is treating symptoms. I’m still doing my hot yoga and music but it’s definitely a challenge to feel normal these days. Prayers to all suffering far worse than I am. 🙏🏻💙🙏🏻

I tested positive on december 24th 2024 and i still have the gastro issues and like the up and down of symptoms its just horrible. I got a drs appt tmrw 1-14-2025

Hi, I am 23 months in. Complete life changer like with so many. Primary symptoms are severe fatigue, light headedness and heart palpitations. Low Dose Naltrexone has helped reduce symptoms somewhat. I found Hyperbaric Oxygen Therapy very ineffective after 8 sessions I packed it in. I find when I am more fatigued my neck and shoulders get really stiff also - assume inflammation. I go to massage therapist during the bad cycles and that does give some relief. It feels like time is the only healer and that kicks in for the lucky few. All the best from Ireland.

Great video to bring Awareness but We All just Want our Pre Covid Lives back ! ! ! Fk man who is going to be held Accountable for this virus??? Anyways. If anyone has pointers on any breakthroughs let eachother know Please 🙏 God Bless Us All

Brain fog, can’t focus and lost taste and smell. 2.5 years

COVID still exists in 2025 January

Is having a cold feeling in your throat and gagging when you cough a sigin of long covid as I've had since September last year

Just got a positive fainted line, and started bleeding a little a night! Really worried

Music is way too loud to hear the info

I had this illness since December 2020 im still same just when i go hyperbaric oxygen therapy make me good just for 1 day then all symptoms coming back i have start gluten allergy cafein allergy not showing allergy literally in hospital check but when i take this im getting crazy about my brain i feel like a im getting die i cant breathe my blood pressure is going down or very high still no one found any treatment 😢

Thank you

*PolyBio Research Foundation* is ahead of everyone else…there is viral persistence in tissues (reservoir), reactivation of dormant infections, and gut, micro, biome alterations that have catastrophic effects.

Gain of function enhanced virus. It is far worse than what you surmise. Designed to inhibit mitochondria and effect microbiome, blood vessels and neurology.

Here’s my story: In 2021 April and May, when I got two shots of Moderna, felt a bit sick and was fine 1-2 days later. In summer of the same year, I also got COVID. I recovered again in a couple of days. Until November of this year I was the best shape of my life athletically. I was able to do most advanced calisthenics fitness exercises. At the end of year, I felt like I kept getting tired quickly and was struggling doing my push-ups. And exactly that time when I started doing exercises my feet and hands were getting extremely itchy. Same thing was happening when I was getting in a hot car next summer. I also had a few episodes of heart palpitations and pounding as if I was going to have a heart attack. All the blood tests, imaging came back perfectly fine. I also had shooting pain around my right knee, some more shooting pains in my feet or hands. 3 years later, I am still researching and trying to find answers. I’ll not give up until I find the answers. Love and respect to everyone who has been struggling.

I ain’t falling for this shit again.

Blocked channel: UT Health Austin

It all relates to genetic connective tissue disorders too, such as EDSh

I can't get anyone to believe me or test me for autoimmune disorders or anything. All I get is it's anxiety go see a psychiatrist. I have severe tremors in my right hand and they go up into my neck and head, a lot of time my legs go to feeling numb but a chill feeling with it also then the shaking starts. All this long Covid has completely destroyed me and my life, and my vision. EVERYTHING!!!! I AM SO DISGUSTED WITH THE WAY I AM GETTING TREATED BY DOCTORS. IF ANYONE KNOWS WHERE TO FIND HELP PLS LET NE KNOW. I AM TIRED OF THE SUFFERING!!!!!! I HAVE A LOT MORE GOING ON FROM THIS BUT ITS WAY TO MUCH TO LIST. I PRAY 🙏🙏🙏🙏 FOR HEALING OF ALL OUR FLESHLY BODIES WHO ARE SUFFERING IN THE NAME OF JESUS CHRIST YESHUA, THANK YOU !! AMEN.

