Відео

I have one to.

24 years old and just had a revision earlier this month

Hi Little Jo! Thanks for sharing your story. My daughter has hydrocephalus. She has a VP Shunt. We are in Australia and there isn’t a-lot of information for us to learn from. This is a great video, thank you again!

hi i just want to ask what is your activity when you are pre school? with a shunt? thank u

I was in special classes too.

I was diagnosed with this in August 2022

Thanks for this. I actually have pseudo tumor cerebri and just got a shunt 9/26/22. I go tomorrow because my stomach incision is super swollen kind of looks like a hernia.

I have a vp shunt I just had 3 brain surgeries in the span of 2 months

Hello, I have hydrocephalus, I saw the video, your story is similar to mine, and I wish you recovery while you are strong 💙💪🏻

Amen! Count our blessings! Absolutely!

This was/is a very informative video! Thankyou! I'm 36yo, I was born with hydrocephalus. At 35yo I was diagnosed with brain cancer and they found hydrocephalus. They put a shunt in. I really appreciate this information. The drs can only tell me what they're taught, but it's good to hear it from someone 1sr hand. God bless you, and I hope you are OK!

I wanna know ..after vp shunt surgery what are the problems to face during first pregnancy??? I'm worried..when I thought about😥

I have a vp shunt I am living my life normally and am so happy for my life!

Hye.my son is also suffering from this disease . a VP shunt has placed when he was two months only now he is 8 months old but he is facing difficulties in sitting and he can't hold his head properly .can a shunt remove permanently

hii JO how are you now?? hope you doin' great 💖💖💖

Iam hydrocephalic but mine totally cleared it's a miracle in my lifs

My brother has a vp shunt but he also had heart surgery due to some other complications which affected his ability to think, talk, walk and process everything like other normal people. So he can’t tell that well how it feels to have vp shunt. I want to ask anyone/everyone with vp shunt surgery to share with me any lifestyle related issues that occur due to vp shunt. For example, as you said you can hear it dripping. This type of information will be greatly appreciated. I just want to know what my brother is going through and help him.

Thank you sharing it. You are really a brave person. I yet to gain that courage to start sharing hydro condition of my 40 day old son.

I was shunted at 21 days, I have had 45 major operations to my credit, landed in the ICU twice, and the list goes on.

Thank you so much for speaking out and helping others it means alot i have the same thing and am getting ready for vp shunt surgery!!!

You are not alone. 50 yr old female born with Myelomeningocele Spina Bifida/Hydrocephalus/Arnold Chiari Type II. Had my first shunt put in at 2wks old(1970). First shunt failed, so revision was done, also in 1970. 46 years later(2016) my shunt failed and the hydro in my head started building up and a brand new shiny programmable shunt was placed into my head. That one failed in 2017 and another shunt revision was done. 2018 I had a decompression surgery done on my skull because of my Arnold Chiari.

I have a VP shunt too.

hi my wife has a vp shunt in place and she has very bad headaches shes 57 now

I have the same thing you have

I will be your friend

I have a wheelchair too

I have a vp shunt too

Hi sweet girl! I know this video is a few years old and not sure if you read the comments anymore but I, like many other commenters, too have hydrocephalus and a VP shunt. I’ve had mine since about 6 months old and I’m 32 now. I didn’t have my first revision until shortly after my 30th birthday which was quite the miracle, but have had I think 5-7 revisions in the past 2 years. So, as you can see, I went from a very stable hydrocephalus patient to rather unstable quite quickly, which has made for an incredibly challenging few years. I actually just had my last revision 4 days ago and am thinking of starting a blog to chronicle my journey through my various surgeries the past two years and more than likely in the future. I’d love to hear an update on how you’re doing and potentially chat about our hydro lives if you get a sec! You are such a brave young girl and I would love to share our strength! :) - Emily

Hello, I have had Hydrocephalus since i was 3. I am now 30 years old and its been 8 years since my last revision. I've never met anyone who has the same condition, but would love to talk to others around my age who have gone through the same or similar journey as me. I live in Toronto, Canada.

Hi my name is Rachelle I was born vp shunt cents I was a baby and my first surgery I ever had cents I was a baby was in 2010 cents thn I have the same shunt in cents thn and I'm 27 yrs old now and had a baby in 2015 and I have fluid on my brain and it drains 2 the lining of my stumach I always tht I would not be a normal kid and have a family of my own and I always thought with a vp shunt tht it would stop me from being a mom or getting pregnant I'm ever nervous about people knowing this cause I always thought they would make fun of me and i was even scared 2 tell my boyfriend about it even though we were dating cause I don't want a alot of people 2 knw

I have hydrocephalus too I recently had a stroke

I have a shut also my kind of hydrocephalus is acquired meaning I wasn’t born with it it developed at three months mines came from a blockage fatty limfoma over the left eye I had eye correction back in 2003 as a child I’m blessed insha Allah I haven’t had a problem since I’m 28 but I’m up on it I know all about it and I’m plan on finding A cure for it my head isn’t that big I just have a big for head which adds on to it as big for heads run in my family but I’m going to go for my next appointment soon

Hi I just heard u say that u can hear ur shunt working sometimes what is the sound like 🙂

Good luck!

Love seeing Hydro videos...reminds me how I'm not alone. I was born with hydro and I'm 45. My last surgery was in 2002

I'm 38 and have a vp shunt and spinal bifida. After my last revision last year I have been getting those headaches everyday which I don't remember ever experiencing as a kid

I Had surgery for shunt placement at age 2 and a half. I had 4 shunt revisions over the years

I was born in 1980 I have a vp shunt and hydrocephalus and spinal bifida

Oh so having a large head after vp shunt is common

How would you understand your shunt was failed? Pleass answer me.

Marie Boullemier - I had normal pressure hydrocephalus for over 3 years until I was operated on by this wonderful neurosurgeon matthew garnett who fitted a shunt - and suddenly I got my life back big time.

I read all these stories about people born With hydrocephalous, has anyone acquired hydro in their adulthood? I had my first shunt places at 25 years old. I had a revision in 2012 and now scheduled for another revision in 3 weeks.

Thanks for sharing ❤️

Ii really appreciate u plz tell me precaution nd how to live with vp shunt life style routine all about

God bless you! thank you for sharing your story.

Hi

i have the exact same thing were so strong

I'm 26 and I have a shunt in the back of my head I've had 22 major operations on it and I was premature when I was born I weighed 1 pounds and 12 ounces and I can relate to you I've been in Special Ed my whole entire years of being in school I couldn't really play any sports and when I did play sports I had to be really careful not to get hit in the head I've played soccer I played basketball baseball and on top of that I was also in weight training and I'm still looking into that about the weight training because I was always told that I could never work out on my abs and that it would tear up the cord or something I'm still looking into it trying to figure it out my last surgery I had on it was 2001 on new year's Eve and it's been working ever since and tbh I don't know when itll expire it scares the hell out of me when I go to to operating room

Can we start to discuss on this and get permanent solution of this.

My shunt failed 3 times can anybody tell me how can I treatment permanently