Відео

Does anyone know how to change the playback speed on UA-cam shorts? That would really help.

It sounds like you have found a way to notice if you're dismissing (as "just tired") a physiological or emotional state that may need some analysis. Thanks for sharing that tip. It's possible that these states are *also* making you tired or increasing fatigue. This happens to me, anyway. Best wishes to you, and thanks for your videos.

I have the opposite, pretty much complete aphantasia. I can at least have tinny audio in my head at a quality nobody would ever pay for, but visual aphantasia, pretty much absolutely total, and to a large degree, my other senses aren't something I can imagine, either. Figured that out last year, after unintentionally grossing out a coworker who doesn't have aphantasia.... 😅😅😅 I can easily win gross-out contests where it's just descriptions, a blind date biology student challenged me to one at a formal dance/dinner 🤣🤣🤣

I've caught a few of your podcasts (they're all great!) and your intro music makes my brain so happy. 🥰 Do you have a link to it so I can look for a longer version of the song?

I'm one of those older ones with the obsolete label, diagnosed in 2002 at 31, unexpectedly. In practice, "support level 1" is, at times, an aspirational thing depending on the person. There are too many variants for saying all with that previous term are support level 1, and that's not even taking into account the factors of how stressed someone is, which I've observed results in increasing support level needs, which hopefully will go back down once the reason for the stress is resolved. Me? I'm without any form of mental illness, and frankly, I don't believe mental illness should be lumped in with neurodivergency along with autism, etc., as that clouds things into the wildness that happens inside tornadoes and nobody can make sense of what happens. Given that, I'm neurodivergent 7 different ways as I understand the definition, and several of those regularly disable me from certain expected levels of function, others, not so problematic. But for me, failure isn't an option with my list of disabilities of their various issues and strengths, they're a standard part of my daily life since I was born. I'm as successful as I am both because and in spite of them, and I feel that constant failure on a daily basis because of them has helped me be far more resilient as a result, because I figured out extremely young that if everything goes perfectly, I should be concerned that I'm dreaming (not daydreaming, aphantasia makes that impossible) and something is about to go wrong 😂! Part of my reason for despising mental illnesses as part of the larger neurodivergence group is that it waters things down into being so vague as to having no practical value. Having been in special education where those with behavioral problems were put into the same classes as those they're most likely to cause problems for, it's just bonkers. No amount of psychological/psychiatric therapy could ever help my disabilities, I was born wired that way. No drugs can "fix" them, either. The one thing I do have where drugs can help is ADHD, but even that has limits, and it's not outside of the realm of probability that due to health issues and neurology/physiology, there's no feasible drug options for that for me, as my neurology is wild enough that I tend to have the atypical results to drugs of many types.

I haven't given this as much consideration as you evidently have, and while it's a cute word it never caught on for me personally anyway, but yeah. something to consider for sure. Tell you what though, lately I have come across takes ostensibly from the left to the effect that the whole idea of neurodivergence is bunk and ableist. Well, they present it as a critique of over-diagnosis, or over self-diagnosis, but if it's not thinly disguising a wish to dismiss lower support needs neurodivergence as being a thing, it's certainly resonating with those who would like to do so. And again, it positions "real" disabled people and their care givers against those who are just "awkward" or "want to be special."

It really just creates more confusion when using this term. I’m definitely not for made up words, and prefer using accurate descriptors of things.

Thanks for speaking about this i feel the same

Yes, this. I am surviving and make sure my children survives too. I must prioritize home and fsmily, which means I don't have more energy left for work and therefor depented on my husband and my mother. I am functioning, but not high function. It can all seem well for a while and then boom I go back to "lazy"/"selfish" me again and the hate is strong. It is hard to get understanding when it sits in your brain. And I don't want to scare people away. It is so hard living.

Thank you for tis video, I bought the book low demand parenting. I discovered that My daughter fits in this profile, she is 17 and recently diagnosed ass. It gave her a lot of problems to function in the world, although I respect her autonomy. In the Netherlands there is now 1 diagnose for autisme named ASS. But within this spectrum there are a lot of differences, means different ways of helping these kids. I am spreading the word in different groups to let people know about PDA, there are so many kids struggling, not knowing about PDA. Thanks for the information, greetings from the Netherlands ❤️

This explains problems I've had so well, it was always hard to explain to friends why I have issues starting tasks that I ACTUALLY enjoy, like reading

I don't know if this makes sense but is it possible to experience both? In one side of my life I feel overstimulated and in another I'm not getting what I want out of life

This is amazing!! Love the reference to the article

Thank you! I was wondering if there is someone neurodivergent who experiences this like me

Very relatable on all levels. Prob need to put a mirena back in.