Knowing this, what's the treatments to cure symptoms @uthealthaustin4585 ?

I was a patient of his and I’m slowly getting better 🤍 I have suffered since early 2020 and I pray one day I have myself back

Supplemental oxygen therapy using a concentrator, really helped.

Vascular issues. Livedo reticularis.

Please share your thoughts on Hyperbaric Oxygen Therapy to address fatigue and brain fog

And like most of these numbnuts, this Dr basically said a whole lotta NOTHING. Good job, buddy 👌🙄

Wow, don’t over do yourself and don’t push through it? My idiot doctor who basically thought I was lying told me I need to push through it. Guess how well that worked out?

This video has been really affirming- my 24 year old daughter has been dealing with varying and chronic health issues for more than a year now and with practioners that don't seem interested in getting to the bottom of why she keeps coming in with illness and often. This is actually describing her symptoms and I only wish other Drs were trained in looking for this!

Lock up Fauci. Lock up gates They’re responsible for this.

“Long Covid.”

I have so many neuro symptoms Most you mentioned, but a few that Weren’t mentioned I am 59 years old and have an autoimmune disease for 40 years ( ulcerative colitis). I have been taking a biologic medicine since 2017. I had my first Covid in late July 2021. I had a pretty mild case compared to others, so I thought. I did lose my taste and smell, and then it returned pretty normal and then three months out, I started having terrible smell and taste issues where everything was distorted. ( October) Parosmia - many foods and even body fluids, don’t smell like they used to. They smell rancid or now, after 4 years of having these smells, I call them my “Mystery smell”. Used to be many many things that all smelled the same. Now it is mainly onions, ( even onion powder in foods and sauces), coffee, and biological smells like poop, my urine and my body odor, all smell different to me. I have read that it is usually the Olfactory nerve that has been damaged and causes this. The next thing neuro things that have been so heightened, are smells like air freshener and perfume. If someone sprays something in my home, it bothers me so much that I can hardly stand it. These scents used to be comforting and relaxing to me, but now they are awful. My eyes - they are blurry when I get tired and sometimes, all day. My feet are always freezing ! The peripheral nerves in my feet must be not getting enough blood. I don’t know, but I always have to have slipper socks on sometimes also a blanket. Sometimes my whole body is cold, where I stay in a sweatshirt all day long. I had a time, for about nine months where the tendons in my forearms were not able to stretch, and I was not able to extend my wrists backwards. Those were diagnosed ( just guessing) as eosinophilic fasciitis. There wasn’t too much they could do for it. I tried OT, we tried High dose steroids and methotrexate. I have terrible brain fog where I can’t remember things that are people have told me. Many times. I don’t remember whether I did something or not and I have to go back and look again to see if I did. This is especially common when I’m working on the computer, I have to Follow back and make sure that I did something and I almost have a panic attack when I think about it and think I haven’t done it and then I go back and check in. In fact, I did do it, which calms me down, but it disturbs me that I can’t remember that I did it. I can’t remember conversations sometimes, or I can’t even follow a conversation. If I’m doing anything else that takes my attention away, I don’t hear what people say. People get mad at me because they think I’m not listening to them. When in fact, I don’t have any control over not being able to follow along or remember what they are saying. I have often, chronic headaches for weeks on end. I am slugging on the couch most of the time because I don’t have the gumption or the motivation to get up and do anything. Many times I don’t get dressed all day. I just sit around in my slipper socks and my sweatshirts and work from home. I get short of breath when I go up and down steps too often, or walk longer distances. I am often moody, or I just sit quietly and watch TV to stay away from people. They constantly get upset because they don’t understand what’s going on with me. They just think I’m lazy and I don’t wanna listen to them or I don’t care about what they’re doing or saying. It’s put a terrible strain on my personal relationships. After my second booster for Covid I developed shoulder pain in my bicep where they gave the injection and that went on for a year. That pain would not go away. I had numerous steroid injections into my shoulder joint. I had physical therapy and massages and everything I could think of to try to help my shoulder feel better and it just wouldn’t. Nobody believe that it was caused by the vaccine into my arm, but it immediately started as a sore arm after my vaccine, and then just stayed there. It finally went away after two or three steroid injection straight into the joint. But I am convinced that it was caused by that vaccine, that time. My hair has also thinned out tremendously over the last 4 years. I think that is about everything.

Patients with which variant gets better? From all the LC groups I'm on, I read that people with the 1st variant mostly stay sick and get worse. Those with later variants do get better, but relapse again. Please, please, please stop saying MOST patients get better without full context. How do they get better, what changes, do you track that they don't relapse? Did their bodies magically overcome the viral persistence? If so, how and why? I got Covid in July 2020 and never recovered, but could still function. Again in July 2021, 2 vax's, got much worse, Covid in November 2021. Everything just got much worse since then. Also have POTS. I haven't been able to work since Nov22, bed-bound, on oxygen, in constant excruciating pain, severe cognitive impairment, GI issues, etc. Get severe PEM from any activity: conversation, reading, phone call, short walk, shower. I get up and do things, knowing the consequences. But, I refuse to let LC win.

This is so well-done, and thank you for creating this comprehensive guide for patients and friends/family members. I’ve had LC for almost 23 months. I had hoped to have surmounted it by now, but it might be that another unrelated health issue slowed my recovery. My infection was in 2023, and I’d had every vaccine available, and paxlovid in the acute phase, so I’m not among the worst-afflicted, but I have all the most common symptoms, and it has been life-changing. I hope but do not expect there will be major breakthroughs in understanding and treatment in my lifetime. Thank you for making this guide for me to share widely.

Thank you for this video. It is really helpful to hear the truth and see a way forward.

I’m curious how many people with long COVID here have gotten the mRNA shots. I don’t know if there’s any correlation.. but I’m trying to figure out anything I can for my poor wife who’s been dealing with this for a year now. She got three shots.

4 years of long covid and multiple infections. I suffer from fatigue, brain fog and depression. The best treatment I found is Piracetam for depression, Magnesium glycinate for anxiety, Curcumin for better mood and food that has high antioxidants

Everyone who hasn’t already tried: try Nattokinase & Metformin (if you can’t get it Rxed, Berberine is the natural form of Metformin, but look at who can’t take it)

Just not hot yoga. My studio can get to 105 F and sometimes over and while my body was used to it, I felt it to risky so I put my membership on hold as soon as I found out.

It's been 3 years and multiple positive Covid infections on the job as a nurse, now kicked to the curb 😢 100% accurate description here I'm afraid my life will never be the same.