Man, the intro music you use so stimmy.

I can’t thank you both enough for having this conversation. I carry so much guilt, and fear of judgment on how I parent my pda son, it feels amazing to be validated. ❤

❤ thank you. This is validating and soothing. Needed it today 😢

3. 14:15 I have checked out the books by Rachel Bedard, and they seem to be about children and youths. I believe you are referring to our book Spectrum Women: Walking to the Beat of Autism (JKP, 2018) with many voices including mine. The medical commentary was provided by Dr. Michelle Garnett, not Bedard.

I have no diagnosis, but I got a robot cleaner. I can set it to when I left, or I can let it vacuum, when I am out. Only works when u put up small things before, but helped me SOOOOO much, got a relatively cheap one and am so glad! Hope this can help. (Btw. I think he will remember u for the unvacuumed floors and to me that is beautiful for real, because they have a distinct thing to remember you by)

Thank you so much for this! I really think this is such an important reminder how necessary it is to look for the similarities, not the differences. The similarities are what unite any diverse community. The differences are the catalysts which keep us well researched and humbled.

I thought you were different until I went to website.

I stopped the video and discontinued watching when I kept hearing "people" who menstruate. It's *women* and women only.

What is PDA?

Wear ear plugs to vacuum, or earphones with music or white noise or water sounds instead, after making sure you are safe by locking the whole place up so you don't need to worry.

Is there a resource for a parent with PDA dealing with. Child who also has PDA?

I appreciate this so much!! I had so much the same experience. The shutting down is so devastating. (Stop eating talking playing dancing! No smiles) then I stopped forcing anything after two weeks she finally started to play again. I’m just starting my pda research. It’s been such a struggle with teachers and therapist.

I hope you find the help you need.

Thank you❤

Thank you 😊

Was your husband onboard to this different way of hands off parenting? How many hrs per day do your children stay on screens now? Do you not limit their choices if they are harmful? Children don’t know many things when young?

This was such a wonderful conversation 🩷 I felt emotional many times throughout it, feeling such joy for the beauty of this community ✨️🌿

Thank you for the video 🌻

💓

This makes a ton of sense to me, and really interested to hear about this article and research. I'm struggling to get to grips with a late diagnosis of both myself (ASD in 2023, ADHD a year later) and having both definitely seems to have significant variations to just one condition or the other. I do wonder if AuDHD will become a distinct diagnosis in time. Really interesting to hear about this, thanks.

sooooooo confused but oh well

my experience of autistic inertia: as a kid I was always upset and hesitant whenever we had to go to someone else's house to visit, but by the time it was time to leave, I was the one who wanted to stay and play longer and didn't want to leave

This was super helpful. Thank you, so much!

I'm autistic, always watch videos on 1.5ish speed with captions and just read, it works way better for me in understanding and not getting distracted

I remember a health visitor de said my son is very controlling 🙄

Thanks for sharing!! I often listen to music and snack while I work, especially when I'm doing something monotonous.

I think that my eight year-old granddaughter has undiagnosed autism and PDA my son and daughter-in-law are trying to use authoritarian type discipline, and it is just destroying their family life. I wish I could find a way to tell them about PDA without offending them. Any suggestions?

Thank you for this video. I'm really looking forward to the series. I'm someone who is currently in burnout and trying to figure out my recovery needs with little external support. Also, so sorry to hear of your miscarriage. I'm glad you've been able to figure out how to care for yourself as you work through the multi-faceted struggles of being a neurodivergent person dealing with life-upending trauma/stresses.

i felt like an adult at 3... and like the teacher in kindergarten....but i felt like a 5 year old in adulthood...

What about those of us who have had that sense of justice all our lives and only later discovered that we are autistic?

I have two modes: On/Off. Once, after a devastating flood, I spent 62 straight hours, on my feet, saving property. There was nowhere to sit. I saved hundreds of flooded photos. I was all alone, with no distractions. What a gift.

yes!! and i actually had trouble concentrating with what you were saying at the start and then you started speaking fast i actually understood you more 😂

It sounds Iike an abusive marriage.