2 years ago (Nov 2022) I had covid for the second time. It was very short, but very nasty. Literally 24hrs I was bed ridden barely conscious. Then in the morning, I woke up feeling great. Within a week or two I started noticing numbness on my lips/face, as well as pins and needles in my feet, those symptoms disappeared after a few weeks. Not long after that my hands started going numb at night when trying to sleep. I was very concerned and spent a good year trying to get a diagnosis (I have not had an MRI of my brain, but I have had ultrasounds and x-rays and even a cat scan in that time) I haven’t had a nerve conductivity test done either. I was diagnosed first with thoracic outlet syndrome (which is it true, I do have awfully tight scalenes and have for a very long time due to chronic anxiety) Then my doctor said, well you have tennis elbow (in both elbows?) then well you have cubital and carpal tunnel (in both hands?) basically I have a nerve condition, with nerve symptoms. I stopped going to my GP when I realised she really had no clue and could not offer me an answer. I was spending too much money, for no answers. Basically, I can’t exercise anymore, I can’t even walk my dog for more than 20 min per day, without my symptoms being exacerbated to a point where I get no rest. I have an internal buzzing in my limbs almost constantly. My shins and my forearms hurt almost always, but to a point where I can’t get to sleep at night, and, if I exert myself too much during the day (living anything other than a very gentle and quiet existence - ie impossible) then I will have numbness and tingling/buzzing in my hands when trying to sleep at night. I have had my spine x-rayed, I think I even had a CT scan of it. It all started when I had covid, and it’s taken a while to accept that maybe this damage to my nerves from covid. At first I continues exercising, and I had dead floppy arms all night every night, but I slowly realised that exercise was making it much much worse. So I went from being an active 37yr old, to being a pretty inactive 39yr old. It makes me so sad, I miss being active. I can’t even do yoga. It seems to be some issue between my muscles and my nerves, and anything that puts stress on my muscles or nerves, will cause me to have weeks worth of sleepless pain-filled nights. I have seen many types of “professionals” to attempt to heal; Physiotherapists (x2), osteopaths (x2), chiropractors (x2), TCM practitioner, massage therapists (multiple), naturopath, hypnotherapist, 2x psychologists. As well as scans, x-rays, blood tests, heart monitoring etc etc etc. It’s been a long 2 years. I do have other symptoms such as fatigue, tinnitus (started at the same time as the numbness and tingling), brain fog etc, but I was diagnosed with fibromyalgia years ago, so it’s impossible to differentiate symptoms of that and what I believe is long covid/covid damage. I am unva**ed. I am about to try ivermectin and fenben. I do no see improvement over time. In fact, it may be progressing, although it may just be staying the same, but I can’t determine that really.

My SPO2 runs 90-91 at rest, 93-94 trying to be active. My CO2 gets high, the Tinnitus I never used to have gets worse. Then the Brain Fog. Some days aren't as bad but there's no consistency in activity level/time equals hitting the "Wall" or being wiped out for days. I use a BiPAP on it's lowest setting as I can't push against a CPAP on it's lowest setting. More than 6 hours a night on BiPAP wears me out the next day. I'm now 100 lbs overweight, eat twice a day, not healthy but not trash or excessive fats and processed foods. Grass fed beef from friends of my daughter, Venison, Grandson raises Chickens and Hogs so no hormones. I REFUSE to take any more steroids to get rid of any respiratory illnesses. The incessant coughing at times, the sporadic racing heart at times of inactivity to get more Oxygen in and CO2 out worries me. At 64, not able to work even part time, on Disability and struggling more every day which adds to the stress of life itself I think and feel will lead to a much shortened life. I don't want to be an experiment, I don't want the impossible. I don't know what else can be done but accept each day of life as it may be, good or bad.

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It was a good presentation, but the truth is we're slowly dying a slow death it's Dec 24 and those numbers have gone up not down BECAUSE Covid is still around and if you get it more than once the viral load replicates. I get the depression part, but that's not from the circumstantial art, It's because we're sicker than dogs fighting for our life 😭😭 only if you've experienced it would any one understand but I least I could understand you trying to understand English speaking drives my brain crazy

I got covid in 2021 and it almost killed me, since then I have breathing problems fatigue and weakness my doctor have no idea how to deal with it.

Long COVID is from getting vaccinated with Pfizer or Astra-Zeneca after infection. Period. Long COVID is a COVID vaccine injury. DO NOT keep vaccinating. My mother died after beating COVID naturally with no jabs, and then, the nursing home demanded all patients get three more shots, 1 per month, and she died with swollen lungs in 2.5 months.

Have you seen recovery from POTS?

This disease has destroyed my life and the ongoing gaslighting and apathy from doctors has destroyed my faith in healthcare. The day there is a conclusive test or treatment I will cry for a long time of relief.

I took part in a medicine trial via my local hospital system. It was overseen by Mayo Clinic. There was the choice of 2 “tracks” a mental/brain fog and then a physical symptom/fatigue track. Lots of safety blood work over the 6 months. The brain fog has mostly lifted. I would love to find a long Covid clinic to help get my physical strength back.